Henry T Greely

Henry T Greely

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Henry T Greely

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Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons.

J Law Med Ethics 2019 Mar;47(1):12-20

Amy L. McGuire, J.D., Ph.D., is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Dr. McGuire serves on the program committee for the Greenwall Foundation Faculty Scholars Program in Bioethics and is immediate past president of the Association of Bioethics Program Directors. Mary A. Majumder, J.D., Ph.D., is an Associate Professor of Medicine at the Center for Medical Ethics and Health Policy, Baylor College of Medicine. Angela G. Villanueva, M.P.H., is a Research Associate at the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Jessica Bardill, Ph.D., is an Assistant Professor of Indigenous Canadian Literatures and Cultures at Concordia University in Montreal, Quebec. Juli M. Bollinger, M.S., is a Research Associate in the Center for Medical Ethics and Health Policy at the Baylor College of Medicine and a Research Associate and Associate Faculty at the Berman Institute of Bioethics at Johns Hopkins University. Eric Boerwinkle, Ph.D., is the Dean of the University of Texas Health Science Center at Houston, School of Public Health and the Associate Director, Human Genome Sequencing Center at Baylor College of Medicine. Tania Bubela, Ph.D., J.D., is the Dean of the Faculty of Health Sciences at Simon Fraser University and a Fellow of the Canadian Academy of Health Sciences. Patricia Deverka, M.D., M.S., M.B.E., is Director, Value Evidence and Outcomes at Geisinger National Precision Health, where she focuses Outcomes at Geisinger National Precision Health, where she focuses systems and policymakers. Barbara Evans, MS, Ph.D., J.D., LL.M., is the Mary Ann and Lawrence E. Faust Professor of Law and Director of the Center for Biotechnology & Law at the University of Houston Law Center and holds a joint appointment as Professor of Electrical and Computer Engineering at the UH Cullen College of Engineering. Nanibaa' A. Garrison, Ph.D. (Navajo), is an Assistant Professor at the Treuman Katz Center for Pediatric Bioethics at Seattle Children's Hospital and Research Institute and at the Department of Pediatrics at the University of Washington School of Medicine. David Glazer is an engineering director at Verily Life Sciences, where he helps life science organizations use cloud computing to accelerate and scale their work with big data. Melissa M. Goldstein, J.D., is an Associate Professor in the Department of Health Policy and Management at the Milken Institute School of Public Health at the George Washington University. Henry T. Greely, J.D., is the Deane F. and Kate Edelman Johnson Professor of Law and a professor (by courtesy) of Genetics at Stanford University, where he directs the Center for Law and the Biosciences. He is President of the International Neuroethics Society, co-chair of the Neuroethics Work Group of the NIH BRAIN Initiative, and a member of the National Academies' Committee on Science, Technology, and Law. Scott D. Kahn, Ph.D., is the Chief Information Officer at LunaDNA where he is responsible for all informatics and data science strategy. Bartha M. Knoppers, Ph.D., (Comparative Medical Law), is a Full Professor, Canada Research Chair in Law and Medicine and Director of the Centre of Genomics and Policy of the Faculty of Medicine at McGill University. Barbara A. Koenig, Ph.D., is Professor of Bioethics and Medical Anthropology, based at the Institute for Health & Aging, University of California, San Francisco. She also serve as Director of the UCSF Program in Bioethics. J. Mark Lambright, M.B.A., is the Chairman, Trident Advisors, LLC - CEO (Interim), Private Access, Inc. Mark Lambright has been a senior executive of a number of healthcare and technology companies ranging in size from startup to multi-billion in revenue. John Mattison, M.D., is Assistant Medical Director, KP, SCAL, Chief Health Information Officer. Founder of CDA/CCD (XML standard for healthcare interoperability). Co-Editor of Healthcare Information Technology (2017 McGraw Hill). Christopher J. O'Donnell, M.D., M.P.H., is Chief, Cardiology Section and Director, Center for Population Genomics, of the Boston VA Healthcare System and co-Principal Investigator (Chief Scientist) of the national VA Million Veteran Program; and is VA Contact Principal Investigator of the NIH All of Us Research Program. He is also a faculty member of the Department of Medicine, Brigham and Women's Hospital and Associate Professor of Medicine, Harvard Medical School. Arti K. Rai, J.D., is the Elvin R. Latty Professor of Law and co-Director of the Center for Innovation Policy at Duke Law. Laura L. Rodriguez, Ph.D., is the Director of the Division of Policy, Communications, and Education at the National Human Genome Research Institute. Tania Simoncelli, M.S., is the Director of Science Policy at the Chan Zuckerberg Initiative. Formerly Executive Director, Count Me In at the Broad Institute, Assistant Director of Forensic Science and Biomedical Innovation, White House Office of Science & Technology Policy, and Science Advisor to the American Civil Liberties Union. Sharon F. Terry, M.A., is the president and CEO of Genetic Alliance. Adrian Thorogood, B.C.L./LL.B., is a lawyer and Academic Associate at the Centre of Genomics and Policy at McGill University in Montreal, Canada. He manages the Regulatory and Ethics Work Stream of the Global Alliance for Genomics and Health. Michael S. Watson, M.S., Ph.D., is the Executive Director, American College of Medical Genetics and Genomics and ACMG Foundation for Genetic and Genomic Medicine and an Adjunct Professor of Pediatrics at Washington University School of Medicine. John T. Wilbanks is the Chief Commons Officer at Sage Bionetworks, and co-PI on awards for AllofUs Research Program, ELSI Issues in Unregulated Mobile Research, CTSA Center for Data To Health. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University.

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http://dx.doi.org/10.1177/1073110519840480DOI Listing
March 2019

Brain imaging tests for chronic pain: medical, legal and ethical issues and recommendations.

Nat Rev Neurol 2017 Oct 8;13(10):624-638. Epub 2017 Sep 8.

Department of Psychology and Neuroscience, Muezinger D244, 345 UCB, Boulder, Colorado 80309-0345, USA.

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http://dx.doi.org/10.1038/nrneurol.2017.122DOI Listing
October 2017

Is De-extinction Special?

Authors:
Henry T Greely

Hastings Cent Rep 2017 Jul;47 Suppl 2:S30-S36

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http://doi.wiley.com/10.1002/hast.749
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http://dx.doi.org/10.1002/hast.749DOI Listing
July 2017

Neuroethics and the NIH BRAIN Initiative.

J Responsible Innov 2018 5;5(1):122-130. Epub 2017 May 5.

National Institute of Neurological Disorders and Stroke, 31 Center Dr, MSC 2540, Bethesda, MD 20892, 301-496-3167,

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http://dx.doi.org/10.1080/23299460.2017.1319035DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6405257PMC
May 2017

Clinical genomics, big data, and electronic medical records: reconciling patient rights with research when privacy and science collide.

J Law Biosci 2017 Apr 15;4(1):94-132. Epub 2017 Jan 15.

Law School, Stanford University, 559 Nathan Abbott Way, Stanford, CA 94305-8610, USA.

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http://dx.doi.org/10.1093/jlb/lsw061DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5570692PMC
April 2017

Stem cells and interspecies chimaeras.

Nature 2016 12;540(7631):51-59

Salk Institute for Biological Studies, 10010 North Torrey Pines Rd, La Jolla, California 92037, USA.

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http://dx.doi.org/10.1038/nature20573DOI Listing
December 2016

Neuroethics in the Age of Brain Projects.

Neuron 2016 Nov;92(3):637-641

Department of Bioethics, Clinical Center, NIH, Bethesda, MD 20892, USA.

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http://dx.doi.org/10.1016/j.neuron.2016.10.048DOI Listing
November 2016

CRISPR-Cas9 System: Opportunities and Concerns.

Clin Chem 2016 10 22;62(10):1304-11. Epub 2016 Aug 22.

Department of Laboratory Medicine and Pathobiology, University of Toronto, Toronto, Ontario, Canada; Tanz Centre for Research in Neurodegenerative Diseases, University of Toronto, Toronto, Ontario, Canada.

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http://dx.doi.org/10.1373/clinchem.2016.263186DOI Listing
October 2016

The History of Patenting Genetic Material.

Annu Rev Genet 2015 6;49:161-82. Epub 2015 Oct 6.

Center for Law and the Biosciences, Stanford University, Stanford, CA 94305; email:

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http://dx.doi.org/10.1146/annurev-genet-112414-054731DOI Listing
September 2016

CRISPR Critters and CRISPR Cracks.

Am J Bioeth 2015 ;15(12):11-7

b Stanford School of Medicine.

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http://dx.doi.org/10.1080/15265161.2015.1104138DOI Listing
September 2016

Accelerating stem cell trials for Alzheimer's disease.

Lancet Neurol 2016 02 17;15(2):219-230. Epub 2015 Dec 17.

Duke Institute for Brain Sciences, Duke University, Durham, NC, USA; Psychiatry Department, Duke University, Durham, NC, USA. Electronic address:

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http://www.thelancet.com/pdfs/journals/laneur/PIIS1474-4422(
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http://linkinghub.elsevier.com/retrieve/pii/S147444221500332
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http://dx.doi.org/10.1016/S1474-4422(15)00332-4DOI Listing
February 2016

Marginally scientific? Genetic testing of children and adolescents for lifestyle and health promotion.

J Law Biosci 2015 Nov 16;2(3):627-644. Epub 2015 Nov 16.

Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX 77030, USA.

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http://dx.doi.org/10.1093/jlb/lsv038DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5034400PMC
November 2015

Biotechnology. A prudent path forward for genomic engineering and germline gene modification.

Science 2015 Apr 19;348(6230):36-8. Epub 2015 Mar 19.

Innovative Genomics Initiative, University of California, Berkeley, 188 Li Ka Shing Center, Berkeley, CA 94720-3370, USA. UCSF School of Medicine, 600 16th Street, San Francisco, CA 94158, USA.

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http://dx.doi.org/10.1126/science.aab1028DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4394183PMC
April 2015

The strange allure of state "right-to-try" laws.

JAMA Intern Med 2014 Dec;174(12):1885-6

Center for Law and the Biosciences, Stanford University, Stanford, California.

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http://dx.doi.org/10.1001/jamainternmed.2014.5767DOI Listing
December 2014

Academic chimeras?

Authors:
Henry T Greely

Am J Bioeth 2014 ;14(2):13-4

a Stanford Law School.

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http://dx.doi.org/10.1080/15265161.2014.871920DOI Listing
June 2014

23andMe, the Food and Drug Administration, and the future of genetic testing.

JAMA Intern Med 2014 Apr;174(4):493-4

Center for Law and the Biosciences, Stanford University, Stanford, California.

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http://dx.doi.org/10.1001/jamainternmed.2013.14706DOI Listing
April 2014

Law and neuroscience.

J Neurosci 2013 Nov;33(45):17624-30

Vanderbilt Law School and Department of Biological Sciences, Vanderbilt University, Nashville, Tennessee 37203, MacArthur Foundation Research Network on Law and Neuroscience, Nashville, Tennessee 37203, Department of Psychology, Vanderbilt University, Nashville, Tennessee 37203, Department of Psychology, Center for Neuroscience & Society, University of Pennsylvania, Philadelphia, Pennsylvania 19104, and Stanford Law School, Center for Law and the Biosciences, Stanford University, Stanford, California 94305.

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http://neuroethics.upenn.edu/wp-content/uploads/2015/06/Law-
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http://www.jneurosci.org/cgi/doi/10.1523/JNEUROSCI.3254-13.2
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http://dx.doi.org/10.1523/JNEUROSCI.3254-13.2013DOI Listing
November 2013

The Henrietta Lacks legacy grows.

EMBO Rep 2013 Oct 13;14(10):849. Epub 2013 Sep 13.

Centre for Law and the Biosciences, Stanford University, Stanford, California, USA.

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http://dx.doi.org/10.1038/embor.2013.148DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3807222PMC
October 2013

The future of gene patents and the implications for medicine.

JAMA Intern Med 2013 Sep;173(17):1569-70

Center for Law and the Biosciences, Stanford University, Stanford, California.

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http://dx.doi.org/10.1001/jamainternmed.2013.10153DOI Listing
September 2013

Some first steps toward responsible use of cognitive-enhancing drugs by the healthy.

Authors:
Henry T Greely

Am J Bioeth 2013 ;13(7):39-41

Stanford Law School, Stanford, CA 94305, USA.

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http://dx.doi.org/10.1080/15265161.2013.795823DOI Listing
August 2013

Ethical and legal issues arising in research on inducing human germ cells from pluripotent stem cells.

Cell Stem Cell 2013 Aug;13(2):145-8

Office of Health and Safety, Hokkaido University, Sapporo 060-0808, Japan.

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http://dx.doi.org/10.1016/j.stem.2013.07.005DOI Listing
August 2013

Genomics. What if extinction is not forever?

Science 2013 Apr;340(6128):32-3

Center for Law and the Biosciences, Stanford Law School, Stanford, CA 94305, USA.

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http://dx.doi.org/10.1126/science.1236965DOI Listing
April 2013

Assessing ESCROs: yesterday and tomorrow.

Authors:
Henry T Greely

Am J Bioeth 2013 ;13(1):44-52

Stanford Law School, Stanford University, Stanford, CA 94305-8610, USA.

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http://dx.doi.org/10.1080/15265161.2013.747340DOI Listing
March 2013

What if? The farther shores of neuroethics: commentary on "Neuroscience may supersede ethics and law".

Authors:
Henry T Greely

Sci Eng Ethics 2012 Sep 25;18(3):439-46. Epub 2012 Aug 25.

Stanford Law School, 559 Nathan Abbott Way, Stanford, CA 94302-8610, USA.

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http://dx.doi.org/10.1007/s11948-012-9391-6DOI Listing
September 2012

Informational risk, institutional review, and autonomy in the proposed changes to the common rule.

IRB 2012 May-Jun;34(3):17-9

Stanford Center for the Integration of Research on Genetics and Ethics, Stanford University, CA, USA.

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August 2012

Reading minds with neuroscience--possibilities for the law.

Authors:
Henry T Greely

Cortex 2011 Nov-Dec;47(10):1254-5. Epub 2011 May 6.

Stanford Law School, Stanford, CA 94305-8610, USA.

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http://dx.doi.org/10.1016/j.cortex.2011.04.018DOI Listing
March 2012

Noninvasive prenatal diagnosis: pregnant women's interest and expected uptake.

Prenat Diagn 2011 Dec 26;31(13):1292-9. Epub 2011 Oct 26.

Department of Genetics, Stanford University, Stanford, CA, USA.

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http://dx.doi.org/10.1002/pd.2888DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3225485PMC
December 2011

The future of direct-to-consumer clinical genetic tests.

Nat Rev Genet 2011 06 1;12(7):511-5. Epub 2011 Jun 1.

Medco Research Institute, Medco Health Solutions, Inc., Bethesda, Maryland 20814, USA.

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http://dx.doi.org/10.1038/nrg3026DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3763708PMC
June 2011

Medical and graduate students' attitudes toward personal genomics.

Genet Med 2011 May;13(5):400-8

Department of Genetics, Stanford Center for Biomedical Ethics, Stanford University, Stanford, California, USA.

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http://dx.doi.org/10.1097/GIM.0b013e31820562f6DOI Listing
May 2011

Collecting biomeasures in the Panel Study of Income Dynamics: ethical and legal concerns.

Authors:
Henry T Greely

Biodemography Soc Biol 2009 ;55(2):270-88

Stanford Law School, Stanford University, Stanford, California 94305-8610, USA.

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http://dx.doi.org/10.1080/19485560903382452DOI Listing
January 2011

Get ready for the flood of fetal gene screening.

Authors:
Henry T Greely

Nature 2011 Jan;469(7330):289-91

Center for Law and the Biosciences, Stanford Law School, Stanford, California 94305, USA.

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http://dx.doi.org/10.1038/469289aDOI Listing
January 2011

To the barricades!

Authors:
Henry T Greely

Am J Bioeth 2010 Sep;10(9):1-2

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http://dx.doi.org/10.1080/15265161.2010.494229DOI Listing
September 2010

Enhancing brains: what are we afraid of?

Authors:
Henry T Greely

Cerebrum 2010 Jul 14;2010:14. Epub 2010 Jul 14.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3574770PMC
July 2010

Challenges in the clinical application of whole-genome sequencing.

Lancet 2010 May 29;375(9727):1749-51. Epub 2010 Apr 29.

Department of Genetics, Stanford University School of Medicine, Stanford, CA, USA.

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http://dx.doi.org/10.1016/S0140-6736(10)60599-5DOI Listing
May 2010

Detecting individual memories through the neural decoding of memory states and past experience.

Proc Natl Acad Sci U S A 2010 May 10;107(21):9849-54. Epub 2010 May 10.

Department of Psychology, Law School, and Neurosciences Program, Stanford University, Stanford, CA 94305, USA.

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http://dx.doi.org/10.1073/pnas.1001028107DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2906873PMC
May 2010

Research ethics consultation: the Stanford experience.

IRB 2008 Nov-Dec;30(6):1-6

Stanford Center for Biomedical Ethics, Stanford University, Palo Alto, CA, USA.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3931698PMC
January 2009

Strangers at the benchside: research ethics consultation.

Am J Bioeth 2008 Mar;8(3):4-13

Stanford Center for Biomedical Ethics, Center for Integration of Research on Geneticsand Ethics, Palo Alto, CA 94304, USA.

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http://dx.doi.org/10.1080/15265160802132951DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2585006PMC
March 2008

The uneasy ethical and legal underpinnings of large-scale genomic biobanks.

Authors:
Henry T Greely

Annu Rev Genomics Hum Genet 2007 ;8:343-64

Stanford University, Stanford, California 94305, USA.

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http://dx.doi.org/10.1146/annurev.genom.7.080505.115721DOI Listing
December 2007

Neuroscience-based lie detection: the urgent need for regulation.

Am J Law Med 2007 ;33(2-3):377-431

Center for Law and the Biosciences, Stanford University, USA.

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December 2007

Proposition 71 and CIRM--assessing the return on investment.

Nat Biotechnol 2007 May;25(5):513-21

Department of Surgery, Institute of Stem Cell Biology and Regenerative Medicine, Stanford School of Medicine, 257 Campus Drive West, Stanford, California 94305, USA.

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http://dx.doi.org/10.1038/nbt0507-513DOI Listing
May 2007

Neuroethics and national security.

Am J Bioeth 2007 May;7(5):3-13

Stony Brook University, NY, USA.

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http://dx.doi.org/10.1080/15265160701290249DOI Listing
May 2007

Response to open peer commentaries on "Thinking about the human neuron mouse".

Am J Bioeth 2007 May;7(5):W4-6

Stanford University, CA, USA.

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http://dx.doi.org/10.1080/15265160701577686DOI Listing
May 2007

Man and superman.

Authors:
Henry T Greely

New Sci 2006 Aug 5-11;191(2563):19

Center for Law and the Biosciences, Stanford University, USA.

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January 2007

Knowing sin: making sure good science doesn't go bad.

Authors:
Henry T Greely

Cerebrum 2006 Jun:1-8

Center for Law and the Biosciences, Stanford University, USA.

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June 2006

The paths around stem cell intellectual property.

Nat Biotechnol 2006 Apr;24(4):411-3

Stanford University Program on Stem Cells in Society, Stanford University, 701 Welch Road, Palo Alto, California 94304, USA.

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http://dx.doi.org/10.1038/nbt0406-411DOI Listing
April 2006

Premarket approval regulation for lie detections: an idea whose time may be coming.

Authors:
Henry T Greely

Am J Bioeth 2005 ;5(2):50-2; discussion W5

Stanford University, USA.

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http://dx.doi.org/10.1080/15265160590960988DOI Listing
November 2005

Banning genetic discrimination.

Authors:
Henry T Greely

N Engl J Med 2005 Sep;353(9):865-7

Stanford University, Stanford, Calif, USA.

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http://dx.doi.org/10.1056/NEJMp058116DOI Listing
September 2005

Seeking more goodly creatures.

Authors:
Henry T Greely

Cerebrum 2004 ;6(4):49-57

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July 2005

Defining chimeras...and chimeric concerns.

Authors:
Henry T Greely

Am J Bioeth 2003 ;3(3):17-20

Stanford University, USA.

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http://dx.doi.org/10.1162/15265160360706444DOI Listing
January 2004

AIDS and the American health care financing system.

Authors:
Henry T Greely

Univ Pittsbg Law Rev 1989 ;51(1):73-166

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February 1991