172 results match your criteria Coping With the Death of a Child in the ED

Disenfranchised Grief: The Death of a Student With Special Needs and the Coping of the School Staff - A Qualitative Study.

Omega (Westport) 2022 May 12:302228221097297. Epub 2022 May 12.

Inclu-Inclusive Schools, Tel Aviv, Israel.

The educational staff that meets the children at school struggles to cope with the death of a child, and often avoids talking with them about the death and their sense of loss. This way of coping is complicated in the case of grief among children with special needs, called "disenfranchised grief ". The aim of this qualitative study was to examine the experience and the perceptions of the educational staff in schools for special education and to assess their way of coping, support and care they employ following the death of a student. Read More

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Prevalence of stressful life events and associations with symptoms of depression, anxiety, and post-traumatic stress disorder among people entering care for HIV in Cameroon.

J Affect Disord 2022 Jul 19;308:421-431. Epub 2022 Apr 19.

University of North Carolina at Chapel Hill, Carolina Population Center, Chapel Hill, NC, United States of America; University of North Carolina at Chapel Hill, Gillings School of Global Public Health, Department of Maternal and Child Health, Chapel Hill, NC, United States of America.

Background: Exposure to stressors increases the risk of mental health disorders. People living with HIV (PLWH) are particularly affected by poor mental health which can contribute to adverse HIV treatment outcomes.

Methods: We estimated the prevalence of recent stressful life events (modified Life Events Survey) among a cohort of PLWH entering HIV care at three public health care facilities in Cameroon and quantified the association of seven types of stressful life events with symptoms of depression (Patient Health Questionnaire-9 scores>9), anxiety (General Anxiety Disorder-7 scores>9), and PTSD (PTSD Checklist for DSM-5 scores>30) using separate log-binomial regression models. Read More

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Palliative Care in Paediatric Oncology: an Update.

Curr Oncol Rep 2022 02 21;24(2):175-186. Epub 2022 Jan 21.

Division of Health Research, Health Innovation One, Lancaster University, Sir John Fisher Drive, Lancaster, LA1 4AT, UK.

Purpose Of This Review: The purpose of this review is to describe the evolution of palliative care in paediatric oncology, the needs of children and their families in a paediatric oncology setting, palliative care referral practices in paediatric oncology, outcomes of palliative care referral in paediatric oncology and models of palliative care in paediatric oncology.

Recent Findings: Cancer constitutes 5.2% of the palliative care needs in children. Read More

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February 2022

Death anxiety among advanced cancer patients: a cross-sectional survey.

Support Care Cancer 2022 Apr 12;30(4):3531-3539. Epub 2022 Jan 12.

Department of Thoracic Surgery II, Key Laboratory of Carcinogenesis and Translational Research (Ministry of Education/Beijing), Peking University Cancer Hospital & Institute, Beijing, China.

Purpose: This study aimed to investigate death anxiety in advanced cancer patients and identify associated factors in the context of Chinese culture.

Methods: Participants (N = 270) with advanced cancer in a tertiary cancer hospital completed anonymous questionnaire surveys. Measures included the Chinese version of a Likert-type Templer-Death Anxiety Scale, Rosenberg's Self-esteem Scale, Medical Coping Modes Questionnaire, the Social Support Rating Scale, and Connor-Davidson Resilience Scale. Read More

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Correlation analysis of stress and family function and coping modes in pregnant women with pregnancy-induced hypertension syndrome.

Ann Palliat Med 2021 Nov;10(11):11688-11694

Department of Obstetrics and Gynecology, Hainan Modern Women and Children's Hospital, Haikou, China.

Background: Pregnancy-induced hypertension is a common complication in obstetrics and an important cause of maternal death. We explored the correlations among stress, family function and coping mode in women with pregnancy-induced hypertension syndrome.

Methods: A total of 58 pregnant women with pregnancy-induced hypertension syndrome were included in the study. Read More

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November 2021

Nurses' experiences, coping and support in the death of a child in the emergency department: A qualitative descriptive study.

Int Emerg Nurs 2021 Nov 22;59:101102. Epub 2021 Nov 22.

School of Nursing and Midwifery, La Trobe University, 185 Cooper St., Epping VIC 3076, Australia. Electronic address:

Background: A child's death in the Emergency Department (ED) is usually unexpected and traumatic. Understanding nurses' experiences encountering such death is crucial in determining how they cope to provide quality nursing care to dying children and their families.

Purpose: To report ED nurses' experiences with children's death, coping strategies and support needs. Read More

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November 2021

Post-Traumatic Growth in Parents following Their Child's Death in a Pediatric Intensive Care Unit.

J Palliat Med 2022 02 5;25(2):265-273. Epub 2021 Oct 5.

Department of Pediatrics, Children's Hospital of Michigan, Detroit, Michigan, USA.

Although bereaved parents suffer greatly, some may experience positive change referred to as post-traumatic growth. Explore the extent to which parents perceive post-traumatic growth after their child's death in a pediatric intensive care unit (PICU), and associated factors. Longitudinal parent survey conducted 6 and 13 months after a child's death. Read More

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February 2022

Playful strategies to foster the well-being of pediatric cancer patients in the Brazilian Unified Health System: a design thinking approach.

BMC Health Serv Res 2021 Sep 18;21(1):985. Epub 2021 Sep 18.

Dana-Farber Cancer Institute, Boston Children's Hospital, Boston, MA, USA.

Background: Cancer care can negatively impact children's subjective well-being. In this research, well-being refers to patients' self-perception and encompasses their hospital and care delivery assessment. Playful strategies can stimulate treatment compliance and have been used to provide psychosocial support and health education; they can involve gamification, virtual reality, robotics, and healthcare environments. Read More

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September 2021

Parenting through grief: A cross-sectional study of recently bereaved adults with minor children.

Palliat Med 2021 Dec 22;35(10):1923-1932. Epub 2021 Aug 22.

Department of Psychiatry, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.

Background: Grieving adults raising parentally-bereaved minor children experience persistently elevated symptoms of depression and grief. However, the factors associated with their mental health outcomes are not well understood.

Aim: To investigate the psychosocial and demographic characteristics associated with grief distress and depressive symptom severity in bereaved adults with minor children. Read More

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December 2021

Analysis of how nurses cope facing the death of a paediatric patient.

Enferm Intensiva (Engl Ed) 2021 Jul-Sep;32(3):117-124. Epub 2021 Jul 29.

Enfermero especialista en Pediatría, Unidad de Cuidados Intensivos Pediátricos, Hospital Sant Joan de Déu, Esplugues de Llobregat, Spain.

Aims: To evaluate how nurses cope with the death of a paediatric patient, relate it to the different sociodemographic variables, and to describe personal coping strategies used by nurses in managing the process and accepting the death of the patient.

Methodology: An observational, descriptive and cross-sectional study, carried out from January to June 2018 with nurses from the palliative care area, intensive care unit, neonatology and oncohaematology area of a tertiary paediatric hospital in Barcelona city. An ad hoc questionnaire was applied, divided into three parts: socio-demographic data, the Bugen Scale of coping with death and two open questions. Read More

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October 2021

Development and evaluation of the Good Grief program for young people bereaved by familial cancer.

BMC Palliat Care 2021 Apr 29;20(1):64. Epub 2021 Apr 29.

Canteen Australia, GPO Box 3821, Sydney, NSW, 2001, Australia.

Background: Adolescents and young adults (AYAs) bereaved by the death of a parent or sibling from cancer report unique psychosocial needs and can have difficulty adjusting to their loss. Unaddressed, this can result in poor long-term bereavement outcomes. This paper describes the development and evaluation of Good Grief - a 3-day camp-based program focused on meeting coping, social support, and respite needs of AYAs bereaved by familial cancer. Read More

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Multiple Roles of Parental Caregivers of Children with Complex Life-Threatening Conditions: A Qualitative Descriptive Analysis.

J Pediatr Nurs 2021 Nov-Dec;61:67-74. Epub 2021 Mar 26.

Duke University, School of Nursing, NC, United States of America.

Purpose: Children born with Complex Life-Threatening Conditions (CLTCs) often require complex and specialized services. Parents of children with CLTCs balance the role of caregiver with other responsibilities of employment, education, relationships, and self-care. The purpose of this paper is to describe the challenges for parents serving as caregivers of children with CLTCs and their intersection with health care provider expectations through utilization and adaptation of the role theory framework. Read More

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December 2021

Social acceptance of death and its implication for end-of-life care.

J Adv Nurs 2021 Jul 23;77(7):3132-3141. Epub 2021 Mar 23.

Department of Nursing, Physiotherapy and Medicine, University of Almería, Almería, Spain.

Aims: To understand how the social patterns about death influence end-of-life care from the perspective of healthcare professionals.

Design: A qualitative study according to the theory of Glaser and Strauss.

Methods: A purposeful sample of 47 participants with different roles (nurses, physicians and clinical psychologists) were involved in four focus groups and 17 interviews in 2017-2019. Read More

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Actual Solidarity through Virtual Support: A Pilot Descriptive Study of an Online Support Group for Bereaved Parents.

J Palliat Med 2021 08 6;24(8):1161-1166. Epub 2021 Jan 6.

Division of Pediatric Palliative Care, Department of Pediatrics, Children's Hospital and Medical Center, Omaha, Nebraska, USA.

Hospital-based support for bereaved parents is regarded as best practice. Little is known about parental perceptions or programmatic potential of online grief support. To learn from bereaved parent participants' experiences with an online support group to include perceptions of technology acceptance and group communication dynamics. Read More

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The experience of divine struggle following child loss: The Case of Israeli bereaved Modern-Orthodox parents.

Death Stud 2020 Dec 1:1-15. Epub 2020 Dec 1.

Department of Psychology, Bar-Ilan University, Ramat-Gan, Israel.

Child loss may undermine one's faith. Whereas much is known about religion's role following loss, less is known about the experience of divine struggle-namely, struggling with complex God-related emotions/beliefs-particularly among diverse sociocultural samples. Employing a narrative approach, we interviewed 20 bereaved Modern-Orthodox parents. Read More

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December 2020

The Social Brain and Emotional Contagion: COVID-19 Effects.

Medicina (Kaunas) 2020 Nov 25;56(12). Epub 2020 Nov 25.

Department of Clinical and Experimental Medicine, University of Foggia, 71122 Foggia, Italy.

Background And Objectives: Coronavirus disease 2019 (COVID-19) is a highly contagious infectious disease, responsible for a global pandemic that began in January 2020. Human/COVID-19 interactions cause different outcomes ranging from minor health consequences to death. Since social interaction is the default mode by which individuals communicate with their surroundings, different modes of contagion can play a role in determining the long-term consequences for mental health and emotional well-being. Read More

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November 2020

Maternal grief: analysis and therapeutic recommendations.

BMJ Support Palliat Care 2021 Mar 25;11(1):101-106. Epub 2020 Nov 25.

School of Nursing, Emmanuel College, 400 The Fenway, Boston, Massachusetts, USA

The following self-analysis contains key experiences of maternal grief over the course of the first 2 years following the death of a child, with specific examples and observations from bereaved mothers shared with the author. The references provide supporting evidence for commonality of the lived experience and observations. Therapeutic responses for clinicians give concrete direction for providing effective comfort. Read More

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Health Care Professionals' Experiences With Preloss Care in Pediatrics: Goals, Strategies, Obstacles, and Facilitators.

J Pain Symptom Manage 2021 07 10;62(1):107-116. Epub 2020 Nov 10.

Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands.

Context: Although parents experience grief when confronted with their child's deterioration and imminent death, most bereavement care is focused on supporting parents after child loss. Insight into intentions and strategies of the health care professionals (HCPs) in preloss care during the end of life is still lacking.

Objectives: To create a starting point for improvement of preloss care, this study explores HCPs' experiences with providing support aimed at parental feelings of grief during the child's end of life. Read More

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Death education for children and young people in public schools.

Int J Palliat Nurs 2020 Oct;26(7):332-335

Associate Professor, Faculty of Health Studies, Brandon University, Brandon, Manitoba, Canada.

Background: Conversations about death are often associated with fear, anxiety, avoidance and misunderstandings. Many adults feel that these discussions are inappropriate and confusing for young people. In this project, two fourth-year nursing students partnered with a local palliative care team to examine death education for children. Read More

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October 2020

What Children Wished They Had/Had Not Done and Their Coping in the First Thirteen Months after Their Sibling's Neonatal/Pediatric Intensive Care Unit/Emergency Department Death.

J Palliat Med 2021 02 8;24(2):226-232. Epub 2020 Jul 8.

Nicole Wertheim College of Nursing and Health Sciences, Florida International University, Miami, Florida, USA.

Research on what children wished they had done differently after their sibling's death has not been reported. Examine what children wished they had/had not done, and their coping after a sibling's neonatal/pediatric intensive care unit/emergency department (NICU/PICU/ED) death. Qualitative data are part of a longitudinal mixed methods study of 6- to 18-year-olds interviewed at 2, 4, 6, and 13 months after a sibling's death. Read More

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February 2021

[Experiences and coping strategies of nurses in the face of death in pediatric hematology: qualitative study].

Prof Inferm 2020 Jan-Mar;73(1):42-52

RN, BSN, MSN, Posizione Organizzativa Responsabile del settore EBM ed EBP e dello sviluppo professionale ed organizzativo, SC Direzione delle Professioni Sanitarie, IRCCS Burlo Garofolo, Trieste.

Introduction:  The death of a pediatric patient causes personal, social and work-related repercussions on nursing staff who have witnessed it. The objective of this qualitative study is to investigate the experiences and the coping strategies of nurses working in pediatric oncoematology before the deaths of assisted children/adolescents.

Method: It has been placed in the Pediatric Oncoematology Clinic - Padua Hospital. Read More

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When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories.

BMC Palliat Care 2020 Mar 12;19(1):28. Epub 2020 Mar 12.

Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Universiteitsweg 100, 3584 CG, Utrecht, The Netherlands.

Background: The availability of interventions for bereaved parents have increased. However, most are practice based. To enhance the implementation of bereavement care for parents, an overview of interventions which are replicable and evidence-based are needed. Read More

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The psychosocial wellbeing of orphans: The case of early school leavers in socially depressed environment in Mpumalanga Province, South Africa.

PLoS One 2020 26;15(2):e0229487. Epub 2020 Feb 26.

Department of Public Health, Sefako Makgatho Health Sciences University, Pretoria, South Africa.

Background: The emergence of a large population of orphaned youth in sub-Saharan Africa is due to the natural maturity of orphaned children. Research indicates that orphaned youth face more negative psychosocial challenges than their younger counterparts do. Furthermore, these challenges are intensified for early school leavers. Read More

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Perspectives of Chinese Cancer Patients Toward Disclosure of Cancer Diagnosis to Their Minor Children.

Cancer Nurs 2020 Jan/Feb;43(1):2-11

Author Affiliations: Department of Nursing, Tianjin Medical University Cancer Institute and Hospital, Tianjin, China (Mss Wang, Shen, and Qiang); and School of Health Sciences, University of Surrey, Guildford, United Kingdom (Dr Arber).

Background: One of the issues that cancer patients with minor or adolescent children face is whether to inform children about their cancer diagnosis. Their perspectives toward this issue are underexplored in China.

Objective: The aim of this study was to explore Chinese cancer parents' perspectives toward informing children of their diseases. Read More

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November 2020

Thematic analysis of spousal interaction patterns among Asian parents of children with chronic life-threatening illness.

BMJ Open 2019 11 19;9(11):e032582. Epub 2019 Nov 19.

Club Rainbow, Singapore, Singapore.

Objective: This is the first known study which examines the evolutionary nature of spousal interaction patterns among Asian parents of children with chronic life-threatening illness, from the time of providing care to their child through bereavement. This study is informed by earlier findings that when a child is diagnosed with a chronic life-threatening illness, parents are faced with multiple stressors, leaving them with little time to invest in their spousal relationship.

Participants And Setting: A constructivist-phenomenological research paradigm was adopted and meaning-oriented interviews were conducted with 20 parental units (i. Read More

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November 2019

The Coping Assessment for Bereavement and Loss Experiences (CABLE): Development and initial validation.

Death Stud 2021 14;45(9):677-691. Epub 2019 Oct 14.

Department of Learning Sciences & Educational Research, College of Community Innovation and Education, University of Central Florida, Orlando, Florida, USA.

The authors present the development and validation of the (CABLE), the first instrument designed to assess a range of potentially constructive strategies for coping with grief following the death of a loved one. Exploratory and confirmatory factor analysis with an international sample of bereaved adults ( = 844) yielded a six-factor, 28-item structure. Use of this validated, clinically useful, self-report tool can inform clinicians and researchers in evaluating bereavement coping, and in developing interventions designed to increase the number and broaden the types of coping strategies used to facilitate healing following loss. Read More

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October 2021

The Parental Experience of Unexpectedly Losing a Child in the Pediatric Emergency Department.

Omega (Westport) 2021 Nov 23;84(1):28-50. Epub 2019 Sep 23.

College of Nursing, Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, Manitoba, Canada.

Child loss is the most traumatic loss a parent can experience, increasing their risk of negative outcomes such as complicated grief. Unexpected loss in the unfamiliar environment of the Emergency Department (ED) significantly increases this risk. Despite this knowledge, research on child loss in the context of the ED is scarce. Read More

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November 2021

A qualitative exploratory study of UK first-time fathers' experiences, mental health and wellbeing needs during their transition to fatherhood.

BMJ Open 2019 09 13;9(9):e030792. Epub 2019 Sep 13.

Warwick Clinical Trials Unit, University of Warwick, and University Hospitals Coventry & Warwickshire, Warwick, UK.

Objectives: To develop an understanding of men's experiences of first-time fatherhood, their mental health and wellbeing needs.

Design: A qualitative study using semi-structured interviews. Data were analysed using framework analysis. Read More

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September 2019