5,327 results match your criteria Patient Education and Counseling [Journal]


Evaluation of the effectiveness of the healthy heart tracker on heart failure self-care.

Patient Educ Couns 2019 Feb 11. Epub 2019 Feb 11.

San Diego State University, Sharp Grossmont Hospital, 5500 Campanile Dr., San Diego, CA, 92182, United States. Electronic address:

Objective: We evaluated the effectiveness of a newly designed patient education booklet, the Health Heart Tracker (HHT), in promoting Heart Failure Self-Care (HFSC) behaviors compared to usual patient discharge handouts.

Methods: We conducted a quasi-experimental, comparative two-group study using patients admitted for HF to four intermediate care units. The HHT was instituted on two units; patients on the other units served as control. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.02.010DOI Listing
February 2019

Minority patient preferences, barriers, and facilitators for shared decision-making with health care providers in the USA: A systematic review.

Patient Educ Couns 2019 Feb 10. Epub 2019 Feb 10.

Division of Pharmaceutical Outcomes and Policy UNC Eshelman School of Pharmacy, UNC Health Sciences at MAHEC, University of North Carolina at Chapel Hill, 121 Hendersonville Road, Asheville, NC, 28803, USA. Electronic address:

Objectives: This systematic review of contemporary literature sought to better understand racial and ethnic minority patients' shared decision-making (SDM) preferences, challenges and facilitators.

Methods: Data sources were PubMed, CINAHL, Embase, Google Scholar, PsycINFO, Sociological Abstracts, and Web of Science databases for publications between 2011 and 2016. Publications were included if they studied SDM during the clinical encounter for minority adults in clinical care in the United States. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.02.003DOI Listing
February 2019

Modeling patient empowerment and health literacy to glycemic control in insulin-treated patients: A prospective study.

Patient Educ Couns 2019 Feb 8. Epub 2019 Feb 8.

Lee's Endocrinology Clinic, No. 396, Guangdong Road, Pingtung City, 900, Taiwan, ROC. Electronic address:

Objective: To model the pathways of patient empowerment (PE) and health literacy (HL) to glycemic control specific to insulin-treated patients by prospective design.

Methods: Insulin-treated patients with type 2 diabetes (T2DM) (N = 185) were recruited by convenience sampling. Data of personal characteristics, PE, and HL were collected by questionnaires at baseline and 9 months later. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.02.005DOI Listing
February 2019

Impact of specialized pediatric palliative care programs on communication and decision-making.

Patient Educ Couns 2019 Feb 11. Epub 2019 Feb 11.

Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Canada.

Objective: To summarize and analyze the impact of specialized pediatric palliative care (SPPC) programs on communication and decision-making for children with life-threatening conditions.

Methods: Our search strategy covered MEDLINE, PsycINFO, Cochrane Central Register of Controlled Trials, Web of Science, CINAHL, Scopus, and Embase through September 2018.

Results: We reviewed 13 studies analyzing the impact of SPPC programs on communication and decision-making using a wide range of outcome indicators. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.02.011DOI Listing
February 2019

Access to health information, health literacy and health-related quality of life among women living with breast cancer: Depression and anxiety as mediators.

Patient Educ Couns 2019 Feb 11. Epub 2019 Feb 11.

Discipline of Psychology, School of Applied Human Sciences, University of KwaZulu-Natal, Durban, South Africa; Department of Psychology, School of Social Sciences, University of Ghana, Legon, Accra, Ghana.

Objective: This study examined the direct and indirect influences of health literacy and access to health information on the quality of life among 205 women living with breast cancer in Ghana.

Methods: A cross-sectional survey design was employed. The interviewer-administered instrument included the health literacy scale, questions on access and satisfaction with healthcare information, depression and anxiety scale, and the Functional Assessment of Cancer Therapy-Breast Cancer. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.02.014DOI Listing
February 2019

Engaging limited English proficient and ethnically diverse low-income women in health research: A randomized trial of a patient navigator intervention.

Patient Educ Couns 2019 Feb 11. Epub 2019 Feb 11.

Department of Anthropology, History & Social Medicine, University of California, San Francisco USA. Electronic address:

Objective: Evaluate a community-based navigator intervention to increase breast cancer patients' and survivors' access to information about health research participation opportunities.

Methods: In the context of a Community Based Participatory Research collaboration, we conducted a prospective randomized controlled trial of the Health Research Engagement Intervention with pre- and post-intervention surveys (n = 133). The primary outcome was health research information-seeking behavior. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.02.013DOI Listing
February 2019

A scoping review of consumer needs for cancer information.

Patient Educ Couns 2019 Feb 8. Epub 2019 Feb 8.

Department of Health Policy and Management, Kangwon National University College of Medicine, Chuncheon, South Korea. Electronic address:

Objective: This study was a scoping review of research on cancer-related health information seeking and needs of patients, survivor, non-patients, and caregivers.

Methods: This study used the COSI model to search for articles published from 2007 to 2017.

Results: In total, 117 articles with titles and abstracts including the following terms were selected: cancer, health, information, seeking. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.02.004DOI Listing
February 2019

Development of a tool to support person-centred medicine-focused consultations with stroke survivors.

Patient Educ Couns 2019 Feb 8. Epub 2019 Feb 8.

Medway School of Pharmacy, Universities of Kent and Greenwich at Medway, Chatham Maritime, Kent, ME4 4TB, United Kingdom. Electronic address:

Objective: To develop a tool to support medicine-focused person-centred consultations between community pharmacists and stroke survivors.

Method: Semi-structured interviews with 15 stroke survivors and 16 community pharmacists were conducted. Thematic analysis of the data was performed and emerging themes examined to determine their relevance to the principles of delivering person-centred care. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.02.007DOI Listing
February 2019

Author's response.

Patient Educ Couns 2019 Feb;102(2):396-397

Cardiology, Princess Alexandra Hospital, Brisbane, Australia; The University of Queensland, Australia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.01.012DOI Listing
February 2019

Talking about death and dying: Findings and insights from five conversation analytic studies.

Patient Educ Couns 2019 Feb;102(2):185-187

School of Social Sciences, Loughborough University, Margaret Keay Rd, LE11 3TU, UK.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.01.011DOI Listing
February 2019
2.199 Impact Factor

The influence of mobile health applications on patient - healthcare provider relationships: A systematic, narrative review.

Patient Educ Couns 2019 Jan 31. Epub 2019 Jan 31.

School of Pharmacy, The University of Queensland, 20 Cornwall St, Woolloongabba, Qld, 4102, Australia. Electronic address:

Objective: To explore the influence of mobile health applications on various dimensions of patient and healthcare provider relationships.

Methods: A systematic, narrative review of English literature reporting experiences and outcomes of using mobile health applications was performed, evaluating communication and relationships between patients and healthcare professionals. Findings were framed thematically within the four dimensions of relationship-centred care. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.01.021DOI Listing
January 2019

Surgeon use of medical jargon with parents in the outpatient setting.

Patient Educ Couns 2019 Feb 3. Epub 2019 Feb 3.

Johns Hopkins School of Medicine, Department of Otolaryngology-Head and Neck Surgery, Baltimore, MD, United States. Electronic address:

Objective: Unexplained medical terminology impedes clinician/parent communication. We describe jargon use in a pediatric surgical setting.

Methods: We evaluated encounters between parents of children with sleep-disordered breathing (SDB; n = 64) and otolaryngologists (n = 8). Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.02.002DOI Listing
February 2019
1 Read

Are young women ready for BRCA testing? Comparing attitudes and comprehension of two age groups of healthy Italian women.

Patient Educ Couns 2019 Jan 28. Epub 2019 Jan 28.

Department of Developmental Psychology and Socialization, University of Padova, Padova, Italy. Electronic address:

Background: Mutations in the BRCA 1/2 genes increase the risk of developing breast and/or ovarian cancer compared with the general population. However, the risk is low at age 30, and for women younger than 25, no preventive or screening options are available. Scientists wonder whether genetic predictive BRCA testing is appropriate at a very young age. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.01.022DOI Listing
January 2019

Determinants of providing smoking cessation care in five groups of healthcare professionals: A cross-sectional comparison.

Patient Educ Couns 2019 Jan 23. Epub 2019 Jan 23.

Public Health and Primary Care, Leiden University Medical Center, Leiden, the Netherlands.

Objective To investigate implementation of a tobacco dependence treatment guideline among five groups of healthcare professionals. Methods Data collected in The Netherlands (2016-2017) were compared among gynaecologists (N = 49), midwives (N = 68), respiratory nurses (N = 72), practice nurses (N = 84) and paediatricians (N = 38). Intentions to use the guideline, satisfaction with own implementation, and dosage delivered of quit-advice and assisting in quitting were predicted using linear regression analyses and regression tree analyses. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.01.015DOI Listing
January 2019
2.199 Impact Factor

Effectiveness of the "living successfully with low vision" self-management program: Results from a randomized controlled trial in Singaporeans with low vision.

Patient Educ Couns 2019 Jan 21. Epub 2019 Jan 21.

Singapore Eye Research Institute, Singapore National Eye Centre, Singapore; Duke-NUS Medical School, Singapore. Electronic address:

Objective: To determine the effectiveness of the "Living Successfully with Low Vision" (LSLV) self-management program to improve patient-reported outcomes in Singaporeans.

Methods: In this randomized controlled trial, 165 participants with low vision (LV) were recruited and assigned to usual care (LV aid training only; N = 82) or LSLV program (N = 83). The LSLV program focuses on problem solving, coping mechanism and anticipation/preparation for future needs. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.01.014DOI Listing
January 2019
1 Read

The effectiveness of pharmacist- led discharge medication counselling in the emergency department (ExPLAIN): A pilot quasi-experimental study.

Patient Educ Couns 2019 Jan 25. Epub 2019 Jan 25.

Emergency Department, Princess Alexandra Hospital, Brisbane, Australia; Pharmacy Department, Princess Alexandra Hospital, Brisbane, Australia.

Objective: To evaluate the effectiveness of pharmacist-led discharge medication counselling using a structured, multimodal educational strategy with teach-back (intervention) against standard care.

Methods: This was a quasi-experimental study in a public, metropolitan ED. Participants discharged home with new medications were allocated to receive the intervention or standard care using convenience sampling. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.01.020DOI Listing
January 2019

Reliability of narrative assessment data on communication skills in a summative OSCE.

Patient Educ Couns 2019 Jan 24. Epub 2019 Jan 24.

School of Health Professions Education, Faculty of Health, Medicine and Life Sciences, Maastricht University, Universiteitssingel 60, 6229 ER Maastricht, Netherlands.

Objective: To quantitatively estimate the reliability of narrative assessment data regarding student communication skills obtained from a summative OSCE and to compare reliability to that of communication scores obtained from direct observation.

Methods: Narrative comments and communication scores (scale 1-5) were obtained for 14 graduating pharmacy students across 6 summative OSCE stations with 2 assessors per station who directly observed student performance. Two assessors who had not observed the OSCE reviewed narratives and independently scored communication skills according to the same 5-point scale. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.01.018DOI Listing
January 2019

Patient education for children with interstitial lung diseases and their caregivers: A pilot study.

Patient Educ Couns 2019 Jan 23. Epub 2019 Jan 23.

Department for Pediatric Pneumology, Allergologssy and Neonatology, Hannover Medical School, Hannover, Germany.

Objective: Patient education in children with rare chronic diseases like children's interstitial lung disease (chILD) remains a challenge.

Aims: To develop and evaluate a component-based educational program for individual counselling and to improve patients' and caregivers' self-efficacy and treatment satisfaction. Furthermore, to create chILD-specific educational material and assess physicians' satisfaction with the intervention as well as patients' health-related quality of life (HrQoL). Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.01.016DOI Listing
January 2019

Effectiveness of a brief training program in relational/communication skills for medical residents.

Patient Educ Couns 2019 Jan 21. Epub 2019 Jan 21.

Faculdade de Medicina, Universidade de Lisboa, Lisboa, Portugal. Electronic address:

Objective: To assess the effectiveness of a brief training program in relational/communication skills (RCS) for medical residents.

Methods: This longitudinal study enrolled 64 medical residents who participated in a RCS training program in small groups. Teaching was based on interviews with standardized patients and reflective practice. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.01.013DOI Listing
January 2019

Cancer information-seeking preferences linked to distinct patient experiences and differential satisfaction with cancer care.

Patient Educ Couns 2019 Jan 18. Epub 2019 Jan 18.

Department of Oncology and Ingram School of Nursing, McGill University, Canada; Segal Cancer Centre, Jewish General Hospital, 3755 Côte Sainte-Catherine Rd, Pav. E-748, Montreal, QC, H3T 1E2, Canada. Electronic address:

Objective: True person-centered care (PCC) involves anticipating, responding to, and integrating patients' needs and preferences as the illness experience unfolds. PCC success rests, in part, on quality provider-patient communication and tailored information exchange. These processes can have profound effects on the patient experience, self-management and health outcomes including survival. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.01.009DOI Listing
January 2019
1 Read

Comprehensive pulmonary rehabilitation for interstitial lung disease: A consensus approach to identify core education topics.

Patient Educ Couns 2019 Jan 16. Epub 2019 Jan 16.

Department of Medicine, Monash University, Melbourne, Australia; Department of Respiratory and Sleep Medicine, Alfred Health, Melbourne, Australia.

Objective: To achieve consensus amongst health professionals and people with interstitial lung disease (ILD) on core educational topics for pulmonary rehabilitation (PR) in ILD.

Methods: Health professionals with expertise in ILD and/or PR took part in a 2-round online Delphi process. Potential educational topics for PR were rated on a 4-point Likert scale with anchors of 'completely unimportant' and 'very important'. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.01.010DOI Listing
January 2019
1 Read

An evaluation of the suitability, readability, and quality of online resources for the self-management of depression.

Patient Educ Couns 2019 Jan 9. Epub 2019 Jan 9.

McGill University, Ingram School of Nursing, Canada; St-Mary's Research Centre, Canada. Electronic address:

Objective: To evaluate online depression self-management (SM) resources based on their readability, suitability, and quality to determine their appropriateness for use by patients.

Methods: A Google search using patients' most frequently searched terms was conducted. Resources were evaluated using readability indices, the Suitability Assessment of Materials (SAM), and the DISCERN tool. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2018.12.021DOI Listing
January 2019

Effectiveness of DVD vs. group-initiated diabetes prevention on information uptake for high & low health literacy participants.

Patient Educ Couns 2018 Dec 23. Epub 2018 Dec 23.

University of Nebraska Medical Center, United States.

Objective: This study evaluates the effectiveness of technology versus in-person, group-initiated diabetes prevention to enhance comprehension of learning objectives between patients with differing health literacy (HL).

Methods: Evidence-based content through either a DVD (n = 217) or in-person, group class (n = 225) to initiate the intervention. A teach-back call was used to assess comprehension of, and reinforce, learning objectives. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2018.12.026DOI Listing
December 2018
1 Read

Implementation of patient education software in an anticoagulation clinic to decrease visit times for new patient appointments.

Patient Educ Couns 2018 Dec 22. Epub 2018 Dec 22.

The Johns Hopkins Hospital, Baltimore, USA.

Objective: Patient education on high-risk medications such as warfarin is important, and they require quick follow-up after initiation to maximize efficacy and safety. In our Anticoagulation Clinic, two 60-minute new patient appointments are available each day, contributing to prolonged lead-time. We instituted standardized warfarin video education to shorten in-clinic-room visit time, to potentially increase new patient appointments. Read More

View Article

Download full-text PDF

Source
https://linkinghub.elsevier.com/retrieve/pii/S07383991183102
Publisher Site
http://dx.doi.org/10.1016/j.pec.2018.12.023DOI Listing
December 2018
5 Reads

Developing the International Association for Communication in Healthcare (EACH) to address current challenges of health communication.

Patient Educ Couns 2019 Jan 8. Epub 2019 Jan 8.

Rodboud University Medical Center, Radboud Institute for Health Sciences, Department of Primary and Community Care, Nijmegen, the Netherlands. Electronic address:

In 2017, EACH celebrated its change of name from European Association for Communication in Healthcare to EACH: International Association for Communication in Healthcare. This paper aims to present the developments and achievements of EACH over the past five years with a focus on its mission in promoting and advancing the field of communication in healthcare. Specifically, the paper focuses on how EACH, first, promotes research in the field of health communication, second, provides support, resources and sharing for healthcare communication teachers and, third, aims at influencing policy through dissemination of evidence. Read More

View Article

Download full-text PDF

Source
https://linkinghub.elsevier.com/retrieve/pii/S07383991193000
Publisher Site
http://dx.doi.org/10.1016/j.pec.2019.01.004DOI Listing
January 2019
3 Reads

A scoping review of interventions to promote the adoption of shared decision-making (SDM) among health care professionals in clinical practice.

Patient Educ Couns 2019 Jan 3. Epub 2019 Jan 3.

Faculty of Nursing, Education Director, Integrative Health Institute, Faculty of Nursing, Edmonton Clinic Heath Academy (ECHA), University of Alberta, Edmonton, AB, T6G 1C9, Canada. Electronic address:

Objectives: To identify and summarize evidence on interventions to promote the adoption of shared decision-making (SDM) among health care professionals (HCPs) in clinical practice.

Methods: Electronic databases including: MEDLINE, EMBASE, CINAHL, PsycINFO and Cochrane library were searched to determine eligible peer-reviewed articles. Grey literature was searched for additional interventions. Read More

View Article

Download full-text PDF

Source
https://linkinghub.elsevier.com/retrieve/pii/S07383991183052
Publisher Site
http://dx.doi.org/10.1016/j.pec.2019.01.001DOI Listing
January 2019
8 Reads

Racial/ethnic differences in prognosis communication during initial inpatient palliative care consultations among people with advanced cancer.

Patient Educ Couns 2019 Jan 2. Epub 2019 Jan 2.

Department of Consumer Science, Purdue University, 812W. State St., West Lafayette, IN 47907, United States of America.

Objective: We examined whether conversations involving Black or Latino patients with advanced cancer differ in the presence or characteristics of prognosis communication.

Methods: We audio-recorded initial consultations between 54 palliative care clinicians and 231 hospitalized people with advanced cancer. We coded for the presence and characteristics of prognosis communication. Read More

View Article

Download full-text PDF

Source
https://linkinghub.elsevier.com/retrieve/pii/S07383991183069
Publisher Site
http://dx.doi.org/10.1016/j.pec.2019.01.002DOI Listing
January 2019
4 Reads

Developing a web-based LGBT cultural competency training for oncologists: The COLORS training.

Patient Educ Couns 2019 Jan 7. Epub 2019 Jan 7.

H. Lee Moffitt Cancer Center & Research Institute, 12902 USF Magnolia Drive, Tampa, FL 33612, United States.

Objective: Despite substantial LGBT cancer health disparities, there are no LGBT cultural competency trainings tailored for oncologists. Here we describe the systematic development of a web-based, oncology-focused LGBT cultural competency training.

Methods: A literature review regarding LGBT cancer outcomes and competency training was conducted to identify potential training content. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2019.01.006DOI Listing
January 2019
2.199 Impact Factor

qLessons learned from patients with access to an online self-management enhancing program for RA patients: Qualitative analysis of interviews alongside a randomized clinical trial.

Patient Educ Couns 2019 Jan 7. Epub 2019 Jan 7.

Radboud University Medical Center, Radboud Institute for Health Sciences, Scientific Institute for Quality of Healthcare (IQ healthcare and Institute for Health Service Research), Nijmegen, the Netherlands; HAN University of Applied Sciences, Institute of Nursing, Nijmegen, the Netherlands.

Objective: This study aims to explain the earlier findings of a Randomized Controlled Trial (RCT), which showed that rheumatoid arthritis (RA) patients did not benefit from an online self-management program. Moreover, less patients than expected used the program.

Methods: As part of an explorative RCT, patients were interviewed to explore their (non) usage of the program. Read More

View Article

Download full-text PDF

Source
https://linkinghub.elsevier.com/retrieve/pii/S07383991183048
Publisher Site
http://dx.doi.org/10.1016/j.pec.2019.01.005DOI Listing
January 2019
4 Reads

Improving quality of the informed consent process: Developing an easy-to-read, multimodal, patient-centered format in a real-world setting.

Authors:
Karen A Lindsley

Patient Educ Couns 2018 Dec 21. Epub 2018 Dec 21.

Manager, Coordinating Center and Regulatory Knowledge & Support (RKS), Georgia Clinical &Translational Science Alliance (Georgia CTSA), Emory University, 1599 Clifton Rd NE; Suite 4.355, Atlanta, GA 30322, USA. Electronic address:

Objective: To develop a patient-centered informed consent and assessment tool written at a 6th grade-level that is multimodal, affordable, transportable, and readily modifiable for protocol updates.

Methods: This quality improvement initiative was performed in two phases on an actively-recruiting study at a pediatric diabetes clinic. In phase I, 38 volunteers underwent the standard-paper consent process, a comprehension assessment and provided feedback. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2018.12.022DOI Listing
December 2018

Patient and clinician perspectives on optimizing graphical displays of longitudinal medication adherence data.

Patient Educ Couns 2019 Jan 2. Epub 2019 Jan 2.

Eshelman School of Pharmacy, University of North Carolina at Chapel Hill, United States.

Objective: New pharmacological measures assessing medication adherence, including longitudinal drug levels in hair, are emerging. Little is known, however, about how best to present results from such measures to patients and clinicians in comprehensive, easy-to-understand, acceptable formats. We, therefore, developed three graphical display prototypes of hypothetical daily drug concentrations measured in hair, and assessed their acceptability among participants. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2018.12.029DOI Listing
January 2019
2.199 Impact Factor

Assessing the link between modified 'Teach Back' method and improvement in knowledge of the medical regimen among youth with kidney transplants: The application of digital media.

Patient Educ Couns 2018 Dec 12. Epub 2018 Dec 12.

Department of Pediatrics, Division of Pediatric Psychology, University of Miami Miller School of Medicine, Miami, FL, USA.

Objective: The objective of this study was to facilitate functional health literacy (FHL) with a modified "Teach Back" method. A computer-based program was developed for adolescent and young adult kidney transplant recipients (KTR) to knowledgeably answer questions about their medical condition, medications, and create a simple synopsis of their personal health record with the help of the heath care provider (HCP).

Methods: In a pre-post quasi-experimental design, 16 patients received the computer intervention in which they navigated questionnaires and brief informational video clips. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2018.12.007DOI Listing
December 2018

The impact and utility of encounter patient decision aids: Systematic review, meta-analysis and narrative synthesis.

Patient Educ Couns 2018 Dec 21. Epub 2018 Dec 21.

The Dartmouth Institute for Health Policy and Clinical Practice, Dartmouth College, One Medical Center Drive, Lebanon, NH, 03756, USA. Electronic address:

Objective: To determine the effect of encounter patient decision aids (PDAs) as evaluated in randomized controlled trials (RCTs) and conduct a narrative synthesis of non-randomized studies assessing feasibility, utility and their integration into clinical workflows.

Methods: Databases were systematically searched for RCTs of encounter PDAs to enable the conduct of a meta-analysis. We used a framework analysis approach to conduct a narrative synthesis of non-randomized studies. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2018.12.020DOI Listing
December 2018

Multiple sclerosis self-management model: Personal and contextual requirements for successful self-management.

Patient Educ Couns 2018 Dec 28. Epub 2018 Dec 28.

School of Rehabilitation Therapy, Queen's University, Kingston, Canada.

Objective: To explore self-management strategies used by people with multiple sclerosis (MS) with aim of developing a MS self-management model.

Methods: A grounded theory approach guided development of a MS self-management model. Eighteen individuals living with MS for three or more years and self-identifying as successfully managing their MS were interviewed twice using semi-structured face-to-face or telephone interviews six months apart. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2018.12.028DOI Listing
December 2018

Influence of preparedness on anxiety, depression, and quality of life in caregivers of heart failure patients: Testing a model of path analysis.

Patient Educ Couns 2018 Dec 28. Epub 2018 Dec 28.

Department of Biomedicine and Prevention, University of Rome "Tor Vergata", via Montpellier, 1, 00133 Rome, Italy. Electronic address:

Objectives: Testing the influence of heart failure (HF) caregiver preparedness on anxiety and depression, and the influence of HF caregiver anxiety and depression on caregiver physical and mental QOL.

Methods: In this cross-sectional study, we used the Caregiver Preparedness Scale (CPS), the Hospital Anxiety and Depression Scale (HADS) with the anxiety (HADS-A) and depression (HADS-D) subscales, and the Short-Form 12 (SF-12) measuring the physical component summary (PCS) and the mental component summary (MCS) of QOL. Socio-demographic data and patients' clinic data were also collected. Read More

View Article

Download full-text PDF

Source
https://linkinghub.elsevier.com/retrieve/pii/S07383991183102
Publisher Site
http://dx.doi.org/10.1016/j.pec.2018.12.027DOI Listing
December 2018
6 Reads

Familial hypercholesterolemia and young patients' thoughts on own condition and treatment.

Patient Educ Couns 2018 Dec 22. Epub 2018 Dec 22.

Department of Nutrition, Institute of Basic Medical Sciences, University of Oslo, Norway.

Objectives: Familial hypercholesterolemia (FH) is a hereditary and usually asymptomatic condition characterized by elevated blood cholesterol and increased risk of premature cardiovascular disease. It is treated with dietary modifications and lipid lowering drugs. The objective was to learn about young FH patients' perceptions and choices regarding treatment. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2018.12.025DOI Listing
December 2018

Healthy conversation skills as an intervention to support healthy gestational weight gain: Experience and perceptions from intervention deliverers and participants.

Patient Educ Couns 2018 Dec 23. Epub 2018 Dec 23.

Department of Agricultural, Food and Nutritional Science, University of Alberta, Edmonton, AB, T6G 2E1, Canada.

Objective: In a pilot RCT we assessed training a dietitian in "Healthy Conversation Skills" (HCS) to support behavior change. This study describes the acceptability of the intervention from the participant and practitioner perspective.

Methods: Seventy pregnant women participated (intervention = 33; control = 37). Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2018.12.024DOI Listing
December 2018

Information and participation preferences and needs of non-Western ethnic minority cancer patients and survivors: A systematic review of the literature.

Patient Educ Couns 2018 Nov 24. Epub 2018 Nov 24.

Department of Communication Science, Amsterdam School of Communication Research/ASCoR, University of Amsterdam, the Netherlands. Electronic address:

Objective: To provide an overview of information and participation preferences and needs of non-Western ethnic minority cancer patients living in Western countries.

Methods: A systematic literature review was conducted using the databases PsycINFO, PubMed, CINAHL, and EMBASE. Thematic analysis was carried out to synthesize data, allowing for identification of important themes and synthesis of both qualitative and quantitative studies. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2018.11.018DOI Listing
November 2018

Comparison of patient and provider goals, expectations, and experiences following kidney transplantation.

Patient Educ Couns 2018 Dec 13. Epub 2018 Dec 13.

Arbor Research Collaborative for Health, Ann Arbor, USA; Department of Internal Medicine, University of Michigan, Ann Arbor, USA. Electronic address:

Objective: This study examined whether kidney transplant recipients' post-transplant goals and expectations align with those as perceived by their healthcare providers.

Methods: Post-transplant goals and expectations across four domains were assessed via a descriptive survey of healthcare providers (N=72) and kidney transplant recipients (N=476) at the University of Michigan from March 23 - October 1, 2015. Demographic and transplant-related data were collected via a retrospective review of medical records, and survey responses were compared using Chi-square tests, Wilcoxon two-sample tests, and logistic regression. Read More

View Article

Download full-text PDF

Source
https://linkinghub.elsevier.com/retrieve/pii/S07383991183101
Publisher Site
http://dx.doi.org/10.1016/j.pec.2018.12.010DOI Listing
December 2018
5 Reads

Promoting shared decision making in advanced cancer: Development and piloting of a patient communication aid.

Patient Educ Couns 2018 Dec 14. Epub 2018 Dec 14.

Department of Medical Psychology, Academic Medical Center, University of Amsterdam, the Netherlands; Amsterdam Public Health research institute, Amsterdam, the Netherlands; Cancer Center Amsterdam, Amsterdam, the Netherlands.

Objective: To learn how to configure a patient communication aid (PCA) to facilitate shared decision-making (SDM) about treatment for advanced cancer.

Methods: The PCA consists of education about SDM, a question prompt list, and values clarification methods. Study 1. Read More

View Article

Download full-text PDF

Source
https://linkinghub.elsevier.com/retrieve/pii/S07383991183041
Publisher Site
http://dx.doi.org/10.1016/j.pec.2018.12.018DOI Listing
December 2018
4 Reads

A randomized controlled trial of an online educational video intervention to improve glaucoma eye drop technique.

Patient Educ Couns 2018 Dec 18. Epub 2018 Dec 18.

Division of Pharmaceutical Outcomes and Policy, University of North Carolina Eshelman School of Pharmacy, Chapel Hill, NC, USA; Cecil G. Sheps Center for Health Services Research, Chapel Hill, NC, USA.

Objective: To determine the effectiveness of an online video intervention in improving self-efficacy and eye drop application technique in glaucoma patients.

Methods: We randomized ninety-two patients with primary open-angle glaucoma, all who self-administer their eye drops, to either watch the 4-minute Meducation® eye drop technique video in the intervention group, or a nutrition video in the control group. We assessed five eye drop technique steps using objective video recordings at baseline, immediately after watching the video, and 1 month later. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2018.12.019DOI Listing
December 2018

Agents of empathy: How medical interpreters bridge sociocultural gaps in genomic sequencing disclosures with Spanish-speaking families.

Patient Educ Couns 2018 Dec 10. Epub 2018 Dec 10.

Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, USA. Electronic address:

Objectives: To describe how linguistic tools used by interpreters during return of genomic sequencing results may have impacted communication with Spanish-speaking families, and to discuss the implications for the role of medical interpreters.

Methods: Using discourse analysis, we identified and categorized the various ways hospital-based interpreters adapted clinicians' language in 37 audio-recorded sessions in which Spanish-speaking parents participating in a clinical trial received their child's genomic sequencing results from English-speaking clinicians.

Results: We found that interpreters adapted clinicians' statements using five empathic linguistic tools: contextualization, encouragement, checking comprehension, endearment, and softening. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2018.12.012DOI Listing
December 2018
2.199 Impact Factor

Why do newly diagnosed breast cancer patients seek a second opinion? - Second opinion seeking and its association with the physician-patient relationship.

Patient Educ Couns 2018 Dec 13. Epub 2018 Dec 13.

Institute of Medical Sociology, Health Services Research and Rehabilitation Science, Faculty of Human Sciences and Faculty of Medicine, University of Cologne, Eupener Str. 129, D-50933, Cologne, Germany.

Objective: To examine breast cancer patients' reasons to seek a second opinion (SO) and the underlying variables. To find out more about the outcome of the SO, the perceived helpfulness and the effect on the physician-patient relationship.

Methods: In 2017, 4626 newly diagnosed breast cancer patients from 86 hospitals in Germany completed a postoperative mail survey (response rate = 89. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2018.12.017DOI Listing
December 2018

When chemotherapy fails: Emotionally charged experiences faced by family caregivers of patients with advanced cancer.

Patient Educ Couns 2018 Dec 12. Epub 2018 Dec 12.

University of Rochester Medical Center, 601 Elmwood Ave, Rochester, NY, 14642, USA; Center for Communication and Disparities Research, 1381 South Ave, Rochester, NY, 14620, USA.

Objective: To explore family caregivers' emotional experiences while caring for patients with advanced cancer and navigating distressing information, awareness of dying, and difficult decisions.

Methods: Qualitative descriptive study of semi-structured interviews with 92 bereaved caregivers of patients with advanced cancer. Interviews explored caregivers' experiences as patients transitioned out of active cancer treatment and neared the end of life. Read More

View Article

Download full-text PDF

Source
https://linkinghub.elsevier.com/retrieve/pii/S07383991183052
Publisher Site
http://dx.doi.org/10.1016/j.pec.2018.12.014DOI Listing
December 2018
1 Read

Communicating uncertainty in cancer prognosis: A review of web-based prognostic tools.

Patient Educ Couns 2018 Dec 12. Epub 2018 Dec 12.

Centre for Health Evaluation and Outcome Sciences, St Paul's Hospital, Vancouver, BC, V6Z 1Y6, Canada; School of Population and Public Health, University of British Columbia, Vancouver, BC, V6T 1Z3, Canada. Electronic address:

Objective To review how web-based prognosis tools for cancer patients and clinicians describe aleatory (risk estimates) and epistemic (imprecision in risk estimates) uncertainties. Methods We reviewed prognostic tools available online and extracted all uncertainty descriptions. We adapted an existing classification and classified each extracted statement by presentation of uncertainty. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2018.12.009DOI Listing
December 2018

Discussions about evidence and preferences in real-life general practice consultations with older patients.

Patient Educ Couns 2018 Dec 3. Epub 2018 Dec 3.

University of Sydney, Faculty of Medicine and Health, School of Public Health, Sydney Health Literacy Lab, Sydney, Australia; University of Sydney, Faculty of Medicine and Health, School of Public Health, Wiser Healthcare, Sydney, Australia. Electronic address:

Objectives: To explore how decisions are made in real-life general practice consultations with older patients (65+ years), and examine how general practitioners (GPs) communicate risk and benefit information and evidence, and integrate patient preferences.

Methods: Secondary analysis of 20 video-recorded consultations with older patients in Australian primary healthcare settings. Consultations were analysed qualitatively using the Framework method and quantitatively using the Observer OPTION scale and the Assessing Communication about Evidence and Patient Preferences (ACEPP) tool. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2018.12.001DOI Listing
December 2018
1 Read

Healthcare professional perceived barriers and facilitators to discussing sexual wellbeing with patients after diagnosis of chronic illness: A mixed-methods evidence synthesis.

Patient Educ Couns 2018 Dec 13. Epub 2018 Dec 13.

Institute of Nursing and Health Research, Ulster University, Jordanstown, UK. Electronic address:

Objectives: To explore healthcare professional perceived barriers and facilitators to discussing sexual health and wellbeing with patients after diagnosis of chronic illness.

Methods: Five databases were searched and included data were synthesised using a meta-ethnographic approach. Confidence in findings was assessed using the GRADE-CERQual framework. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2018.12.015DOI Listing
December 2018

Impact of including quantitative information in a decision aid for colorectal cancer screening: A randomized controlled trial.

Patient Educ Couns 2018 Nov 27. Epub 2018 Nov 27.

Indiana University Simon Cancer Center, Indianapolis, USA; Indiana University School of Nursing, Indianapolis, USA.

Objective: Guidelines recommend that decision aids provide quantitative information about risks and benefits of available options. Impact of providing this information is unknown.

Methods: Randomized trial comparing two decision aids about colorectal cancer (CRC) screening with colonoscopy or fecal immunochemical test (FIT). Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.pec.2018.11.010DOI Listing
November 2018

Improving shared health decision making for children and adolescents with chronic illness: A narrative literature review.

Patient Educ Couns 2018 Nov 30. Epub 2018 Nov 30.

Department of Neuroscience, Psychology and Behaviour, University of Leicester, United Kingdom. Electronic address:

Objective: This review aims to increase understanding of health decision-making by children and adolescents with chronic illnesses and offer suggestions for improving shared decision-making with healthcare professionals.

Methods: Using cross-disciplinary publication databases, we surveyed literature on children's and adolescents' health decision-making from psychology, health sciences, and neuroscience.

Results: Several factors influencing health decision-making were identified. Read More

View Article

Download full-text PDF

Source
https://linkinghub.elsevier.com/retrieve/pii/S07383991183041
Publisher Site
http://dx.doi.org/10.1016/j.pec.2018.11.017DOI Listing
November 2018
6 Reads