140 results match your criteria Coping With the Death of a Child in the ED


Thematic analysis of spousal interaction patterns among Asian parents of children with chronic life-threatening illness.

BMJ Open 2019 11 19;9(11):e032582. Epub 2019 Nov 19.

Club Rainbow, Singapore, Singapore.

Objective: This is the first known study which examines the evolutionary nature of spousal interaction patterns among Asian parents of children with chronic life-threatening illness, from the time of providing care to their child through bereavement. This study is informed by earlier findings that when a child is diagnosed with a chronic life-threatening illness, parents are faced with multiple stressors, leaving them with little time to invest in their spousal relationship.

Participants And Setting: A constructivist-phenomenological research paradigm was adopted and meaning-oriented interviews were conducted with 20 parental units (i. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1136/bmjopen-2019-032582DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6887006PMC
November 2019

The Coping Assessment for Bereavement and Loss Experiences (CABLE): Development and initial validation.

Death Stud 2019 Oct 14:1-15. Epub 2019 Oct 14.

Department of Learning Sciences & Educational Research, College of Community Innovation and Education, University of Central Florida , Orlando , Florida , USA.

The authors present the development and validation of the (CABLE), the first instrument designed to assess a range of potentially constructive strategies for coping with grief following the death of a loved one. Exploratory and confirmatory factor analysis with an international sample of bereaved adults ( = 844) yielded a six-factor, 28-item structure. Use of this validated, clinically useful, self-report tool can inform clinicians and researchers in evaluating bereavement coping, and in developing interventions designed to increase the number and broaden the types of coping strategies used to facilitate healing following loss. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1080/07481187.2019.1676323DOI Listing
October 2019

Staff perceptions of the emergency department working environment: An international cross-sectional survey.

Emerg Med Australas 2019 12 3;31(6):1082-1091. Epub 2019 Jul 3.

Menzies Health Institute Queensland, Griffith University, Gold Coast, Queensland, Australia.

Objectives: The aims of this study were to describe clinical staff perceptions of their ED working environment and to explore associations between staff demographics, coping styles and the work environment.

Methods: A cross-sectional study was conducted in one Swedish ED and two Australian EDs in 2015-2016. Descriptive statistics were used to explore stressors, coping styles and aspects of the working environment for the combined cohort and the cohort split by age, sex, professional role, years of employment in the ED and country. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1111/1742-6723.13325DOI Listing
December 2019
2 Reads

Stressors and coping strategies of emergency department nurses and doctors: A cross-sectional study.

Australas Emerg Care 2019 Sep 28;22(3):180-186. Epub 2019 May 28.

Menzies Health Institute Queensland, Griffith University, Qld, Australia; Department of Emergency Medicine, Gold Coast Health, 1 Hospital Blvd, Southport, Qld 4215, Australia.

Background: Emergency departments (EDs) are stressful workplaces. Limited research explores components ED staff find stressful and how they cope. The aim of this study is to describe ED staff perceptions of their working environment. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.auec.2018.10.005DOI Listing
September 2019
7 Reads

Bereavement care in Japanese pediatrics: Pediatrician awareness in practice.

Pediatr Int 2019 Jul 9;61(7):658-663. Epub 2019 Jul 9.

Division of Nursing Science, Department of Health Sciences, Faculty of Medical Sciences, Kyushu University, Fukuoka, Japan.

Background: A child's death affects not only family members but also the health-care professionals involved in patient care. The education system for bereavement care in Japan, however, is not set up in a systematic way, and the care provided is based on the individual experience of the health-care professional. The aim of this study was to investigate pediatrician awareness of and actual circumstances involved in bereavement care in Japan. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1111/ped.13891DOI Listing
July 2019
1 Read

Emergency clinician perceptions of occupational stressors and coping strategies: A multi-site study.

Int Emerg Nurs 2019 07 30;45:17-24. Epub 2019 Apr 30.

Department of Emergency Medicine, Gold Coast Hospital and Health Service, Menzies Health Institute Queensland, Griffith University, Southport, QLD 4215, Australia. Electronic address:

Background: Research exploring multi-disciplinary emergency department (ED) clinicians' perceptions of their working environment is limited, although exposure to occupational stressors is frequent. This study describes ED clinicians' perceptions of their working environment, occupational stressors and their use of coping strategies.

Methods: A cross-sectional descriptive study was conducted in 2017 at two Australian public hospital EDs. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.ienj.2019.03.006DOI Listing
July 2019
3 Reads

Change in psychosocial factors connected to coping after inpatient treatment for substance use disorder: a systematic review.

Subst Abuse Treat Prev Policy 2019 05 3;14(1):16. Epub 2019 May 3.

Faculty of Social Sciences, Department of Social Work, Child Welfare and Social Policy, OsloMet - Oslo Metropolitan University, Pb 4, St. Olavs plass, 0130, Oslo, Norway.

Background: Among the adult population worldwide, about 0.5% has illicit drug use disorder (DUD) and about 5% has alcohol use disorder (AUD). Dependency on alcohol, medication or illicit drugs are recognised as risk factors for disabling disease and early death. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1186/s13011-019-0210-9DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6499970PMC
May 2019
3 Reads

Infant Temperament: Repercussions of Superstorm Sandy-Related Maternal Stress.

Child Psychiatry Hum Dev 2019 02;50(1):150-162

Psychology, Queens College, CUNY, 65-30 Kissena Blvd, Flushing, 11367, NY, USA.

This study recruited a prospective cohort of 380 pregnant women before, during, or after Superstorm Sandy in 2012 to examine the association between disaster-related pre- and post-natal maternal stress and offspring temperament at 6 months-old. Mothers prospectively reported stressful experiences during the storm and rated their child's temperament 6 months postpartum. Results indicated that length of time without phone or electricity and financial loss was associated with offspring negative affect, whereas financial loss and threat of death or injury was associated with emotion dysregulation. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1007/s10578-018-0828-2DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6339835PMC
February 2019
18 Reads

Dealing With the Concepts of "Grief" and "Grieving" in the Classroom: Children's Perceptions, Emotions, and Behavior.

Omega (Westport) 2018 Aug 11;77(3):240-266. Epub 2016 Jan 11.

2 Open University of Cyprus, Nicosia, Cyprus.

This article presents an action research study that explores how a fifth-grade classroom of 10- to 11-year-old children in Cyprus perceive the concepts of grief and grieving, after an educational intervention provided space for discussing such issues. It also explores the impact that the intervention program had on children's emotions while exploring these concepts and illustrates how it affected their behavior. The findings suggest that the intervention had a constructive impact on children's understandings of grief and grieving along two important dimensions. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1177/0030222815626717DOI Listing

Prolonged grief and post-traumatic growth after loss: Latent class analysis.

Psychiatry Res 2018 09 6;267:221-227. Epub 2018 Jun 6.

Division of Psychopathology and Clinical Intervention, Department of Psychology, University of Zurich, Zurich, Switzerland.

Bereavement may trigger different psychological outcomes, such as prolonged grief disorder or post-traumatic growth. The relationship between these two outcomes and potential precipitators remain unknown. The current study aimed to identify classes of Chinese bereaved individuals based on prolonged grief symptoms and post-traumatic growth and to examine predictors for these classes. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.psychres.2018.06.006DOI Listing
September 2018
12 Reads

Morale, stress and coping strategies of staff working in the emergency department: A comparison of two different-sized departments.

Emerg Med Australas 2018 06 23;30(3):375-381. Epub 2018 Jan 23.

Menzies Health Institute Queensland, Griffith University, Gold Coast, Queensland, Australia.

Objective: Clinical staff in EDs are subject to a range of stressors. The objective of this study was to describe and compare clinical staff perceptions of their ED's working environment across two different Australian EDs.

Methods: This was a cross-sectional, descriptive, research design that included distribution of three survey tools to clinical staff in two Australian EDs in 2016. Read More

View Article

Download full-text PDF

Source
http://doi.wiley.com/10.1111/1742-6723.12895
Publisher Site
http://dx.doi.org/10.1111/1742-6723.12895DOI Listing
June 2018
12 Reads

Ghosts, tigers and landmines in the nursery: Attachment narratives of loss in Tamil refugee children with dead or missing fathers.

Clin Child Psychol Psychiatry 2018 Apr 20;23(2):294-310. Epub 2017 Dec 20.

1 Psychiatry Research and Teaching Unit, Liverpool Hospital, Sydney, Australia.

Objective: To build an account of how bereaved Tamil refugee and asylum seeker children, resettled in Australia, had processed the loss of their dead or missing fathers.

Method: Phenomenological and discourse analysis was applied to attachment narratives of nine children (aged 11-17 years) and their surviving mothers in families that lost fathers in war-related circumstances. The narratives were analysed through the lens of Crittenden's Dynamic-Maturational Model of Attachment and Adaptation (DMM) and Klass' cross-cultural model of grief. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1177/1359104517746453DOI Listing
April 2018
12 Reads

Stories of survival: Children's narratives of psychosocial well-being following paediatric critical illness or injury.

J Child Health Care 2017 Sep 30;21(3):236-252. Epub 2017 Jun 30.

4 Faculty of Health, Social Care and Education, Anglia Ruskin University, Cambridge, UK.

Survival from critical illness can expose children to an array of negative physical and psychological problems. While the perspective of parents and professionals have been well documented, there is limited understanding of how childhood critical care survivors make sense of their experiences in relation to psychosocial well-being. We aimed to explore long-term psychosocial well-being of childhood survivors of critical illness through their stories. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1177/1367493517717078DOI Listing
September 2017
16 Reads

Identifying the Types of Support Needed by Interprofessional Teams Providing Pediatric End-of-Life Care: A Thematic Analysis.

J Palliat Med 2018 Apr 13;21(4):422-427. Epub 2017 Oct 13.

3 Center for Bioethics and Social Sciences in Medicine , Michigan Medicine, Ann Arbor, Michigan.

Background: Despite the number of interprofessional team members caring for children at the end of life, little evidence exists on how institutions can support their staff in providing care in these situations.

Objective: We sought to evaluate which aspects of the hospital work environment were most helpful for multidisciplinary team members who care for patients at the end of life and identify areas for improvement to better address staff needs.

Design: Qualitative thematic analysis was completed of free-text comments from a survey distributed to interprofessional staff members involved in the care of a recently deceased pediatric patient. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/jpm.2017.0331DOI Listing
April 2018
7 Reads

Orphans' perspectives on grief and loss in Botswana.

AIDS Care 2018 04 4;30(4):506-510. Epub 2017 Oct 4.

c Department of Statistics , University of Botswana , Gaborone , Botswana.

This paper seeks to examine orphaned children's experiences on grief and loss in Botswana, and its impact on their well-being and make policy recommendations. A cross sectional design which utilized survey questionnaires was employed. Data were collected from 11 districts (3 urban and 8 rural) among orphan children aged 10-18 years. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1080/09540121.2017.1382677DOI Listing
April 2018
2 Reads

The Unexpected Death of a Child and The Experience of Emergency Service Personnel.

J Emerg Nurs 2018 Jan 13;44(1):64-70. Epub 2017 Jul 13.

Flagstaff, AZ; Chicago, IL.

Introduction: In 2013, 55,000 infants and children, aged 0 to 14, died in the United States. Nearly 7,000 of those deaths were attributed to traumatic causes. A child's death significantly affects emergency service personnel (ESP) caring for children and families. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.jen.2017.06.002DOI Listing
January 2018
9 Reads

Legacy Interventions With Patients with Co-Occurring Disorders: Legacy Definitions, Life Satisfaction, and Self-Efficacy.

Subst Use Misuse 2017 Dec 13;52(14):1840-1849. Epub 2017 Jul 13.

b LCSW, Director of Child & Family Innovative Research, and Principal Investigator of Child Welfare Education Project, at the Graduate College of Social Work , University of Houston , Texas , USA.

Background: Individuals with co-occurring disorders tend to avoid interaction with others. To instill hope, legacy intervention aims to highlight past experiences while managing life stressors for a positive outlook. Participants take part in legacy activities-crafting tangible projects and recording one's life events-in order to actualize a personal sense of legacy. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1080/10826084.2017.1316290DOI Listing
December 2017

Factors affecting uptake of postmortem examination in the prenatal, perinatal and paediatric setting.

BJOG 2018 Jan 21;125(2):172-181. Epub 2017 Mar 21.

UCL Institute of Child Health, Great Ormond Street Institute of Child Health, London, UK.

Background: Postmortem examination is the single most useful investigation in providing information to parents about why their baby or child died. Despite this, uptake remains well below the recommended 75%.

Objective: To address the question 'what are the barriers and motivators to perinatal, prenatal and paediatric PM examination?'

Search Strategy: Key databases including Pubmed and CINAHL; Cochrane library, websites of relevant patient organisations, hand search of key journals, first and last authors and references. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1111/1471-0528.14600DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5763339PMC
January 2018
14 Reads

Towards a model of loss navigation in adolescence.

Authors:
Martin Lytje

Death Stud 2017 May-Jun;41(5):291-302. Epub 2017 Jan 6.

a Faculty of Education , University of Cambridge , Cambridge , UK.

Researchers today consider childhood bereavement one of the most traumatic experiences that can befall a child. Nevertheless, most models of bereavement currently limit themselves to dealing with adult grief and primarily explores the internal processes associated with recovery. Based on a study which conducted focus groups with 39 Danish adolescents (aged 9-17), this article presents The Model of Loss Navigation in Adolescence. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1080/07481187.2016.1276488DOI Listing
March 2018
1 Read

Storyboarding as an aid to learning about death in children's nursing.

Authors:
Yvonne Dexter

Nurs Child Young People 2016 Jun;28(5):16-21

University of West London, Brentford, Middlesex.

The sudden or anticipated death of a child is one of the most challenging and unique experiences that children's nursing students will encounter in practice. There is evidence to suggest that the effect this can have on a practitioner can affect quality of care. Although education for nurses about dealing with death has been studied, there is limited research into the education of those working with dying children and how effective it is in preparing them to deal with the situation. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.7748/ncyp.28.5.16.s21DOI Listing
June 2016
2 Reads

The Development of a Hospital-Wide Bereavement Program: Ensuring Bereavement Care for All Families of Pediatric Patients.

J Pediatr Health Care 2017 Jan - Feb;31(1):88-95. Epub 2016 May 25.

Although grief is a normal response to loss, the death of a child is believed to be one of the most difficult losses a person can endure, and bereaved parents are considered to be an "at-risk" group. Even though most deaths of children in the United States occur in hospitals, bereavement care provided by hospitals is highly variable, and little attention has been directed to how hospitals can best support grieving parents. In this article, we describe the development of a hospital-wide bereavement program at Boston Children's Hospital, where we conceptualize bereavement care as a preventive model of care. Read More

View Article

Download full-text PDF

Source
https://linkinghub.elsevier.com/retrieve/pii/S08915245163007
Publisher Site
http://dx.doi.org/10.1016/j.pedhc.2016.04.013DOI Listing
January 2018
6 Reads

Posttraumatic growth in aging individuals who have lost their only child in China.

Death Stud 2016 Aug 31;40(7):395-404. Epub 2016 Mar 31.

c School of Social Work , University of Michigan , Ann Arbor , Michigan , USA.

This article examined the extent of posttraumatic growth (PTG) and factors related to PTG in aging individuals who have lost their only child in China. The sample included 201 bereaved parents from different families residing in Chongqing, China. They were between 49-80 years old (M = 61) and had lost their only child. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1080/07481187.2016.1169234DOI Listing
August 2016
12 Reads

You have no Choice but to go on: How Physicians and Midwives in Ghana Cope with High Rates of Perinatal Death.

Matern Child Health J 2016 07;20(7):1448-55

Department of Family Medicine and, Department of Obstetrics and Gynecology, University of Michigan, 1018 Fuller Street, Ann Arbor, MI, 48104-1218, USA.

Objectives Healthcare providers in low-resource settings confront high rates of perinatal mortality. How providers cope with such challenges can affect their well-being and patient care; we therefore sought to understand how physicians and midwives make sense of and cope with these deaths. Methods We conducted semi-structured interviews with midwives, obstetrician-gynecologists, pediatricians and trainee physicians at a large teaching hospital in Kumasi, Ghana. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1007/s10995-016-1943-yDOI Listing
July 2016
11 Reads

Patient End-of-Life Experiences for Pediatric Trainees: Spanning the Educational Continuum.

Clin Pediatr (Phila) 2016 08 18;55(9):811-8. Epub 2016 Feb 18.

Johns Hopkins University School of Medicine, Baltimore, MD, USA.

Background End-of-life care for a child is an emotionally charged experience for pediatric trainees. Objectives Describe the progression of medical trainee experiences with end-of-life care and determine personal/professional experiences that facilitated integration of experiences. Methods Medical students (MS4) and pediatric residents (PL-1-3) completed a 30-question survey about experiences with patient deaths and integration of these experiences. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1177/0009922816631513DOI Listing
August 2016
19 Reads

Faith, Hope, and Spirituality: SUPPORTING PARENTS WHEN THEIR CHILD HAS A LIFE-LIMITING ILLNESS.

Authors:
Cheryl L Crisp

J Christ Nurs 2016 Jan-Mar;33(1):14-21

When a child has a life-limiting illness, parents' goals and strategies for their child's life may need to be drastically altered, especially if early death looms. This article reviews literature and research about how families employ faith, hope, spirituality, and biblical perspectives as their child becomes critically ill and faces death. Suggestions are made for best caring practices for families and children encountering this difficult journey. Read More

View Article

Download full-text PDF

Source
March 2016
5 Reads

'A short time but a lovely little short time': Bereaved parents' experiences of having a child with spinal muscular atrophy type 1.

J Paediatr Child Health 2016 Jan 10;52(1):40-6. Epub 2015 Sep 10.

Victorian Clinical Genetics Services, The Royal Children's Hospital, Melbourne, Victoria, Australia.

Aim: Spinal muscular atrophy (SMA) type 1 is a relatively common, untreatable and invariably fatal neuromuscular disorder of early childhood. Psychosocial care is vital in management of families affected by this disease. There are few studies examining the impact of having a family member with a neuromuscular disorder, and none describing parents' experiences of having a child with SMA type 1. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1111/jpc.12993DOI Listing
January 2016
15 Reads

Living Through the Life-Altering Loss of a Child: A Narrative Review.

Issues Compr Pediatr Nurs 2015 ;38(3):222-40

a Faculty of Health , Social Care and Education, Kingston University and St George's, University London , Surrey, UK and.

The death of a child is a life-altering event for parents, leading to grief that is individual, intense, and long lasting. The grief experienced by parents following the death of their child can affect their relationships and as they sometimes see it, their role within society. Parents can find grief isolating, due to society's lack of understanding of their grief experience. Read More

View Article

Download full-text PDF

Source
http://www.tandfonline.com/doi/full/10.3109/01460862.2015.10
Publisher Site
http://dx.doi.org/10.3109/01460862.2015.1045102DOI Listing
January 2017
40 Reads

Predictors of Mental Health Resilience in Children who Have Been Parentally Bereaved by AIDS in Urban South Africa.

J Abnorm Child Psychol 2016 May;44(4):719-30

Department of Social Policy and Intervention, University of Oxford, Oxford, UK.

Children parentally bereaved by AIDS experience high rates of mental health problems. However, there is considerable variability in outcomes, and some show no mental health problems even when followed over time. Primary aims were to identify predictors of resilient adaptation at child, family and community levels within a group of AIDS-orphaned children, and to consider their cumulative influence. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1007/s10802-015-0068-xDOI Listing
May 2016
9 Reads

The association of adverse childhood experiences with mid-life depressive symptoms and quality of life among incarcerated males: exploring multiple mediation.

Aging Ment Health 2016 21;20(6):655-66. Epub 2015 Apr 21.

e Department of Acute and Chronic Care, School of Nursing , The Johns Hopkins University , Baltimore , MD , USA.

Objectives: To explore the association of experiencing death, trauma, and abuse during childhood with depressive symptoms and quality of life at mid-life among incarcerated men and to understand how current social support and coping strategies mediate the impact of childhood trauma histories on mental health.

Methods: Study participants were 192 male inmates in a maximum security prison. Participants completed measures of adverse childhood experiences related to death, trauma, and abuse, and depressive symptoms and quality of life. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1080/13607863.2015.1033681DOI Listing
January 2017
31 Reads

"A renewed sense of purpose": mothers' and fathers' experience of having a child following a recent stillbirth.

BMC Pregnancy Childbirth 2014 Dec 19;14:423. Epub 2014 Dec 19.

Department of Child and Adolescent Psychiatry, Research Unit, Rue du Bugnon 25 A, University Hospital Lausanne, CH-1011, Lausanne, Switzerland.

Background: Most research has focused on mothers' experiences of perinatal loss itself or on the subsequent pregnancy, whereas little attention has been paid to both parents' experiences of having a child following late perinatal loss and the experience of parenting this child. The current study therefore explored mothers' and fathers' experiences of becoming a parent to a child born after a recent stillbirth, covering the period of the second pregnancy and up to two years after the birth of the next baby.

Method: In depth interviews were conducted with 7 couples (14 participants). Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1186/s12884-014-0423-xDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4279693PMC
December 2014
22 Reads

Predictors of death anxiety among midwives who have experienced maternal death situations at work.

Matern Child Health J 2015 May;19(5):1024-32

College of Nursing, Sultan Qaboos University, AlKhod, P.O. Box 66, Muscat, Oman,

One of the hardships faced by midwives in developing countries is dealing with maternal death. Taking care of pregnant women who end up dying makes midwives mindful of their own mortality and this experience provokes discomfort and anxiety. To determine the predictors of death anxiety among midwives who have experienced maternal death at work in order to recommend interventions to facilitate effective coping with the distress. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1007/s10995-014-1601-1DOI Listing
May 2015
5 Reads

Untold stories of infant loss: the importance of contact with the baby for bereaved parents.

J Fam Nurs 2013 Aug 12;19(3):324-47. Epub 2013 Jul 12.

Field faculty, Center for Early Education and Development, University of Minnesota, Minneaplis, MN 55418, USA.

This article presents secondary analysis of data from parents who, 50 to 70 years ago, birthed stillborn babies or babies with lethal anomalies and from adult children born after these losses. The stories reflect a time in history when parents were "protected" from seeing or holding their babies and mothers were unable to attend the funeral. There was no understanding by society or caregivers for parents' need to process the loss or resources to build memories. Read More

View Article

Download full-text PDF

Source
http://jfn.sagepub.com/content/19/3/324.full.pdf
Web Search
http://jfn.sagepub.com/cgi/doi/10.1177/1074840713495972
Publisher Site
http://dx.doi.org/10.1177/1074840713495972DOI Listing
August 2013
4 Reads

Juvenile neuronal ceroid lipofuscinosis and education.

Biochim Biophys Acta 2013 Nov 5;1832(11):1894-905. Epub 2013 Mar 5.

Department of Psychology, University of Oslo, P.O. Box 1094 Blindern, N-0317 Oslo, Norway. Electronic address:

Juvenile neuronal ceroid lipofuscinosis (JNCL) is characterized by severe visual impairment with onset around age 4-8 years, and a developmental course that includes blindness, epilepsy, speech problems, dementia, motor coordination problems, and emotional reactions. There is presently no cure and the disease leads to premature death. There have been few studies of non-medical intervention for individuals with JNCL, probably because of the negative prognosis. Read More

View Article

Download full-text PDF

Source
https://helda.helsinki.fi/bitstream/handle/10138/22623/juven
Web Search
http://linkinghub.elsevier.com/retrieve/pii/S092544391300062
Publisher Site
http://dx.doi.org/10.1016/j.bbadis.2013.02.017DOI Listing
November 2013
26 Reads

The level of perceived stress of parents of children with cancerous disease - mechanisms of dealing with stress and social support.

Folia Med Cracov 2013 ;53(2):87-97

Department of Clinical Nursing, Jagiellonian University Medical College, Krakow, Poland. grazyna.

Introduction: Cancerous disorders are the second most common cause of death among children. Blood cancer is a stressful and traumatic situation for the child, as well as the parents. To overcome the stress of child's illness parents adopt different coping styles. Read More

View Article

Download full-text PDF

Source
July 2014
6 Reads

Childlessness, parental mortality and psychiatric illness: a natural experiment based on in vitro fertility treatment and adoption.

J Epidemiol Community Health 2013 Apr 5;67(4):374-6. Epub 2012 Dec 5.

CIRRAU-Centre for Integrated Register-based Research, Aarhus University, Aarhus, Denmark.

Background: Childlessness increases the risk of premature mortality and psychiatric illness. These results might, however, be confounded by factors that affect both the chance of parenthood as well as the risk of premature death and psychiatric illness.

Methods: Using population-based health and social registers, we conducted a follow-up study of 21 276 childless couples in in vitro fertility treatment. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1136/jech-2012-201387DOI Listing
April 2013
3 Reads

My child needs or has an implantable cardioverter-defibrillator: what should I do?

Circulation 2012 Oct;126(16):e244-7

Division of Cardiology, Duke University Health System, Durham, NC, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1161/CIRCULATIONAHA.112.098541DOI Listing
October 2012
22 Reads
14.430 Impact Factor

Learning that a death can be a good death.

Authors:
Emily A Morell

J Palliat Med 2012 Feb;15(2):248-9

Harvard Medical School, Boston, MA, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/jpm.2011.0274DOI Listing
February 2012
3 Reads

Teachers perceptions of effects of a student's death: a phenomenological study.

Omega (Westport) 2012-2013;66(4):301-11

Center for Research and Doctoral Studies in Counselor Education, Sam Houston State University, Huntsville, Texas 77341-2119, USA.

When a student dies in a school setting many school professionals step in and offer grief services to the students affected. In the classrooms, teachers are expected to step in and help the students grieve; however, equivalent support for teachers seems to be lacking. This study explored the lived experiences of teachers who experienced the unanticipated death of a student. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.2190/om.66.4.bDOI Listing
August 2013
10 Reads

A visit to the intensive cares unit: a family-centered culture change to facilitate pediatric visitation in an adult intensive care unit.

Crit Care Nurs Q 2012 Jan-Mar;35(1):113-22

8D Intermediate Care Unit, University of Michigan Medical Center, Ann Arbor, MI 48109, USA.

To guide family adjustment, an effort was made to facilitate pediatric visitation in an adult intensive care unit (ICU). Goals were to improve customer satisfaction and to raise staff comfort level with child visitation. After implementing an open visitation policy, concerns around pediatric visitation in the ICU remained. Read More

View Article

Download full-text PDF

Source
http://content.wkhealth.com/linkback/openurl?sid=WKPTLP:land
Publisher Site
http://dx.doi.org/10.1097/CNQ.0b013e31823b1ecdDOI Listing
April 2012
56 Reads

Two sides of the coin: the bully and the bullied.

J Psychosoc Nurs Ment Health Serv 2011 Oct 28;49(10):22-9. Epub 2011 Sep 28.

The Ohio State University, College of Nursing, Columbus, OH, USA.

Bullying has become a worldwide phenomenon that produces serious individual and societal consequences when it is ignored. There are two sides of the coin that require consideration when psychiatric-mental health (PMH) nurses conduct assessments of situations that involve bullying behaviors. Both the bully and the bullied can incur serious, negative, and debilitating psychological effects. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.3928/02793695-20110830-01DOI Listing
October 2011
7 Reads

The continued lived experience of the unexpected death of a child.

Omega (Westport) 2011 ;63(3):221-33

School of Nursing, Oakland University, Rochester, Michigan 48309, USA.

The purpose of this qualitative study was to further examine the lived experiences of families that faced the sudden loss of a child. Six mothers that had previously participated approximately 9 years ago in the study entitled "The Lived Experience of the Unexpected Death of a Child" were interviewed. All of the mothers were Caucasian and had achieved a high school or greater level of education. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.2190/OM.63.3.bDOI Listing
October 2011
5 Reads

Dravet syndrome and parent associations: the IDEA League experience with comorbid conditions, mortality, management, adaptation, and grief.

Epilepsia 2011 Apr;52 Suppl 2:95-101

International Dravet syndrome Epilepsy Action League, Deale, Maryland, USA.

The advent of social networking via the Internet and the commercial availability of tests for SCN1A mutations permitted the rapid development and growth of parent-led associations that provide advocacy and support, as well as promote education and research regarding Dravet syndrome (DS) in the last 10 years. The International Dravet syndrome Epilepsy Action League (IDEA League) is a partnership of parents and professionals united in the purpose of creating greater awareness and understanding of DS. In 2004, parents in the IDEA League support network began to collect data from families about their children with DS in order to investigate observations that, in addition to epilepsy, many of the children seemed to share similar problems. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1111/j.1528-1167.2011.03012.xDOI Listing
April 2011
32 Reads

Characteristics of child abuse homicides in the state of Kansas from 1994 to 2007.

Child Abuse Negl 2011 Feb 5;35(2):147-54. Epub 2011 Mar 5.

University of Kansas School of Medicine, Wichita, KS, USA.

Objective: This study described the epidemiology of child abuse homicides in the state of Kansas from 1994 to 2007. It focused on obtaining significant details on all recorded child abuse homicides in Kansas during this time frame to provide critical information that can be used for future preventive measures.

Methods: A retrospective case review was conducted on data gathered by the Kansas State Child Death Review Board for all cases of "child abuse homicides" that occurred from 1994 to 2007. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.chiabu.2010.11.002DOI Listing
February 2011
10 Reads

Healthcare utilization in the pregnancy following a perinatal loss.

MCN Am J Matern Child Nurs 2011 Mar-Apr;36(2):104-11

School of Nursing, University of Louisville, Louisville, KY, USA.

Purpose: To evaluate the influence of previous perinatal loss, anxiety, depressive symptoms, impact of the previous loss, and maternal investment in the baby on mothers' healthcare utilization (HCU) during the subsequent pregnancy and postpartum periods.

Study Design And Methods: A longitudinal, cohort study design gathered telephone interview data from 36 mothers with a history of prior perinatal loss, 32 mothers with no loss history, and 38 first-time mothers. These data were collected during the third trimester of pregnancy until 8 months postpartum. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1097/NMC.0b013e3182057335DOI Listing
July 2011
22 Reads

Perinatal grief and support spans the generations: parents' and grandparents' evaluations of an intergenerational perinatal bereavement program.

J Perinat Neonatal Nurs 2011 Jan-Mar;25(1):77-85

Maternal Fetal Medicine Center, Adventist Midwest Region/Adventist Hinsdale Hospital, Hinsdale, Illinois 60521, USA.

Purpose: As perinatal loss, miscarriage, still birth, or neonatal death may result in signs and symptoms of grief in the entire family, perinatal bereavement programs (PBPs) should consider offering intergenerational services. The purpose of this program evaluation was to identify and evaluate siblings' and grandparents' utilization of a hospital-based PBP's intergenerational support services and education offerings with regard to the entire family's coping with the loss.

Methods: Written program evaluation surveys of parents and grandparents, with an opportunity for free response, along with parent phone follow-up, were utilized to evaluate whether a variety of inpatient/outpatient services for parents, siblings, and grandparents were useful to the entire family. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1097/JPN.0b013e318208cb74DOI Listing
June 2011
6 Reads

Medical students' first clinical experiences of death.

Med Educ 2010 Apr 3;44(4):421-8. Epub 2010 Mar 3.

Department of Family Medicine, Schulich School of Medicine & Dentistry, University of Western Ontario, London, Ontario, Canada.

Objectives: Many medical students feel inadequately prepared to address end-of-life issues, including patient death. This study aimed to examine medical students' first experiences of the deaths of patients in their care.

Methods: Final-year medical students at the Schulich School of Medicine & Dentistry, University of Western Ontario were invited to share their first experience of the death of a patient in their care. Read More

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1111/j.1365-2923.2009.03603.xDOI Listing
April 2010
7 Reads