The Social and Emotional Impact of Involving Individuals With Mental Illness in the Research Process.

Authors:
Aliza Werner-Seidler
Aliza Werner-Seidler
School of Psychology
Australia
Frances Shaw
Frances Shaw
University of Manchester
United Kingdom

Qual Health Res 2019 Apr 19:1049732319837232. Epub 2019 Apr 19.

1 Black Dog Institute, The University of New South Wales, Randwick, New South Wales, Australia.

There is a need to involve individuals with a lived experience in health and medical research. Some organizations have developed mechanisms to seek the input of people with a lived experience. However, there are few examples of qualitative research into the impacts of participation. In this study, we investigate the social and emotional impact of participation on individuals, as well as the perceived impact on the organization, in an advisory panel at an Australian mental health research institute. In-depth qualitative interviews were conducted with 50% of the participants on the panel to understand how they conceptualized their involvement. Participants became invested in the organization and their role within it, and found it personally valuable to access diverse perspectives and discuss mental health outside a treatment context. These findings suggest that participating in the research process is beneficial to individuals with a lived experience of mental illness.

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Source
http://dx.doi.org/10.1177/1049732319837232DOI Listing
April 2019

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