6,931 results match your criteria Palliative Medicine[Journal]


Clinicians' Perceptions of Futile or Potentially Inappropriate Care and Associations with Avoidant Behaviors and Burnout.

J Palliat Med 2019 Mar 15. Epub 2019 Mar 15.

1 Center for Research on End-Of-Life Care, Weill Cornell Medicine, New York, New York.

Background: Futile or potentially inappropriate care (futile/PIC) for dying inpatients leads to negative outcomes for patients and clinicians. In the setting of rising end-of-life health care costs and increasing physician burnout, it is important to understand the causes of futile/PIC, how it impacts on care and relates to burnout.

Objectives: Examine causes of futile/PIC, determine whether clinicians report compensatory or avoidant behaviors as a result of such care and assess whether these behaviors are associated with burnout. Read More

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http://dx.doi.org/10.1089/jpm.2018.0385DOI Listing
March 2019
6 Reads

Implications of Palliative Care Consultation Timing among a Cohort of Hospice Decedents.

J Palliat Med 2019 Mar 13. Epub 2019 Mar 13.

1 Section of Palliative Care, Vanderbilt University Medical Center, Nashville, Tennessee.

Background: Earlier palliative care consultation is associated with less intensive medical care and improved quality outcomes for patients with cancer. However, there are limited data about how the timing of palliative care affects utilization among noncancer patients exposed to palliative care consultation.

Objective: Comparison of health care utilization for hospice decedents who received early versus late palliative care. Read More

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http://dx.doi.org/10.1089/jpm.2018.0514DOI Listing

Terminal Bleeding in Angiosarcoma.

J Palliat Med 2019 Mar 13. Epub 2019 Mar 13.

1 Department of Translational Neurosciences and Neurotherapeutics, Pacific Neuroscience Institute and John Wayne Cancer Institute at Providence Saint John's Health Center, Santa Monica, California.

Introduction: Terminal bleeding, a distressing symptom experience for patients, caregivers, and health professionals, occurs in a subset of patients in the palliative care setting. Terminal bleeding is often thought of as a large-volume catastrophically fatal event, but it can also occur for a longer period of time and still be the precipitating event for a patient's death.

Case Report: We present the case of terminal bleeding in an 87-year-old patient with angiosarcoma, a rare aggressive vascular neoplasm that can occur anywhere in the body but tend to occur more frequently in the head and neck. Read More

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http://dx.doi.org/10.1089/jpm.2018.0466DOI Listing
March 2019
1 Read

'So isolation comes in, discrimination and you find many people dying quietly without any family support': Accessing palliative care for key populations - an in-depth qualitative study.

Palliat Med 2019 Mar 12:269216319835398. Epub 2019 Mar 12.

2 Cicely Saunders Institute of Palliative care, Policy & Rehabilitation, King's College London, London, UK.

Background:: Ensuring palliative care for all under a new global health policy must include key populations, that is, lesbian, gay, bisexual, transgender and intersex (LGBTI) people, and sex workers. Accessibility and quality of care have not been investigated in lower and middle-income countries where civil rights are the weakest.

Aim:: To examine the accessibility to, and experiences of, palliative care for key populations in Zimbabwe. Read More

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http://dx.doi.org/10.1177/0269216319835398DOI Listing
March 2019
1 Read

Looking Back, Moving Forward: A Retrospective Review of Care Trends in an Academic Palliative and Supportive Care Program from 2004 to 2016.

J Palliat Med 2019 Mar 11. Epub 2019 Mar 11.

3 Center for Palliative and Supportive Care, University of Alabama at Birmingham, Birmingham, Alabama.

Objective: To examine a rural-serving HBPC program's 12-year experience and historical trends to inform future program direction and expansion.

Background: There is limited information about longitudinal trends in mature hospital-based palliative care (HBPC) programs serving racially diverse rural populations.

Methods: This is a retrospective cross-sectional study of operational and patient-reported outcomes from the University of Alabama at Birmingham (UAB) Center for Palliative and Supportive Care (CPSC) inpatient (n=11,786) and outpatient (n=315) databases from October 2004 to March 2016. Read More

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http://dx.doi.org/10.1089/jpm.2018.0410DOI Listing

A systematic review and critical appraisal of quality indicators to assess optimal palliative care for older people with dementia.

Palliat Med 2019 Mar 11:269216319834227. Epub 2019 Mar 11.

3 Institute for Ageing and Institute of Health & Society, Newcastle University, Newcastle upon Tyne, UK.

Background:: A challenge for commissioners and providers of end-of-life care in dementia is to translate recommendations for good or effective care into quality indicators that inform service development and evaluation.

Aim:: To identify and critically evaluate quality indicators for end-of-life care in dementia.

Results:: We found 8657 references, after de-duplication. Read More

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http://dx.doi.org/10.1177/0269216319834227DOI Listing

Socioeconomic factors affecting access to preferred place of death: A qualitative evidence synthesis.

Palliat Med 2019 Mar 8:269216319835146. Epub 2019 Mar 8.

Department of Health Sciences, University of York, York, UK.

Background:: Existing quantitative evidence suggests that at a population level, socioeconomic factors affect access to preferred place of death. However, the influence of individual and contextual socioeconomic factors on preferred place of death are less well understood.

Aim:: To systematically synthesise the existing qualitative evidence for socioeconomic factors affecting access to preferred place of death in the United Kingdom. Read More

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http://dx.doi.org/10.1177/0269216319835146DOI Listing
March 2019
1 Read

Airflow relieves chronic breathlessness in people with advanced disease: An exploratory systematic review and meta-analyses.

Palliat Med 2019 Mar 8:269216319835393. Epub 2019 Mar 8.

1 Wolfson Palliative Care Research Centre, Institute for Clinical and Applied Health Research, Hull York Medical School (HYMS), University of Hull, Hull, UK.

Background:: Chronic breathlessness is a neglected symptom of advanced diseases.

Aim:: To examine the effect of airflow for chronic breathlessness relief.

Design:: Exploratory systematic review and meta-analysis. Read More

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http://dx.doi.org/10.1177/0269216319835393DOI Listing
March 2019
3 Reads

Holistic Needs of People with Thoracic Cancer Identified by the Sheffield Profile for Assessment and Referral to Care Questionnaire.

J Palliat Med 2019 Mar 8. Epub 2019 Mar 8.

2 Department of Palliative Care, Nottingham University Hospitals NHS Trust, Nottingham, United Kingdom.

Background: A holistic needs assessment is recommended in people with cancer at key stages, including soon after diagnosis. For people with thoracic cancer, there is a lack of data obtained routinely at this time point.

Objective: To identify the most common and/or distressing supportive and palliative needs present soon after diagnosis using a specifically developed questionnaire. Read More

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http://dx.doi.org/10.1089/jpm.2018.0540DOI Listing
March 2019
3 Reads

Decisional Conflict in Home Medical Care in a Family-Oriented Society: Family Members' Perspectives on Surrogate Decision Making from a Multicenter Cohort Study.

J Palliat Med 2019 Mar 8. Epub 2019 Mar 8.

1 Department of Community Health and Preventive Medicine, Hamamatsu University School of Medicine, Hamamatsu, Japan.

Objective: To identify factors related to decisional conflict among surrogate decision makers for home medical care (HMC) patients.

Design: Prospective Cohort Study.

Setting/subjects: For older patients receiving HMC from four different primary care clinics in Japan from January 2016 to June 2017, we studied the family member with the main potential for surrogate decision making. Read More

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http://dx.doi.org/10.1089/jpm.2018.0493DOI Listing
March 2019
1 Read

Should we include monitors to improve assessment of awareness and pain in unconscious palliatively sedated patients? A case report.

Palliat Med 2019 Mar 7:269216319835149. Epub 2019 Mar 7.

1 Mental Health and Wellbeing Research Group, Department of Public Health, Vrije Universiteit Brussel, Jette, Belgium.

Background:: Awareness and pain during palliative sedation is typically assessed by observational scales, but the use of such scales has been put into question.

Case Presentation:: A woman in her mid-80s was admitted to a palliative care unit, presenting with chronic lymphatic leukemia, depression, and a cerebrovascular accident, with right-sided hemiplegia and aphasia. The patient was unable to eat and was suffering from nausea and vomiting. Read More

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http://dx.doi.org/10.1177/0269216319835149DOI Listing
March 2019
1 Read

Perinatal Palliative Care: A qualitative study evaluating the perspectives of pregnancy counselors.

Palliat Med 2019 Mar 7:269216319834225. Epub 2019 Mar 7.

1 Center for Pediatric Palliative Care, Dr. von Hauner Children's Hospital, Ludwig Maximilian University of Munich, Germany.

Background:: A prenatal diagnosis of a life-limiting disease raises complex ethical, emotional, and medical issues. Studies suggest that 40%-85% of parents decide to continue the pregnancy if given the option of Perinatal Palliative Care. However, structured Perinatal Palliative Care programs are missing in many European countries. Read More

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http://dx.doi.org/10.1177/0269216319834225DOI Listing

Poly (ADP-Ribose) Polymerase Inhibition for Chemotherapy-Induced Peripheral Neuropathy: A Meta-Analysis of Placebo-Controlled Trials.

J Palliat Med 2019 Mar 6. Epub 2019 Mar 6.

3 Department of Oncology, Mayo Clinic, Rochester, Minnesota.

Background: Chemotherapy-induced peripheral neuropathy is characterized by pain, numbness, and tingling in the hands and feet and by diminished quality of life. Multiple previous studies, mostly preclinical, suggest that poly (ADP-ribose) polymerase (PARP) inhibitors may help with these symptoms.

Objective: To assess the relationship between PARP inhibition and prevention/palliation of peripheral neuropathy in a clinical setting. Read More

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http://dx.doi.org/10.1089/jpm.2018.0572DOI Listing

The Benefits and Burdens of Pediatric Palliative Care and End-of-Life Research: A Systematic Review.

J Palliat Med 2019 Mar 5. Epub 2019 Mar 5.

13 Department of Nursing Science, Professional Practice & Quality, Children's National Health System, George Washington University, Washington, DC.

Objective: The aim of this study is to report the benefits and burdens of palliative research participation on children, siblings, parents, clinicians, and researchers.

Background: Pediatric palliative care requires research to mature the science and improve interventions. A tension exists between the desire to enhance palliative and end-of-life care for children and their families and the need to protect these potentially vulnerable populations from untoward burdens. Read More

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http://dx.doi.org/10.1089/jpm.2018.0483DOI Listing

Implications of Pediatric Palliative Consultation for Intensive Care Unit Stay.

J Palliat Med 2019 Mar 5. Epub 2019 Mar 5.

2 Department of Anesthesiology and Pain Medicine, Nationwide Children's Hospital, Columbus, Ohio.

Background: The impact of specialty pediatric palliative care (PPC) on intensive care unit (ICU) length of stay for children is unclear.

Objective: To estimate the impact of PPC consultation by analyzing ICU stay as a dynamic outcome over the course of hospitalization.

Patients And Methods: Retrospective cohort study of children hospitalized with diagnoses suggested as referral triggers for PPC at a large academic children's hospital. Read More

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http://dx.doi.org/10.1089/jpm.2018.0292DOI Listing

Enabling patients with advanced chronic obstructive pulmonary disease to identify and express their support needs to health care professionals: A qualitative study to develop a tool.

Palliat Med 2019 Mar 5:269216319833559. Epub 2019 Mar 5.

3 School of Health Sciences, University of East Anglia, Norwich, UK.

Background:: Patients with advanced chronic obstructive pulmonary disease have difficulty reporting their holistic support needs to health care professionals, undermining delivery of person-centred care. We lack tools that directly support patients with this.

Aim:: To develop an evidence-based, designed-for-purpose, tool to enable patients to directly identify and express support needs to health care professionals. Read More

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http://dx.doi.org/10.1177/0269216319833559DOI Listing
March 2019
2 Reads

Patients' views on care and their association with outcomes in palliative care.

Palliat Med 2019 Mar 1:269216319831383. Epub 2019 Mar 1.

1 Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK.

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http://dx.doi.org/10.1177/0269216319831383DOI Listing

Thromboprophylaxis for inpatients with advanced cancer in palliative care settings: A systematic review and narrative synthesis.

Palliat Med 2019 Mar 1:269216319830860. Epub 2019 Mar 1.

1 Department of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, ON, Canada.

Background:: Patients with advanced cancer have an elevated risk of venous thromboembolism. Increasingly, patients are admitted to palliative care settings for brief admissions, with greater numbers of discharges (vs deaths) reported internationally. There is limited guidance around the use of thromboprophylaxis or incidence of venous thromboembolism for these patients. Read More

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http://dx.doi.org/10.1177/0269216319830860DOI Listing

Clinicians' perceptions of opioid error-contributing factors in inpatient palliative care services: A qualitative study.

Palliat Med 2019 Mar 1:269216319832799. Epub 2019 Mar 1.

5 Faculty of Health, University of Technology Sydney, Sydney, NSW, Australia.

Background:: Opioid errors are a leading cause of patient harm and adversely impact palliative care inpatients' pain and symptom management. Yet, the factors contributing to opioid errors in palliative care are poorly understood. Identifying and better understanding the individual and system factors contributing to these errors is required to inform targeted strategies. Read More

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http://dx.doi.org/10.1177/0269216319832799DOI Listing
March 2019
1 Read

Exposure to deaths and dying and risks of burnout among long-term care staff: A cross-sectional survey.

Palliat Med 2019 Feb 28:269216319833248. Epub 2019 Feb 28.

3 Providence Health Care, Vancouver, BC, Canada.

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http://dx.doi.org/10.1177/0269216319833248DOI Listing
February 2019

The Cambia Sojourns Scholars Leadership Program: Projects and Reflections on Leadership in Palliative Care.

J Palliat Med 2019 Feb 27. Epub 2019 Feb 27.

10 Division of Geriatrics, Department of Medicine, University of California-San Francisco, San Francisco, California.

Background: Effective leadership is necessary to meet the complex care needs of patients with serious, life-limiting illness. The Cambia Health Foundation Sojourns Scholars Program is advancing leadership in palliative care through supporting emerging leaders. The 2016 Cohort has implemented a range of projects to promote their leadership development. Read More

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http://dx.doi.org/10.1089/jpm.2018.0523DOI Listing
February 2019

Case series and practice reviews: Dregs at the bottom of the evidence pile or an essential link between frontline practice and research?

Palliat Med 2019 Jan;33(1):3-4

3 International Observatory on End of Life Care, Lancaster University, UK.

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http://dx.doi.org/10.1177/0269216318816049DOI Listing
January 2019
1 Read

Reading past the p < 0.05's: The secondary messages of systematic reviews and meta-analyses in palliative care.

Authors:
Dio Kavalieratos

Palliat Med 2019 Feb;33(2):121-122

Section of Palliative Care and Medical Ethics, Division of General Internal Medicine, Department of Medicine, University of Pittsburgh, Pittsburgh, PA, USA.

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http://dx.doi.org/10.1177/0269216318821054DOI Listing
February 2019

Honoring a Patient's Legacy: Pausing to Say Goodbye.

Authors:
Aurelie Lucette

J Palliat Med 2019 Mar;22(3):340

1 Doctoral Program in Clinical Psychology, University of Miami, Coral Gables, Florida.

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http://dx.doi.org/10.1089/jpm.2018.0333DOI Listing

From Feeling Helpless to Finding Meaning.

Authors:
Shima Taghavi

J Palliat Med 2019 Mar;22(3):339

1 Alliant International University, San Diego, California.

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http://dx.doi.org/10.1089/jpm.2018.0332DOI Listing

Last Night.

Authors:
Amy M Rak

J Palliat Med 2019 Mar;22(3):341

OhioHealth Hospice and Palliative Care, Columbus, Ohio.

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http://dx.doi.org/10.1089/jpm.2018.0356DOI Listing
March 2019
1 Read

The Hospital Loading Dock Ramp.

Authors:
Carol Kummet

J Palliat Med 2019 Mar;22(3):342

Department of Social Work, University of Washington Medical Center, Seattle, Washington.

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http://dx.doi.org/10.1089/jpm.2018.0358DOI Listing
March 2019
1 Read

Grief is the Thing with Feathers.

Authors:
Veronica Phipps

J Palliat Med 2019 Mar;22(3):348

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http://dx.doi.org/10.1089/jpm.2018.0636DOI Listing

Palliative Care Comes of Age in the 2018 Declaration of Astana.

J Palliat Med 2019 Mar;22(3):242

1 International Association for Hospice and Palliative Care, Houston, Texas.

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http://dx.doi.org/10.1089/jpm.2018.0615DOI Listing

Recent Literature.

Authors:
Paul C Rousseau

J Palliat Med 2019 Mar;22(3):349-350

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http://dx.doi.org/10.1089/jpm.2019.0001DOI Listing

A Tale of Two Deaths.

Authors:
Stacy Fischer

J Palliat Med 2019 Mar;22(3):240-241

General Internal Medicine, University of Colorado Denver, Aurora, Colorado.

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http://dx.doi.org/10.1089/jpm.2019.0002DOI Listing

Relationship of Cannabis Use to Patient-Reported Symptoms in Cancer Patients Seeking Supportive/Palliative Care.

J Palliat Med 2019 Feb 22. Epub 2019 Feb 22.

1 Department of Supportive Care Medicine, Moffitt Cancer Center, Tampa, Florida.

Background: The use of cannabis by cancer patients has become increasingly common. With expanding access to medical cannabis, unsanctioned cannabis use is likely to increase. Despite this, the extent to which patients seeking specialized palliative or supportive care for cancer-related symptoms are actively using cannabis has not been well established. Read More

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http://dx.doi.org/10.1089/jpm.2018.0533DOI Listing
February 2019

Top Ten Tips Palliative Care Clinicians Should Know About Caring for Patients with Left Ventricular Assist Devices.

J Palliat Med 2019 Feb 22. Epub 2019 Feb 22.

3 Division of Gerontology, Geriatrics and Pallative Care, University of Alabama-Birmingham and Section of Pallative Care, Birmingham VA Medical Center, Birmingham, Alabama.

Advanced heart failure (HF) is a common condition that leads to significant suffering for patients and their families. Left ventricular assist devices (LVADs) can improve both the quantity and quality of life for those suffering with advanced HF. Palliative care clinicians are being asked with increasing frequency to assist HF teams to manage patients with LVADs in the preimplantation, post-operative, and end-of-life settings, although not all palliative care providers feel comfortable with this technology. Read More

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http://dx.doi.org/10.1089/jpm.2019.0044DOI Listing
February 2019

Bereavement Support in Palliative Care: A National Survey of Australian Services.

J Palliat Med 2019 Feb 22. Epub 2019 Feb 22.

Centre for Health Service Development, Australian Health Services Research Institute (AHSRI), Faculty of Business, University of Wollongong, Wollongong, Australia.

Background: Bereavement support is an integral part of palliative care. However, audits of Australian palliative care services have consistently identified bereavement care as one of the highest priorities for improvement.

Objective: We assessed equity of access to bereavement support across Australian palliative care services by using survey data to compare services according to location (metropolitan vs. Read More

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http://dx.doi.org/10.1089/jpm.2018.0502DOI Listing
February 2019
1 Read

Variations in Physician Orders for Life-Sustaining Treatment Program across the Nation: Environmental Scan.

J Palliat Med 2019 Feb 21. Epub 2019 Feb 21.

1 Center for Health Policy and Center for Improving Palliative Care for Vulnerable Adults with Multiple Chronic Conditions, Columbia University School of Nursing, New York, New York.

Background: Physician Orders for Life-Sustaining Treatment (POLST) is an advance care planning tool that is designed to document end-of-life (EoL) care wishes of those living with limited life expectancies. Although positive impacts of POLST program has been studied, variations in state-specific POLST programs across the nation remain unknown.

Objective: Identify state variations in POLST forms and determine if variations are associated with program maturity status. Read More

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http://dx.doi.org/10.1089/jpm.2018.0626DOI Listing
February 2019

What is the evidence that people with frailty have needs for palliative care at the end of life? A systematic review and narrative synthesis.

Palliat Med 2019 Feb 18:269216319828650. Epub 2019 Feb 18.

Institute of Health and Society, Newcastle University, Newcastle upon Tyne, UK.

Background:: The number of older people living and dying with frailty is rising, but our understanding of their end-of-life care needs is limited.

Aim:: To synthesise evidence on the end-of-life care needs of people with frailty.

Design:: Systematic review of literature and narrative synthesis. Read More

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http://dx.doi.org/10.1177/0269216319828650DOI Listing
February 2019

Predicting outcomes following holistic breathlessness services: A pooled analysis of individual patient data.

Palliat Med 2019 Feb 15:269216319830299. Epub 2019 Feb 15.

1 Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, King's College London, London, UK.

Background:: Holistic breathlessness services have been developed for people with advanced disease and chronic breathlessness, leading to improved psychological aspects of breathlessness and health. The extent to which patient characteristics influence outcomes is unclear.

Aim:: To identify patient characteristics predicting outcomes of mastery and distress due to breathlessness following holistic breathlessness services. Read More

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http://dx.doi.org/10.1177/0269216319830299DOI Listing
February 2019
1 Read

Improving Communication About Resuscitation Preference for Patients Discharged from Hospital to Nursing Home: A Quality Improvement Project.

J Palliat Med 2019 Feb 14. Epub 2019 Feb 14.

3 Department of Medicine, David Geffen School of Medicine at UCLA, Los Angeles, California.

Background: Physician Orders for Life-Sustaining Treatment (POLST) can help ensure continuity of do-not-resuscitate (DNR) decisions and other care preferences after discharge from the hospital.

Objective: We aimed to improve POLST completion rates for patients with DNR orders who were being discharged to a nursing home (NH) after an acute hospitalization at our institution.

Design: We implemented an interprofessional quality improvement intervention involving education, communication skills, and nursing and case manager cues regarding POLST use. Read More

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http://dx.doi.org/10.1089/jpm.2018.0419DOI Listing
February 2019

Comparison of Palliative Care Interventions for Cancer versus Heart Failure Patients: A Secondary Analysis of a Systematic Review.

J Palliat Med 2019 Feb 14. Epub 2019 Feb 14.

2 Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina.

Background: In 2016, Kavalieratos and colleagues performed a systematic review of randomized clinical trials (RCTs) of palliative care (PC) interventions. The majority of RCTs included focused on oncology, with fewer in heart failure (HF). Cancer patients' often predictable decline differs from the variable illness trajectories of HF; however, both groups experience similar palliative needs, and accordingly, PC in HF continues to grow. Read More

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http://dx.doi.org/10.1089/jpm.2018.0513DOI Listing
February 2019

Symptom Burden and End-of-Life Palliative Treatments during the Last Two Weeks of Life in Patients with Advanced Musculoskeletal Sarcoma.

J Palliat Med 2019 Feb 14. Epub 2019 Feb 14.

1 Division of Orthopedic Surgery, Niigata University Graduate School of Medical and Dental Sciences, Niigata, Japan.

Background: Musculoskeletal sarcomas (MSSs) are rare cancers and often aggressive tumors that originate from mesenchymal tissue. Patients with advanced MSS often report difficulties with symptom burden, which can reduce their health-related quality-of-life.

Objective: The aim of this study was to describe the patterns of the physical symptoms of MSS patients in the palliative setting and to detail the palliative treatment used in the last two weeks of life. Read More

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http://dx.doi.org/10.1089/jpm.2018.0415DOI Listing
February 2019
1 Read

The experiences and needs of primary family caregivers of patients with multiple myeloma: A qualitative analysis.

Palliat Med 2019 Feb 14:269216319830017. Epub 2019 Feb 14.

6 Department of Nursing, Escola Universitària d'Infermeria Gimbernat, Barcelona, Spain.

Background:: Family caregivers play a key role in the lives of patients with multiple myeloma. However, very little is known about the impact that the disease (its diagnosis, course and prognosis) has on the main family caregiver.

Aim:: To achieve a deeper understanding of the lived experience of individuals who are the primary caregiver of a relative with multiple myeloma and to shed light on their needs. Read More

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http://dx.doi.org/10.1177/0269216319830017DOI Listing
February 2019
1 Read

Dronabinol for the Treatment of Paraneoplastic Night Sweats in Cancer Patients: A Report of Five Cases.

J Palliat Med 2019 Feb 13. Epub 2019 Feb 13.

4 Palliative Medicine, Stanford University School of Medicine, Stanford, California.

Background: Night sweats significantly impact the quality of life for cancer patients and are often resistant to treatment. Cannabinoids have been shown to modulate cytokine activity and produce hypothermia in animal models, suggesting that they may be a promising candidate for palliation of night sweats in patients with oncologic disease.

Objective: Assess efficacy of the oral cannabinoid, dronabinol, for palliation of night sweats in cancer patients. Read More

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http://dx.doi.org/10.1089/jpm.2018.0551DOI Listing
February 2019
1 Read

Systematic Symptom Reporting by Pediatric Palliative Care Patients with Cancer: A Preliminary Report.

J Palliat Med 2019 Feb 13. Epub 2019 Feb 13.

1 Department of Palliative, Rehabilitation and Integrative Medicine, University of Texas MD Anderson Cancer Center, Houston, Texas.

Background: Systematic symptom assessment is not a standard of care in children with cancer. Many well-known symptom assessment tools are lengthy or difficult to integrate into a daily pediatric palliative care practice. We created a series of brief and simple questions to be systematically given to children and their caregivers. Read More

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http://dx.doi.org/10.1089/jpm.2018.0545DOI Listing
February 2019

Palliative care physicians' perspectives on transferring patients to nursing homes and communication strategies to facilitate this transition: A qualitative study.

Palliat Med 2019 Mar;33(3):323-331

1 Centre for Learning & Research in Palliative Care, HammondCare, Sydney, NSW, Australia.

Background:: As modern medicine extends the life expectancy of patients with life-limiting illnesses and health system resource pressures intensify, palliative care physicians increasingly need to transfer stable patients from specialist palliative care units to nursing homes. The experience of palliative care physicians in decision-making and communicating with patients and families about the need for this transition is underexplored in the literature.

Aim:: This study aimed to explore the experiences of and communication techniques used by palliative care physicians as they consider and discuss nursing home placements for their patients. Read More

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http://dx.doi.org/10.1177/0269216319827803DOI Listing

Advancing research on advance care planning in dementia.

Palliat Med 2019 Mar;33(3):259-261

Professor of Aging and Palliative Care Research, VUB-UGhent End-of-Care Research Group, Department of Family Medicine and Chronic Care and Department of Clinical Sciences, Vrije Universiteit Brussel (VUB), Ixelles, Belgium.

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http://dx.doi.org/10.1177/0269216319826411DOI Listing

Factors That Impact Family Perception of Goal-Concordant Care at the End of Life.

J Palliat Med 2019 Feb 13. Epub 2019 Feb 13.

2 Brookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, New York.

Background: Goal-concordant care (GCC)-care aligned with a patient's known goals and values-is a measure of the quality of end-of-life (EOL) care that can be assessed by surveying family members after a patient's death. It is unknown whether patient characteristics affect this measure.

Objective: The objective of the article was to examine family report of GCC and its associations with patient characteristics. Read More

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http://dx.doi.org/10.1089/jpm.2018.0508DOI Listing
February 2019

Palliative care specialists in hospice and hospital/community teams predominantly use low doses of sedative medication at the end of life for patient comfort rather than sedation: Findings from focus groups and patient records for I-CAN-CARE.

Palliat Med 2019 Feb 12:269216319826007. Epub 2019 Feb 12.

Marie Curie Palliative Care Research Department, UCL, London, UK.

Background:: Little research has explored the detail of practice when using sedative medications at the end of life. One work package of the I-CAN-CARE research programme investigates this in UK palliative care.

Aims:: To investigate current practices when using sedative medication at the end of life in London, UK, by (1) qualitatively exploring the understandings of palliative care clinicians, (2) examining documented sedative use in patient records and (3) comparing findings from both investigations. Read More

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http://dx.doi.org/10.1177/0269216319826007DOI Listing
February 2019