1,081 results match your criteria Journal of Pediatric Oncology Nursing[Journal]


2018 Reviewer Thank You.

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J Pediatr Oncol Nurs 2019 Mar/Apr;36(2):160-161

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http://dx.doi.org/10.1177/1043454219829218DOI Listing
February 2019

Education Milestones for Newly Diagnosed Pediatric, Adolescent, and Young Adult Cancer Patients: A Quality Improvement Initiative.

J Pediatr Oncol Nurs 2019 Mar/Apr;36(2):103-118. Epub 2019 Jan 2.

1 Medical College of Wisconsin, Milwaukee, WI, USA.

The diagnosis of cancer in a child, adolescent, or young adult is an emotionally overwhelming time. To improve the quality of education and support provided to patients and caregivers with a new cancer diagnosis, we executed a quality improvement initiative to (a) define key education milestones for the delivery of essential education during the first 2 months following diagnosis and (b) to define role accountability within the multidisciplinary team for delivery of content and execution of tasks. To develop education milestones, we (a) identified educational content from review of the literature, (b) determined the sequence of content delivery through qualitative interviews with patients and caregivers, and (c) developed education milestones by evaluation of existing workflows. Read More

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http://dx.doi.org/10.1177/1043454218820906DOI Listing
January 2019

Bridging the Gap: A Pilot Program to Understand and Meet the Needs of Pediatric Patients and Families as They Transition Off Cancer-Directed Therapy.

J Pediatr Oncol Nurs 2018 Dec 25:1043454218819452. Epub 2018 Dec 25.

1 Columbia University Medical Center, New York, NY, USA.

Background: With improved curative therapies, over 80% of children and adolescent/young adults diagnosed with cancer are expected to live into adulthood. This population is at risk for increased morbidity and early mortality and requires ongoing health care and surveillance for late effects of treatment. This pilot study assessed the acceptability of a structured medical visit at the completion of cancer-directed therapy as well as patient/family's knowledge of diagnosis and other aspects of care. Read More

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http://dx.doi.org/10.1177/1043454218819452DOI Listing
December 2018
6 Reads

Assessing Disease Knowledge and Self-Management in Youth With Sickle Cell Disease Prior to Transition.

J Pediatr Oncol Nurs 2018 Dec 19:1043454218819447. Epub 2018 Dec 19.

1 Children's National Health System, Washington, DC, USA.

Introduction: Transition of medical care from pediatrics to adult can be challenging and difficult. Until the 1970s, only half of patients diagnosed with sickle cell disease (SCD) reached adulthood. As a result of patients living longer, there is a growing need to understand factors that influence readiness to transition. Read More

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http://dx.doi.org/10.1177/1043454218819447DOI Listing
December 2018
14 Reads

Psychological Predictors of Pain in Children and Adolescents With Sickle Cell Disease: A Scoping Review.

J Pediatr Oncol Nurs 2018 Dec 19:1043454218819457. Epub 2018 Dec 19.

1 University of Michigan School of Nursing, Ann Arbor, MI, USA.

Objective: Sickle cell disease (SCD) is a common red blood cell disorder that disrupts the lives of many African Americans and those of Middle Eastern heritage within the United States due to frequent pain. There is limited research quantifying biopsychosocial factors, specifically psychological characteristics, that influence pain in children and adolescents with SCD. The aim of this literature review was to identify psychological characteristics that are predictive or associated with pain in children and adolescents with SCD. Read More

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http://journals.sagepub.com/doi/10.1177/1043454218819457
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http://dx.doi.org/10.1177/1043454218819457DOI Listing
December 2018
1 Read

Childhood Cancer-Related Fatigue and Day-to-Day Quality of Life.

J Pediatr Oncol Nurs 2019 Mar/Apr;36(2):74-85. Epub 2018 Dec 17.

1 West Virginia University, Morgantown, WV, USA.

Childhood cancer-related fatigue is often viewed as an inevitable symptom of cancer and cancer treatment leading to underassessment by health care providers and self-management by families in the home and hospital environment. Parents' perspectives of the influence of childhood cancer-related fatigue on their child's day-to-day life is needed to understand how parents may or may not prioritize, report, and/or manage the fatigue symptom. This qualitative study used conventional content analysis to describe parents' observations and perspectives on the influence of fatigue in their child's day-to-day quality of life (QOL). Read More

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http://dx.doi.org/10.1177/1043454218818062DOI Listing
December 2018

Siblings of Young People With Cancer in NZ: Experiences That Positively and Negatively Support Well-Being.

J Pediatr Oncol Nurs 2019 Mar/Apr;36(2):119-130. Epub 2018 Dec 17.

1 The University of Auckland, Auckland, New Zealand.

Siblings of young people with cancer experience significant distress and these effects often exist long after their sibling's treatment has successfully been completed. In New Zealand, many families must travel several hours to receive treatment, with some having to live away from home for extended periods which can create additional strains. We interviewed 10 siblings of pediatric cancer survivors drawn from a larger quantitative study, to investigate what made siblings' experiences more difficult and to find out what was helpful in supporting their adjustment. Read More

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http://dx.doi.org/10.1177/1043454218819455DOI Listing
December 2018

Siblings' Experiences of Everyday Life in a Family Where One Child Is Diagnosed With Blood Cancer: A Qualitative Study.

J Pediatr Oncol Nurs 2019 Mar/Apr;36(2):131-142. Epub 2018 Dec 12.

3 University Hospital Ghent, Ghent, Belgium.

Background: Childhood cancer not only presents challenges to the life of the child with cancer but also to the siblings' daily family life. The aim of the current study was to gain a better understanding of siblings' experiences of living in a family where one child has been diagnosed with blood cancer.

Method: Ten siblings of children with leukemia or non-Hodgkin lymphoma completed a semistructured interview about their everyday family life experiences postdiagnosis. Read More

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http://dx.doi.org/10.1177/1043454218818067DOI Listing
December 2018
5 Reads

Returning to Social Life: Development of Social Identity for Adolescent and Young Adult Survivors of Leukemia in Korea.

J Pediatr Oncol Nurs 2019 Jan/Feb;36(1):35-43. Epub 2018 Nov 17.

2 The Catholic University of Korea, Seoul, Korea.

Objective: The purpose of this study is to investigate the life experiences and processes that occur as adolescent and young adult leukemia survivors return to social life using grounded theory.

Method: This study comprised 14 adolescents and young adults who visited a hospital for follow-up care after treatment of leukemia. We used in-depth interviews to examine the participants' experiences in returning to social life. Read More

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http://dx.doi.org/10.1177/1043454218810145DOI Listing
November 2018
2 Reads

The Children's Oncology Group: Organizational Structure, Membership, and Institutional Characteristics.

J Pediatr Oncol Nurs 2018 Nov 14:1043454218810141. Epub 2018 Nov 14.

7 The University of Alabama at Birmingham, Birmingham, AL, USA.

Background: The Children's Oncology Group (COG) is the only organization within the National Cancer Institute's National Clinical Trials Network dedicated exclusively to pediatric cancer research. The purpose of this article is to provide an overview of COG's organizational structure, to characterize its institutional and individual membership, and to summarize enrollments onto COG clinical trials.

Method: Data from 2013 to 2015 were compiled from sources internal (Network Operations, Statistics and Data Center, Chair's Office) and external (American Hospital Association, American Nurses Credentialing Center) to COG, to present a comprehensive overview of COG's structure, individual and institutional membership, and group operations. Read More

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http://dx.doi.org/10.1177/1043454218810141DOI Listing
November 2018
1 Read

A Systematic Review Summarizing the State of Evidence on Bullying in Childhood Cancer Patients/Survivors [Formula: see text].

J Pediatr Oncol Nurs 2019 Jan/Feb;36(1):55-68. Epub 2018 Nov 8.

1 Sydney Children's Hospital, Sydney, New South Wales, Australia.

Background: One in four school-aged children is bullied. However, the risk may be greater for childhood cancer patients/survivors (diagnosed <18 years), because of symptoms of the disease and treatment that may prejudice peers. While the serious consequences of bullying are well documented in the general population, bullying may have even greater impact in children with cancer due to the myriad of challenges associated with treatment and prolonged school absence. Read More

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http://dx.doi.org/10.1177/1043454218810136DOI Listing
November 2018
7 Reads

The Social Determinants of Nursing Retention in a Pediatric Hematology/Oncology Unit.

Authors:
Paula R Mahon

J Pediatr Oncol Nurs 2018 Nov/Dec;35(6):417-427. Epub 2018 Sep 7.

1 The University of British Columbia, Vancouver, British Columbia, Canada.

Pediatric hematology/oncology units (PHOUs) are highly paced, stressful environments and can be difficult areas to work. Thus, these units can present issues when it comes to both recruiting and retaining health care professionals (HCPs). There is scant research addressing how the environment of a PHOU contribute to a HCP's desire to stay or leave this environment. Read More

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http://dx.doi.org/10.1177/1043454218794881DOI Listing
September 2018

Social Media Use Among Parents and Caregivers of Children With Cancer.

J Pediatr Oncol Nurs 2018 Nov/Dec;35(6):399-405. Epub 2018 Aug 31.

1 University of Utah, Salt Lake City, UT, USA.

Social media as an effective source of information and support among parents and other caregivers of children with cancer has not been explored. The purpose of this cross-sectional study was to describe caregivers' reasons for using social media, social media sites used, and predictors of social media usage. This study sample included 215 caregivers (96% parents) of children with cancer receiving cancer-related care at a tertiary children's hospital in the Intermountain West. Read More

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http://journals.sagepub.com/doi/10.1177/1043454218795091
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http://dx.doi.org/10.1177/1043454218795091DOI Listing
August 2018
19 Reads
0.873 Impact Factor

The Balancing Act: Mothers' Experiences of Providing Care to Their Children With Cancer.

J Pediatr Oncol Nurs 2018 Nov/Dec;35(6):439-446. Epub 2018 Aug 27.

2 Wilfrid Laurier University, Waterloo, Ontario, Canada.

The effect of pediatric cancer and its treatment are overwhelming-these effects are multifaceted and felt by the entire family unit throughout the diagnosis and treatment process. Children experience a plethora of effects as a result of the treatment process; however, it is imperative to remember that a pediatric cancer diagnosis affects parents physically, emotionally, and psychologically as well. While much of the pediatric cancer treatment occurs at the hospital or in clinics, parents are often faced with additional caregiving responsibilities at home, and in many cases, it is mothers who provide care to their children, while also attempting to care for the siblings of their ill children. Read More

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http://dx.doi.org/10.1177/1043454218794667DOI Listing

2017 Reviewer Thank You.

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J Pediatr Oncol Nurs 2018 Mar/Apr;35(2):149-150

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http://dx.doi.org/10.1177/1043454218756509DOI Listing

From Patient to Provider: The Lived Experience of Pediatric Oncology Survivors Who Work as Pediatric Oncology Nurses.

Authors:
Teresa M Conte

J Pediatr Oncol Nurs 2018 Nov/Dec;35(6):428-438. Epub 2018 Jul 20.

1 University of Scranton, PA, USA.

There is little known about the experiences of former pediatric oncology patients that are currently working as pediatric oncology nurses. Literature reviews yielded no direct research studies involving this group of nurses. The purpose of this phenomenological study was to describe the experiences of these former oncology patients that are now oncology nurses. Read More

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http://dx.doi.org/10.1177/1043454218787449DOI Listing
July 2018
1 Read

Usability Testing of an Interactive Virtual Reality Distraction Intervention to Reduce Procedural Pain in Children and Adolescents With Cancer [Formula: see text].

J Pediatr Oncol Nurs 2018 Nov/Dec;35(6):406-416. Epub 2018 Jun 27.

1 University of Toronto, Toronto, Ontario, Canada.

Purpose: Needle procedures are among the most distressing aspects of pediatric cancer-related treatment. Virtual reality (VR) distraction offers promise for needle-related pain and distress given its highly immersive and interactive virtual environment. This study assessed the usability (ease of use and understanding, acceptability) of a custom VR intervention for children with cancer undergoing implantable venous access device (IVAD) needle insertion. Read More

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http://dx.doi.org/10.1177/1043454218782138DOI Listing
June 2018
5 Reads

The Use of Aromatherapy to Reduce Chemotherapy-Induced Nausea in Children With Cancer: A Randomized, Double-Blind, Placebo-Controlled Trial.

J Pediatr Oncol Nurs 2018 Nov/Dec;35(6):392-398. Epub 2018 Jun 27.

1 Children's Hospital Los Angeles, Los Angeles, CA, USA.

Introduction: Chemotherapy-induced nausea can be distressing and difficult to manage in children with cancer. The purpose of this study was to investigate the utility of ginger aromatherapy in relieving chemotherapy-induced nausea in children with cancer.

Method: This randomized, double-blind, placebo-controlled study of 49 children with cancer explored whether inhalation of the aroma of essential oil of ginger during chemotherapy decreased nausea compared with a placebo (water) or control (Johnson's baby shampoo) measured by prechemotherapy and postchemotherapy assessment with the Pediatric Nausea Assessment Tool (PeNAT). Read More

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http://journals.sagepub.com/doi/10.1177/1043454218782133
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http://dx.doi.org/10.1177/1043454218782133DOI Listing
June 2018
14 Reads

Through Their Eyes: Parental Perceptions on Hospital Admissions for Febrile Neutropenia in Children With Cancer.

J Pediatr Oncol Nurs 2018 Sep/Oct;35(5):342-352. Epub 2018 Jun 6.

1 Oncology Services Group, Lady Cilento Children's Hospital, South Brisbane, QLD, Australia.

Febrile neutropenia requires prompt assessment and antibiotic administration and is the most common reason for unexpected hospital admission in pediatric oncology. Parents are expected to be vigilant and "drop everything" to take their child to their nearest hospital for assessment if fever occurs. Delays in antibiotic administration are associated with poorer outcomes; however, delays are common. Read More

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http://dx.doi.org/10.1177/1043454218777719DOI Listing
June 2018
1 Read

Usability Testing of an Interactive Communication Tool to Help Children Express Their Cancer Symptoms.

J Pediatr Oncol Nurs 2018 Sep/Oct;35(5):320-331. Epub 2018 May 31.

9 Oslo University Hospital, Oslo, Norway.

Objective: Sisom is an interactive computer software program that allows children to rate the severity of their cancer symptoms. The study objectives were to describe the usability of Sisom in terms of ease of use, usefulness, and aesthetics and to offer suggestions for improvement.

Method: A multisite, descriptive study was conducted to describe the usability of Sisom. Read More

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http://dx.doi.org/10.1177/1043454218777728DOI Listing
May 2018
1 Read

Changes in Central Line-Associated Bloodstream Infection Rates Among Children With Immune Compromised Conditions: An 11-Year Review.

J Pediatr Oncol Nurs 2018 Nov/Dec;35(6):382-391. Epub 2018 Apr 18.

1 University of Utah, Salt Lake City, UT, USA.

This article describes changes in central line-associated bloodstream infection (CLABSI) rates among common causative organisms over an 11-year period on a pediatric inpatient unit prior to and following CLABSI reduction strategies. The setting for this descriptive cohort design study was a 32-bed inpatient unit in a tertiary pediatric hospital serving children with immune compromised conditions, including cancer and recipients of hematopoietic stem cell and solid organ transplants. Between January 2006 and December 2016, 265 CLABSIs involving 189 patients were reported. Read More

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http://dx.doi.org/10.1177/1043454218767885DOI Listing
April 2018
2 Reads

The Use of the Newest Vital Sign Health Literacy Instrument in Adolescents With Sickle Cell Disease.

J Pediatr Oncol Nurs 2018 Sep/Oct;35(5):361-367. Epub 2018 Apr 16.

2 The University of Texas at Austin, Austin, TX, USA.

The purpose of this article is to discuss the use of the Newest Vital Sign (NVS) health literacy instrument in adolescents with sickle cell disease. The NVS evaluates both literacy and numeracy (the ability to understand and work with numbers) as well as the ability to locate and apply information. It is important to validate the NVS for use in adolescents, as the only currently validated instrument, the Rapid Estimate of Adolescent Literacy in Medicine-Teen (REALM-Teen), does not measure numeracy or the ability to locate or apply information. Read More

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http://dx.doi.org/10.1177/1043454218767875DOI Listing
April 2018
4 Reads

Staff Perceptions of Symptoms, Approaches to Assessment, and Challenges to Assessment Among Children With Cancer.

J Pediatr Oncol Nurs 2018 Sep/Oct;35(5):332-341. Epub 2018 Apr 13.

1 University of Utah, Salt Lake City, UT, USA.

Nurses are often the first to recognize and respond to children's symptoms. This descriptive, exploratory study characterized how pediatric oncology health care providers characterize and assess children's cancer-related symptoms. The study also explored challenges associated with symptom assessment and information perceived as helpful in planning interventions. Read More

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http://dx.doi.org/10.1177/1043454218767888DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6319255PMC
April 2018
5 Reads

Validity and Reliability of the Turkish Version of the Adapted Rhodes Index of Nausea and Vomiting for Pediatrics by Child (ARINVc) and by Parent (ARINVp).

J Pediatr Oncol Nurs 2018 Sep/Oct;35(5):353-360. Epub 2018 Apr 12.

1 Ege University Faculty of Nursing, Bornova-Izmir, Turkey.

The study was conducted methodologically to adapt the Adapted Rhodes Index of Nausea and Vomiting for Pediatrics by Child (ARINVc) and Adapted Rhodes Index of Nausea and Vomiting for Pediatrics by Parent (ARINVp) into Turkish. The scales are administered to children who receive chemotherapy and to their parents, respectively. The study sample consisted of 8- to 18-year-old children who were hospitalized in the pediatric oncology and hematology clinics of a university hospital, met the sampling criteria, and agreed to participate in the research. Read More

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http://dx.doi.org/10.1177/1043454218765173DOI Listing
April 2018
41 Reads

Road to Home Program: A Performance Improvement Initiative to Increase Family and Nurse Satisfaction With the Discharge Education Process for Newly Diagnosed Pediatric Oncology Patients [Formula: see text].

J Pediatr Oncol Nurs 2018 Sep/Oct;35(5):368-374. Epub 2018 Apr 10.

1 Children's National Health System, Washington, DC, USA.

Families of children, adolescents, and young adults with a new oncology diagnosis must absorb knowledge and skills needed to care for their child at home during a period of emergent hospitalizations and intense medical interventions. Effective nurse-led teaching and discharge planning begun at diagnosis can prepare families to safely care for their child following discharge, and be a source of satisfaction. The objective of this performance improvement initiative was to increase family and nurse satisfaction with new diagnosis education and discharge. Read More

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http://dx.doi.org/10.1177/1043454218767872DOI Listing
April 2018
2 Reads

Development of Electronic Chemotherapy Roadmaps for Pediatric Oncology Patients.

J Pediatr Oncol Nurs 2018 Sep/Oct;35(5):314-319. Epub 2018 Apr 10.

2 Washington University School of Medicine, St. Louis, MO, USA.

A chemotherapy roadmap is a summary of the chemotherapy plan for a pediatric oncology patient. Chemotherapy roadmaps exist as paper documents for most, if not all, pediatric oncology programs. Paper chemotherapy roadmaps are associated with risks that can negatively affect the safety of the chemotherapy process. Read More

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http://dx.doi.org/10.1177/1043454218767876DOI Listing
April 2018
5 Reads

Knowledge, Beliefs, and Behaviors Related to Palliative Care Delivery Among Pediatric Oncology Health Care Providers.

J Pediatr Oncol Nurs 2018 Jul/Aug;35(4):247-256. Epub 2018 Apr 4.

3 Case Western Reserve University, Cleveland, OH, USA.

The care of pediatric patients with cancer and their families is complex and rapidly evolving. Despite significant advances in outcomes, symptoms of the disease and complications of therapy continue to cause suffering that may improve with the involvement of pediatric palliative care (PPC) services. This descriptive study responds to the observation of great variability in PPC utilization within pediatric oncology. Read More

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http://dx.doi.org/10.1177/1043454218764885DOI Listing
April 2018
2 Reads

The Effectiveness of a Hospital-Based School Liaison Program: A Comparative Study of Parental Perception of School Supports for Children With Pediatric Cancer and Neurofibromatosis Type 1.

J Pediatr Oncol Nurs 2018 Jul/Aug;35(4):276-286. Epub 2018 Mar 30.

1 Dana-Farber Cancer Institute, Boston, MA, USA.

Childhood survivors of central nervous system (CNS) cancers (defined as cancers whose diagnosis or treatment affect the CNS) are at increased risk for educational related difficulties, as are children affected by neurofibromatosis type 1. This study evaluated the effectiveness of and satisfaction with a model of psychoeducation, consultation, and advocacy provided by a School Liaison Program (SLP) for families and schools of children with CNS-involved cancers compared with a control group of parents of children with a diagnosis of neurofibromatosis type 1 who did not receive school-based services. Results indicated significant between-group differences in parents' belief that their child is meeting academic potential, with parents who received SLP services reporting greater satisfaction with their child's progress, better understanding of their child's learning needs, and an increased ability to access school supports. Read More

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http://dx.doi.org/10.1177/1043454218765140DOI Listing
March 2018
6 Reads

"Hopefully This Will All Make Sense at Some Point": Meaning and Performance in Illness Blogs.

J Pediatr Oncol Nurs 2018 Jul/Aug;35(4):287-295. Epub 2018 Mar 30.

1 Holy Family University, Philadelphia, PA, USA.

Aims: To analyze the narratives of illness blogs created by parents of children with cancer.

Background: The profound effects of the childhood cancer experience on family members and the turn to the Internet by parents for help in the process are gaining research attention.

Design: The qualitative study design involved secondary narrative analysis of 14 illness blogs: 9 by the parents of children with neuroblastoma and 5 by the parents of children with leukemia. Read More

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http://dx.doi.org/10.1177/1043454218764880DOI Listing
March 2018
4 Reads

Consult, Negotiate, and Involve: Evaluation of an Advanced Communication Skills Program for Health Care Professionals.

J Pediatr Oncol Nurs 2018 Jul/Aug;35(4):296-307. Epub 2018 Mar 30.

4 University of Surrey, Guildford, UK.

Effective communication is central to children, young people, and their families' experiences of health care. Most patient complaints in developed health care systems result from ineffective communication, including inadequate information provision, not feeling listened to, failure to value patients concerns, and patients not feeling involved in care decisions. Advanced communication skills training is now embedded within cancer care policy in the United Kingdom and now features prominently within cancer education in many countries. Read More

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http://dx.doi.org/10.1177/1043454218765136DOI Listing
March 2018
4 Reads

A Standardized Education Checklist for Parents of Children Newly Diagnosed With Cancer: A Report From the Children's Oncology Group.

J Pediatr Oncol Nurs 2018 Jul/Aug;35(4):235-246. Epub 2018 Mar 28.

18 University of Alabama at Birmingham, AL, USA.

Parents of children newly diagnosed with cancer must acquire new knowledge and skills in order to safely care for their child at home. Institutional variation exists in the methods and content used by nurses in providing the initial education. The goal of this project was to develop a checklist, standardized across institutions, to guide nursing education provided to parents of children newly diagnosed with cancer. Read More

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http://dx.doi.org/10.1177/1043454218764889DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5988945PMC
March 2018
4 Reads

Adding a Parent to the Brain Tumor Team: Evaluating a Peer Support Intervention for Parents of Children With Brain Tumors.

J Pediatr Oncol Nurs 2018 May 28;35(3):218-228. Epub 2018 Mar 28.

4 School of Public Health, University of California, Merced, CA, USA.

Childhood brain tumors often present profound challenges to patients and families. To address these challenges, the California Chapter of the Pediatric Brain Tumor Foundation provides hospital-based support services to parents of children with brain tumors from a Veteran Parent (VP). This mixed-methods, cross-sectional study was designed to evaluate the effectiveness of the intervention using validated tools to compare parental resilience and impact of illness on the family between parents who met with the VP and those who did not. Read More

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http://journals.sagepub.com/doi/10.1177/1043454218762797
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http://dx.doi.org/10.1177/1043454218762797DOI Listing
May 2018
8 Reads

Early Identification of Barriers and Facilitators to Self-Management Behaviors in Pediatric Patients With Sickle Cell Disease to Minimize Hematopoietic Cell Transplantation Complications.

J Pediatr Oncol Nurs 2018 May 26;35(3):199-209. Epub 2018 Mar 26.

1 St. Louis Children's Hospital, St. Louis, MO, USA.

Hematopoietic cell transplantation (HCT) is an elective, curative treatment option for patients with sickle cell disease (SCD). Transplant requires extensive self-management behaviors to be successful. The purpose of this study was to describe potential barriers and facilitators to self-management in a group of pediatric patients with SCD prior to HCT and their medical outcomes post-HCT. Read More

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http://dx.doi.org/10.1177/1043454218762703DOI Listing
May 2018
3 Reads

Effects of Art Intervention Program for Siblings of Children With Cancer: A Pilot Study.

J Pediatr Oncol Nurs 2018 May 24;35(3):178-187. Epub 2018 Mar 24.

3 The Catholic University of Korea, Seocho-gu, Seoul, Korea.

Siblings of children with cancer often experience negative feelings, and art intervention can help them express their feelings and overcome hardships. This study aimed to develop an Art Intervention Program to improve the psychological adaptation of siblings of children with cancer and to evaluate its effects. Participants were seventeen 7- to 10-year-old siblings of children with cancer. Read More

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http://dx.doi.org/10.1177/1043454218762702DOI Listing
May 2018
1 Read

Assessment Tools for Peripheral Neuropathy in Pediatric Oncology: A Systematic Review From the Children's Oncology Group.

J Pediatr Oncol Nurs 2018 Jul/Aug;35(4):267-275. Epub 2018 Mar 22.

2 Duke University School of Nursing, Durham, NC, USA.

Peripheral neuropathy is a known side effect of several chemotherapy agents, including vinca alkaloids and platinum-based chemotherapy. Early recognition and monitoring of this side effect is an important role of the pediatric oncology nurse. There are a variety of peripheral neuropathy assessment tools currently in use, but the usefulness of these tools in identifying and grading neuropathy in children varies, and there is currently no standardized tool in place to evaluate peripheral neuropathy in pediatric oncology. Read More

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http://dx.doi.org/10.1177/1043454218762705DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5988942PMC
March 2018
1 Read

A Retrospective Analysis of Bloodstream Infections in Pediatric Allogeneic Stem Cell Transplant Recipients: The Role of Central Venous Catheters and Mucosal Barrier Injury.

J Pediatr Oncol Nurs 2018 May 21;35(3):210-217. Epub 2018 Mar 21.

1 Children's Hospital Los Angeles, Los Angeles, CA, USA.

Background: Bloodstream infections (BSIs) are a leading cause of morbidity and mortality in children undergoing hematopoietic stem cell transplant (HSCT). Indwelling central venous catheters (CVCs) increase risk for BSIs, yet mucosal barrier injury-associated laboratory-confirmed bloodstream infection (MBI-LCBI) may also occur due to translocation of pathogenic organisms from the gastrointestinal tract into the bloodstream. The purpose of this study was to determine the association between stool organisms and BSIs in children with CVCs who underwent HSCT. Read More

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http://dx.doi.org/10.1177/1043454218762706DOI Listing
May 2018
1 Read

Mucormycosis: Early Identification of a Deadly Fungus [Formula: see text].

J Pediatr Oncol Nurs 2018 Jul/Aug;35(4):257-266. Epub 2018 Mar 21.

1 Columbia University, New York, NY, USA.

Mucormycosis is a rare invasive fungal infection that affects immunocompromised patients and is fatal when not identified and treated early. Diagnosis is often delayed as the symptoms are nonspecific and frequently mimic other common diseases. Pediatric patients with cancer are at risk for the infection; however, there is limited research that applies directly to the pediatric population. Read More

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http://dx.doi.org/10.1177/1043454218763092DOI Listing
March 2018
2 Reads

Religious Coping in Iranian Mothers of Children With Cancer: A Qualitative Content Analysis.

J Pediatr Oncol Nurs 2018 May 31;35(3):188-198. Epub 2017 Dec 31.

1 Shahid Beheshti University of Medical Sciences, Tehran, Iran.

Objective: Religious coping is one of the most frequently used coping methods in parents of children with cancer. This study aims to explain dimensions of religious coping in mothers of children with cancer in Iran.

Methods: In this qualitative content analysis, using purposeful sampling, 8 mothers of children with cancer were selected and interviewed. Read More

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http://dx.doi.org/10.1177/1043454217748597DOI Listing
May 2018
7 Reads
0.870 Impact Factor

Measuring the Effects of an Animal-Assisted Intervention for Pediatric Oncology Patients and Their Parents: A Multisite Randomized Controlled Trial [Formula: see text].

J Pediatr Oncol Nurs 2018 May 21;35(3):159-177. Epub 2017 Dec 21.

11 Purdue University, West Lafayette, IN, USA.

Objective: This multicenter, parallel-group, randomized trial examined the effects of an animal-assisted intervention on the stress, anxiety, and health-related quality of life for children diagnosed with cancer and their parents.

Method: Newly diagnosed patients, aged 3 to 17 years (n = 106), were randomized to receive either standard care plus regular visits from a therapy dog (intervention group), or standard care only (control group). Data were collected at set points over 4 months of the child's treatment. Read More

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http://dx.doi.org/10.1177/1043454217748586DOI Listing
May 2018
11 Reads

The Impact of a Childhood Cancer Diagnosis on the Children and Siblings' School Attendance, Performance, and Activities: A Qualitative Descriptive Study.

J Pediatr Oncol Nurs 2018 Mar/Apr;35(2):118-131. Epub 2017 Dec 1.

5 Pediatric Oncology Group of Ontario (POGO), Toronto, Ontario, Canada.

Families of children with cancer are confronted with unexpected out-of-pocket expenses and productivity costs associated with the diagnosis. One productivity cost that falls on children is the impact of cancer on children's school attendance, performance, and activities (eg, play, friendships, and socialization). Nested within the Childhood Cancer Cost Study, this qualitative descriptive study used convenience sampling to recruit and interview parents of children newly diagnosed with cancer. Read More

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http://dx.doi.org/10.1177/1043454217741875DOI Listing
December 2017
3 Reads

Adherence to Oral Medications During Maintenance Therapy Among Children and Adolescents With Acute Lymphoblastic Leukemia: A Medication Refill Analysis.

J Pediatr Oncol Nurs 2018 Mar/Apr;35(2):86-93. Epub 2017 Nov 30.

1 University of Utah, Salt Lake City, UT, USA.

Adherence to oral medications during maintenance therapy is essential for pediatric patients with acute lymphoblastic leukemia. Self-reported or electronic monitoring of adherence indicate suboptimal adherence, particularly among particular sociodemographic groups. This study used medication refill records to examine adherence among a national sample of pediatric patients with acute lymphoblastic leukemia. Read More

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http://dx.doi.org/10.1177/1043454217741877DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5935503PMC
November 2017
5 Reads

Parents' Experiences and Responses to an Intervention for Psychological Preparation of Children and Families During the Child's Radiotherapy.

J Pediatr Oncol Nurs 2018 Mar/Apr;35(2):132-148. Epub 2017 Nov 25.

5 Uppsala University, Uppsala, Sweden.

The aim of this study was to evaluate parents' experiences and responses to a systematic intervention for psychological preparation of children and families during the child's radiotherapy (RT) treatment. In this case-control study at 3 pediatric RT centers, an intervention with a preparatory kit, including age-adjusted information on tablets, gift of a stuffed toy or a pair of headphones, a parent booklet, and toy models of the computed tomography and RT machines was implemented. For evaluation, a mixed methods data collection was conducted. Read More

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http://dx.doi.org/10.1177/1043454217741876DOI Listing
November 2017
8 Reads

Clinical Characteristics of Intravenous PEG-Asparaginase Hypersensitivity Reactions in Patients Undergoing Treatment for Acute Lymphoblastic Leukemia [Formula: see text].

J Pediatr Oncol Nurs 2018 Mar/Apr;35(2):103-109. Epub 2017 Nov 21.

1 St. Jude Children's Research Hospital, Memphis, TN, USA.

Background: Asparaginase poses a substantial risk for hypersensitivity reactions during and after administration; however, these reactions vary by asparaginase formulation and administration route. It is imperative that nurses be knowledgeable of clinical symptoms associated with intravenous (IV) monomethoxypolyethylene glycol (PEG)-asparaginase reactions, as well as potential reaction timing.

Purpose: This single institution retrospective study describes the clinical factors among patients with IV PEG-asparaginase hypersensitivity reactions. Read More

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http://dx.doi.org/10.1177/1043454217741868DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5803366PMC
November 2017
27 Reads

The Oncology Family App: Providing Information and Support for Families Caring for Their Child With Cancer.

J Pediatr Oncol Nurs 2018 Mar/Apr;35(2):94-102. Epub 2017 Nov 21.

1 Lady Cilento Children's Hospital, Children's Health Queensland, South Brisbane, Queensland, Australia.

The Oncology Family App supports families across the vast state of Queensland, Australia, with easy access to vital information, including management plans for a deteriorating child, patient specific information and other resources. This article describes the development and evaluation of this mobile app. The app was developed and tested in collaboration with parents, caregivers, and clinicians and released in November 2015. Read More

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http://dx.doi.org/10.1177/1043454217741874DOI Listing
November 2017
4 Reads

The Impact of School Visits on Siblings of Children With Cancer.

J Pediatr Oncol Nurs 2018 Mar/Apr;35(2):110-117. Epub 2017 Nov 9.

1 Children's Hospital of Eastern Ontario, Ottawa, Ontario, Canada.

Background: Childhood cancer affects the entire family. Siblings experience similar stress to that of the ill child, including anger, depression, jealousy, guilt, and social isolation. School reentry programs are shown to be positive interventions for patients, it is hypothesized that similar outcomes exist for siblings. Read More

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http://dx.doi.org/10.1177/1043454217735897DOI Listing
November 2017
11 Reads

Comparing the Knowledge of Parents and Survivors Who Attend a Survivorship Clinic.

J Pediatr Oncol Nurs 2018 Jan/Feb;35(1):56-64. Epub 2017 Nov 2.

2 Children's Hospital of Philadelphia, Philadelphia, PA, USA.

Background: This study underscores the importance of the survivor/parent dynamic in understanding the knowledge level of childhood cancer survivors and their parents with regard to cancer diagnosis, treatments, and potential late effects, and to assess the impact of parental knowledge on survivor's knowledge.

Procedure: A convenience sample (N = 219 dyads) consisting of childhood cancer survivors with a parent match was used. Survivors 2 years out from completion of therapy, aged 16 to 25 years, and fluent in English or Spanish completed 2 questionnaires to assess adolescent and young adult and parental knowledge regarding diagnosis, treatment, and long-term risks. Read More

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http://dx.doi.org/10.1177/1043454217735828DOI Listing
June 2018
15 Reads

Parent Perspectives on Pain Management in Preschool-Age Children With Sickle Cell Disease.

J Pediatr Oncol Nurs 2018 Jan/Feb;35(1):16-24. Epub 2017 Nov 2.

2 University of South Carolina Medical School, Columbia, SC, USA.

Pain episodes occur for many preschoolers with sickle cell disease (SCD), but little is known about parent perceptions of managing pain episodes in young children. We surveyed parents of young children with SCD who had managed pain episodes in the past year to assess their management and satisfaction with their strategies, challenges of pain management, and interest in additional education. Parents were recruited from health maintenance visits at a SCD specialty clinic. Read More

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http://dx.doi.org/10.1177/1043454217735829DOI Listing
June 2018
10 Reads

Clinical Practice Recommendations Based on an Updated Review of Breast Cancer Risk Among Women Treated for Childhood Cancer.

Authors:
Yael E Derman

J Pediatr Oncol Nurs 2018 Jan/Feb;35(1):65-78. Epub 2017 Sep 1.

1 University of Pennsylvania School of Nursing, Philadelphia, PA, USA.

Breast cancer is the most common secondary malignancy among women treated for childhood cancer. This review highlights interacting etiologies contributing to development of secondary breast cancer to complement guidelines for surveillance and survivorship care and make recommendations for clinical practice. Treatment exposures determine Children's Oncology Group breast cancer surveillance guidelines; those treated with cumulative doses ≥20 Gy chest irradiation should undergo annual magnetic resonance imaging and mammography after age 25 years or 8 years after exposure, whichever comes last. Read More

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http://dx.doi.org/10.1177/1043454217727515DOI Listing
June 2018
11 Reads

Assessing the Needs of Parents of Children Diagnosed With Cancer in China: A Psychometric Study Developing a Needs Assessment Tool.

J Pediatr Oncol Nurs 2018 Jan/Feb;35(1):6-15. Epub 2017 Aug 29.

1 Shanghai Children's Medical Center, Shanghai, China.

The psychosocial well-being of parents remains integral to the treatment and recovery of children diagnosed with cancer. However, limited research addresses the unique needs of this population. To better understand the supportive care needs of parents of children with cancer, this study tested the reliability and stability of the factorial structure of a revised version of the Cancer Patient Needs Questionnaire (rCPNQ) with Chinese parents of children who have cancer. Read More

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http://dx.doi.org/10.1177/1043454217723862DOI Listing
June 2018
11 Reads

Understanding Treatment Burden and Quality of Life Impact of Participating in an Early-Phase Pediatric Oncology Clinical Trial: A Pilot Study.

J Pediatr Oncol Nurs 2018 Jan/Feb;35(1):25-35. Epub 2017 Aug 29.

1 Indiana University, Indianapolis, IN, USA.

Purpose: Early-phase clinical trials (EPTs) have led to new, more effective treatment options for children with cancer. Despite the extensive use of EPTs in pediatric oncology, little is known about parent and child experiences during EPT participation. The purposes of this pilot study were to assess the feasibility and preliminary results of having children with cancer and their parents complete measures of treatment burden and quality of life (QOL) concurrent with EPT participation. Read More

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http://dx.doi.org/10.1177/1043454217723863DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5724522PMC
June 2018
4 Reads