Arch Dis Child 2017 Nov 10. Epub 2017 Nov 10.
Department of Pediatrics, University of Groningen, Beatrix Children's Hospital, University Medical Center Groningen, Groningen, The Netherlands.
: In 2013, the Pediatric Association of the Netherlands launched an evidence-based guideline 'Palliative care for children'. To promote implementation in daily practice and hereby improve quality of paediatric palliative care, we aimed to develop a functional individualised paediatric palliative care plan (IPPCP) that covers physical, psychological, spiritual and social functioning, with great emphasis on the guideline's recommendations, advance care planning and patients' and parents' preferences and desires.Methods
: A Dutch working group (28 individuals) with a strong multidisciplinary character developed a draft IPPCP, which was piloted retrospectively and prospectively. Read More