The Social Security Administration's Compassionate Allowances Initiative: Condition Spotlight on Rubinstein-Taybi Syndrome.
Health Soc Work 2017 Feb;42(1):e32-e43
Shanna L. Burke, PhD, MSW, LCSW, is assistant professor, School of Social Work, Robert Stempel College of Public Health and Social Work, Florida International University, 11200 SW 8th Street, ACH5 564, Miami, FL 33199; e-mail: Peter Maramaldi, PhD, MPH, LCSW, is professor, Hartford faculty scholar and national mentor, and director of PhD program, Simmons School of Social Work, Simmons College; clinical instructor in oral health policy and epidemiology, Oral Health Policy and Epidemiology, Harvard School of Dental Medicine; and adjunct professor, Department of Social and Behavioral Sciences, Harvard T. H. Chan School of Public Health, Boston.
The Social Security Administration (SSA) Compassionate Allowances List (CAL) was created in 2008, generating a mechanism within SSA for identifying diseases and other medical conditions that by definition meet social security's standards for disability benefits. Currently, over 200 conditions are included in this expedited review program, though few of them are neurodevelopmental in nature. Exploration of a novel method for inclusion of additional conditions on CAL was undertaken using one condition as an exemplar. Read More