Eur J Cancer Care (Engl) 2019 Jan 27;28(1):e12892. Epub 2018 Jul 27.
Department of Health Sciences and Health Policy, University of Lucerne, Lucerne, Switzerland.
Knowledge on former diagnosis, treatment and survivorship is important for adolescent and young adult cancer survivors (AYACS) to make informed healthcare decisions. We aimed to (a) describe the information AYACS reported to have received, (b) identify current information needs and survivors' preferred format of communication, and (c) examine associations between information needs and cancer-related/socio-demographic characteristics, psychological distress and health-related quality of life (HRQoL). We identified AYACS (16-25 years at diagnosis; ≥5 years since diagnosis) through the Cancer Registry Zurich and Zug. Read More