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    534 results match your criteria BMC Palliative Care [Journal]

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    The Rotterdam Elderly Pain Observation Scale (REPOS) is reliable and valid for non-communicative end-of-life patients.
    BMC Palliat Care 2018 Feb 21;17(1):34. Epub 2018 Feb 21.
    Pain Expertise Centre, Erasmus MC-Sophia Children's Hospital, P.O. Box: Postbus 2060, 3000, CA, Rotterdam, The Netherlands.
    Background: In palliative care, administration of opioids is often indispensable for pain treatment. Pain assessment may help recognize pain and guide treatment in non-communicative patients. In the Netherlands the Rotterdam Elderly Pain Observation Scale (REPOS) is recommended to this aim, but not yet validated. Read More

    Palliative care specialists' perceptions concerning referral of haematology patients to their services: findings from a qualitative study.
    BMC Palliat Care 2018 Feb 21;17(1):33. Epub 2018 Feb 21.
    Epidemiology & Cancer Statistics Group, University of York, York, YO10 5DD, UK.
    Background: Haematological malignancies (leukaemias, lymphomas and myeloma) are complex cancers that are relatively common, affect all ages and have divergent outcomes. Although the symptom burden of these diseases is comparable to other cancers, patients do not access specialist palliative care (SPC) services as often as those with other cancers. To determine the reasons for this, we asked SPC practitioners about their perspectives regarding the barriers and facilitators influencing haematology patient referrals. Read More

    Patient's and health care provider's perspectives on music therapy in palliative care - an integrative review.
    BMC Palliat Care 2018 Feb 20;17(1):32. Epub 2018 Feb 20.
    Haraldsplass Deaconess Hospital, Bergen, Norway.
    Background: The use of music as therapy in multidisciplinary end-of-life care dates back to the 1970s and nowadays music therapy (MT) is one of the most frequently used complementary therapy in in-patient palliative care in the US. However existing research investigated music therapy's potential impact mainly from one perspective, referring to either a quantitative or qualitative paradigm. The aim of this review is to provide an overview of the users' and providers' perspectives on music therapy in palliative care within one research article. Read More

    The contribution of a MOOC to community discussions around death and dying.
    BMC Palliat Care 2018 Feb 20;17(1):31. Epub 2018 Feb 20.
    College of Nursing and Health Sciences, Flinders University, GPO Box 2100, Adelaide, SA, 5001, Australia.
    Background: Advances in medicine have helped many to live longer lives and to be able to meet health challenges. However death rates are anticipated to increase given the ageing population and chronic disease progression. Being able to talk about death is seen to be important in normalising death as part of life and supporting preparedness for death. Read More

    The DEsire to DIe in Palliative care: Optimization of Management (DEDIPOM) - a study protocol.
    BMC Palliat Care 2018 Feb 20;17(1):30. Epub 2018 Feb 20.
    Department of Palliative Medicine, Medical Faculty of the University of Cologne, Cologne, Germany.
    Background: A desire to die (DD) is frequent in palliative care (PC). However, uncertainty remains as to the appropriate therapeutic response. (Proactive) discussion of DD is not usually part of standard care. Read More

    Multidimensional needs of patients living and dying with heart failure in Kenya: a serial interview study.
    BMC Palliat Care 2018 Feb 17;17(1):28. Epub 2018 Feb 17.
    Global Health Academy and the Primary Palliative Care Research Group, the Usher Institute, University of Edinburgh, Edinburgh, EH8 9AG, UK.
    Background: Heart failure is an emerging challenge for Sub Saharan Africa. However, research on patients' needs and experiences of care is scarce with little evidence available to support and develop services. We aimed to explore the experiences of patients living and dying with heart failure in Kenya. Read More

    Systematic development and adjustment of the German version of the Supportive and Palliative Care Indicators Tool (SPICT-DE).
    BMC Palliat Care 2018 Feb 17;17(1):27. Epub 2018 Feb 17.
    Institute for General Practice, Hannover Medical School, Carl-Neuberg-Str. 1, 30625, Hannover, Germany.
    Background: The Supportive and Palliative Care Indicators tool (SPICT) supports the identification of patients with potential palliative care (PC) needs. An Austrian-German expert group translated SPICT into German (SPICT-DE) in 2014. The aim of this study was the systematic development, refinement, and testing of SPICT-DE for its application in primary care (general practice). Read More

    The second patient? Family members of cancer patients and their role in end-of-life decision making.
    BMC Palliat Care 2018 Feb 17;17(1):29. Epub 2018 Feb 17.
    National Center for Tumor Diseases, Department of Medical Oncology, Programme for Ethics and Patient-Oriented Care in Oncology, Heidelberg University Hospital, Im Neuenheimer Feld 460, 69120, Heidelberg, Germany.
    Background: Family members are important companions of severely ill patients with cancer. However, studies about the desirability and difficulties of integrating relatives in the decision-making process are rare in oncology. This qualitative study explores the family role in decisions to limit treatment near the end of life from the professionals' point of view. Read More

    Twenty years of home-based palliative care in Malappuram, Kerala, India: a descriptive study of patients and their care-givers.
    BMC Palliat Care 2018 Feb 14;17(1):26. Epub 2018 Feb 14.
    Medical Department, Médecins Sans Frontières, Brussels, Belgium.
    Background: The well lauded community-based palliative care programme of Kerala, India provides medical and social support, through home-based care, for patients with terminal illness and diseases requiring long-term support. There is, however, limited information on patient characteristics, caregivers and programme performance. This study was carried out to describe: i) the patients enrolled in the programme from 1996 to 2016 and their diagnosis, and ii) the care-giver characteristics and palliative care support from nurses and doctors in a cohort of patients registered during 2013-2015. Read More

    Barriers and facilitators to the implementation of a paediatric palliative care team.
    BMC Palliat Care 2018 Feb 12;17(1):23. Epub 2018 Feb 12.
    Department of Medical Humanities, Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, PO BOX 85500, Heidelberglaan 100, 3508, GA, Utrecht, The Netherlands.
    Background: Over the last decade, paediatric palliative care teams (PPCTs) have been introduced to support children with life-limiting diseases and their families and to ensure continuity, coordination and quality of paediatric palliative care (PPC). However, implementing a PPCT into an organisation is a challenge. The objective of this study was to identify barriers and facilitators reported by healthcare professionals (HCPs) in primary, secondary or tertiary care for implementing a newly initiated multidisciplinary PPCT to bridge the gap between hospital and home. Read More

    "I always tried to forget about the condition and pretend I was healed": coping with cervical cancer in rural Ghana.
    BMC Palliat Care 2018 Feb 12;17(1):24. Epub 2018 Feb 12.
    Department of Population and Health, University of Cape Coast, Private Mail Bag, University Post Office, Cape Coast, Ghana.
    Background: Cervical cancer is a very common disease among women in Ghana and in the world as a whole. However, there is a dearth of information on the mechanisms cervical cancer patients adopt to cope with the condition in Ghana. This study sought to explore the strategies adopted by cervical cancer patients in rural Ghana to cope with the disease. Read More

    A painful experience of limited understanding: healthcare professionals' experiences with palliative care of people with severe dementia in Norwegian nursing homes.
    BMC Palliat Care 2018 Feb 13;17(1):25. Epub 2018 Feb 13.
    Molde University College, Faculty of Health Sciences and Social Care, Box 2110, 6402, Molde, Norway.
    Background: People dying with dementia have significant healthcare needs, and palliative care, with its focus on comfort and quality of life, should be made available to these patients. The aim of this study was to explore and increase knowledge of healthcare professionals' experiences with palliative care to people with severe dementia in nursing homes.

    Methods: To describe the phenomenon under investigation, we used a phenomenological research approach grounded in the philosophy of Husserl. Read More

    Transitions as experienced by persons in palliative care circumstances and their families - a qualitative meta-synthesis.
    BMC Palliat Care 2018 Feb 5;17(1):22. Epub 2018 Feb 5.
    Department of Nursing Science, Faculty of Health, Witten/Herdecke University, Stockumer Strasse 12, 58453, Witten, Germany.
    Background: When receiving palliative care, patients and their families experience altered life situations in which they must negotiate challenges in daily life, increased care and new roles. With limited time, they also experience emotional changes that relate to their uncertain future. Transitions experienced in such situations are often studied by focusing on individual aspects, which are synthesized in the following study. Read More

    Bridging gaps in everyday life - a free-listing approach to explore the variety of activities performed by physiotherapists in specialized palliative care.
    BMC Palliat Care 2018 Jan 29;17(1):20. Epub 2018 Jan 29.
    Institute for Palliative Care, Lund University and Region Skåne, Lund, Sweden.
    Background: A growing body of studies indicate benefits of physiotherapy for patients in palliative care, for symptom relief and wellbeing. Though physiotherapists are increasingly acknowledged as important members of palliative care teams, they are still an underutilized source and not fully recognized. The aim of this study was to explore the variety of activities described by physiotherapists in addressing the needs and problems of patients and their families in specialized palliative care settings. Read More

    Primary palliative Care in General Practice - study protocol of a three-stage mixed-methods organizational health services research study.
    BMC Palliat Care 2018 Jan 30;17(1):21. Epub 2018 Jan 30.
    Institute for General Practice, Hannover Medical School, Carl-Neuberg-Straße 1, 30625, Hanover, Germany.
    Background: The focus of this project is on improving the provision of primary palliative care (PC) by general practitioners (GPs). While approximately 10-15% of the incurable, seriously ill or dying people will be in need of specialist PC, the vast majority can be adequately treated within generalist care. The strengthening of the GP's role in PC, as well as ensuring close collaboration between specialist PC services and GPs have been identified as top priorities for the improvement of PC in Germany. Read More

    Palliative and end-of-life care research in Scotland 2006-2015: a systematic scoping review.
    BMC Palliat Care 2018 Jan 26;17(1):19. Epub 2018 Jan 26.
    Centre for Population Health Sciences, The Usher Institute of Population Health Sciences and Informatics, University of Edinburgh, Old Medical School, Teviot Place, Edinburgh, EH8 9AG, UK.
    Background: The Scottish Government set out its 5-year vision to improve palliative care in its Strategic Framework for Action 2016-2021. This includes a commitment to strengthening research and evidence based knowledge exchange across Scotland. A comprehensive scoping review of Scottish palliative care research was considered an important first step. Read More

    Differences in do-not-resuscitate orders, hospice care utilization, and late referral to hospice care between cancer and non-cancer decedents in a tertiary Hospital in Taiwan between 2010 and 2015: a hospital-based observational study.
    BMC Palliat Care 2018 Jan 24;17(1):18. Epub 2018 Jan 24.
    Department of Family Medicine, Taipei Veterans General Hospital, No. 201, Sec. 2, Shipai Rd., Beitou Dist, Taipei City, 11217, Taiwan, Republic of China.
    Background: In 2009, the Taiwanese national health insurance system substantially expanded hospice coverage for terminal cancer patients to include patients with end-stage brain, dementia, heart, lung, liver, and kidney diseases. This study aimed to evaluate differences in do-not-resuscitate (DNR) status and hospice care utilization between terminal cancer patients and advanced non-cancer patients after the policy change.

    Methods: Data were obtained from the Death and Hospice Palliative Care Database of Taipei Veterans General Hospital in Taiwan. Read More

    #Deathbedlive: the end-of-life trajectory, reflected in a cancer patient's tweets.
    BMC Palliat Care 2018 Jan 22;17(1):17. Epub 2018 Jan 22.
    eHealth Research Group, Usher Institute of Population Health Sciences and Informatics, University of Edinburgh, Edinburgh, UK.
    Background: Understanding physical and psycho-social illness trajectories towards the end of life can help in the planning of palliative and supportive care. With terminal patients increasingly seeking and sharing health information and support via social media, it is timely to examine whether these trajectories are reflected in their digital narratives. In this exploratory study, we analysed the Twitter feed of prominent cancer sufferer and physician, Kate Granger, over the final 6 months of her life. Read More

    Increasing Trend in Hospital Deaths Consistent among Older Decedents in Korea: A Population-based Study Using Death Registration Database, 2001-2014.
    BMC Palliat Care 2018 Jan 11;17(1):16. Epub 2018 Jan 11.
    Department of Cancer Control and Population Health, National Cancer Center Graduate School of Cancer Science and Policy, Goyang, Republic of Korea.
    Background: With improvement in hospice palliative care services and long-term care, Republic of Korea (hereafter South Korea) has recorded significant changes in places of death (e.g., hospital, home), especially among older adults. Read More

    Study protocol: evaluation of specialized outpatient palliative care (SOPC) in the German state of Hesse (ELSAH study) - work package II: palliative care for pediatric patients.
    BMC Palliat Care 2018 Jan 5;17(1):14. Epub 2018 Jan 5.
    Institute of General Practice, Goethe-University Frankfurt, Frankfurt, Germany.
    Background: In 2007, the European Association of Palliative Care (EAPC) provided a comprehensive set of recommendations and standards for the provision of adequate pediatric palliative care. A number of studies have shown deficits in pediatric palliative care compared to EAPC standards. In Germany, pediatric palliative care patients can be referred to specialized outpatient palliative care (SOPC) services, which are known to enhance quality of life, e. Read More

    Fractionated palliative thoracic radiotherapy in non-small cell lung cancer - futile or worth-while?
    BMC Palliat Care 2018 Jan 5;17(1):15. Epub 2018 Jan 5.
    Department of Oncology, Finsen Center, Rigshospitalet, Blegdamsvej 9, 2100, Copenhagen, Denmark.
    Background: Palliative thoracic radiotherapy (PTR) can relieve symptoms originating from intra-thoracic disease. The optimal timing and fractionation of PTR is unknown. Time to effect is 2 months. Read More

    Continuous palliative sedation for patients with advanced cancer at a tertiary care cancer center.
    BMC Palliat Care 2018 Jan 4;17(1):13. Epub 2018 Jan 4.
    Faculdade de Medicina do ABC, 821 Principe de Gales Av, Santo André, Brazil.
    Background: Palliative sedation (PS) is an intervention to treat refractory symptoms and to relieve suffering at the end of life. Its prevalence and practice patterns vary widely worldwide. The aim of our study was to evaluate the frequency, clinical indications and outcomes of PS in advanced cancer patients admitted to our tertiary comprehensive cancer center. Read More

    What does 'complex' mean in palliative care? Triangulating qualitative findings from 3 settings.
    BMC Palliat Care 2018 Jan 4;17(1):12. Epub 2018 Jan 4.
    Marie Curie Hospice Edinburgh, Frogston Road West, Edinburgh, EH10 7DR, UK.
    Background: Complex need for patients with a terminal illness distinguishes those who would benefit from specialist palliative care from those who could be cared for by non-specialists. However, the nature of this complexity is not well defined or understood. This study describes how health professionals, from three distinct settings in the United Kingdom, understand complex need in palliative care. Read More

    Paediatric palliative care improves patient outcomes and reduces healthcare costs: evaluation of a home-based program.
    BMC Palliat Care 2018 Jan 3;17(1):11. Epub 2018 Jan 3.
    National Healthcare Group Singapore, Singapore, Singapore.
    Background: Around the world, different models of paediatric palliative care have responded to the unique needs of children with life shortening conditions. However, research confirming their utility and impact is still lacking. This study compared patient-related outcomes and healthcare expenditures between those who received home-based paediatric palliative care and standard care. Read More

    Advance directives from haematology departments: the patient's freedom of choice and communication with families. A qualitative analysis of 35 written documents.
    BMC Palliat Care 2018 Jan 2;17(1):10. Epub 2018 Jan 2.
    Haematology and cellular therapy Department, CHU Limoges, 2 avenue Martin Luther King, 87000, Limoges, France.
    Background: In France, advance directives are favourably perceived by most of the population, although the drafting rate is low. This ambivalence is challenging because advance directives are meant to promote the autonomy and freedom of choice of patients. The purpose of this study was to analyse the content of advance directives written by patients suffering from malignant haemopathies to better understand how patients put them into practice. Read More

    Existential decision-making in a fatal progressive disease: how much do legal and medical frameworks matter?
    BMC Palliat Care 2017 Dec 28;16(1):80. Epub 2017 Dec 28.
    Department of Learning, Informatics, Management and Ethics, Karolinska Institute, Stockholm, Tomtebodavägen 18, 171 77, Solna, Sweden.
    Background: Healthcare legislation in European countries is similar in many respects. Most importantly, the framework of informed consent determines that physicians have the duty to provide detailed information about available therapeutic options and that patients have the right to refuse measures that contradict their personal values. However, when it comes to end-of-life decision-making a number of differences exist in the more specific regulations of individual countries. Read More

    Religious leaders' perceptions of advance care planning: a secondary analysis of interviews with Buddhist, Christian, Hindu, Islamic, Jewish, Sikh and Bahá'í leaders.
    BMC Palliat Care 2017 Dec 28;16(1):79. Epub 2017 Dec 28.
    Monash Department of Clinical Epidemiology, Cabrini Institute, 154 Wattletree Road, Malvern, VIC, 3144, Australia.
    Background: International guidance for advance care planning (ACP) supports the integration of spiritual and religious aspects of care within the planning process. Religious leaders' perspectives could improve how ACP programs respect patients' faith backgrounds. This study aimed to examine: (i) how religious leaders understand and consider ACP and its implications, including (ii) how religion affects followers' approaches to end-of-life care and ACP, and (iii) their implications for healthcare. Read More

    Validation of the German revised version of the program in palliative care education and practice questionnaire (PCEP-GR).
    BMC Palliat Care 2017 Dec 28;16(1):78. Epub 2017 Dec 28.
    Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK.
    Background: The evaluation of the effectiveness of undergraduate palliative care education (UPCE) programs is an essential foundation to providing high-quality UPCE programs. Therefore, the implementation of valid evaluation tools is indispensable. Until today, there has been no general consensus regarding concrete outcome parameters and their accurate measurement. Read More

    Changes in professionals' beliefs following a palliative care implementation programme at a surgical department: a qualitative evaluation.
    BMC Palliat Care 2017 Dec 28;16(1):77. Epub 2017 Dec 28.
    Institute of Health and Care Sciences and University of Gothenburg Center for Person-Centered Care, Salgrenska Academy at the University of Gothenburg, Gothenburg, Sweden.
    Background: One ambition regarding palliative care is that it should be more accessible to patients and families regardless of care setting. Previous studies show many difficulties and shortcomings in the care of patients with palliative care needs in acute care facilities, but also challenges regarding efforts to implement palliative care. The aim of this study is to evaluate how the implementation of palliative care, using a combination of integration and consultation strategies, can change beliefs regarding palliative care among professionals in a surgical department. Read More

    Observational study of patients in Spain with amyotrophic lateral sclerosis: correlations between clinical status, quality of life, and dignity.
    BMC Palliat Care 2017 Dec 19;16(1):75. Epub 2017 Dec 19.
    Neuromuscular Unit, Neurology Department, Bellvitge University Hospital- Biomedical Research Institute of Bellvitge (IDIBELL), C/ Feixa LLarga SN, 08906, Barcelona, L'Hospitalet de Llobregat, Spain.
    Background: Amyotrophic lateral sclerosis (ALS) is an incurable neurodegenerative disease that dramatically affects patients' quality of life (QoL) and dignity of life (DoL). We aimed to study the impact of ALS on QoL and DoL and how these evolve throughout the duration of the disease.

    Methods: First, we performed an observational, descriptive study of 43 patients with ALS recruited from the ALS unit at our center and compared them with 20 healthy age- and sex-matched controls. Read More

    Oncology nurses' perceptions of obstacles and role at the end-of-life care: cross sectional survey.
    BMC Palliat Care 2017 Dec 19;16(1):74. Epub 2017 Dec 19.
    Brigham Young University College of Nursing, Provo, UT, 84602, USA.
    Background: Major obstacles exist in the care of patients at the end of life: lack of time, poor or inadequate communication, and lack of knowledge in providing care. Three possible nursing roles in care decision-making were investigated: Information Broker, Supporter, and Advocate. The purpose of this study was to examine obstacles faced by oncology nurses in providing end-of-life (EOL) care and to examine roles of nurses in providing care. Read More

    End of life care preferences among people of advanced age: LiLACS NZ.
    BMC Palliat Care 2017 Dec 19;16(1):76. Epub 2017 Dec 19.
    School of Nursing, Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand.
    Background: Understanding end of life preferences amongst the oldest old is crucial to informing appropriate palliative and end of life care internationally. However, little has been reported in the academic literature about the end of life preferences of people in advanced age, particularly the preferences of indigenous older people, including New Zealand Māori.

    Methods: Data on end of life preferences were gathered from 147 Māori (aged >80 years) and 291 non- Māori aged (>85 years), during three waves of Te Puawaitangi O Nga Tapuwae Kia Ora Tonu, Life and Living in Advanced Age (LiLACs NZ). Read More

    Exploring the rewards and challenges of paediatric palliative care work - a qualitative study of a multi-disciplinary children's hospice care team.
    BMC Palliat Care 2017 Dec 16;16(1):73. Epub 2017 Dec 16.
    Martin House Hospice Care for Children and Young People, Grove Road, Boston Spa, West Yorkshire, LS23 6TX, UK.
    Background: Children's hospices are a key provider of palliative care for children and young people with life-limiting and life-threatening conditions. However, despite recent policy attention to the provision of paediatric palliative care, little is known about the role of children's hospice staff and the factors that may impact on their wellbeing at work. This study explored the rewards and challenges of working in a children's hospice with an aim to identify staff support and development needs. Read More

    Impact of place of residence on place of death in Wales: an observational study.
    BMC Palliat Care 2017 Dec 12;16(1):72. Epub 2017 Dec 12.
    Centre for Health Economics and Medicines Evaluation (CHEME), Bangor University, Ardudwy Building, Bangor, LL57 2PZ, UK.
    Background: Previous research in England showed that deprivation level of a person's place of residence affects the place of death and quality of care received at the end of life. People dying in their preferred place of death has also been shown to act as an indication for high quality of end of life care services and social equality. This study expands on current research to explore the effects of deprivation and place of residence on health related choices and place of death in Wales. Read More

    'Worried to death': the assessment and management of anxiety in patients with advanced life-limiting disease, a national survey of palliative medicine physicians.
    BMC Palliat Care 2017 Dec 11;16(1):69. Epub 2017 Dec 11.
    Marie Curie Palliative Care Research Department (MCPCRD), Division of Psychiatry, University College London, 6th Floor Wing B, Maple House, 149 Tottenham Court Road, London, W1T 7NF, UK.
    Background: Anxiety adversely affects quality of life and is common in adults with advanced life-limiting disease. There are no UK-wide guidelines on the assessment and management of anxiety in this specific population and there is little evidence regarding drug treatments. This study aimed to explore how palliative care physicians assess and manage anxiety in their patients, and to identify barriers encountered. Read More

    Exploring the characteristics of patients with mesothelioma who chose active symptom control over chemotherapy as first-line treatment: a prospective, observational, single centre study.
    BMC Palliat Care 2017 Dec 8;16(1):71. Epub 2017 Dec 8.
    Academic Respiratory Unit, School of Clinical Sciences, University of Bristol, Southmead Hospital, 2nd Floor L&R Building, Bristol, BS10 5NB, UK.
    Background: Mesothelioma is an aggressive thoracic tumour with a poor prognosis. The only treatment that extends survival is chemotherapy. However, in the UK, up to 50% of patients who are suitable for chemotherapy choose not to receive it, opting for active symptom control instead. Read More

    A critical realist evaluation of a music therapy intervention in palliative care.
    BMC Palliat Care 2017 Dec 8;16(1):70. Epub 2017 Dec 8.
    School of Nursing and Midwifery, Queen's University Belfast, Belfast, Northern Ireland.
    Background: Music therapy is increasingly used as an adjunct therapy to support symptom management in palliative care. However, studies to date have paid little attention to the processes that lead to changes in patient outcomes. To fill this gap, we examined the processes and experiences involved in the introduction of music therapy as an adjunct complementary therapy to palliative care in a hospice setting in the United Kingdom (UK). Read More

    Community-based specialist palliative care is associated with reduced hospital costs for people with non-cancer conditions during the last year of life.
    BMC Palliat Care 2017 Dec 8;16(1):68. Epub 2017 Dec 8.
    School of Occupational Therapy and Social Work, Faculty of Health Sciences, Curtin University, GPO Box U1987, Perth, 6845, Australia.
    Background: Community-based palliative care is associated with reduced hospital costs for people dying from cancer. It is unknown if reduced hospital costs are universal across multiple life-limiting conditions amenable to palliative care. The aim of this study was to determine if community-based palliative care provided to people dying from non-cancer conditions was associated with reduced hospital costs in the last year of life and how this compared with people dying from cancer. Read More

    Images of God and attitudes towards death in relation to spiritual wellbeing: an exploratory side study of the EORTC QLQ-SWB32 validation study in palliative cancer patients.
    BMC Palliat Care 2017 Dec 8;16(1):67. Epub 2017 Dec 8.
    Department of Medical Oncology, Academic Medical Center, University of Amsterdam, Meibergdreef 9, F4-261, 1105, AZ, Amsterdam, The Netherlands.
    Background: When patients are facing the ends of their lives, spiritual concerns often become more important. It is argued that effective, integrated palliative care should include addressing patients' spiritual wellbeing. In 2002 the EORTC Quality of Life Group began an international study to develop an spiritual wellbeing measure for palliative patients (SWB). Read More

    The relationships between the combination of person- and organization-related conditions and patients' perceptions of palliative care quality.
    BMC Palliat Care 2017 Dec 6;16(1):66. Epub 2017 Dec 6.
    Department of Health Studies, Faculty of Public Health, Inland Norway University of Applied Sciences, Post box 400, 2418, Elverum, Norway.
    Background: Little is known about the combination of person- and organization- related conditions and the relationships with patients' perspectives of care quality. Such a combination could contribute knowledge reflecting the complexity of clinical practice, and enhance individualized care. The aim was to investigate the relationships between the combination of person- and organization-related conditions and patients' perceptions of palliative care quality. Read More

    Compassionate collaborative care: an integrative review of quality indicators in end-of-life care.
    BMC Palliat Care 2017 Dec 1;16(1):65. Epub 2017 Dec 1.
    School of Nursing, University of Alabama at Birmingham, 1720 2nd Ave. South, Birmingham, AL, 35294-1210, USA.
    Background: Compassion and collaborative practice are individually associated with high quality healthcare. When combined in a compassionate collaborative care (CCC) practice framework, they are reported to improve health, strengthen care provision, and control health costs. Little is known about how to integrate and measure CCC, yet it is fundamentally applied in palliative and end-of-life care settings. Read More

    Enhancing integrated palliative care: what models are appropriate? A cross-case analysis.
    BMC Palliat Care 2017 Nov 28;16(1):64. Epub 2017 Nov 28.
    International Observatory on End of Life Care, Division of Health Research, Lancaster University, Lancaster, LA1 4YG, UK.
    Background: Effective integration between hospices, palliative care services and other local health care services to support patients with palliative care needs is an important international priority. A previous model suggests that integration involves a cumulative stepped process of engagement with other organisations labelled as 'support, supplant or supplement', but the extent to which this model currently applies in the United Kingdom is unknown. We aimed to investigate accounts of hospice integration with local health care providers, using the framework provided by the model, to determine how service users and healthcare professionals perceived palliative care services and the extent of integration experienced. Read More

    Comparing doctors' legal compliance across three Australian states for decisions whether to withhold or withdraw life-sustaining medical treatment: does different law lead to different decisions?
    BMC Palliat Care 2017 Nov 28;16(1):63. Epub 2017 Nov 28.
    Australian Centre for Health Law Research, Faculty of Law, Queensland University of Technology, Brisbane, Australia.
    Background: Law purports to regulate end-of-life care but its role in decision-making by doctors is not clear. This paper, which is part of a three-year study into the role of law in medical practice at the end of life, investigates whether law affects doctors' decision-making. In particular, it considers whether the fact that the law differs across Australia's three largest states - New South Wales (NSW), Victoria and Queensland - leads to doctors making different decisions about withholding and withdrawing life-sustaining treatment from adults who lack capacity. Read More

    Is the content of guidelines/pathways a barrier for the integration of palliative Care in Chronic Heart Failure (CHF) and chronic pulmonary obstructive disease (COPD)? A comparison with the case of cancer in Europe.
    BMC Palliat Care 2017 Nov 28;16(1):62. Epub 2017 Nov 28.
    Dept. of Radiation-Oncology and Palliative Medicine, University Hospital Gasthuisberg, Leuven, Belgium.
    Background: There is a notable inequity in access to palliative care (PC) services between cancer and Chronic Heart Failure (CHF)/Chronic Obstructive Pulmonary Disease (COPD) patients which also translates into discrepancies in the level of integration of PC. By cross-examining the levels of PC integration in published guidelines/pathways for CHF/COPD and cancer in Europe, this study examines whether these discrepancies may be attributed to the content of the guidelines.

    Design: A quantitative evaluation was made between integrated PC in published guidelines for cancer and CHF/COPD in Europe. Read More

    Bereaved family members' perceptions of the quality of end-of-life care across four types of inpatient care settings.
    BMC Palliat Care 2017 Nov 25;16(1):59. Epub 2017 Nov 25.
    School of Population and Public Health, University of British Columbia, 2206 East Mall, Vancouver, BC, V6T 1Z3, Canada.
    Background: The aims of this study were to gain a better understanding of how bereaved family members perceive the quality of EOL care by comparing their satisfaction with quality of end-of-life care across four different settings and by additionally examining the extent to which demographic characteristics and psychological variables (resilience, optimism, grief) explain variation in satisfaction.

    Methods: A cross-sectional mail-out survey was conducted of bereaved family members of patients who had died in extended care units (n = 63), intensive care units (n = 30), medical care units (n = 140) and palliative care units (n = 155). 1254 death records were screened and 712 bereaved family caregivers were identified as eligible, of which 558 (who were initially contacted by mail and then followed up by phone) agreed to receive a questionnaire and 388 returned a completed questionnaire (response rate of 70%). Read More

    A scoping review of palliative care for children in low- and middle-income countries.
    BMC Palliat Care 2017 Nov 25;16(1):60. Epub 2017 Nov 25.
    Department of Health Policy, National Center for Child Health and Development, 2-10-1 Okura, Setagaya, Tokyo, 157-8535, Japan.
    Background: Ninety-eight percent of children needing palliative care live in low- and middle-income countries (LMICs), and almost half of them live in Africa. In contrast to the abundance of data on populations in high income countries, the current data on populations in LMICs is woefully inadequate. This study aims to identify and summarize the published literature on the need, accessibility, quality, and models for palliative care for children in LMICs. Read More

    Palliative care for patients with Parkinson's disease: study protocol for a mixed methods study.
    BMC Palliat Care 2017 Nov 25;16(1):61. Epub 2017 Nov 25.
    Radboud university medical center, Nijmegen, 6500 AB, The Netherlands.
    Background: Parkinson's disease (PD) is a chronic, progressive neurological disorder with many intractable consequences for patients and their family caregivers. Little is known about the possibilities that palliative care could offer to patients and their proxies. Guidelines strongly recommend palliative care to improve the quality of life and - if needed - the quality of dying. Read More

    Factors associated with deaths in 'Elderly Housing with Care Services' in Japan: a cross-sectional study.
    BMC Palliat Care 2017 Nov 23;16(1):58. Epub 2017 Nov 23.
    Graduate School of Nursing Science, St. Luke's International University, 10-1 Akashi-cho, Chuo-ku, Tokyo, 104-0044, Japan.
    Background: Although the Japanese government has expanded its 'Elderly Housing with Care Services' (EHCS) to ensure sufficient places of death for the elderly, resident deaths have occurred in less than 30% of the facilities. Our purpose was to identify the factors associated with residents' deaths in the EHCS, especially within the areas that are expected to have a large increase in the number of deaths.

    Methods: Our cross-sectional study involved all EHCS (N = 412) in Japan's Tokyo, Kanagawa prefecture and used self-administered questionnaire data that the EHCS directors completed. Read More

    Behaviors in Advance Care Planning and ACtions Survey (BACPACS): development and validation part 1.
    BMC Palliat Care 2017 Nov 22;16(1):56. Epub 2017 Nov 22.
    Department of Medicine, University of Alberta, Edmonton, AB, Canada.
    Background: Although advance care planning (ACP) is fairly well understood, significant barriers to patient participation remain. As a result, tools to assess patient behaviour are required. The objective of this study was to improve the measurement of patient engagement in ACP by detecting existing survey design issues and establishing content and response process validity for a new survey entitled Behaviours in Advance Care Planning and ACtions Survey (BACPACS). Read More

    Self-confidence and knowledge of German ICU physicians in palliative care - a multicentre prospective study.
    BMC Palliat Care 2017 Nov 22;16(1):57. Epub 2017 Nov 22.
    Klinik für Anaesthesiologie, Klinikum rechts der Isar, Technische Universität München, Ismaninger Straße 22, 81675, Munich, Germany.
    Background: Little is known about ICU physicians' self-confidence and knowledge related to palliative care. Our objective was to investigate self-confidence and knowledge of German ICU physicians related to palliative care, and to assess the impact of work experience, gender, specialty and additional certifications in pain or palliative medicine.

    Methods: In a multicentre prospective observational study ICU physicians of ten hospitals were asked to rate their self-confidence and to complete a multiple choice questionnaire for the assessment of knowledge. Read More

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