2,392 results match your criteria Health and Quality of Life Outcomes[Journal]


Discriminative validity of the EQ-5D-5 L and SF-12 in older adults with arthritis.

Health Qual Life Outcomes 2019 Apr 17;17(1):68. Epub 2019 Apr 17.

School of Public Health, University of Alberta, 2-040 Li Ka Shing Center for Health Research Innovation, Edmonton, AB, T6G 2E1, Canada.

Background: The EQ-5D-5 L and the SF-12 are the most commonly used generic measures of health-related quality of life among people with arthritis. However, there is little evidence on the extent to which the individual dimensions and domains of these instruments perform among this population. The objective was to examine the discriminative validity of the EQ-5D-5 L and the SF-12 version 2 (and SF-6D) in capturing the burden of arthritis on health-related quality of life in older adults. Read More

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http://dx.doi.org/10.1186/s12955-019-1129-6DOI Listing

Measurement equivalence of the English, Chinese and Malay versions of the World Health Organization quality of life (WHOQOL-BREF) questionnaires.

Health Qual Life Outcomes 2019 Apr 17;17(1):67. Epub 2019 Apr 17.

Department of Pharmacy, Faculty of Science, National University of Singapore, Singapore, Singapore.

Background: The WHOQOL-BREF is a widely used questionnaire for measuring quality of life. It is important to establish the measurement equivalence of various language versions of WHOQOL-BREF so that scores from different language versions may be pooled together. The primary aim of this article was to evaluate the measurement equivalence of the English, Chinese and Malay versions of the WHOQOL-BREF. Read More

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http://dx.doi.org/10.1186/s12955-019-1130-0DOI Listing

Living with systemic lupus erythematosus in South Africa: a bitter pill to swallow.

Health Qual Life Outcomes 2019 Apr 16;17(1):65. Epub 2019 Apr 16.

Rheumatic Disease Unit, Department of Medicine, Groote Schuur Hospital, University of Cape Town, Cape Town, South Africa.

Background: Systemic lupus erythematosus (SLE) often has a profound negative impact on health-related quality of life (HRQoL). In the absence of any qualitative studies in sub-Saharan Africa, we undertook a study to explore living experiences, perceptions and unmet needs of South African patients with SLE.

Methods: Twenty-five women with SLE consented to participate in the study. Read More

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https://hqlo.biomedcentral.com/articles/10.1186/s12955-019-1
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http://dx.doi.org/10.1186/s12955-019-1132-yDOI Listing
April 2019
1 Read

The effect of sport for LIFE: all island in children from low socio-economic status: a clustered randomized controlled trial.

Health Qual Life Outcomes 2019 Apr 16;17(1):66. Epub 2019 Apr 16.

Sport and Exercise Sciences Research Institute, Ulster University, Jordanstown, Newtownabbey, Northern Ireland, UK.

Background: School-based interventions offer the opportunity to increase physical activity, health-related quality of life (HRQOL) and nutritional behaviours, yet methodological limitations hinder current research, particularly among under-represented children from low socio-economic status (SES). The aim was to determine the effect of a 12-week physical activity programme, Sport for LIFE: All Island (SFL:AI), on physical activity levels, HRQOL, and nutritional attitudes and behaviours in children of low SES across the island of Ireland.

Methods: A 2 (groups) × 4 (data collection points) clustered randomised controlled trial was conducted comprising an intervention group who received SFL:AI for 12 weeks, and a waiting-list control condition. Read More

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http://dx.doi.org/10.1186/s12955-019-1133-xDOI Listing

Sports participation and health-related quality of life in children: results of a cross-sectional study.

Health Qual Life Outcomes 2019 Apr 15;17(1):64. Epub 2019 Apr 15.

Department of Epidemiology and Biostatistics, Amsterdam University Medical Centers (AMC and VUMC), Amsterdam Public Health research institute, Van der Boechorststraat 7, 1081BT, Amsterdam, The Netherlands.

Background: In children physical activity has been shown to be associated with health-related quality of life (HRQoL). This study further explores this association for specific characteristics of sports participation, namely membership of a sports club, frequency of sports participation, performing individual versus team sports, performing indoor versus outdoor sports, while differentiating between specific dimensions in the physical, psychological and social domain of HRQoL.

Methods: Cross-sectional data were collected from Dutch primary school children aged 10 to 12 years. Read More

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https://hqlo.biomedcentral.com/articles/10.1186/s12955-019-1
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http://dx.doi.org/10.1186/s12955-019-1124-yDOI Listing
April 2019
1 Read

A systematic literature review of patient-reported outcome measures used in gout: an evaluation of their content and measurement properties.

Health Qual Life Outcomes 2019 Apr 11;17(1):63. Epub 2019 Apr 11.

Department of Psychology, Health and Technology, University of Twente, PO BOX 217, 7500 AE, Enschede, the Netherlands.

Background: Gout is a common, monosodium urate crystal-driven inflammatory arthritis. Besides its clinical manifestations, patients often also suffer from pain, physical impairment, emotional distress and work productivity loss, as a result of the disease. Patient-reported outcome measures (PROMs) are commonly used to assess these consequences of the disease. Read More

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http://dx.doi.org/10.1186/s12955-019-1125-xDOI Listing
April 2019
2 Reads
2.120 Impact Factor

Japanese translation and cross-cultural validation of the Adult Social Care Outcomes Toolkit (ASCOT) in Japanese social service users.

Health Qual Life Outcomes 2019 Apr 11;17(1):59. Epub 2019 Apr 11.

Personal Social Services Research Unit (PSSRU), London School of Economics and Political Science, Houghton St, London, WC2A 2AE, UK.

Background: The aim of this study was to develop and perform cross-cultural validation of a Japanese version of the Adult Social Care Outcomes Toolkit (ASCOT) four-level Self-Completion questionnaire (SCT4) instrument to measure Social-Care Related Quality of Life. It was important to develop a Japanese version of the ASCOT-SCT4 and validate it in the Japanese context, given the interest in measuring outcomes of social care services in Japan.

Methods: The original version of ASCOT-SCT4 was translated into Japanese following good practice guidelines. Read More

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http://dx.doi.org/10.1186/s12955-019-1128-7DOI Listing

Public involvement in health outcomes research: lessons learnt from the development of the recovering quality of life (ReQoL) measures.

Health Qual Life Outcomes 2019 Apr 11;17(1):60. Epub 2019 Apr 11.

School of Health and Related Research, University of Sheffield, Sheffield, UK.

Background: To provide a model for Public involvement (PI) in instrument development and other research based on lessons learnt in the co-production of a recently developed mental health patient reported outcome measure called Recovering Quality of Life (ReQoL). While service users contributed to the project as research participants, this paper focuses on the role of expert service users as research partners, hence referred to as expert service users or PI.

Methods: At every stage of the development, service users influenced the design, content and face validity of the measure, collaborating with other researchers, clinicians and stakeholders who were central to this research. Read More

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http://dx.doi.org/10.1186/s12955-019-1123-zDOI Listing

Development of a symptom assessment in patients with myelofibrosis: qualitative study findings.

Health Qual Life Outcomes 2019 Apr 11;17(1):61. Epub 2019 Apr 11.

Guy's and St. Thomas' NHS Foundation Trust, St. Thomas Hospital, Westminster Bridge Rd. Lambeth, London, SE1 7EH, UK.

Background: The goal of the research reported here was to understand the patient experience of living with myelofibrosis (MF) and establish content validity of the Modified Myeloproliferative Neoplasm Symptom Assessment Diary (MPN-SD).

Methods: Qualitative interviews were performed in patients with MF, including both concept elicitation and cognitive debriefing. Patients with MF were asked to spontaneously report on their signs, symptoms, and impacts of MF, as well as their understanding of the MPN-SD content, and use of the tool on an electronic platform. Read More

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http://dx.doi.org/10.1186/s12955-019-1121-1DOI Listing
April 2019
1 Read

Translation and psychometric properties of the King's Sarcoidosis Questionnaire (KSQ) in German language.

Health Qual Life Outcomes 2019 Apr 11;17(1):62. Epub 2019 Apr 11.

Department of Pneumology, Faculty of Medicine, Medical Center- University of Freiburg, Freiburg, Germany.

Background: King's Sarcoidosis Questionnaire (KSQ) is a novel, validated, health-related quality of life questionnaire on sarcoidosis with 5 scales and 29 items. For future multinational observational and interventional studies on sarcoidosis, a validated German version of the KSQ is needed. The objective of our study is to translate the original KSQ and develop a German version possessing good psychometric properties and with as few modifications as possible. Read More

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http://dx.doi.org/10.1186/s12955-019-1131-zDOI Listing
April 2019
3 Reads

A head-to-head comparison of EQ-5D-5 L and SF-6D in Chinese patients with low back pain.

Health Qual Life Outcomes 2019 Apr 11;17(1):57. Epub 2019 Apr 11.

Department of orthopedics, The General Hospital of Shenyang Military Area Command, Shenyang, China.

Background: The comparative performance of the 3-level EuroQol 5-dimension and Short Form 6-dimension (SF-6D) has been investigated in patients with low back pain (LBP). The aim of this study was to explore the performance including agreement, convergent validity as well as known-groups validity of the 5-level EuroQol 5-dimension (EQ-5D-5 L) and SF-6D in Chinese patients with LBP.

Methods: Individuals with LBP were recruited from a large tertiary hospital in China. Read More

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http://dx.doi.org/10.1186/s12955-019-1137-6DOI Listing
April 2019
1 Read

Estimating loss in quality of life associated with asthma-related crisis events (ESQUARE): a cohort, observational study.

Health Qual Life Outcomes 2019 Apr 11;17(1):58. Epub 2019 Apr 11.

Faculty of Medicine and Health Sciences, Norwich Medical School, University of East Anglia, Norwich, NR4 7TJ, UK.

Background: Evidence of quality of life implications of asthma attacks are limited, particularly when measured on a utility scale, which enables calculating Quality-Adjusted Life-Years (QALYs) and comparisons with other health conditions and services. Therefore, this study sought to estimate the utility loss associated with an asthma-related crisis event (accident and emergency (A&E) attendance or hospital admission).

Methods: Participants were recruited in a cohort study from A&E and hospital admissions at three UK hospitals. Read More

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http://dx.doi.org/10.1186/s12955-019-1138-5DOI Listing
April 2019
1 Read

Recognising ethnocultural diversity in chronic pain assessment: validation of the Pictorial Representation of Illness and Self Measure (PRISM) for use with culturally diverse communities.

Health Qual Life Outcomes 2019 Apr 8;17(1):56. Epub 2019 Apr 8.

School of Science and Health, Western Sydney University, Sydney, NSW, Australia.

Background: A comprehensive and accurate assessment of pain is critical for successful pain management. However, there is a lack of reliable and valid assessment tools for exploring multidimensional aspects of the chronic pain experience in culturally and linguistically diverse communities. This study investigates the reliability and validity of the Pictorial Representation of Illness and Self Measure + (PRISM+) for evaluating pain-related suffering and the sociocultural context of chronic pain within culturally and linguistically diverse patient cohorts. Read More

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http://dx.doi.org/10.1186/s12955-019-1126-9DOI Listing

Psychological distress and resilience of mothers and fathers with respect to the neurobehavioral performance of small-for-gestational-age newborns.

Health Qual Life Outcomes 2019 Mar 28;17(1):54. Epub 2019 Mar 28.

Department of Methodology of Behavioral Sciences, Faculty of Psychology, University of Granada, Granada, Spain.

Background: The existence of psychological distress (PD) during pregnancy is well established. Nevertheless, few studies have analyzed the PD and resilience of mothers and fathers during high-risk pregnancy. This study analyzes the differences between parents' PD and resilience and the relation between them and the neurobehavioral performance of their SGA newborns. Read More

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http://dx.doi.org/10.1186/s12955-019-1119-8DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6437857PMC
March 2019
1 Read

Assessment of quality of life using WHOQOL-BREF in patients with visceral leishmaniasis.

Health Qual Life Outcomes 2019 Mar 28;17(1):53. Epub 2019 Mar 28.

Department of Clinical Medicine, Rajendra Memorial Research Institute of Medical Sciences (RMRIMS), Agamkuan, Patna, 800007, India.

Background: This study was aimed to assess the impact of quality of life using WHOQOL-BREF in patients with Visceral leishmaniasis (VL).

Methods: A total of 95 VL cases and 95 healthy participants filled out the questionnaires. Data on socio-demographic aspects along with disease duration were collected. Read More

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http://dx.doi.org/10.1186/s12955-019-1112-2DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6437940PMC
March 2019
1 Read

Applicability and cross-cultural validation of the Chinese version of the Warwick-Edinburgh mental well-being scale in patients with chronic heart failure.

Health Qual Life Outcomes 2019 Mar 29;17(1):55. Epub 2019 Mar 29.

Hematology Department, the Second Affiliated Hospital of Wenzhou Medical University, College West Road 109, 0577, Wenzhou, Zhejiang, People's Republic of China.

Background: The mental well-being of patients with chronic heart failure is likely to influence their health-related quality of life and decrease the utilization of public health resources. This study assessed the mental well-being of patients with chronic heart failure and evaluated the reliability and validity of the Warwick-Edinburgh Mental Well-Being Scale.

Methods: We conducted a cross-sectional survey from July 2016 to July 2017 among 191 patients with chronic heart failure, and examined psychometric properties of the Warwick-Edinburgh Mental Well-Being Scale, such as internal consistency, reliability, test-retest reliability, and factorial validity of the Chinese version of the Warwick-Edinburgh Mental Well-Being Scale. Read More

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http://dx.doi.org/10.1186/s12955-019-1120-2DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6440095PMC

Cross-cultural adaptation and measurement properties of the Nepali version of the DASH (disability of arm, shoulder and hand) in patients with shoulder pain.

Health Qual Life Outcomes 2019 Mar 21;17(1):51. Epub 2019 Mar 21.

Discipline of Biomedical Sciences, Faculty of Medicine and Health, University of Sydney, Sydney, Australia.

Background: Patient-reported outcome measures (PROMs) are important tools in both clinical practice and research. However, no upper extremity PROM to assess physical disability is available in Nepali. The most commonly used and recommended questionnaire for the shoulder is the Disability of Arm, Shoulder and Hand (DASH). Read More

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http://dx.doi.org/10.1186/s12955-019-1105-1DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6429798PMC
March 2019
2 Reads
2.120 Impact Factor

Quality of life of prosthetic and orthotic users in South India: a cross-sectional study.

Health Qual Life Outcomes 2019 Mar 20;17(1):50. Epub 2019 Mar 20.

Department of Health Sciences, Faculty of Medicine, Lund University, Box 157, 221 00, Lund, Sweden.

Background: The aim of this study was to compare QOL among people in India using lower-limb prostheses or orthoses with people without disability. A further aim was to compare subgroups and investigate whether QOL was associated with physical disability, gender, income, living area, and education.

Methods: A cross-sectional questionnaire study in which the World Health Organization Quality of Life-Bref was used to collect self-reported data. Read More

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http://dx.doi.org/10.1186/s12955-019-1116-yDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6425682PMC

Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment.

Health Qual Life Outcomes 2019 Mar 18;17(1):49. Epub 2019 Mar 18.

Center for Psychosocial Medicine, Institute for Medical Psychology, University Medical Center Hamburg-Eppendorf in Hamburg, Hamburg, Germany.

Background: The Quality of Life of Short Stature Youth (QoLISSY) questionnaire is a patient- and parent-reported outcome measure assessing health-related quality of life (HRQOL) in short stature youth. This study evaluates the psychometric properties of the QoLISSY questionnaire within a German prospective trial of short statured children treated with human growth hormone (hGH).

Method: The instrument was administered to children with idiopathic growth hormone Deficiency (IGHD) and small for gestational age (SGA) before and after 12 month of hGH treatment. Read More

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http://dx.doi.org/10.1186/s12955-019-1118-9DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6423839PMC
March 2019
1 Read

SF-6D utility scores of smokers and ex-smokers with or without respiratory symptoms attending primary care clinics.

Health Qual Life Outcomes 2019 Mar 15;17(1):48. Epub 2019 Mar 15.

Department of Medicine and Geriatrics, Princess Margaret Hospital, Hong Kong Special Administration Region, China.

Introduction: The aim of this paper is to find out generic preference-based Short-Form 6 Dimensions (SF-6D) utility scores of smokers and ex-smokers with varying cigarette exposure, with and without respiratory symptoms.

Methods: Seven hundred thirty one people aged ≥30 with a history of smoking who attended 5 public primary care clinics completed a cross-sectional survey using SF-6D utility score, Breathlessness, Cough, and Sputum Scale (BCSS©) and office spirometry.

Results: Most of the subjects were men (92. Read More

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https://hqlo.biomedcentral.com/articles/10.1186/s12955-019-1
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http://dx.doi.org/10.1186/s12955-019-1115-zDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6419835PMC
March 2019
11 Reads

Social-biological influences on sleep duration among adult residents of Northeastern China.

Health Qual Life Outcomes 2019 Mar 15;17(1):47. Epub 2019 Mar 15.

Cardiovascular Center, The First Hospital of Jilin University, Changchun, 130021, China.

Background: Cold climates traditionally have conferred long sleep duration in the residents in northeast China; however, modern lifestyle reduces sleep duration. In this study, we investigated social-biological factors influencing sleep duration in the adult residents in northeast China.

Methods: This study was performed using data from the Investigation of Chronic Disease Morbidity Rate and Risk Factors of Adults in Jilin Province, China. Read More

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http://dx.doi.org/10.1186/s12955-019-1111-3DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6419849PMC
March 2019
1 Read

Psychometric evaluation of the Warwick-Edinburgh Mental Well-being Scale (WEMWBS) with Chinese University Students.

Authors:
Sai-Fu Fung

Health Qual Life Outcomes 2019 Mar 14;17(1):46. Epub 2019 Mar 14.

Department of Social and Behavioural Sciences, City University of Hong Kong, 83 Tat Chee Avenue, Hong Kong, China.

Background: The aim of this study was to assess the validity of the Warwick-Edinburgh Mental Well-being Scale (WEMWBS) and the SWEMWBS, the shortened version of the WEMWBS, and conduct a preliminary evaluation of the metric properties of these scales by using a sample of university students in mainland China.

Methods: Nine-hundred and three students from a Chinese university participated in the cross-sectional study. The internal consistency, convergent validity, factorial validity and construct validity of the scales were examined. Read More

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http://dx.doi.org/10.1186/s12955-019-1113-1DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6416978PMC

A psychometric study of the Family Resilience Assessment Scale among families of children with autism spectrum disorder.

Health Qual Life Outcomes 2019 Mar 12;17(1):45. Epub 2019 Mar 12.

Department of Psychology, Simon Fraser University, 8888 University Drive, Burnaby, BC, V5A 1S6, Canada.

Background: The family system represents a critical context within which children develop. Although raising a child with a disability may represent a challenge to this dynamic system, research demonstrates that families have the capacity to demonstrate both maladaptation and resilience in the face of related stressors. In the current study, we examined the psychometric properties of the Family Resilience Assessment Scale (FRAS) among families of children with autism spectrum disorder (ASD). Read More

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https://hqlo.biomedcentral.com/articles/10.1186/s12955-019-1
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http://dx.doi.org/10.1186/s12955-019-1117-xDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6417032PMC
March 2019
9 Reads

Sense of coherence in family caregivers of people living with dementia: a mixed-methods psychometric evaluation.

Health Qual Life Outcomes 2019 Mar 11;17(1):44. Epub 2019 Mar 11.

Division of Psychiatry, University College London, Maple House, 149 Tottenham Court Road, London, W1T 7BN, UK.

Background: Family caregivers of people living with dementia can experience feelings of burden and stress but the concept of sense of coherence has been identified as an important protective trait against the negative impact of caregiving. Despite this, there has been no psychometric evaluation of the Sense of Coherence scale-13 with this population. Therefore, a psychometric evaluation was conducted using a mixed-methods approach. Read More

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http://dx.doi.org/10.1186/s12955-019-1114-0DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6417216PMC

Changes in health-related quality of life of Chinese populations measured by the EQ-5D-3 L: a comparison of the 2008 and 2013 National Health Services Surveys.

Health Qual Life Outcomes 2019 Mar 11;17(1):43. Epub 2019 Mar 11.

Health Human Resources Development Center, National Health Commission, Beijing, China.

Backgrounds: The EuroQol Group Five-Dimensional (EQ-5D) instruments have been validated in China for measuring health-related quality of life (HRQoL) and are increasingly being used in health economic studies. However, there is paucity in the literature documenting long-term changes in the EQ-5D results in the Chinese populations. This study aims to identify such changes and their determinants using the EQ-5D-3 L instrument. Read More

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http://dx.doi.org/10.1186/s12955-019-1109-xDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6417242PMC
March 2019
3 Reads

Psychometric evaluation of the anticipatory grief scale in a sample of family caregivers in the context of palliative care.

Health Qual Life Outcomes 2019 Mar 5;17(1):42. Epub 2019 Mar 5.

Faculty of Health and Life Sciences, Linnaeus University, 391 82, Kalmar, Sweden.

Introduction: In palliative care, family caregivers are often faced with experiences of grief in anticipation of the loss of a close person. An instrument designed to measure this form of grief is the Anticipatory Grief Scale, which includes 27 items and has been used in several studies in various contexts. However, the instrument has not been validated. Read More

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http://dx.doi.org/10.1186/s12955-019-1110-4DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6402133PMC

Difference and relation between adolescents' and their parents or caregivers' reported oral health-related quality of life related to orthodontic treatment: a prospective cohort study.

Health Qual Life Outcomes 2019 Feb 26;17(1):40. Epub 2019 Feb 26.

Department of Oral Health Sciences-Orthodontics, KU Leuven and Dentistry, University Hospitals Leuven, Kapucijnenvoer 7, 3000, Leuven, Belgium.

Background: Parents/caregivers play an important role in deciding whether their children will undergo orthodontic treatment or not. Their perceptions also have an influence on other choices involving orthodontic treatment. The purpose of this study was to investigate the difference and correlation between the ratings given by children and their parents or caregivers on their oral health-related quality of life (OHRQoL) before, during and after orthodontic treatment. Read More

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http://dx.doi.org/10.1186/s12955-019-1094-0DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6390370PMC
February 2019
6 Reads

Validity and reliability of the (adjusted) Impact on Participation and Autonomy questionnaire for social-support populations.

Health Qual Life Outcomes 2019 Feb 26;17(1):41. Epub 2019 Feb 26.

Faculty of Law, Economics and Governance, University Utrecht School of Economics, PO Box 80125, Utrecht, 3508 TC, the Netherlands.

Background: Decentralisation of social support and budget cuts spurred interest in outcome-oriented payment systems in the Netherlands. Hence, measurement of relevant outcomes, such as self-reliance and participation, is needed. The Impact on Participation and Autonomy (IPA) questionnaire for rehabilitation clients was adapted for social support, called IPA-MO, and its validity and reliability were tested among social support clients in eight municipalities in 2014 and 2016. Read More

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http://dx.doi.org/10.1186/s12955-019-1106-0DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6390377PMC
February 2019

Health related quality of life (HRQoL) among Aboriginal South Australians: a perspective using survey-based health utility estimates.

Health Qual Life Outcomes 2019 Feb 18;17(1):39. Epub 2019 Feb 18.

School of Public Health, University of Adelaide, North Terrace, Adelaide, South Australia, 5000.

Background: Australian health surveys occasionally include health utility measures in describing health related quality of life (HRQoL) across the general population. However, the HRQoL of specific population groups, such as Aboriginal and Torres Strait Islander (respectfully referred to as Aboriginal), are poorly understood. Our analysis describes HRQoL utility among Aboriginal South Australians by examining the characteristics of respondents completing HRQoL questioning, the relationship between HRQoL and respondent characteristics, then considers reported HRQoL utility in the wider population context. Read More

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http://dx.doi.org/10.1186/s12955-019-1107-zDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6378737PMC
February 2019
2 Reads

Resilience acts as a moderator in the relationship between infertility-related stress and fertility quality of life among women with infertility: a cross-sectional study.

Health Qual Life Outcomes 2019 Feb 15;17(1):38. Epub 2019 Feb 15.

Department of Social Medicine, School of Public Health, China Medical University, No.77 Puhe Road, Shenyang North New Area, Shenyang, 110122, China.

Background: Infertility-related stress can seriously impact the fertility quality of life (QoL) of infertile women. Resilience, as a coping resource, can effectively combat psychological stress. This study aimed to evaluate the fertility QoL of infertile women and to examine whether resilience moderates the association of infertility-related stress with fertility QoL. Read More

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http://dx.doi.org/10.1186/s12955-019-1099-8DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6377764PMC
February 2019
1 Read

Responsiveness and minimal clinically important difference of the Minnesota living with heart failure questionnaire.

Health Qual Life Outcomes 2019 Feb 14;17(1):36. Epub 2019 Feb 14.

Research Unit, Basurto University Hospital, Jado 4th floor, Avda Montevideo 18, 48013, Bilbao, Vizcaya, Spain.

Background: The Minnesota Living with Heart Failure Questionnaire (MLHFQ) is one of the most widely used health-related quality of life questionnaires for patients with heart failure (HF). The objective of the present study was to explore the responsiveness of the MLHFQ by estimating the minimal detectable change (MDC) and the minimal clinically important difference (MCID) in Spain.

Methods: Patients hospitalized for HF in the participating hospitals completed the MLHFQ at baseline and 6 months, plus anchor questions at 6 months. Read More

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http://dx.doi.org/10.1186/s12955-019-1104-2DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6376687PMC
February 2019
1 Read

Development and evaluation of a quality of life measurement scale in English and Chinese for family caregivers of patients with advanced cancers.

Health Qual Life Outcomes 2019 Feb 14;17(1):35. Epub 2019 Feb 14.

Department of Pharmacy, Faculty of Science, National University of Singapore, Singapore, Singapore.

Background: The quality of life of family caregivers of patients with advanced cancers is an important concern in oncology care. Yet, there are few suitable measurement scales available for use in Asia. This study aims to develop and evaluate a locally derived measurement scale in English and Chinese to assess the quality of life of family caregivers of patients with advanced cancers in Singapore. Read More

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http://dx.doi.org/10.1186/s12955-019-1108-yDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6376783PMC
February 2019

Self-efficacy and health-related quality of life: a cross-sectional study of primary care patients with multi-morbidity.

Health Qual Life Outcomes 2019 Feb 14;17(1):37. Epub 2019 Feb 14.

Health Services Research Unit, Nuffield Department of Population Health, University of Oxford, Old Road Campus, Oxford, OX3 7LF, UK.

Background: Multi-morbidity in chronic long-term conditions is a major concern for health services. Self-management in concert with clinical care forms part of the effective management of multi-morbidity. Self-efficacy is a mechanism through which self-management can be achieved. Read More

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http://dx.doi.org/10.1186/s12955-019-1103-3DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6376655PMC
February 2019

Psychometric evaluation of the Russian version of the flourishing scale in a sample of older adults living in Siberia.

Health Qual Life Outcomes 2019 Feb 11;17(1):34. Epub 2019 Feb 11.

School of Engineering Entrepreneurship, Tomsk Polytechnic University, Tomsk, Russia.

Background: The development of measures of psychological functioning has received less attention in Russia compared to other countries. Moreover, despite the growing interest in the psychological well-being of older adults, there is a lack of research on this segment of the population in Siberia. Therefore, in this study we aimed to evaluate the psychometric properties of the Russian version of the Flourishing Scale (FS) and to measure psychological functioning in a sample of older adults living in Siberia. Read More

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http://dx.doi.org/10.1186/s12955-019-1100-6DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6371512PMC
February 2019
1 Read

Can physical activity compensate for low socioeconomic status with regard to poor self-rated health and low quality-of-life?

Health Qual Life Outcomes 2019 Feb 8;17(1):33. Epub 2019 Feb 8.

Unit for Research and Development in Primary Health Care, Futurum - Academy for Health and Care, Region Jönköping County, Jönköping, Sweden.

Background: Both high socioeconomic status (SES) and high physical activity (PA) are associated with better self-rated health (SRH) and higher quality-of-life (QoL).

Aim: To investigate whether high levels of PA may compensate for the association between low SES and subjective health outcomes in terms of poorer SRH and lower QoL.

Method: Data from a cross-sectional, population-based study (n = 5326) was utilized. Read More

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http://dx.doi.org/10.1186/s12955-019-1102-4DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6368755PMC
February 2019
1 Read

Validation of the Thai version of the family reported outcome measure (FROM-16)© to assess the impact of disease on the partner or family members of patients with cancer.

Health Qual Life Outcomes 2019 Feb 8;17(1):32. Epub 2019 Feb 8.

Division of Clinical Pharmacy, Faculty of Pharmaceutical Sciences, Khon Kaen University, Khon Kaen, Thailand.

Background: Cancer not only impairs a patient's physical and psychosocial functional behaviour, but also contributes to negative impact on family members' health related quality of life. Currently, there is an absence of a relevant tool in Thai with which to measure such impact. The aim of this study was to translate and validate the Family Reported Outcome Measure (FROM-16) in Thai cancer patients' family members. Read More

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http://dx.doi.org/10.1186/s12955-019-1091-3DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6368697PMC
February 2019

Assessment of patients' self-perceived intensive care unit discomforts: Validation of the 18-item version of the IPREA.

Health Qual Life Outcomes 2019 Feb 7;17(1):29. Epub 2019 Feb 7.

Réanimation polyvalente, Hôpital Louis Pasteur, CH de Chartres, Le Coudray, France.

Background And Aims: We reported the validation of the 18-item version of the 'Inconforts des Patients de REAnimation (IPREA)' questionnaire that includes 2 new items exploring feeling depressed and shortness of breath during an intensive care unit (ICU) stay.

Methods: The validation process was integrated in a multicenter, cluster-randomized, controlled, two-parallel group study built to assess the effectiveness of a tailored multicomponent program for reducing self-perceived discomfort in the ICU. All patients aged 18 years or older who survived an ICU stay of 3 calendar days or more were eligible for inclusion. Read More

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http://dx.doi.org/10.1186/s12955-019-1101-5DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6367827PMC
February 2019
5 Reads

Psychometric properties of the Epworth sleepiness scale in Ethiopian university students.

Health Qual Life Outcomes 2019 Feb 7;17(1):30. Epub 2019 Feb 7.

Somnogen Canada Inc., College Street, Toronto, ON, Canada.

Background: Daytime sleepiness is highly prevalent across the globe. The Epworth sleepiness scale (ESS) is the most widely used tool for screening daytime sleepiness. The psychometric properties of the ESS have not been comprehensively examined in African populations. Read More

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https://hqlo.biomedcentral.com/articles/10.1186/s12955-019-1
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http://dx.doi.org/10.1186/s12955-019-1098-9DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6367806PMC
February 2019
9 Reads

The combined impact of dependency on caregivers, disability, and coping strategy on quality of life after ischemic stroke.

Health Qual Life Outcomes 2019 Feb 7;17(1):31. Epub 2019 Feb 7.

Stroke Division, Florey Institute of Neuroscience and Mental Health, University of Melbourne, Melbourne, Australia.

Background: To estimate the additional impact of coping and of being dependent on caregivers, over and above the large effects of disability on utility after ischemic stroke.

Methods: A total of 539 patients were recruited into an observational, retrospective study when returning for a check-up between 3 and 36 months after an ischemic stroke. Patients' modified Rankin Scale (mRS), dependency on caregivers, the Brandtstädter and Renner Coping questionnaire (with summary scores: Tenacity of Goal Pursuit (TGP) and Flexible Goal Adjustment (FGA) coping styles), EQ-5D-3 L and co-morbidities were evaluated. Read More

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http://dx.doi.org/10.1186/s12955-018-1069-6DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6367764PMC
February 2019
1 Read

Inflammation and quality of life in later life: findings from the health, well-being and aging study (SABE).

Health Qual Life Outcomes 2019 Feb 6;17(1):26. Epub 2019 Feb 6.

Department of Epidemiology & Public Health, University College London, London, UK.

Background: Few studies have specifically investigated the inverse relationship between reduced quality of life in different domains and elevated C-reactive protein (CRP) serum levels in older adults. Therefore, this study investigates the cross-sectional association between quality of life and inflammation in older Brazilian adults.

Methods: Data were collected from 1255 participants from the third wave (2010) of the Brazilian Health, Well-being and Aging study (SABE), a community-based cohort study of aging. Read More

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https://hqlo.biomedcentral.com/articles/10.1186/s12955-019-1
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http://dx.doi.org/10.1186/s12955-019-1092-2DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6366117PMC
February 2019
5 Reads

Cross-country comparisons of trends in adolescent psychosomatic symptoms - a Rasch analysis of HBSC data from four Nordic countries.

Health Qual Life Outcomes 2019 Feb 6;17(1):27. Epub 2019 Feb 6.

Department of Health Sciences, University of Jyväskylä, FI-40014, Jyväskylä, Finland.

Background: To analyse the psychometric properties of the HBSC Symptom Checklist (HBSC-SCL) on psychosomatic symptoms with a focus on the operating characteristics of the items, and on the impacts of measurement distortions on the comparisons of person measures across time and between countries.

Methods: Data were collected in 1993/94, 1997/98, 2001/02, 2005/06, 2008/09, 2013/14 in Denmark, Finland, Norway and Sweden as part of the Health Behaviour in School-aged Children (HBSC) study. Data comprised 116,531 students 11, 13 and 15 years old. Read More

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http://dx.doi.org/10.1186/s12955-019-1097-xDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6366074PMC
February 2019

Health-related quality of life in children with haemophilia in China: a 4-year follow-up prospective cohort study.

Health Qual Life Outcomes 2019 Feb 6;17(1):28. Epub 2019 Feb 6.

Department of Hematology and Oncology, Children's Hospital of Nanjing Medical University, Nanjing, 210008, China.

Background: Health-related quality of life (HRQoL) has been brought up for decades in haemophilia patients. However, no data to date are available about HRQoL in children with haemophilia using long-term follow up data. This nearly 4-year follow-up study aimed to assess the long-term HRQoL of haemophilia children. Read More

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http://dx.doi.org/10.1186/s12955-019-1083-3DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6366014PMC
February 2019

Health-related quality of life assessment for patients with advanced or metastatic renal cell carcinoma treated with a tyrosine kinase inhibitor using electronic patient-reported outcomes in daily clinical practice (QUANARIE trial): study protocol.

Health Qual Life Outcomes 2019 Feb 4;17(1):25. Epub 2019 Feb 4.

Department of Medical Oncology, University Hospital of Besançon, Boulevard Fleming, F-25000, Besançon, France.

Background: Two main therapies, pazopanib and sunitinib, are used in the first-line setting for metastatic renal cell carcinoma (mRCC). These two tyrosine kinase inhibitors (TKI) are equally effective in terms of survival; however, they frequently induce adverse events. In this setting, Health-Related Quality of life (HRQoL) is a key element in the choice between these two treatments and the evaluation of treatment effectiveness. Read More

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http://dx.doi.org/10.1186/s12955-019-1085-1DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6360763PMC
February 2019
7 Reads
2.120 Impact Factor

Loneliness among adults with visual impairment: prevalence, associated factors, and relationship to life satisfaction.

Health Qual Life Outcomes 2019 Feb 1;17(1):24. Epub 2019 Feb 1.

Section for Trauma, Catastrophes and Forced Migration - Adults and Elderly, Norwegian Centre for Violence and Traumatic Stress Studies, PB 181 Nydalen, Oslo, Norway.

Background: Little is known about whether and to what extent loneliness impacts the lives of people with visual impairment (VI). Thus, the aim of this study was to examine the prevalence of and factors associated with loneliness in adults with VI, and to examine its association with life satisfaction.

Methods: This cross-sectional interview study included a probability sample of 736 adults (≥18 years old) with VI who were members of the Norwegian Association of the Blind and Partially Sighted. Read More

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http://dx.doi.org/10.1186/s12955-019-1096-yDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6359849PMC
February 2019

Psychometric properties of the Spanish version of the once-daily Urticaria Activity Score (UAS) in patients with chronic spontaneous urticaria managed in clinical practice (the EVALUAS study).

Health Qual Life Outcomes 2019 Jan 31;17(1):23. Epub 2019 Jan 31.

Allergy Unit, Pneumology Department, Hospital Clinic, University of Barcelona, Barcelona, Spain.

Background: The daily diary Urticaria Activity Score (UAS) and its weekly score (UAS7) are widely used to assess signs and symptoms in patients with chronic spontaneous urticaria (CSU). The objective of this study was to assess the psychometric properties of a Spanish version of the once-daily UAS.

Methods: Observational study in patients ≥18 years old receiving usual care for CSU (daily or almost daily occurrence of generalized hives or angioedema for ≥6 weeks). Read More

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http://dx.doi.org/10.1186/s12955-019-1087-zDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6357477PMC
January 2019
3 Reads

A cross-sectional study exploring the relationship between regulator quality ratings and care home residents' quality of life in England.

Health Qual Life Outcomes 2019 Jan 31;17(1):22. Epub 2019 Jan 31.

Personal Social Services Research Unit (PSSRU), University of Kent, Canterbury, CT2 7NF, UK.

Background: The quality of life of people receiving health and social care is an important indicator of service quality, but the relationship between patient experience and outcomes and regulator quality ratings in England is unknown. In 2013, the health and social care regulator in England, the Care Quality Commission (CQC), introduced a new ratings system and by February 2017, all social care services were inspected and awarded new quality ratings (outstanding, good, requires improvement and inadequate). This study aimed to explore whether quality ratings were associated with residents' quality of life, controlling for confounding variables. Read More

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http://dx.doi.org/10.1186/s12955-019-1093-1DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6357453PMC
January 2019

Quality of life among home healthcare patients in Saudi Arabia: household-based survey.

Health Qual Life Outcomes 2019 Jan 25;17(1):21. Epub 2019 Jan 25.

Department of Epidemiology and Biostatistics, College of Public Health and Health Informatics, King Abdullah International Medical Research Center, King Saud ben Abdulaziz University for Health Sciences, Ministry of the National Guard Health Affairs, Riyadh, Kingdom of Saudi Arabia.

Background: The need for home healthcare programs is an increasingly becoming important common component of healthcare worldwide, as an alternative to hospitalization, owing to the growing elderly population, chronic and acute diseases that need continuous monitoring and care. The overall aim of this study was to describe and assess the quality of life (QOL) and associated determinants among patients enrolled in the Home Health Care (HHC) program affiliated with the Ministry of National Guard Health Affairs in Riyadh, Saudi Arabia.

Methods: This cross-sectional study was conducted among patients enrolled at the HHC program. Read More

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https://hqlo.biomedcentral.com/articles/10.1186/s12955-019-1
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http://dx.doi.org/10.1186/s12955-019-1095-zDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6347790PMC
January 2019
23 Reads
2.120 Impact Factor

Quality of life in bladder cancer patients receiving medical oncological treatment; a systematic review of the literature.

Health Qual Life Outcomes 2019 Jan 22;17(1):20. Epub 2019 Jan 22.

Department of Oncology, Rigshospitalet, Blegdamsvej 9, section 5073, 2100, Copenhagen Ø, Denmark.

Background: Previous quality of life (QoL) literature in bladder cancer (BC) patients has focused on finding the preferred urinary diversion while little is known about the QoL of patients in medical oncological treatment (MOT). We performed a systematic review to assess the existing literature on QoL in patients with muscle-invasive BC (MIBC) undergoing MOT.

Methods: A systematic search of Pubmed and Embase was performed. Read More

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https://hqlo.biomedcentral.com/articles/10.1186/s12955-018-1
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http://dx.doi.org/10.1186/s12955-018-1077-6DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6341712PMC
January 2019
6 Reads

A systematic review of dimensions evaluating patient experience in chronic illness.

Health Qual Life Outcomes 2019 Jan 21;17(1):19. Epub 2019 Jan 21.

UMR U1246 SPHERE "methodS in Patient centered outcomes & HEalth REsearch", Université de Nantes, Université de Tours, INSERM, Nantes, France.

Background: Living with a chronic disease often means experiencing chronic treatments and regular multidisciplinary monitoring as well as a profound life-changing experience which may impact all aspects of a patients life. The patient experience of chronic disease is frequently assessed by patient reported measures (PRMs) which incorporate patients perspectives to better understand how illness, treatment and care impact the entirety of a patient's life. The purpose of this review was to collect and review different kinds of available PRM instruments validated for chronic patients, to produce an inventory of explored concepts in these questionnaires and to identify and classify all dimensions assessing chronic patients experience. Read More

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https://hqlo.biomedcentral.com/articles/10.1186/s12955-019-1
Publisher Site
http://dx.doi.org/10.1186/s12955-019-1084-2DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6341593PMC
January 2019
3 Reads