763 results match your criteria American Journal Of Hospice & Palliative Medicine[Journal]


Clinical response to lumacaftor-ivacaftor in patients with cystic fibrosis according to baseline lung function.

J Cyst Fibros 2020 Jun 23. Epub 2020 Jun 23.

Université de Paris, Institut Cochin, Paris, France; Respiratory Medicine and National Reference Cystic Fibrosis Reference Center, Cochin Hospital; Assistance Publique Hôpitaux de Paris (AP-HP), Paris, France; ERN-Lung CF network.

Background: Phase 3 trials have demonstrated the safety and efficacy of lumacaftor-ivacaftor (LUMA-IVA) in patients with cystic fibrosis (CF) homozygous for the Phe508del CFTR mutation and percent predicted forced expiratory volume in 1 s (ppFEV) between 40 and 90. Marketing authorizations have been granted for patients at all levels of ppFEV.

Methods: To evaluate the safety and effectiveness of LUMA-IVA over the first year of treatment in patients with ppFEV<40 or ppFEV≥90 in comparison with those with ppFEV [40-90[. Read More

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http://dx.doi.org/10.1016/j.jcf.2020.06.012DOI Listing

Integrating Culturally Competent Advance Care Planning for Korean Immigrants: An Integrative Review.

Am J Hosp Palliat Care 2020 Jun 19:1049909120933856. Epub 2020 Jun 19.

Johns Hopkins University School of Nursing, Baltimore, MD, USA.

Aims: This review aims to explore the extant literature on the current utilization of ACP in Kisin order to obtain a comprehensive understanding of their health disparities and to determineevidence-based best practices to integrate culturally-competent ACP for EOL care of KIs.

Design: A systematic integrative review of the literature Data Sources:  Four electronic databases including PubMed, the Cumulative Index of Nursing and Allied Health Literature, the Cochrane Library, and Embase.

Method: The detailed search strategy for databases implicated a combination of MeSHkeywords and associated terms, which can be found in Table A. Read More

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http://dx.doi.org/10.1177/1049909120933856DOI Listing

Physical Therapist Management of Total Knee Arthroplasty.

Phys Ther 2020 Jun 16. Epub 2020 Jun 16.

Department of Physical Therapy, University of Delaware, Newark, Delaware.

A clinical practice guideline on total knee arthroplasty was developed by an American Physical Therapy (APTA) volunteer guideline development group that consisted of physical therapists, an orthopedic surgeon, a nurse, and a consumer. The guideline was based on systematic reviews of current scientific and clinical information and accepted approaches to management of total knee arthroplasty. Read More

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http://dx.doi.org/10.1093/ptj/pzaa099DOI Listing

"We Are Here to Assist All Individuals Who Need Hospice Services": Hospices' Perspectives on Improving Access and Inclusion for Racial/Ethnic Minorities.

Gerontol Geriatr Med 2020 Jan-Dec;6:2333721420920414. Epub 2020 May 19.

Seattle University, WA, USA.

Racial/ethnic minority populations in the United States are less likely to utilize hospice services nearing their end of life, potentially diminishing their quality of care while also increasing medical costs. Explore the minority hospice utilization gap from the hospice perspective by examining perceived barriers and facilitators as well as practices and policies. Qualitative surveys were conducted with 41 hospices across the United States. Read More

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http://dx.doi.org/10.1177/2333721420920414DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7238442PMC

A Review and Considerations on Palliative Care Improvements for African Americans With Cancer.

Am J Hosp Palliat Care 2020 Jun 3:1049909120930205. Epub 2020 Jun 3.

Division of Health Equities, City of Hope Medical Center, Duarte, CA, USA.

Hospice and Palliative care benefits are infrequently realized by African American patients with cancer. With the increasing recognition of the critical role of early utilization of palliative services for optimal and quality patient care, it is important to acknowledge disparities and barriers to access that minority patients may face. The purpose of this paper is to discuss the status of palliative care delivery for African American patients within the structure and framework of the clinical practice guideline domains established by the National Consensus Project for Palliative Care. Read More

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http://dx.doi.org/10.1177/1049909120930205DOI Listing

A Call to Include Death Disclosure Training Alongside Cardiopulmonary Resuscitation Training: After the Code.

JAMA Cardiol 2020 May 27. Epub 2020 May 27.

Emory Palliative Care Center, Department of Emergency Medicine, Emory University School of Medicine, Atlanta, Georgia.

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http://dx.doi.org/10.1001/jamacardio.2020.1279DOI Listing

Guidelines for the assessment of bone density and microarchitecture in vivo using high-resolution peripheral quantitative computed tomography.

Osteoporos Int 2020 May 26. Epub 2020 May 26.

Center for Advanced Orthopedic Studies, Beth Israel Deaconess Medical Center, Boston, MA, USA.

Introduction: The application of high-resolution peripheral quantitative computed tomography (HR-pQCT) to assess bone microarchitecture has grown rapidly since its introduction in 2005. As the use of HR-pQCT for clinical research continues to grow, there is an urgent need to form a consensus on imaging and analysis methodologies so that studies can be appropriately compared. In addition, with the recent introduction of the second-generation HrpQCT, which differs from the first-generation HR-pQCT in scan region, resolution, and morphological measurement techniques, there is a need for guidelines on appropriate reporting of results and considerations as the field adopts newer systems. Read More

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http://dx.doi.org/10.1007/s00198-020-05438-5DOI Listing

Goals-of-Care Consultation Associated with Increased Hospice Enrollment Among Propensity-Matched Cohorts of Seriously Ill African American and White Patients.

J Pain Symptom Manage 2020 May 23. Epub 2020 May 23.

School of Nursing, University of Pennsylvania.

Context: African Americans are less likely to receive hospice care and more likely to receive aggressive end-of-life care than Whites. Little is known about how palliative care consultation to discuss goals-of-care (hereafter "PCC") is associated with hospice enrollment by race.

Objectives: To compare enrollment in hospice at discharge between propensity-matched cohorts of African Americans with and without PCC, and Whites with and without PCC. Read More

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http://dx.doi.org/10.1016/j.jpainsymman.2020.05.020DOI Listing

ReACanROC: Towards the creation of a France-Canada research network for out-of-hospital cardiac arrest.

Resuscitation 2020 Jul 15;152:133-140. Epub 2020 May 15.

RESCUe-RESUVal, CH Lucien Hussel, Vienne, France; Médipôle, Hôpital mutualiste, Villeurbanne, France; Université Lyon 1, EA-7425 (HESPER), Lyon, France.

Aims: There are large differences between emergency medical systems, which may account for variability in outcomes. We seek to compare prehospital organizations, response modes, patient characteristics and outcomes after out-of-hospital cardiac arrest, between France and Canada, and discuss the need for the first European-North American prehospital research network on out-of-hospital cardiac arrest.

Methods: Preliminary comparative description of data drawn from two nation-wide, population-based, Utstein-style prospectively implemented registries for out-of-hospital cardiac arrest in France and Canada (France: RéAC, Canada: CanROC), covering approximately 80 million people, and soon to be participating in an international research network in 2020. Read More

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http://dx.doi.org/10.1016/j.resuscitation.2020.05.008DOI Listing

Acute heart failure in multisystem inflammatory syndrome in children (MIS-C) in the context of global SARS-CoV-2 pandemic.

Circulation 2020 May 17. Epub 2020 May 17.

M3C-Necker Enfants Malades, AP-HP, Paris, France; Université de Paris, Paris, France.

Cardiac injury and myocarditis have been described in adults with COVID-19. SARS-CoV-2 infection in children is typically minimally symptomatic. We report a series of febrile pediatric patients with acute heart failure potentially associated with SARS-CoV-2 infection and the multisystem inflammatory syndrome in children (MIS-C) as defined by the US Centers for Disease Control. Read More

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http://dx.doi.org/10.1161/CIRCULATIONAHA.120.048360DOI Listing

Redefining Palliative Care-A New Consensus-Based Definition.

J Pain Symptom Manage 2020 May 6. Epub 2020 May 6.

Department of Palliative Medicine, University Hospital Aachen, Aachen, Germany.

Context: The International Association for Hospice and Palliative Care developed a consensus-based definition of palliative care (PC) that focuses on the relief of serious health-related suffering, a concept put forward by the Lancet Commission Global Access to Palliative Care and Pain Relief.

Objective: The main objective of this article is to present the research behind the new definition.

Methods: The three-phased consensus process involved health care workers from countries in all income levels. Read More

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http://dx.doi.org/10.1016/j.jpainsymman.2020.04.027DOI Listing
May 2020
2.795 Impact Factor

Association of Participation in an End-of-Life Conversation Game With Advance Care Planning Behavior and Perspectives Among African American Individuals.

JAMA Netw Open 2020 May 1;3(5):e204315. Epub 2020 May 1.

Department of Medicine, Penn State Milton S. Hershey Medical Center, Penn State College of Medicine, Hershey, Pennsylvania.

Importance: Less than 25% of African American individuals have completed advance directives and are thus vulnerable to poor end-of-life care. Low-cost interventions are needed to increase engagement in advance care planning (ACP).

Objectives: To investigate whether an end-of-life conversation game motivates African American attendees to engage in ACP and to assess whether the game is well received and endorsed. Read More

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http://dx.doi.org/10.1001/jamanetworkopen.2020.4315DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7210487PMC

Factors lead to return to sports and recreational activity after total knee replacement - A retrospective study.

SICOT J 2020 7;6:11. Epub 2020 May 7.

FIFA Medical Center of Excellence, Department of Orthopaedic Surgery and Sports Medicine, Croix Rousse Hospital, Civil Hospices of Lyon, 69004 Lyon, France - LBMC UMR T 9406, Laboratory of Chock Mechanics and Biomechanics, Claude Bernard Lyon 1 University, 69100 Villeurbanne, France.

Introduction: The number of total knee replacements performed (TKR) is increasing and so are patient expectations and functional demands. The mean age at which orthopedic surgeons may indicate TKR is decreasing, and therefore return to sport (RTS) after TKR is often an important expectation for patients. The aim of this study was to analyze the mid-term RTS, recreational activities, satisfaction level, and forgotten joint level after TKR. Read More

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http://dx.doi.org/10.1051/sicotj/2020009DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7204271PMC

Breast cancer treatment: A phased approach to implementation.

Cancer 2020 May;126 Suppl 10:2365-2378

Hopital Riviera Chablais, Vaud-Valais, Rennaz, Switzerland.

Optimal treatment outcomes for breast cancer are dependent on a timely diagnosis followed by an organized, multidisciplinary approach to care. However, in many low- and middle-income countries, effective care management pathways can be difficult to follow because of financial constraints, a lack of resources, an insufficiently trained workforce, and/or poor infrastructure. On the basis of prior work by the Breast Health Global Initiative, this article proposes a phased implementation strategy for developing sustainable approaches to enhancing patient care in limited-resource settings by creating roadmaps that are individualized and adapted to the baseline environment. Read More

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http://dx.doi.org/10.1002/cncr.32910DOI Listing
May 2020
4.889 Impact Factor

Hospice and Palliative Care: An Overview.

Med Clin North Am 2020 May;104(3):359-373

Dell Medical School, University of Texas in Austin, 1501 Red River Street, Austin, TX 78701, USA.

Palliative medicine is specialized medical care for people with serious illness. Serious illness is one with high risk of mortality that negatively affects quality of life or function or is burdensome in symptoms, treatments, or caregiver stress. Palliative care improves symptom management and addresses the needs of patients and families, resulting in improved patient and caregiver quality of life and reduced symptom burden and health care utilization. Read More

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http://dx.doi.org/10.1016/j.mcna.2020.01.001DOI Listing

Access to Home and Community Health Services for Older Adults With Serious, Life-Limiting Illness: A Study Protocol.

Am J Hosp Palliat Care 2020 Apr 20:1049909120920230. Epub 2020 Apr 20.

Ronald O. Perelman Department of Emergency Medicine, New York University School of Medicine, NY, USA.

Objectives: The objective of this study is to identify contextual access factors to home and community health services for end-of-life support for older adults with serious life-limiting illness, as well as determine if access to home and community services is associated with health-care utilization.

Design: This study includes an environmental scan, grey literature review, qualitative interviews, and health-care utilization analysis. This study is a subproject of the Grudzen et al. Read More

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http://dx.doi.org/10.1177/1049909120920230DOI Listing

Assessing post-discharge costs of hepatopancreatic surgery: an evaluation of Medicare expenditure.

Surgery 2020 06 3;167(6):978-984. Epub 2020 Apr 3.

Department of Surgery, The Ohio State University Wexner Medical Center and James Cancer Hospital and Solove Research Institute, Columbus, OH. Electronic address:

Background: The true cost of liver and pancreatic surgery may not be completely ascertained by examining costs associated solely with the index hospitalization. We sought to assess post-discharge costs related to liver and pancreatic surgery after the index hospitalization.

Methods: We identified Medicare beneficiaries who underwent liver and pancreatic resection between 2013 and 2015. Read More

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http://dx.doi.org/10.1016/j.surg.2020.02.010DOI Listing

Collaboration between academics, small pharmaceutical company and patient organizations in the development of a new formulation of cysteamine in nephropathic cystinosis: A successful story.

Therapie 2020 Apr 13;75(2):169-173. Epub 2020 Feb 13.

Hospices civils de Lyon, EPICIME-CIC 1407 de Lyon, Inserm, department of clinical epidemiology, CHU-Lyon, 69677 Bron, France; Université de Lyon 1, 69000 Lyon, France.

Rare diseases usually concern small and disseminated population. Implementing clinical research with the right design, outcomes measures and the recruitment of patients are challenges. Collaborations, training and multidisciplinary approach are often required. Read More

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http://dx.doi.org/10.1016/j.therap.2020.02.008DOI Listing

The natural history of progressive fibrosing interstitial lung diseases.

Eur Respir J 2020 Jun 25;55(6). Epub 2020 Jun 25.

National Heart and Lung Institute, Imperial College, London, UK.

We used data from the INBUILD and INPULSIS trials to investigate the natural history of progressive fibrosing interstitial lung diseases (ILDs).Subjects in the two INPULSIS trials had a clinical diagnosis of idiopathic pulmonary fibrosis (IPF) while subjects in the INBUILD trial had a progressive fibrosing ILD other than IPF and met protocol-defined criteria for ILD progression despite management. Using data from the placebo groups, we compared the rate of decline in forced vital capacity (FVC) (mL·year) and mortality over 52 weeks in the INBUILD trial with pooled data from the INPULSIS trials. Read More

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http://dx.doi.org/10.1183/13993003.00085-2020DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7315005PMC

Home Health Rehabilitation Utilization Among Medicare Beneficiaries Following Critical Illness.

J Am Geriatr Soc 2020 Mar 18. Epub 2020 Mar 18.

Section of Pulmonary, Critical Care, and Sleep Medicine, Department of Internal Medicine, Yale School of Medicine, New Haven, Connecticut.

Objectives: Medicare beneficiaries recovering from a critical illness are increasingly being discharged home instead of to post-acute care facilities. Rehabilitation services are commonly recommended for intensive care unit (ICU) survivors; however, little is known about the frequency and dose of home-based rehabilitation in this population.

Design: Retrospective analysis of 2012 Medicare hospital and home health (HH) claims data, linked with assessment data from the Medicare Outcomes and Assessment Information Set. Read More

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http://dx.doi.org/10.1111/jgs.16412DOI Listing

Underutilization of Hospice in Inpatients with Cirrhosis: The NACSELD Experience.

Dig Dis Sci 2020 Mar 7. Epub 2020 Mar 7.

Department of Medicine, McGuire VA Medical Center, Virginia Commonwealth University, Richmond, VA, USA.

Background: Little is known about patients discharged to hospice following hospitalization for complications of cirrhosis.

Aim: We sought to understand the current pattern of hospice utilization in patients with cirrhosis by evaluating the North American Consortium for the Study of End-stage Liver Disease (NACSELD) cohort.

Methods: Patients with cirrhosis from 14 tertiary-care hepatology centers across North America non-electively hospitalized and prospectively enrolled were evaluated. Read More

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http://dx.doi.org/10.1007/s10620-020-06168-8DOI Listing
March 2020
2.550 Impact Factor

Association of Hospital Readmissions and Survivability With Frailty and Palliative Performance Scores Among Long-Term Care Residents.

Am J Hosp Palliat Care 2020 Mar 1:1049909120907602. Epub 2020 Mar 1.

Department of Internal Medicine/Geriatrics, Wayne State University School of Medicine, Detroit, MI, USA.

Background: Frailty and palliative performance scores are 2 markers used in the measurement of functional decline in oncology and hospice care.

Objective: To evaluate the frailty and palliative performance scores of a long-term care resident community and determine whether frailty and palliative performance scores can predict hospital readmissions (HR) and survivability of the long-term care resident.

Methods: One hundred seventy-one long-term care residents from 2 urban facilities were evaluated for functional decline using the Clinical Frailty Scale (CFS) and Palliative Performance Scale (PPS). Read More

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http://dx.doi.org/10.1177/1049909120907602DOI Listing

Gender Differences in End-of-Life Care in Older Mexican American Adults.

J Palliat Care 2020 Feb 24:825859720907419. Epub 2020 Feb 24.

Arizona Geriatric Workforce Enhancement Program, The University of Arizona Center on Aging, Tucson, AZ, USA.

Mexican Americans (MAs), 1 of 10 subgroups of Latinos, are the largest and fastest growing Latino subgroup in the United States; yet, their access to end-of-life (EOL) care using hospice services is low. An investigation was needed into extant research-based knowledge about factors influencing EOL care decisions among MAs to guide health-care professionals in assisting MAs to make timely, acceptable, and satisfactory EOL care decisions. To determine whether gender was an influence on EOL decision-making among older MAs, CINAHL and PubMed were searched for articles published between 1994 and 2018. Read More

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http://dx.doi.org/10.1177/0825859720907419DOI Listing
February 2020

Racial Differences in Pain Management for Patients Receiving Hospice Care.

Oncol Nurs Forum 2020 03;47(2):228-240

University of Florida.

Objectives: To investigate racial differences in implementation of 11 evidence-based cancer pain management strategies in a matched sample of patients in hospice.

Sample & Setting: 32 African American and 32 Caucasian American older adults (aged 65 years or older) with cancer pain receiving hospice care in the midwestern United States.

Methods & Variables: Matched cohort secondary data analysis of postintervention data in a cluster randomized controlled trial was used. Read More

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http://dx.doi.org/10.1188/20.ONF.228-240DOI Listing

Genetically Determined Height and Risk of Non-hodgkin Lymphoma.

Front Oncol 2019 28;9:1539. Epub 2020 Jan 28.

Division of Cancer Epidemiology and Genetics, National Cancer Institute, Bethesda, MD, United States.

Although the evidence is not consistent, epidemiologic studies have suggested that taller adult height may be associated with an increased risk of some non-Hodgkin lymphoma (NHL) subtypes. Height is largely determined by genetic factors, but how these genetic factors may contribute to NHL risk is unknown. We investigated the relationship between genetic determinants of height and NHL risk using data from eight genome-wide association studies (GWAS) comprising 10,629 NHL cases, including 3,857 diffuse large B-cell lymphoma (DLBCL), 2,847 follicular lymphoma (FL), 3,100 chronic lymphocytic leukemia (CLL), and 825 marginal zone lymphoma (MZL) cases, and 9,505 controls of European ancestry. Read More

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http://dx.doi.org/10.3389/fonc.2019.01539DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6999122PMC
January 2020

Racial and ethnic disparity in palliative care and hospice use.

Am J Manag Care 2020 02 1;26(2):e36-e40. Epub 2020 Feb 1.

Department of Health Systems Management, Rush University, 1700 W Van Buren St, TOB Ste 126B, Chicago, IL 60612. Email:

Objectives: Prior research has demonstrated differences across race and ethnicity, as well as across geographic location, in palliative care and hospice use for patients near the end of life. However, there remains inconsistent evidence regarding whether these disparities are explained by hospital-level practice variation. The goals of this study were to evaluate whether inpatient palliative care consultation use and discharge to hospice differed by race/ethnicity and whether hospital-level variations explained these differences. Read More

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http://dx.doi.org/10.37765/ajmc.2020.42399DOI Listing
February 2020

Online Palliative and End-of-Life Care Education for Undergraduate Nurses.

Authors:
Susan E Thrane

J Prof Nurs 2020 Jan - Feb;36(1):42-46. Epub 2019 Jul 20.

The Ohio State University College of Nursing, 322 Newton Hall, 1585 Neil Avenue, Columbus, OH 43210, United States of America. Electronic address:

The curricula of undergraduate nursing programs lack education in palliative and end-of-life care. If the topic is covered, it is generally within isolated lectures and rarely as a full course. With the growing demand for nursing competence in palliative care, curricula must adapt to also place emphasis on this important topic. Read More

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http://dx.doi.org/10.1016/j.profnurs.2019.07.002DOI Listing

International consensus definition of low anterior resection syndrome.

ANZ J Surg 2020 03 10;90(3):300-307. Epub 2020 Feb 10.

Department of Surgery, The University of Auckland, Auckland, New Zealand.

Background: Low anterior resection syndrome (LARS) is pragmatically defined as disordered bowel function after rectal resection leading to a detriment in quality of life. This broad characterization does not allow for precise estimates of prevalence. The LARS score was designed as a simple tool for clinical evaluation of LARS. Read More

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http://dx.doi.org/10.1111/ans.15421DOI Listing
March 2020
1.118 Impact Factor

New OFSEP recommendations for MRI assessment of multiple sclerosis patients: Special consideration for gadolinium deposition and frequent acquisitions.

J Neuroradiol 2020 Jun 31;47(4):250-258. Epub 2020 Jan 31.

MRI center, Centre Hospitalier Lyon Sud, Hospices Civils de Lyon, Pierre Bénite, France; Observatoire Français de la Sclérose en Plaques, Lyon, France; Université Lyon 1, CREATIS-LRMN, CNRS/UMR/5220-INSERM U630, Villeurbanne, France.

Purpose: New multiple sclerosis (MS) disease-modifying therapies (DMTs), which exert beneficial effects through prevention of relapse, limitation of disability progression, and improvement of patients' quality of life, have recently emerged. Nonetheless, these DMTs are not without associated complications (severe adverse events like. progressive multifocal leukoencephalopathy). Read More

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http://dx.doi.org/10.1016/j.neurad.2020.01.083DOI Listing
June 2020
1.132 Impact Factor

Evaluating for disparities in place of death for head and neck cancer patients in the United States utilizing the CDC WONDER database.

Oral Oncol 2020 Jan 29;102:104555. Epub 2020 Jan 29.

Department of Radiation Oncology, Duke University Medical Center, DUMC Box 3085, Durham, NC 27710, USA. Electronic address:

Objective: Evaluate trends in place of death for patients with head and neck cancers (HNC) in the U.S. from 1999 to 2017 based on the CDC WONDER (Wide-ranging Online Data for Epidemiologic Research) database. Read More

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http://dx.doi.org/10.1016/j.oraloncology.2019.104555DOI Listing
January 2020

SciFi detector and associated method for real-time determination of profile and output factor for small fields in stereotactic radiotherapy.

Med Phys 2020 Apr 30;47(4):1930-1939. Epub 2020 Jan 30.

Service de Radiophysique et Radiovigilance, Hospices Civils de Lyon, Centre Hospitalier Lyon Sud, F-69495, Pierre-Bénite, France.

Purpose: For determining small-field profile and output factor during stereotactic radiotherapy quality assurance (QA) procedures, we propose a novel system based on the scintillating fiber (SciFi) detector with output image acquisition and processing to allow real-time monitoring of profile and output factor.

Materials And Methods: The employed detector is a SciFi detector made of tissue-equivalent scintillating plastic fibers arranged in 6-layer fiber ribbons with a fiber pitch of 275 μm in each layer. The scintillating signal at the detector output is acquired by a sCMOS (scientific complementary metal-oxide-semiconductor) camera and represents the projected field profile along the fibers axis. Read More

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http://dx.doi.org/10.1002/mp.14019DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7216919PMC

End-of-life quality metrics among medicare decedents at minority-serving cancer centers: A retrospective study.

Cancer Med 2020 Mar 11;9(5):1911-1921. Epub 2020 Jan 11.

Department of Medicine, Geisel School of Medicine, Hanover, NH, USA.

Background: We calculated the performance of National Cancer Institute (NCI)/National Comprehensive Cancer Network (NCCN) cancer centers' end-of-life (EOL) quality metrics among minority and white decedents to explore center-attributable sources of EOL disparities.

Methods: We conducted a retrospective cohort study of Medicare beneficiaries with poor-prognosis cancers who died between April 1, 2016 and December 31, 2016 and had any inpatient services in the last 6 months of life. We attributed patients' EOL treatment to the center at which they received the preponderance of EOL inpatient services and calculated eight risk-adjusted metrics of EOL quality (hospice admission ≤3 days before death; chemotherapy last 14 days of life; ≥2 emergency department (ED) visits; intensive care unit (ICU) admission; or life-sustaining treatment last 30 days; hospice referral; palliative care; advance care planning last 6 months). Read More

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http://dx.doi.org/10.1002/cam4.2752DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7050066PMC

Experiences of Lesbian, Gay, Bisexual, and Transgender Patients and Families in Hospice and Palliative Care: Perspectives of the Palliative Care Team.

J Palliat Med 2020 Jun 9;23(6):817-824. Epub 2020 Jan 9.

Department of Medical Oncology, St. Peter's Health Partners, Troy, New York, USA.

Lesbian, gay, bisexual, and transgender (LGBT) patients fear being open about their identities, not receiving equal or safe treatment, and having their family and surrogates disrespected or ignored by providers. To examine inadequate, disrespectful, and abusive care to patients and family due to sexual orientation or gender identity. A cross-sectional study using an online survey. Read More

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http://dx.doi.org/10.1089/jpm.2019.0542DOI Listing

Imaging protocols for renal multiparametric MRI and MR urography: results of a consensus conference from the French Society of Genitourinary Imaging.

Eur Radiol 2020 Apr 3;30(4):2103-2114. Epub 2020 Jan 3.

Academic Department of Radiology, Hôpital Pitié-Salpêtrière and Hôpital Tenon, Assistance Publique-Hôpitaux de Paris, Paris, France.

Objectives: To develop technical guidelines for magnetic resonance imaging aimed at characterising renal masses (multiparametric magnetic resonance imaging, mpMRI) and at imaging the bladder and upper urinary tract (magnetic resonance urography, MRU).

Methods: The French Society of Genitourinary Imaging organised a Delphi consensus conference with a two-round Delphi survey followed by a face-to-face meeting. Two separate questionnaires were issued for renal mpMRI and for MRU. Read More

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http://dx.doi.org/10.1007/s00330-019-06530-zDOI Listing

Lung Transplant Pulmonologists' Views of Specialty Palliative Care for Lung Transplant Recipients.

J Palliat Med 2020 May 2;23(5):619-626. Epub 2020 Jan 2.

Section of Palliative Care and Medical Ethics, Division of General Internal Medicine, Department of Medicine, University of Pittsburgh, Pittsburgh, Pennsylvania, USA.

Lung transplant recipients with serious illness may benefit from but rarely receive specialty palliative care (SPC) services. Transplant pulmonologists' views of SPC may be key to understanding SPC utilization but have not been well characterized. (1) To understand how transplant pulmonologists view SPC and decide to refer transplant recipients and (2) to identify unique aspects of lung transplantation that may influence referral decisions. Read More

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http://dx.doi.org/10.1089/jpm.2019.0222DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7232634PMC

Imaging protocols for CT urography: results of a consensus conference from the French Society of Genitourinary Imaging.

Eur Radiol 2020 Mar 17;30(3):1387-1396. Epub 2019 Dec 17.

Faculté de médecine Lyon Est, Université de Lyon, Université Lyon 1, Lyon, France.

Objectives: To develop technical guidelines for computed tomography urography.

Methods: The French Society of Genitourinary Imaging organised a Delphi consensus conference with a two-round Delphi survey followed by a face-to-face meeting. Consensus was strictly defined using a priori criteria. Read More

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http://dx.doi.org/10.1007/s00330-019-06529-6DOI Listing

Their Last Breath: Death and Dying in a Hmong American Community.

J Hosp Palliat Nurs 2020 Feb;22(1):68-74

Deborah Helsel, PhD, RN, is associate professor, Department of Sociology, Fresno State University, California. Kao Shoua Thao, MSW, is not affiliated with any institution as of this time. Robin Whitney PhD, RN, is assistant professor, Valley Foundation School of Nursing, San Jose State University, California.

Hmong Americans have typically been unwilling to use biomedical palliative care for end-of-life needs. This has resulted in confusion and frustration for Hmong patients, families, and nurses. Hmongs' end-of-life care choices for family members usually involve in-home caregiving provided by the family using a combination of biomedicine and traditional healing methods. Read More

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http://dx.doi.org/10.1097/NJH.0000000000000616DOI Listing
February 2020

Advance care planning in Parkinson's disease: ethical challenges and future directions.

NPJ Parkinsons Dis 2019 22;5:24. Epub 2019 Nov 22.

14Interdepartmental Neuroscience Program, Northwestern University, Evanston, IL USA.

Recent discoveries support the principle that palliative care may improve the quality of life of patients with Parkinson's disease and those who care for them. Advance care planning, a component of palliative care, provides a vehicle through which patients, families, and clinicians can collaborate to identify values, goals, and preferences early, as well as throughout the disease trajectory, to facilitate care concordant with patient wishes. While research on this topic is abundant in other life-limiting disorders, particularly in oncology, there is a paucity of data in Parkinson's disease and related neurological disorders. Read More

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http://dx.doi.org/10.1038/s41531-019-0098-0DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6874532PMC
November 2019

Prevalence and Predictors of Burnout Among Hospice and Palliative Care Clinicians in the U.S.

J Pain Symptom Manage 2020 May 26;59(5):e6-e13. Epub 2019 Nov 26.

University of Kansas, Kansas City, Kansas, USA.

Context: Many clinical disciplines report high rates of burnout, which leads to low quality of care. Palliative care clinicians routinely manage patients with significant suffering, aiming to improve quality of life. As a major role of palliative care clinicians involves educating patients and caregivers regarding identifying priorities and balancing stress, we wondered how clinician self-management of burnout matches against the emotionally exhaustive nature of the work. Read More

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http://dx.doi.org/10.1016/j.jpainsymman.2019.11.017DOI Listing

Opportunities for Palliative Care in Patients With Burn Injury-A Systematic Review.

J Pain Symptom Manage 2020 Apr 24;59(4):916-931.e1. Epub 2019 Nov 24.

Departments of Medicine & Anesthesiology, Stanford University, Stanford, California, USA.

Context: Patients with significant burn injuries likely have palliative care needs.

Objectives: We performed a systematic review of existing evidence concerning the palliative care needs of burn patients.

Methods: Through November 26, 2018, we systematically searched PubMed, CINAHL, Embase, Web of Science, and Scopus, using terms representing burn injuries and the eight domains of quality palliative care as outlined by the National Consensus Project for Quality Palliative Care. Read More

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http://dx.doi.org/10.1016/j.jpainsymman.2019.11.014DOI Listing

Race, Ethnicity, and Other Risks for Live Discharge Among Hospice Patients with Dementia.

J Am Geriatr Soc 2020 Mar 21;68(3):551-558. Epub 2019 Nov 21.

Weill Cornell Medicine, New York, New York.

Objectives: The end-of-life trajectory for persons with dementia is often protracted and difficult to predict, placing these individuals at heightened risk of live discharge from hospice. Risks for live discharge due to condition stabilization or failure to decline among patients with dementia are not well established. Our aim was to identify demographic, health, and hospice service factors associated with live discharge due to condition stabilization or failure to decline among hospice patients with dementia. Read More

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http://dx.doi.org/10.1111/jgs.16242DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7056492PMC
March 2020
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Reflections of Healthcare Experiences of African Americans With Sickle Cell Disease or Cancer: A Qualitative Study.

Cancer Nurs 2019 Oct 18. Epub 2019 Oct 18.

Authors Affiliations: Department of Biobehavioral Nursing Science, College of Nursing, University of Florida, Gainesville (Drs Dyal, Duckworth, Yao, Wilkie, and Ezenwa and Mss Abudawood, Schoppee, Jean, Smith, Greenlee, and Staton); King Saud bin Abdulaziz University for Health Sciences Scholar, Jeddah, Saudi Arabia (Ms Abudawood); and Community Hospice and Palliative Care, Jacksonville (Ms Schoppee); and Center for Palliative Care Research & Education (Drs Wilkie, Ezenwa, Yao, Duckworth, Dyal, Black, and Mandernach and Mss Schoppee, Jean, Smith, Greenlee, and Staton) and Division of Hematology/Oncology, Department of Pediatrics (Dr Black), and Department of Medicine (Drs Heldermon and Mandernach), College of Medicine, University of Florida, Gainesville.

Background: The experiences of African American adult patients before, during, and after acute care utilization are not well characterized for individuals with sickle cell disease (SCD) or cancer.

Objective: To describe the experiences of African Americans with SCD or cancer before, during, and after hospitalization for pain control.

Methods: We conducted a qualitative study among African American participants with SCD (n = 15; 11 male; mean age, 32. Read More

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http://dx.doi.org/10.1097/NCC.0000000000000750DOI Listing
October 2019

Community resource referral needs among African American dementia caregivers in an urban community: a qualitative study.

BMC Geriatr 2019 11 14;19(1):311. Epub 2019 Nov 14.

Departments of Obstetrics and Gynecology and Medicine-Geriatrics, The University of Chicago, Chicago, USA.

Background: African American caregivers of community-residing persons with dementia are mostly unpaid and have high rates of unmet basic and health needs. The National Alzheimer's Project Act (NAPA) mandates improved coordination of care for persons with dementia and calls for special attention to racial populations at higher risk for Alzheimer's Disease or related dementias (ADRD) to decrease health disparities. The purpose of this study is to describe the perceptions of African American caregivers of people with dementia about community resources needed to support caregiving as well as their own self-care. Read More

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http://dx.doi.org/10.1186/s12877-019-1341-6DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6857299PMC
November 2019

Rationale and design of a navigator-driven remote optimization of guideline-directed medical therapy in patients with heart failure with reduced ejection fraction.

Clin Cardiol 2020 Jan 14;43(1):4-13. Epub 2019 Nov 14.

Cardiovascular Division, Brigham and Women's Hospital, Boston, Massachusetts.

Although optimal pharmacological therapy for heart failure with reduced ejection fraction (HFrEF) is carefully scripted by treatment guidelines, many eligible patients are not treated with guideline-directed medical therapy (GDMT) in clinical practice. We designed a strategy for remote optimization of GDMT on a population scale in patients with HFrEF leveraging nonphysician providers. An electronic health record-based algorithm was used to identify a cohort of patients with a diagnosis of heart failure (HF) and ejection fraction (EF) ≤ 40% receiving longitudinal follow-up at our center. Read More

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http://dx.doi.org/10.1002/clc.23291DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6954374PMC
January 2020

Advertising hospice care services.

Authors:
Outi J Hakola

Death Stud 2019 Nov 8:1-9. Epub 2019 Nov 8.

Department of Cultures, University of Helsinki, Helsinki, Finland.

Many hospices advertise their services, yet the audience may frown upon the commercialization of death. Because research has ignored the content of hospice advertising, I analyzed quantitatively and qualitatively the content of 105 American television commercials. The hospices used four major solutions to invite positive readings. Read More

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http://dx.doi.org/10.1080/07481187.2019.1686089DOI Listing
November 2019

Interstitial Pneumonia With Autoimmune Features (IPAF).

Front Med (Lausanne) 2019 27;6:209. Epub 2019 Sep 27.

Department of Respiratory Medicine, National Reference Center for Rare Pulmonary Diseases, Hospices Civils de Lyon, Lyon, France.

A significant proportion of patients with interstitial lung disease (ILD) manifest autoimmune features, but do not fulfill the diagnostic criteria for a definite connective tissue disease (CTD). In 2015, the European Respiratory Society (ERS) and American Thoracic Society (ATS) "Task Force on undifferentiated Forms of connective tissue disease-associated interstitial lung disease" proposed classification criteria for a so-called research category of Interstitial Pneumonia with Autoimmune Features (IPAF). These classification criteria were based on a combination of features from three domains: a clinical domain consisting of extra-thoracic features; a serologic domain with specific autoantibodies; and a morphologic domain with imaging patterns, histopathological findings or multi-compartment involvement. Read More

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http://dx.doi.org/10.3389/fmed.2019.00209DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6798044PMC
September 2019
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Effectiveness and Safety of the Combined Use of Tranexamic Acid: A Comparative Observational Study of 1909 Cases.

Indian J Orthop 2019 Nov-Dec;53(6):708-713

Department of Anesthesiology, Centre Hospitalier Lyon Sud, Hospices Civils de Lyon, Lyon, France.

Background: Tranexamic acid (TA) use in lower-limb arthroplasty has been valued in these surgeries high-risk hemorrhagic due to its antifibrinolytic action. The objective of the present study was to determine the effectiveness of the combined intravenous (IV) and intraarticular (IA) administration of TA in lower-limb arthroplasty.

Methods: We conduct a prospective observational study between January 1, 2014, and December 31, 2017, including all programmed lower-limb arthroplasties. Read More

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http://dx.doi.org/10.4103/ortho.IJOrtho_148_19DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6804382PMC
November 2019

Management of patients with metastatic colorectal cancer in Lebanese hospitals and associated direct cost: a multicentre cohort study.

East Mediterr Health J 2019 Oct 4;25(7):481-494. Epub 2019 Oct 4.

Université Claude Bernard Lyon 1, Lyon, France.

Background: For metastatic colorectal cancer a series of novel therapies has emerged during the last decade but their use in routine clinical practice and their costs are not well documented.

Aims: This study evaluated the clinical effectiveness of metastatic colorectal cancer patients in Lebanese oncologic units and estimated the costs.

Methods: A prospective cohort study was conducted on metastatic colorectal cancer patients during 2008-2013. Read More

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http://dx.doi.org/10.26719/emhj.18.063DOI Listing
October 2019
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