131 results match your criteria Coping With the Death of a Child in the ED


Infant Temperament: Repercussions of Superstorm Sandy-Related Maternal Stress.

Child Psychiatry Hum Dev 2019 02;50(1):150-162

Psychology, Queens College, CUNY, 65-30 Kissena Blvd, Flushing, 11367, NY, USA.

This study recruited a prospective cohort of 380 pregnant women before, during, or after Superstorm Sandy in 2012 to examine the association between disaster-related pre- and post-natal maternal stress and offspring temperament at 6 months-old. Mothers prospectively reported stressful experiences during the storm and rated their child's temperament 6 months postpartum. Results indicated that length of time without phone or electricity and financial loss was associated with offspring negative affect, whereas financial loss and threat of death or injury was associated with emotion dysregulation. Read More

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http://dx.doi.org/10.1007/s10578-018-0828-2DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6339835PMC
February 2019
12 Reads

Dealing With the Concepts of "Grief" and "Grieving" in the Classroom: Children's Perceptions, Emotions, and Behavior.

Omega (Westport) 2018 Aug 11;77(3):240-266. Epub 2016 Jan 11.

2 Open University of Cyprus, Nicosia, Cyprus.

This article presents an action research study that explores how a fifth-grade classroom of 10- to 11-year-old children in Cyprus perceive the concepts of grief and grieving, after an educational intervention provided space for discussing such issues. It also explores the impact that the intervention program had on children's emotions while exploring these concepts and illustrates how it affected their behavior. The findings suggest that the intervention had a constructive impact on children's understandings of grief and grieving along two important dimensions. Read More

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http://dx.doi.org/10.1177/0030222815626717DOI Listing

Prolonged grief and post-traumatic growth after loss: Latent class analysis.

Psychiatry Res 2018 09 6;267:221-227. Epub 2018 Jun 6.

Division of Psychopathology and Clinical Intervention, Department of Psychology, University of Zurich, Zurich, Switzerland.

Bereavement may trigger different psychological outcomes, such as prolonged grief disorder or post-traumatic growth. The relationship between these two outcomes and potential precipitators remain unknown. The current study aimed to identify classes of Chinese bereaved individuals based on prolonged grief symptoms and post-traumatic growth and to examine predictors for these classes. Read More

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http://dx.doi.org/10.1016/j.psychres.2018.06.006DOI Listing
September 2018
6 Reads

Morale, stress and coping strategies of staff working in the emergency department: A comparison of two different-sized departments.

Emerg Med Australas 2018 06 23;30(3):375-381. Epub 2018 Jan 23.

Menzies Health Institute Queensland, Griffith University, Gold Coast, Queensland, Australia.

Objective: Clinical staff in EDs are subject to a range of stressors. The objective of this study was to describe and compare clinical staff perceptions of their ED's working environment across two different Australian EDs.

Methods: This was a cross-sectional, descriptive, research design that included distribution of three survey tools to clinical staff in two Australian EDs in 2016. Read More

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http://doi.wiley.com/10.1111/1742-6723.12895
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http://dx.doi.org/10.1111/1742-6723.12895DOI Listing
June 2018
9 Reads

Ghosts, tigers and landmines in the nursery: Attachment narratives of loss in Tamil refugee children with dead or missing fathers.

Clin Child Psychol Psychiatry 2018 Apr 20;23(2):294-310. Epub 2017 Dec 20.

1 Psychiatry Research and Teaching Unit, Liverpool Hospital, Sydney, Australia.

Objective: To build an account of how bereaved Tamil refugee and asylum seeker children, resettled in Australia, had processed the loss of their dead or missing fathers.

Method: Phenomenological and discourse analysis was applied to attachment narratives of nine children (aged 11-17 years) and their surviving mothers in families that lost fathers in war-related circumstances. The narratives were analysed through the lens of Crittenden's Dynamic-Maturational Model of Attachment and Adaptation (DMM) and Klass' cross-cultural model of grief. Read More

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http://dx.doi.org/10.1177/1359104517746453DOI Listing
April 2018
7 Reads

Stories of survival: Children's narratives of psychosocial well-being following paediatric critical illness or injury.

J Child Health Care 2017 Sep 30;21(3):236-252. Epub 2017 Jun 30.

4 Faculty of Health, Social Care and Education, Anglia Ruskin University, Cambridge, UK.

Survival from critical illness can expose children to an array of negative physical and psychological problems. While the perspective of parents and professionals have been well documented, there is limited understanding of how childhood critical care survivors make sense of their experiences in relation to psychosocial well-being. We aimed to explore long-term psychosocial well-being of childhood survivors of critical illness through their stories. Read More

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http://dx.doi.org/10.1177/1367493517717078DOI Listing
September 2017
12 Reads

Identifying the Types of Support Needed by Interprofessional Teams Providing Pediatric End-of-Life Care: A Thematic Analysis.

J Palliat Med 2018 Apr 13;21(4):422-427. Epub 2017 Oct 13.

3 Center for Bioethics and Social Sciences in Medicine , Michigan Medicine, Ann Arbor, Michigan.

Background: Despite the number of interprofessional team members caring for children at the end of life, little evidence exists on how institutions can support their staff in providing care in these situations.

Objective: We sought to evaluate which aspects of the hospital work environment were most helpful for multidisciplinary team members who care for patients at the end of life and identify areas for improvement to better address staff needs.

Design: Qualitative thematic analysis was completed of free-text comments from a survey distributed to interprofessional staff members involved in the care of a recently deceased pediatric patient. Read More

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http://dx.doi.org/10.1089/jpm.2017.0331DOI Listing
April 2018
4 Reads

The Unexpected Death of a Child and The Experience of Emergency Service Personnel.

J Emerg Nurs 2018 Jan 13;44(1):64-70. Epub 2017 Jul 13.

Flagstaff, AZ; Chicago, IL.

Introduction: In 2013, 55,000 infants and children, aged 0 to 14, died in the United States. Nearly 7,000 of those deaths were attributed to traumatic causes. A child's death significantly affects emergency service personnel (ESP) caring for children and families. Read More

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http://dx.doi.org/10.1016/j.jen.2017.06.002DOI Listing
January 2018
7 Reads

Factors affecting uptake of postmortem examination in the prenatal, perinatal and paediatric setting.

BJOG 2018 Jan 21;125(2):172-181. Epub 2017 Mar 21.

UCL Institute of Child Health, Great Ormond Street Institute of Child Health, London, UK.

Background: Postmortem examination is the single most useful investigation in providing information to parents about why their baby or child died. Despite this, uptake remains well below the recommended 75%.

Objective: To address the question 'what are the barriers and motivators to perinatal, prenatal and paediatric PM examination?'

Search Strategy: Key databases including Pubmed and CINAHL; Cochrane library, websites of relevant patient organisations, hand search of key journals, first and last authors and references. Read More

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http://dx.doi.org/10.1111/1471-0528.14600DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5763339PMC
January 2018
6 Reads

Towards a model of loss navigation in adolescence.

Authors:
Martin Lytje

Death Stud 2017 May-Jun;41(5):291-302. Epub 2017 Jan 6.

a Faculty of Education , University of Cambridge , Cambridge , UK.

Researchers today consider childhood bereavement one of the most traumatic experiences that can befall a child. Nevertheless, most models of bereavement currently limit themselves to dealing with adult grief and primarily explores the internal processes associated with recovery. Based on a study which conducted focus groups with 39 Danish adolescents (aged 9-17), this article presents The Model of Loss Navigation in Adolescence. Read More

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http://dx.doi.org/10.1080/07481187.2016.1276488DOI Listing

Storyboarding as an aid to learning about death in children's nursing.

Authors:
Yvonne Dexter

Nurs Child Young People 2016 Jun;28(5):16-21

University of West London, Brentford, Middlesex.

The sudden or anticipated death of a child is one of the most challenging and unique experiences that children's nursing students will encounter in practice. There is evidence to suggest that the effect this can have on a practitioner can affect quality of care. Although education for nurses about dealing with death has been studied, there is limited research into the education of those working with dying children and how effective it is in preparing them to deal with the situation. Read More

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http://dx.doi.org/10.7748/ncyp.28.5.16.s21DOI Listing
June 2016
1 Read

The Development of a Hospital-Wide Bereavement Program: Ensuring Bereavement Care for All Families of Pediatric Patients.

J Pediatr Health Care 2017 Jan - Feb;31(1):88-95. Epub 2016 May 25.

Although grief is a normal response to loss, the death of a child is believed to be one of the most difficult losses a person can endure, and bereaved parents are considered to be an "at-risk" group. Even though most deaths of children in the United States occur in hospitals, bereavement care provided by hospitals is highly variable, and little attention has been directed to how hospitals can best support grieving parents. In this article, we describe the development of a hospital-wide bereavement program at Boston Children's Hospital, where we conceptualize bereavement care as a preventive model of care. Read More

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https://linkinghub.elsevier.com/retrieve/pii/S08915245163007
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http://dx.doi.org/10.1016/j.pedhc.2016.04.013DOI Listing
January 2018
4 Reads

Posttraumatic growth in aging individuals who have lost their only child in China.

Death Stud 2016 Aug 31;40(7):395-404. Epub 2016 Mar 31.

c School of Social Work , University of Michigan , Ann Arbor , Michigan , USA.

This article examined the extent of posttraumatic growth (PTG) and factors related to PTG in aging individuals who have lost their only child in China. The sample included 201 bereaved parents from different families residing in Chongqing, China. They were between 49-80 years old (M = 61) and had lost their only child. Read More

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http://dx.doi.org/10.1080/07481187.2016.1169234DOI Listing
August 2016
7 Reads

You have no Choice but to go on: How Physicians and Midwives in Ghana Cope with High Rates of Perinatal Death.

Matern Child Health J 2016 07;20(7):1448-55

Department of Family Medicine and, Department of Obstetrics and Gynecology, University of Michigan, 1018 Fuller Street, Ann Arbor, MI, 48104-1218, USA.

Objectives Healthcare providers in low-resource settings confront high rates of perinatal mortality. How providers cope with such challenges can affect their well-being and patient care; we therefore sought to understand how physicians and midwives make sense of and cope with these deaths. Methods We conducted semi-structured interviews with midwives, obstetrician-gynecologists, pediatricians and trainee physicians at a large teaching hospital in Kumasi, Ghana. Read More

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http://dx.doi.org/10.1007/s10995-016-1943-yDOI Listing
July 2016
10 Reads

Patient End-of-Life Experiences for Pediatric Trainees: Spanning the Educational Continuum.

Clin Pediatr (Phila) 2016 08 18;55(9):811-8. Epub 2016 Feb 18.

Johns Hopkins University School of Medicine, Baltimore, MD, USA.

Background End-of-life care for a child is an emotionally charged experience for pediatric trainees. Objectives Describe the progression of medical trainee experiences with end-of-life care and determine personal/professional experiences that facilitated integration of experiences. Methods Medical students (MS4) and pediatric residents (PL-1-3) completed a 30-question survey about experiences with patient deaths and integration of these experiences. Read More

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http://dx.doi.org/10.1177/0009922816631513DOI Listing
August 2016
3 Reads

Faith, Hope, and Spirituality: SUPPORTING PARENTS WHEN THEIR CHILD HAS A LIFE-LIMITING ILLNESS.

Authors:
Cheryl L Crisp

J Christ Nurs 2016 Jan-Mar;33(1):14-21

When a child has a life-limiting illness, parents' goals and strategies for their child's life may need to be drastically altered, especially if early death looms. This article reviews literature and research about how families employ faith, hope, spirituality, and biblical perspectives as their child becomes critically ill and faces death. Suggestions are made for best caring practices for families and children encountering this difficult journey. Read More

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March 2016
3 Reads

'A short time but a lovely little short time': Bereaved parents' experiences of having a child with spinal muscular atrophy type 1.

J Paediatr Child Health 2016 Jan 10;52(1):40-6. Epub 2015 Sep 10.

Victorian Clinical Genetics Services, The Royal Children's Hospital, Melbourne, Victoria, Australia.

Aim: Spinal muscular atrophy (SMA) type 1 is a relatively common, untreatable and invariably fatal neuromuscular disorder of early childhood. Psychosocial care is vital in management of families affected by this disease. There are few studies examining the impact of having a family member with a neuromuscular disorder, and none describing parents' experiences of having a child with SMA type 1. Read More

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http://dx.doi.org/10.1111/jpc.12993DOI Listing
January 2016
4 Reads

Living Through the Life-Altering Loss of a Child: A Narrative Review.

Issues Compr Pediatr Nurs 2015 ;38(3):222-40

a Faculty of Health , Social Care and Education, Kingston University and St George's, University London , Surrey, UK and.

The death of a child is a life-altering event for parents, leading to grief that is individual, intense, and long lasting. The grief experienced by parents following the death of their child can affect their relationships and as they sometimes see it, their role within society. Parents can find grief isolating, due to society's lack of understanding of their grief experience. Read More

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http://www.tandfonline.com/doi/full/10.3109/01460862.2015.10
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http://dx.doi.org/10.3109/01460862.2015.1045102DOI Listing
January 2017
13 Reads

Predictors of Mental Health Resilience in Children who Have Been Parentally Bereaved by AIDS in Urban South Africa.

J Abnorm Child Psychol 2016 May;44(4):719-30

Department of Social Policy and Intervention, University of Oxford, Oxford, UK.

Children parentally bereaved by AIDS experience high rates of mental health problems. However, there is considerable variability in outcomes, and some show no mental health problems even when followed over time. Primary aims were to identify predictors of resilient adaptation at child, family and community levels within a group of AIDS-orphaned children, and to consider their cumulative influence. Read More

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http://dx.doi.org/10.1007/s10802-015-0068-xDOI Listing
May 2016
6 Reads

The association of adverse childhood experiences with mid-life depressive symptoms and quality of life among incarcerated males: exploring multiple mediation.

Aging Ment Health 2016 21;20(6):655-66. Epub 2015 Apr 21.

e Department of Acute and Chronic Care, School of Nursing , The Johns Hopkins University , Baltimore , MD , USA.

Objectives: To explore the association of experiencing death, trauma, and abuse during childhood with depressive symptoms and quality of life at mid-life among incarcerated men and to understand how current social support and coping strategies mediate the impact of childhood trauma histories on mental health.

Methods: Study participants were 192 male inmates in a maximum security prison. Participants completed measures of adverse childhood experiences related to death, trauma, and abuse, and depressive symptoms and quality of life. Read More

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http://dx.doi.org/10.1080/13607863.2015.1033681DOI Listing
January 2017
12 Reads

"A renewed sense of purpose": mothers' and fathers' experience of having a child following a recent stillbirth.

BMC Pregnancy Childbirth 2014 Dec 19;14:423. Epub 2014 Dec 19.

Department of Child and Adolescent Psychiatry, Research Unit, Rue du Bugnon 25 A, University Hospital Lausanne, CH-1011, Lausanne, Switzerland.

Background: Most research has focused on mothers' experiences of perinatal loss itself or on the subsequent pregnancy, whereas little attention has been paid to both parents' experiences of having a child following late perinatal loss and the experience of parenting this child. The current study therefore explored mothers' and fathers' experiences of becoming a parent to a child born after a recent stillbirth, covering the period of the second pregnancy and up to two years after the birth of the next baby.

Method: In depth interviews were conducted with 7 couples (14 participants). Read More

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http://dx.doi.org/10.1186/s12884-014-0423-xDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4279693PMC
December 2014
15 Reads

Predictors of death anxiety among midwives who have experienced maternal death situations at work.

Matern Child Health J 2015 May;19(5):1024-32

College of Nursing, Sultan Qaboos University, AlKhod, P.O. Box 66, Muscat, Oman,

One of the hardships faced by midwives in developing countries is dealing with maternal death. Taking care of pregnant women who end up dying makes midwives mindful of their own mortality and this experience provokes discomfort and anxiety. To determine the predictors of death anxiety among midwives who have experienced maternal death at work in order to recommend interventions to facilitate effective coping with the distress. Read More

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http://dx.doi.org/10.1007/s10995-014-1601-1DOI Listing
May 2015
3 Reads

Untold stories of infant loss: the importance of contact with the baby for bereaved parents.

J Fam Nurs 2013 Aug 12;19(3):324-47. Epub 2013 Jul 12.

Field faculty, Center for Early Education and Development, University of Minnesota, Minneaplis, MN 55418, USA.

This article presents secondary analysis of data from parents who, 50 to 70 years ago, birthed stillborn babies or babies with lethal anomalies and from adult children born after these losses. The stories reflect a time in history when parents were "protected" from seeing or holding their babies and mothers were unable to attend the funeral. There was no understanding by society or caregivers for parents' need to process the loss or resources to build memories. Read More

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http://jfn.sagepub.com/content/19/3/324.full.pdf
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http://jfn.sagepub.com/cgi/doi/10.1177/1074840713495972
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http://dx.doi.org/10.1177/1074840713495972DOI Listing
August 2013
2 Reads

Juvenile neuronal ceroid lipofuscinosis and education.

Biochim Biophys Acta 2013 Nov 5;1832(11):1894-905. Epub 2013 Mar 5.

Department of Psychology, University of Oslo, P.O. Box 1094 Blindern, N-0317 Oslo, Norway. Electronic address:

Juvenile neuronal ceroid lipofuscinosis (JNCL) is characterized by severe visual impairment with onset around age 4-8 years, and a developmental course that includes blindness, epilepsy, speech problems, dementia, motor coordination problems, and emotional reactions. There is presently no cure and the disease leads to premature death. There have been few studies of non-medical intervention for individuals with JNCL, probably because of the negative prognosis. Read More

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https://helda.helsinki.fi/bitstream/handle/10138/22623/juven
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http://linkinghub.elsevier.com/retrieve/pii/S092544391300062
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http://dx.doi.org/10.1016/j.bbadis.2013.02.017DOI Listing
November 2013
9 Reads

The level of perceived stress of parents of children with cancerous disease - mechanisms of dealing with stress and social support.

Folia Med Cracov 2013 ;53(2):87-97

Department of Clinical Nursing, Jagiellonian University Medical College, Krakow, Poland. grazyna.

Introduction: Cancerous disorders are the second most common cause of death among children. Blood cancer is a stressful and traumatic situation for the child, as well as the parents. To overcome the stress of child's illness parents adopt different coping styles. Read More

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July 2014
1 Read

Childlessness, parental mortality and psychiatric illness: a natural experiment based on in vitro fertility treatment and adoption.

J Epidemiol Community Health 2013 Apr 5;67(4):374-6. Epub 2012 Dec 5.

CIRRAU-Centre for Integrated Register-based Research, Aarhus University, Aarhus, Denmark.

Background: Childlessness increases the risk of premature mortality and psychiatric illness. These results might, however, be confounded by factors that affect both the chance of parenthood as well as the risk of premature death and psychiatric illness.

Methods: Using population-based health and social registers, we conducted a follow-up study of 21 276 childless couples in in vitro fertility treatment. Read More

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http://dx.doi.org/10.1136/jech-2012-201387DOI Listing
April 2013
2 Reads

My child needs or has an implantable cardioverter-defibrillator: what should I do?

Circulation 2012 Oct;126(16):e244-7

Division of Cardiology, Duke University Health System, Durham, NC, USA.

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http://dx.doi.org/10.1161/CIRCULATIONAHA.112.098541DOI Listing
October 2012
7 Reads
14.430 Impact Factor

Learning that a death can be a good death.

Authors:
Emily A Morell

J Palliat Med 2012 Feb;15(2):248-9

Harvard Medical School, Boston, MA, USA.

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http://dx.doi.org/10.1089/jpm.2011.0274DOI Listing
February 2012
2 Reads

Teachers perceptions of effects of a student's death: a phenomenological study.

Omega (Westport) 2012-2013;66(4):301-11

Center for Research and Doctoral Studies in Counselor Education, Sam Houston State University, Huntsville, Texas 77341-2119, USA.

When a student dies in a school setting many school professionals step in and offer grief services to the students affected. In the classrooms, teachers are expected to step in and help the students grieve; however, equivalent support for teachers seems to be lacking. This study explored the lived experiences of teachers who experienced the unanticipated death of a student. Read More

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August 2013
7 Reads

A visit to the intensive cares unit: a family-centered culture change to facilitate pediatric visitation in an adult intensive care unit.

Crit Care Nurs Q 2012 Jan-Mar;35(1):113-22

8D Intermediate Care Unit, University of Michigan Medical Center, Ann Arbor, MI 48109, USA.

To guide family adjustment, an effort was made to facilitate pediatric visitation in an adult intensive care unit (ICU). Goals were to improve customer satisfaction and to raise staff comfort level with child visitation. After implementing an open visitation policy, concerns around pediatric visitation in the ICU remained. Read More

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http://content.wkhealth.com/linkback/openurl?sid=WKPTLP:land
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http://dx.doi.org/10.1097/CNQ.0b013e31823b1ecdDOI Listing
April 2012
51 Reads

Two sides of the coin: the bully and the bullied.

J Psychosoc Nurs Ment Health Serv 2011 Oct 28;49(10):22-9. Epub 2011 Sep 28.

The Ohio State University, College of Nursing, Columbus, OH, USA.

Bullying has become a worldwide phenomenon that produces serious individual and societal consequences when it is ignored. There are two sides of the coin that require consideration when psychiatric-mental health (PMH) nurses conduct assessments of situations that involve bullying behaviors. Both the bully and the bullied can incur serious, negative, and debilitating psychological effects. Read More

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http://dx.doi.org/10.3928/02793695-20110830-01DOI Listing
October 2011
4 Reads

The continued lived experience of the unexpected death of a child.

Omega (Westport) 2011 ;63(3):221-33

School of Nursing, Oakland University, Rochester, Michigan 48309, USA.

The purpose of this qualitative study was to further examine the lived experiences of families that faced the sudden loss of a child. Six mothers that had previously participated approximately 9 years ago in the study entitled "The Lived Experience of the Unexpected Death of a Child" were interviewed. All of the mothers were Caucasian and had achieved a high school or greater level of education. Read More

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http://dx.doi.org/10.2190/OM.63.3.bDOI Listing
October 2011
3 Reads

Dravet syndrome and parent associations: the IDEA League experience with comorbid conditions, mortality, management, adaptation, and grief.

Epilepsia 2011 Apr;52 Suppl 2:95-101

International Dravet syndrome Epilepsy Action League, Deale, Maryland, USA.

The advent of social networking via the Internet and the commercial availability of tests for SCN1A mutations permitted the rapid development and growth of parent-led associations that provide advocacy and support, as well as promote education and research regarding Dravet syndrome (DS) in the last 10 years. The International Dravet syndrome Epilepsy Action League (IDEA League) is a partnership of parents and professionals united in the purpose of creating greater awareness and understanding of DS. In 2004, parents in the IDEA League support network began to collect data from families about their children with DS in order to investigate observations that, in addition to epilepsy, many of the children seemed to share similar problems. Read More

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http://dx.doi.org/10.1111/j.1528-1167.2011.03012.xDOI Listing
April 2011
12 Reads

Characteristics of child abuse homicides in the state of Kansas from 1994 to 2007.

Child Abuse Negl 2011 Feb 5;35(2):147-54. Epub 2011 Mar 5.

University of Kansas School of Medicine, Wichita, KS, USA.

Objective: This study described the epidemiology of child abuse homicides in the state of Kansas from 1994 to 2007. It focused on obtaining significant details on all recorded child abuse homicides in Kansas during this time frame to provide critical information that can be used for future preventive measures.

Methods: A retrospective case review was conducted on data gathered by the Kansas State Child Death Review Board for all cases of "child abuse homicides" that occurred from 1994 to 2007. Read More

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http://dx.doi.org/10.1016/j.chiabu.2010.11.002DOI Listing
February 2011
5 Reads

Healthcare utilization in the pregnancy following a perinatal loss.

MCN Am J Matern Child Nurs 2011 Mar-Apr;36(2):104-11

School of Nursing, University of Louisville, Louisville, KY, USA.

Purpose: To evaluate the influence of previous perinatal loss, anxiety, depressive symptoms, impact of the previous loss, and maternal investment in the baby on mothers' healthcare utilization (HCU) during the subsequent pregnancy and postpartum periods.

Study Design And Methods: A longitudinal, cohort study design gathered telephone interview data from 36 mothers with a history of prior perinatal loss, 32 mothers with no loss history, and 38 first-time mothers. These data were collected during the third trimester of pregnancy until 8 months postpartum. Read More

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http://dx.doi.org/10.1097/NMC.0b013e3182057335DOI Listing
July 2011
4 Reads

Perinatal grief and support spans the generations: parents' and grandparents' evaluations of an intergenerational perinatal bereavement program.

J Perinat Neonatal Nurs 2011 Jan-Mar;25(1):77-85

Maternal Fetal Medicine Center, Adventist Midwest Region/Adventist Hinsdale Hospital, Hinsdale, Illinois 60521, USA.

Purpose: As perinatal loss, miscarriage, still birth, or neonatal death may result in signs and symptoms of grief in the entire family, perinatal bereavement programs (PBPs) should consider offering intergenerational services. The purpose of this program evaluation was to identify and evaluate siblings' and grandparents' utilization of a hospital-based PBP's intergenerational support services and education offerings with regard to the entire family's coping with the loss.

Methods: Written program evaluation surveys of parents and grandparents, with an opportunity for free response, along with parent phone follow-up, were utilized to evaluate whether a variety of inpatient/outpatient services for parents, siblings, and grandparents were useful to the entire family. Read More

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http://dx.doi.org/10.1097/JPN.0b013e318208cb74DOI Listing
June 2011
4 Reads

Medical students' first clinical experiences of death.

Med Educ 2010 Apr 3;44(4):421-8. Epub 2010 Mar 3.

Department of Family Medicine, Schulich School of Medicine & Dentistry, University of Western Ontario, London, Ontario, Canada.

Objectives: Many medical students feel inadequately prepared to address end-of-life issues, including patient death. This study aimed to examine medical students' first experiences of the deaths of patients in their care.

Methods: Final-year medical students at the Schulich School of Medicine & Dentistry, University of Western Ontario were invited to share their first experience of the death of a patient in their care. Read More

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http://dx.doi.org/10.1111/j.1365-2923.2009.03603.xDOI Listing
April 2010
6 Reads

Complicated grief symptoms in caregivers of persons with lung cancer: the role of family conflict, intrapsychic strains, and hospice utilization.

Omega (Westport) 2010-2011;62(3):201-20

University of Wisconsin-Madison, School of Social Work, Madison, WI 53706, USA.

Guided by a stress process conceptual model, this study examines social and psychological determinants of complicated grief symptoms focusing on family conflict, intrapsychic strains, and the potential moderating effect of care quality and hospice utilization. Relying on data from 152 spouse and adult child lung cancer caregiver survey respondents, drawn from an ancillary study of the Assessment of Cancer CarE and SatiSfaction (ACCESS) in Wisconsin, hierarchical multiple regression analysis was used to examine determinants of complicated grief. After controlling for contextual factors and time since death, complicated grief symptoms were higher among caregivers with less education, among families with lower prior conflict but higher conflict at the end-of-life, who had family members who had difficulty accepting the illness, and who were caring for patients with greater fear of death. Read More

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3265356PMC
May 2011
6 Reads

Does childhood cancer affect parental divorce rates? A population-based study.

J Clin Oncol 2010 Feb 28;28(5):872-7. Epub 2009 Dec 28.

Cancer Registry of Norway, PO Box 5313, Majorstua, N-0304 Oslo, Norway.

PURPOSE Cancer in children may profoundly affect parents' personal relationships in terms of psychological stress and an increased care burden. This could hypothetically elevate divorce rates. Few studies on divorce occurrence exist, so the effect of childhood cancers on parental divorce rates was explored. Read More

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http://dx.doi.org/10.1200/JCO.2009.24.0556DOI Listing
February 2010
5 Reads

Early testing for Huntington disease in children: pros and cons.

J Child Neurol 2010 Apr 6;25(4):482-4. Epub 2009 Oct 6.

Department of Psychiatry and Behavioral Medicine, University of South Florida, College of Medicine, Tampa, Florida, USA.

We report 2 young children who are examples of the consequences of premature testing for Huntington disease. Premature testing of a child or fetus carries complex medical and psychological issues to both the child and the family that need to be considered and explored more than in an adult with Huntington disease. We suggest that a child at risk for juvenile Huntington disease not be tested until symptoms are progressive and consistent with the disease and all other mimickers are excluded. Read More

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http://dx.doi.org/10.1177/0883073809343315DOI Listing
April 2010
1 Read

AIDS orphanages in China: reality and challenges.

AIDS Patient Care STDS 2009 Apr;23(4):297-303

Carman and Ann Adams Department of Pediatrics, Pediatric Prevention Research Center, Wayne State University School of Medicine, Detroit, Michigan 48201-2196, USA.

With the increasing number of AIDS orphans in China, the government has been building AIDS orphanages since 2004 to accommodate some of those children who have lost both parents to AIDS. However, no data are available regarding the quality of this model of institutional care of AIDS orphans in China. This study, based on qualitative data from children and workers in AIDS orphanages, examines the daily lives, needs, and feelings of orphans and explores the advantages and disadvantages of institutionalized care of AIDS orphans in China. Read More

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http://dx.doi.org/10.1089/apc.2008.0190DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2856492PMC
April 2009
3 Reads

Parents' experiences, reactions and needs regarding a nonviable fetus diagnosed at a second trimester routine ultrasound.

J Obstet Gynecol Neonatal Nurs 2008 Jul-Aug;37(4):446-54

Department of Health Sciences, Division of Nursing, Lund University, Lund, Sweden.

Objective: To conceptualize women's and their partners' experiences and ways of handling the situation before, during, and after second trimester ultrasound examination with the diagnosis of a nonviable fetus.

Design: A grounded theory study.

Setting: A Swedish regional hospital. Read More

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http://dx.doi.org/10.1111/j.1552-6909.2008.00258.xDOI Listing
December 2008
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Children's needs when facing the death of a parent from cancer: part two.

Int J Palliat Nurs 2007 Dec;13(12):590-7

Fife Palliative Care Service, Cedar House, Whyteman's Brae, Kirkcaldy.

A small exploratory study was conducted to identify the psychosocial needs of children facing the death and subsequent bereavement of a parent from cancer. The focus was on the palliative phase of care through the bereavement period with the aim of identifying the best way forward in further developing a community-based service for children in Fife. Part one selectively reviewed the literature related to children's and families' needs when facing and dealing with the death of a parent, and described. Read More

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http://dx.doi.org/10.12968/ijpn.2007.13.12.27887DOI Listing
December 2007
3 Reads

Understanding sudden loss and traumatic grief at school.

School Nurse News 2006 Jan;23(1):36-40

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January 2006
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Parenting foster children with chronic illness and complex medical needs.

Authors:
Lori S Lauver

J Fam Nurs 2008 Feb;14(1):74-96

Thomas Jefferson University, School of Nursing, Nursing Education Center, Danville, PA 17822, USA.

The experience of parenting foster children with chronic illness and complex medical needs was explored in a phenomenological inquiry with 10 foster families. Thirteen participants currently fostering chronically ill children with complex medical needs were interviewed. Recorded interviews were transcribed and analyzed using van Manen's method. Read More

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http://dx.doi.org/10.1177/1074840707313337DOI Listing
February 2008
3 Reads

Impact of a genetic diagnosis of a mitochondrial disorder 5-17 years after the death of an affected child.

J Genet Couns 2008 Jun 12;17(3):261-73. Epub 2008 Feb 12.

Genetics Education and Health Research, Murdoch Childrens Research Institute, Royal Children's Hospital, Parkville, Victoria, 3052, Australia.

This study used in-depth interviews to explore the experiences of parents who were re-contacted with new genetic results many years after the death of a child with a mitochondrial disorder. At the time of their child's illness, parents had consented to a tissue sample being taken to help with diagnosis of a suspected mitochondrial disorder, and subsequently further DNA testing identified the genetic cause. Parents did not express negative feelings about being re-contacted with new information, and hoped that continuing research might help other families. Read More

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http://link.springer.com/10.1007/s10897-007-9145-9
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http://dx.doi.org/10.1007/s10897-007-9145-9DOI Listing
June 2008
3 Reads