Arthritis Care Res (Hoboken) 2021 Jul 19. Epub 2021 Jul 19.
Durham Veterans Affairs Geriatric Research Education and Clinical Center, Durham Veterans Affairs Health System, Department of Medicine, Duke University, Durham, North Carolina, USA.
Objective: Patient-provider discussions about functioning are often outside the scope of usual care for systemic lupus erythematosus (SLE), and tools to facilitate such discussions are lacking. We assessed the comprehension, utility, and acceptability of a novel, individualized functioning report, the purpose of which is to facilitate patient-provider communication about functioning, in a predominantly Black SLE patient population.
Methods: Individualized reports (including sections with pictorial representations of participants' measured activities of daily living, falls, physical performance, perceived physical functioning, and community mobility from a previous pilot study visit) and surveys were emailed or mailed to 59 SLE patients. Read More