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    482 results match your criteria BMC Palliative Care [Journal]

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    Rehabilitation for cancer patients at Black Lion hospital, Addis Ababa, Ethiopia: a cross-sectional study.
    BMC Palliat Care 2017 Nov 16;16(1):53. Epub 2017 Nov 16.
    College of Health and Medical Sciences, Haramaya University, PO. Box 235, Harar, Ethiopia.
    Background: In Ethiopia, there were greater than 2000 adult and 200 pediatric cancer patients annually in 2010, but the estimated number of cancer patients were increasing. Oncologic rehabilitation treatment may result in improved physical and mental impairment. There is a paucity of information about rehabilitation service utilization among cancer patients in Ethiopia. Read More

    Advance directives, proxy opinions, and treatment restrictions in patients with severe stroke.
    BMC Palliat Care 2017 Nov 14;16(1):52. Epub 2017 Nov 14.
    Department of Neurology and Neurosurgery, Brain Center Rudolf Magnus, University Medical Center Utrecht, Utrecht, the Netherlands.
    Background: Patients with severe stroke often do not have the capacity to participate in discussions on treatment restrictions because of a reduced level of consciousness, aphasia, or another cognitive disorder. We assessed the role of advance directives and proxy opinions in the decision-making process of incapacitated patients.

    Methods: Sixty patients with severe functional dependence (Barthel Index ≤6) at day four after ischemic stroke or intracerebral hemorrhage were included in a prospective two-center cohort study. Read More

    Animal-assisted therapy at a University Centre for Palliative Medicine - a qualitative content analysis of patient records.
    BMC Palliat Care 2017 Oct 2;16(1):50. Epub 2017 Oct 2.
    Maudsley Training Programme, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK.
    Background: Animal-assisted therapy (AAT) is a therapeutic concept, which has only recently been explored in more detail within the palliative care setting. A programme of AAT was begun in June 2014 at the Interdisciplinary Centre for Palliative Medicine of the University Hospital Dusseldorf, Germany. The AAT sessions were performed by two trained and certified dog assistant therapy teams (DATT). Read More

    Translation and cultural adaptation of the Integrated Palliative care Outcome Scale including cognitive interviewing with patients and staff.
    BMC Palliat Care 2017 Sep 11;16(1):49. Epub 2017 Sep 11.
    Institute for Palliative Care, Lund University and Region Skåne, Lund, Sweden.
    Background: To expand our clinical and scientific knowledge about holistic outcomes within palliative care, there is a need for agreed-upon patient-reported outcome measures. These patient-reported outcome measures then require translation and cultural adaptation, either from country-specific languages to English, or the other way around. The aim of this study was to translate and cross-culturally adapt the Integrated Palliative care Outcome Scale (IPOS) to the Swedish care context. Read More

    Honoring the voices of bereaved caregivers: a Metasummary of qualitative research.
    BMC Palliat Care 2017 Sep 6;16(1):48. Epub 2017 Sep 6.
    College of Nursing, University of Saskatchewan, Saskatoon, SK, Canada.
    Background: Family caregiving in the context of advanced disease in particular, can be physically and emotionally taxing. Caregivers can subsequently face bereavement exhausted with few supports, limited resources and a significant proportion will develop negative psychological and social outcomes. Although some research has attended to the bereavement experiences of family caregivers who had cared for a person requiring palliative care, a comprehensive qualitative understanding of the impact of caregiving on bereavement has not been articulated. Read More

    What are families most grateful for after receiving palliative care? Content analysis of written documents received: a chance to improve the quality of care.
    BMC Palliat Care 2017 Sep 6;16(1):47. Epub 2017 Sep 6.
    Universidad de Navarra, ICS, ATLANTES, Campus Universitario, 31080, Pamplona, España.
    Background: Family members are involved in the care of palliative patients at home and therefore, should be viewed as important sources of information to help clinicians better understand the quality palliative care service patients receive. The objective of the study was to analyse what is valued most by family carers undergoing bereavement of a palliative care home service in order to identify factors of quality of care.

    Methods: Qualitative exploratory study based on documentary analysis. Read More

    Can digital stories go where palliative care research has never gone before? A descriptive qualitative study exploring the application of an emerging public health research method in an indigenous palliative care context.
    BMC Palliat Care 2017 Sep 4;16(1):46. Epub 2017 Sep 4.
    Kaumātua, Te Ārai: Palliative Care and End of Life Research Group, School of Nursing, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand.
    Background: The World Health Organization (WHO) has called for global approaches to palliative care development. Yet it is questionable whether one-size-fits-all solutions can accommodate international disparities in palliative care need. More flexible research methods are called for in order to understand diverse priorities at local levels. Read More

    Engaging patients and families to create a feasible clinical trial integrating palliative and heart failure care: results of the ENABLE CHF-PC pilot clinical trial.
    BMC Palliat Care 2017 Aug 31;16(1):45. Epub 2017 Aug 31.
    Cardiology, Dartmouth-Hitchcock Medical Center/Geisel School of Medicine at Dartmouth, Lebanon, NH, USA.
    Background: Early palliative care (EPC) is recommended but rarely integrated with advanced heart failure (HF) care. We engaged patients and family caregivers to study the feasibility and site differences in a two-site EPC trial, ENABLE CHF-PC (Educate, Nurture, Advise, Before Life Ends Comprehensive Heartcare for Patients and Caregivers).

    Methods: We conducted an EPC feasibility study (4/1/14-8/31/15) for patients with NYHA Class III/IV HF and their caregivers in academic medical centers in the northeast and southeast U. Read More

    Validation of a modified VOICES survey to measure end-of-life care quality: the CaregiverVoice survey.
    BMC Palliat Care 2017 Aug 30;16(1):44. Epub 2017 Aug 30.
    Kinesiology and Physical Education, University of Toronto, Toronto, ON, Canada.
    Background: Measuring the care experience at end-of-life (EOL) to inform quality improvement is a priority in many countries. We validated the CaregiverVoice survey, a modified version of the VOICES questionnaire, completed by bereaved caregivers to capture perceptions of care received in the last three months of a patient's life.

    Methods: We conducted a retrospective survey of bereaved caregivers representing palliative care patients who died in a residential hospice and/or received palliative homecare in Ontario, Canada. Read More

    Which online format is most effective for assisting Baby Boomers to complete advance directives? A randomised controlled trial of email prompting versus online education module.
    BMC Palliat Care 2017 Aug 29;16(1):43. Epub 2017 Aug 29.
    School of Medicine, Flinders University South Australia, GPO Box 2100, Adelaide, SA, 5000, Australia.
    Background: Completion of Advance Directives (ADs), being financial and healthcare proxy or instructional documents, is relatively uncommon in Australia. Efforts to increase completion rates include online education and prompting which past literature suggests may be effective. The aim of this randomized controlled trial was to assess computer-based online AD information and email prompting for facilitating completion of ADs by Australian Baby Boomers (b. Read More

    Path modeling of knowledge, attitude and practice toward palliative care consultation service among Taiwanese nursing staff: a cross-sectional study.
    BMC Palliat Care 2017 Aug 17;16(1):42. Epub 2017 Aug 17.
    School of Nursing, National Defense Medical Center, No.161, Sec. 6, Minquan E. Rd., Neihu Dist., Taipei City, 114, Taiwan.
    Background: The Taiwanese government has promoted palliative care consultation services (PCCS) to support terminally ill patients in acute ward settings to receive palliative care since 2005. Such an intervention can enhance the quality of life and dignity of terminally ill patients. However, research focusing on the relationship between the knowledge, attitude and practice of a PCCS using path modelling in nursing staff is limited. Read More

    Relatives' perceived quality of palliative care: comparisons between care settings in which patients die.
    BMC Palliat Care 2017 Aug 16;16(1):41. Epub 2017 Aug 16.
    NIVEL, Netherlands Institute of Health Services Research, P.O. Box 1568, 3500, Utrecht, BN, Netherlands.
    Background: Dying in the preferred setting is an indicator of good palliative care quality. Most people prefer to die at home. But does the quality of care as perceived by their relatives vary depending on the care setting that is the place of death? The aim is to compare (from the relatives perspective) whether there are perceived differences in the quality of palliative care between the settings in which people die. Read More

    Socio-cultural contexts of end- of- life conversations and decisions: bereaved family cancer caregivers' retrospective co-constructions.
    BMC Palliat Care 2017 Aug 14;16(1):40. Epub 2017 Aug 14.
    Department of Psychology, Stellenbosch University, Private Bag X1, Matieland, Stellenbosch, 7602, South Africa.
    Background: End-of-life communication becomes increasingly difficult in terminal cancer, which inevitably entails conversations around dying and death. In resource-limited areas, the context of end-of-life communication is usually home-based palliative care comprising mostly women in the family who play critical roles as informal caregivers. This article examined the content and contexts of family end-of-life conversations and decisions based on the retrospective accounts of a sample of bereaved women family cancer caregivers in Nairobi, Kenya. Read More

    When a parent dies - a systematic review of the effects of support programs for parentally bereaved children and their caregivers.
    BMC Palliat Care 2017 Aug 10;16(1):39. Epub 2017 Aug 10.
    Swedish Family Care Competence Centre, Linnaeus University, SE-391 82, Kalmar, Sweden.
    Background: The death of a parent is a highly stressful life event for bereaved children. Several studies have shown an increased risk of mental ill-health and psychosocial problems among affected children. The aims of this study were to systematically review studies about effective support interventions for parentally bereaved children and to identify gaps in the research. Read More

    Better palliative care for people with a dementia: summary of interdisciplinary workshop highlighting current gaps and recommendations for future research.
    BMC Palliat Care 2017 Jul 14;17(1). Epub 2017 Jul 14.
    Centre for Gerontology and Rehabilitation, School of Medicine, University College Cork, The Bungalow, Block 13, St Finbarr's Hospital, Douglas road, Cork, T21XH60, Republic of Ireland.
    Background: Dementia is the most common neurological disorder worldwide and is a life-limiting condition, but very often is not recognised as such. People with dementia, and their carers, have been shown to have palliative care needs equal in extent to those of cancer patients. However, many people with advanced dementia are not routinely being assessed to determine their palliative care needs, and it is not clear why this is so. Read More

    The impact of antiretroviral therapy on symptom burden among HIV outpatients with low CD4 count in rural Uganda: nested longitudinal cohort study.
    BMC Palliat Care 2017 Jul 13;17(1). Epub 2017 Jul 13.
    Liverpool School of Tropical Medicine, Liverpool, UK.
    Background: Individuals with HIV have a high prevalence of physical and psychological symptoms throughout their disease course. Despite the clinical and public health implications of unresolved pain and symptoms, little is known about the effect of anti-retroviral therapy (ART) on these outcomes. This study aimed to assess the impact on symptom burden for the year after ART initiation in individuals with a CD4 count <200 cells/uL in Uganda. Read More

    Ward social workers' views of what facilitates or hinders collaboration with specialist palliative care team social workers: A grounded theory.
    BMC Palliat Care 2017 Jul 14;17(1). Epub 2017 Jul 14.
    Division of Health Research, C52, Furness Building, Lancaster University, Bailrigg, Lancaster, LA1 4YG, UK.
    Background: Inpatient, generalist social workers in discharge planning roles work alongside specialist palliative care social workers to care for patients, often resulting in two social workers being concurrently involved in the same patient's care. Previous studies identifying components of effective collaboration, which impacts patient outcomes, care efficiency, professional job satisfaction, and healthcare costs, were conducted with nurses and physicians but not social workers. This study explores ward social workers' perceptions of what facilitates or hinders collaboration with palliative care social workers. Read More

    Social workers' involvement in advance care planning: a systematic narrative review.
    BMC Palliat Care 2017 Jul 10;17(1). Epub 2017 Jul 10.
    Jockey Club End-of-Life Community Care Project, Faculty of Social Sciences, The University of Hong Kong, Hong Kong SAR, China.
    Background: Advance care planning is a process of discussion that enables competent adults to express their wishes about end-of-life care through periods of decisional incapacity. Although a number of studies have documented social workers' attitudes toward, knowledge about, and involvement in advance care planning, the information is fragmented. The purpose of this review was to provide a narrative synthesis of evidence on social workers' perspectives and experiences regarding implementation of advance care planning. Read More

    Strengthening primary health care teams with palliative care leaders: protocol for a cluster randomized clinical trial.
    BMC Palliat Care 2017 Jul 10;17(1). Epub 2017 Jul 10.
    Primary Care Research Unit of Mallorca, Baleares Health Services-IbSalut, 07005, Palma, Spain.
    Background: The objective of the Balearic Islands Palliative Care (PC) Program is to improve the quality of PC through a shared model consisting of primary health care professionals, home-based PC teams, and PC units in hospitals. According to the World Health Organization (WHO), patients with advanced cancer and other terminal diseases benefit from early identification and proactive PC. We will evaluate the effectiveness of an intervention in which a PC leader is established in the primary health care center, and assess the effect of this intervention on the early identification of patients in need of PC, the efficient use of health care services, and direct health care costs. Read More

    The provision of generalist and specialist palliative care for patients with non-malignant respiratory disease in the North and Republic of Ireland: a qualitative study.
    BMC Palliat Care 2017 Jul 11;17(1). Epub 2017 Jul 11.
    School of Nursing and Midwifery, Queen's University Belfast, Belfast, Northern Ireland.
    Background: Previous research and key guidelines have suggested potential models of palliative care for patients with COPD and interstitial lung disease. However, these recommendations are often not effectively implemented in clinical practice and are void of guidance regarding palliative care for patients with bronchiectasis, another form of non-malignant respiratory disease. The aim of this research was to explore generalist and specialist palliative care service provision for people with non-malignant respiratory disease in the North and Republic of Ireland. Read More

    Mindfulness and compassion-oriented practices at work reduce distress and enhance self-care of palliative care teams: a mixed-method evaluation of an "on the job" program.
    BMC Palliat Care 2017 Jul 6;17(1). Epub 2017 Jul 6.
    Clinic for Psychosomatic Medicine and Psychotherapy, Medical Faculty, Medical Center, University of Freiburg, Freiburg, Germany.
    Background: Maintaining a sense of self-care while providing patient centered care, can be difficult for practitioners in palliative medicine. We aimed to pilot an "on the job" mindfulness and compassion-oriented meditation training for interdisciplinary teams designed to reduce distress, foster resilience and strengthen a prosocial motivation in the clinical encounter.

    Methods: Our objective was to explore the feasibility and effectiveness of this newly developed training. Read More

    Volunteer navigation partnerships: Piloting a compassionate community approach to early palliative care.
    BMC Palliat Care 2017 Jul 3;17(1). Epub 2017 Jul 3.
    School of Nursing, University of British Columbia Okanagan, 1147 Research Road, Kelowna, BC, V1V 1V7, Canada.
    Background: A compassionate community approach to palliative care provides important rationale for building community-based hospice volunteer capacity. In this project, we piloted one such capacity-building model in which volunteers and a nurse partnered to provide navigation support beginning in the early palliative phase for adults living in community. The goal was to improve quality of life by developing independence, engagement, and community connections. Read More

    Health care use and costs at the end of life: a comparison of elderly Australian decedents with and without a cancer history.
    BMC Palliat Care 2017 Jun 21;17(1). Epub 2017 Jun 21.
    Faculty of Pharmacy, The University of Sydney, Sydney, NSW, 2006, Australia.
    Background: There is limited population-level research on end-of-life care in Australia that considers health care use and costs across hospital and community sectors. The aim of this study was to quantify health care use and costs in the last 6 months of life in a cohort of elderly Australian decedents and to examine the factors associated with end-of-life resource use and costs.

    Methods: A retrospective cohort study using routinely collected health data from Australian Government Department of Veterans' Affairs clients. Read More

    A survey of palliative medicine education in Japan's undergraduate medical curriculum.
    BMC Palliat Care 2017 Jun 7;16(1):38. Epub 2017 Jun 7.
    Working Group of Education, The Association for Palliative Care in University Hospital, Shinagawa city, Tokyo, Japan.
    Background: This study aimed to examine the status of undergraduate palliative care education among Japanese medical students using data from a survey conducted in 2015.

    Methods: A questionnaire was originally developed, and the survey forms were sent to universities. The study's objectives, methods, disclosure of results, and anonymity were explained to participating universities in writing. Read More

    Nurse-led navigation to provide early palliative care in rural areas: a pilot study.
    BMC Palliat Care 2017 Jun 5;16(1):37. Epub 2017 Jun 5.
    Department of Psychology, University of British Columbia, Okanagan, 1147 Research Road, Kelowna, BC, V1V 1V7, Canada.
    Background: Few services are available to support rural older adults living at home with advancing chronic illness. The objective of this project was to pilot a nurse-led navigation service to provide early palliative support for rural older adults and their families living at home with advancing chronic illness.

    Methods: Twenty-five older adults and 11 family members living with advancing chronic illness received bi-weekly home visits by a nurse navigator over a 2-year period. Read More

    Integration and activity of hospital-based palliative care consultation teams: the INSIGHT multicentric cohort study.
    BMC Palliat Care 2017 May 30;16(1):36. Epub 2017 May 30.
    Hôpitaux Universitaires Paris Centre, Paris, France.
    Background: Hospital-based Palliative Care Consultation Teams (PCCTs) have a consulting role to specialist services at their request. Referral of patients is often late. Early palliative care in oncology has shown its effectiveness in improving quality of life, thereby questioning the "on request" model of PCCTs. Read More

    Degree of dyspnoea at admission and discharge in patients with heart failure and respiratory diseases.
    BMC Palliat Care 2017 May 22;16(1):35. Epub 2017 May 22.
    Department of Cardiology, Hospital General Universitario Gregorio Marañón, Doctor Esquerdo 46, 28007, Madrid, Spain.
    Background: Dyspnoea is a disabling symptom in patients admitted with heart failure (HF) and respiratory diseases (RD). The main aim of this study is to evaluate its intensity at admission and discharge and the relation with quality of life. We also describe its management, intensity, and evolution in HF and RD. Read More

    Improving hospital-based end of life care processes and outcomes: a systematic review of research output, quality and effectiveness.
    BMC Palliat Care 2017 May 19;16(1):34. Epub 2017 May 19.
    Priority Research Centre in Health Behaviour, University of Newcastle, Callaghan, NSW, 2308, Australia.
    Background: As in other areas of health delivery, there is a need to ensure that end-of-life care is guided by patient centred research. A systematic review was undertaken to examine the quantity and quality of data-based research aimed at improving the (a) processes and (b) outcomes associated with delivering end-of-life care in hospital settings.

    Methods: Medline, EMBASE and Cochrane databases were searched between 1995 and 2015 for data-based papers. Read More

    What are the differences among occupational groups related to their palliative care-specific educational needs and intensity of interprofessional collaboration in long-term care homes?
    BMC Palliat Care 2017 May 18;16(1):33. Epub 2017 May 18.
    Faculty of Health Sciences, 3N25F, McMaster University, 1280 Main Street West, Hamilton, ON, L8N 3Z5, Canada.
    Background: The purpose of this study was to compare the differences across occupational groups related to their end-of-life care-specific educational needs and reported intensity of interprofessional collaboration in long-term care (LTC) homes.

    Methods: A cross-sectional survey, based on two questionnaires, was administered at four LTC homes in Ontario, Canada using a modified Dilman's approach. The first questionnaire, End of Life Professional Caregiver Survey, included three domains: patients and family-centered communication, cultural and ethical values, effective care delivery. Read More

    Palliative care in the neonatal unit: neonatal nursing staff perceptions of facilitators and barriers in a regional tertiary nursery.
    BMC Palliat Care 2017 May 11;16(1):32. Epub 2017 May 11.
    Department of Neonatology, The Townsville Hospital, Townsville, QLD, 4811, Australia.
    Background: Neonatology has made significant advances in the last 30 years. Despite the advances in treatments, not all neonates survive and a palliative care model is required within the neonatal context. Previous research has focused on the barriers of palliative care provision. Read More

    Quality of life, psychological burden, needs, and satisfaction during specialized inpatient palliative care in family caregivers of advanced cancer patients.
    BMC Palliat Care 2017 May 10;16(1):31. Epub 2017 May 10.
    Department of Oncology, Haematology and Bone Marrow Transplant, Palliative Care Unit, University Medical Center Hamburg-Eppendorf, Martinistr. 52, 20246, Hamburg, Germany.
    Background: This pilot study aimed to investigate quality of life, psychological burden, unmet needs, and care satisfaction in family caregivers of advanced cancer patients (FCs) during specialized inpatient palliative care (SIPC) and to test feasibility and acceptance of the questionnaire survey.

    Methods: During a period of 12 weeks, FCs were recruited consecutively within 72 h after the patient's admission. They completed validated scales on several outcomes: quality of life (SF-8), distress (DT), anxiety (GAD-7), depression (PHQ-9), supportive needs (FIN), palliative care outcome (POS), and satisfaction with care (FAMCARE-2). Read More

    The impact of the inpatient practice of continuous deep sedation until death on healthcare professionals' emotional well-being: a systematic review.
    BMC Palliat Care 2017 May 8;16(1):30. Epub 2017 May 8.
    Epidemiology, Biostatistics and Prevention Institute, University of Zurich, Hirschengraben 84, CH-8001, Zurich, Switzerland.
    Background: The practice of continuous deep sedation is a challenging clinical intervention with demanding clinical and ethical decision-making. Though current research indicates that healthcare professionals' involvement in such decisions is associated with emotional stress, little is known about sedation-related emotional burden. This study aims to systematically review the evidence on the impact of the inpatient practice of continuous deep sedation until death on healthcare professionals' emotional well-being. Read More

    Keep in Touch (KIT): feasibility of using internet-based communication and information technology in palliative care.
    BMC Palliat Care 2017 May 6;16(1):29. Epub 2017 May 6.
    Manitoba Palliative Care Research Unit, CancerCare Manitoba, 3017-675 McDermot Ave, Winnipeg, MB, R3E 0V9, Canada.
    Background: Confinement to an in-patient hospital ward impairs patients' sense of social support and connectedness. Providing the means, through communication technology, for patients to maintain contact with friends and family can potentially improve well-being at the end of life by minimizing social isolation and facilitating social connection. This study aimed to explore the feasibility of introducing internet-based communication and information technologies for in-patients and their families and to describe their experience in using this technology. Read More

    Palliative care for people with dementia in the terminal phase: a mixed-methods qualitative study to inform service development.
    BMC Palliat Care 2017 Apr 28;16(1):28. Epub 2017 Apr 28.
    Amsterdam Institute for Social Science Research (AISSR), University of Amsterdam, Nieuwe Achtergracht 166, 1018 WV, Amsterdam, The Netherlands.
    Background: When entering the dying phase, the nature of physical, psychosocial and spiritual care needs of people with dementia and their families may change. Our objective was to understand what needs to be in place to develop optimal palliative care services for the terminal phase in the face of a small evidence base.

    Methods: In 2015-2016, we performed a mixed-methods qualitative study in which we (1) analysed the domains and recommendations from the European Association for Palliative Care (EAPC) dementia white paper and identified those with particular relevance for the terminal phase; (2) performed a series of focus group discussions with Dutch family caregivers of people with dementia in variable stages; (3) conducted interviews with experts involved in 15 special forms of terminal care for people with dementia in five countries. Read More

    Pain Intervention for people with Dementia in nursing homes (PID): study protocol for a quasi-experimental nurse intervention.
    BMC Palliat Care 2017 Apr 21;16(1):27. Epub 2017 Apr 21.
    Zurich University of Applied Sciences, School of Health Professions, Institute of health science, Technikumstrasse 81, 8401, Winterthur, Switzerland.
    Background: It is estimated that 19 to 83% of people with dementia suffer from pain that is inadequately treated in the last months of life. A large number of healthcare workers who care for these people in nursing homes lack appropriate expertise and may therefore not always recognise, assess and treat pain in those with dementia who have complex problems on time, properly and efficiently. The aim of this intervention trial is to identify care needs of people with dementia suffering from pain living in a nursing home. Read More

    Family members of deceased palliative care patients receiving bereavement anniversary cards: a survey on the recipient's reactions and opinions.
    BMC Palliat Care 2017 Apr 19;16(1):26. Epub 2017 Apr 19.
    Interdisciplinary Palliative Care Unit, III. Department of Medicine, University Medical Center of the Johannes Gutenberg University of Mainz, Langenbeckstr. 1, 55131, Mainz, Germany.
    Background: Bereavement support is part of palliative care. Sending out bereavement anniversary cards is one intervention of follow-up support for the bereaved. This study evaluated the suitability of bereavement anniversary cards as an appropriate method in bereavement care. Read More

    Palliative sedation challenging the professional competency of health care providers and staff: a qualitative focus group and personal written narrative study.
    BMC Palliat Care 2017 Apr 11;16(1):25. Epub 2017 Apr 11.
    Pôle Recherche SPES « Soins Palliatifs En Société », Maison Médicale Jeanne Garnier, 106 avenue Emile Zola, 75015, Paris, France.
    Background: Despite recent advances in palliative medicine, sedating a terminally ill patient is regarded as an indispensable treatment to manage unbearable suffering. With the prospect of widespread use of palliative sedation, the feelings and representations of health care providers and staff (carers) regarding sedation must be carefully explored if we are to gain a better understanding of its impact and potential pitfalls. The objective of the study was to provide a comprehensive description of the opinions of carers about the use of sedation practices in palliative care units (PCU), which have become a focus of public attention following changes in legislation. Read More

    Organization-level principles and practices to support spiritual care at the end of life: a qualitative study.
    BMC Palliat Care 2017 Apr 11;16(1):24. Epub 2017 Apr 11.
    Department of Religious Studies, Memorial University of Newfoundland, St. John's, NF, Canada, A1A 5S7.
    Background: Though most models of palliative care specifically include spiritual care as an essential element, secular health care organizations struggle with supporting spiritual care for people who are dying and their families. Organizations often leave responsibility for such care with individual care providers, some of whom are comfortable with this role and well supported, others who are not. This study looked to hospice programs founded and operated on specific spiritual foundations to identify, if possible, organizational-level practices that support high-quality spiritual care that then might be applied in secular healthcare organizations. Read More

    A process evaluation of systematic risk and needs assessment for caregivers in specialised palliative care.
    BMC Palliat Care 2017 Apr 8;16(1):23. Epub 2017 Apr 8.
    Department of Oncology, Aarhus University Hospital, Noerrebrogade 44, Aarhus C, 8000, Denmark.
    Background: Caregiving is strenuous and it may be associated with adverse psychological outcomes. During the palliative care trajectory, there are unique opportunities for providing support and preventing poor bereavement outcome. However, the tasks of palliative care staff in relation to caregivers are often unclear in the daily practice. Read More

    Identification of drug combinations administered by continuous subcutaneous infusion that require analysis for compatibility and stability.
    BMC Palliat Care 2017 Mar 23;16(1):22. Epub 2017 Mar 23.
    Marie Curie Palliative Care Institute Liverpool, Cancer Research Centre, Liverpool, L3 9TA, UK.
    Background: A continuous subcutaneous infusion (CSCI) delivered via syringe pump is a method of drug administration used to maintain symptom control when a patient is no longer able to tolerate oral medication. Several classes of drugs, such as opioids, antiemetics, anticholinergics, antipsychotics and benzodiazepines are routinely administered by CSCI alone or in combinations. Previous studies attempting to identify the most-common CSCI combinations are now several years old and no longer reflect current clinical practice. Read More

    Is admittance to specialised palliative care among cancer patients related to sex, age and cancer diagnosis? A nation-wide study from the Danish Palliative Care Database (DPD).
    BMC Palliat Care 2017 Mar 23;16(1):21. Epub 2017 Mar 23.
    Research Unit, Department of Palliative Medicine, Bispebjerg Hospital, University of Copenhagen, 20D, Bispebjerg Bakke 23, Copenhagen, NV, 2400, Denmark.
    Background: Specialised palliative care (SPC) takes place in specialised services for patients with complex symptoms and problems. Little is known about what determines the admission of patients to SPC and whether there are differences in relation to institution type. The aims of the study were to investigate whether cancer patients' admittance to SPC in Denmark varied in relation to sex, age and diagnosis, and whether the patterns differed by type of institution (hospital-based palliative care team/unit, hospice, or both). Read More

    Critical attitudes and beliefs towards guidelines amongst palliative care professionals - results from a national survey.
    BMC Palliat Care 2017 Mar 21;16(1):20. Epub 2017 Mar 21.
    Department of Palliative Medicine, Munich University Hospital, LMU Munich, Marchioninistr. 15, 81377, Munich, Germany.
    Background: Little is known about palliative care professionals' attitudes towards guidelines. In 2015, the German Association for Palliative Medicine (DGP) published an evidence based guideline for palliative care in adults with incurable cancer. Before publication we conducted a national survey among members of the DGP to detect possible barriers and facilitators for its implementation. Read More

    To be a trained and supported volunteer in palliative care - a phenomenological study.
    BMC Palliat Care 2017 Mar 14;16(1):18. Epub 2017 Mar 14.
    Centre for Care Research, Southern Norway, Faculty of Health and Sport Sciences, Campus Grimstad, University of Agder, Post Box 422, 4604, Kristiansand, Norway.
    Background: It has been found that including volunteers in palliative care is a positive contribution to seriously ill patients. It is, however, recommended that the volunteers are trained and supported. The aim of this study was to describe a group of trained and supported volunteers' lived experiences as volunteers in palliative care within the community health care services. Read More

    Palliative gastrectomy is beneficial in selected cases of metastatic gastric cancer.
    BMC Palliat Care 2017 Mar 14;16(1):19. Epub 2017 Mar 14.
    Department of Surgery, Chang Gung Memorial Hospital at Linkou, Chang Gung University College of Medicine, #5, Fushing Street, Kweishan District, Taoyuan City, 333, Taiwan.
    Background: Salvage chemotherapy is the mainstay of treatment for metastatic gastric cancer (mGC). This study aimed to clarify the effects of palliative gastrectomy (PG) and identify prognostic factors in mGC patients undergoing PG.

    Methods: This was a retrospective review of 333 mGC patients receiving PG or a non-resection procedure (NR) between 2000 and 2010. Read More

    Primary care physicians' educational needs and learning preferences in end of life care: A focus group study in the UK.
    BMC Palliat Care 2017 Mar 9;16(1):17. Epub 2017 Mar 9.
    King's College London, Cicely Saunders Institute, Bessemer Road, Denmark Hill, London, SE59PJ, UK.
    Background: Primary care physicians (General Practitioners (GPs)) play a pivotal role in providing end of life care (EoLC). However, many lack confidence in this area, and the quality of EoLC by GPs can be problematic. Evidence regarding educational needs, learning preferences and the acceptability of evaluation methods is needed to inform the development and testing of EoLC education. Read More

    The experience of providing end of life care at a children's hospice: a qualitative study.
    BMC Palliat Care 2017 Feb 13;16(1):15. Epub 2017 Feb 13.
    Bournemouth University, Fern Barrow, Poole, Dorset, BH12 5BB, UK.
    Background: More attention is being paid to the wellbeing of staff working in stressful situations. However, little is known about staff experience of providing end-of-life care to children within a hospice setting. This study aims to explore the experiences of care team staff who provide end-of-life care within a children's hospice. Read More

    Measuring geographical accessibility to palliative and end of life (PEoLC) related facilities: a comparative study in an area with well-developed specialist palliative care (SPC) provision.
    BMC Palliat Care 2017 Jan 26;16(1):14. Epub 2017 Jan 26.
    King's College London, Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, Bessemer Road, London, SE5 9PJ, UK.
    Background: Geographical accessibility is important in accessing healthcare services. Measuring it has evolved alongside technological and data analysis advances. High correlations between different methods have been detected, but no comparisons exist in the context of palliative and end of life care (PEoLC) studies. Read More

    Clinical decision making in the recognition of dying: a qualitative interview study.
    BMC Palliat Care 2017 Jan 25;16(1):11. Epub 2017 Jan 25.
    Hull York Medical School, University of Hull, Hertford Building, Hull, HU6 7RX, UK.
    Background: Recognising dying is an essential clinical skill for general and palliative care professionals alike. Despite the high importance, both identification and good clinical care of the dying patient remains extremely difficult and often controversial in clinical practice. This study aimed to answer the question: "What factors influence medical and nursing staff when recognising dying in end-stage cancer and heart failure patients?"

    Methods: This study used a descriptive approach to decision-making theory. Read More

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