Int J Dermatol 2020 May 24;59(5):e151-e153. Epub 2019 Oct 24.
Department of Dermatology and Venereology, Vitebsk State Medical University, Vitebsk, Belarus.
Int J Environ Res Public Health 2021 06 6;18(11). Epub 2021 Jun 6.
European Hidradenitis Suppurativa Foundation e.V., 06847 Dessau, Germany.
Knowledge on hidradenitis suppurativa/acne inversa (HS) is rapidly increasing. HS has a profound impact on patients and their family life. Several factors, such as comorbidities, unemployment and HS severity, make this impact even more severe. Read More
J Eur Acad Dermatol Venereol 2021 Aug 9;35(8):1614-1621. Epub 2021 Jun 9.
Department of Dermatology, Venereology and Allergology, Wroclaw Medical University, Wroclaw, Poland.
New treatment options may lead to an increased interest in using reliable and sensitive instruments to assess health-related quality of life in people with alopecia areata (AA). The purpose of this paper is to present current knowledge about quality of life assessment in AA. The dermatology-specific Dermatology Life Quality Index (DLQI) was the most widely reported health-related quality of life instrument used in AA. Read More
J Eur Acad Dermatol Venereol 2021 Feb 23;35(2):318-328. Epub 2020 Oct 23.
Department of Dermatology, University Hospital Erasme, Brussels, Belgium.
The pharmaceutical approach to skin disease has been hugely successful, but despite effective drugs being available and used, there are still vast numbers of people who continue to have some level of persisting skin disease and continue to experience quality of life (QoL) impairment. So the question that needs to be answered, while we await further advances in our drug-based armamentarium, is how can we improve patients' QoL, beyond drugs? A working group was formed from members of the EADV Task Force on QoL and Patient Oriented Outcomes. Participants were asked to suggest all the ways in which they considered patients' QoL may be improved beyond medicines. Read More
J Eur Acad Dermatol Venereol 2021 Mar 24;35(3):e208-e209. Epub 2020 Sep 24.
Department of Dermatology, Venereology and Allergology, Wrocław Medical University, Wrocław, Poland.
Dermatol Ther 2020 11 7;33(6):e14128. Epub 2020 Sep 7.
Clinical Epidemiology Unit, IDI-IRCCS, Rome, Italy.
Children with epidermolysis bullosa (EB) experienced the highest quality of life impact among several skin conditions and have problems which had not been reported by parents of children with other skin diseases. The EB-specific module of the Infants and Toddlers Dermatology Quality of Life (InToDermQoL) questionnaire was recently developed to measure the impact of disease-specific aspects in children from birth to the age of 4 years. The aim of this study was initial validation of the InToDermQoL-EB questionnaire. Read More