Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes: results of an expert group meeting organized by the World Health Organization (WHO) and the European Society for Clinical and Economic Aspects of Osteoporosis, Osteoarthritis and Musculoskeletal Diseases (ESCEO).

Authors:
Maarten de Wit
Maarten de Wit
University of the West of England
United Kingdom
Cyrus Cooper
Cyrus Cooper
University of Southampton
Highfield | United Kingdom
Peter Tugwell
Peter Tugwell
University of Ottawa
Canada
Nathalie Bere
Nathalie Bere
European Medicines Agency
John Kirwan
John Kirwan
Cleveland Clinic
United States
Philip G Conaghan
Philip G Conaghan
University of Leeds
United Kingdom
Charlotte Roberts
Charlotte Roberts
Durham University
Durham | United Kingdom
Isabelle Aujoulat
Isabelle Aujoulat
Université Catholique de Louvain
Belgium

Aging Clin Exp Res 2019 Apr 16. Epub 2019 Apr 16.

WHO Collaborating Centre for Public Health Aspects of Musculoskeletal Health and Aging, Liège, Belgium.

There is increasing emphasis on patient-centred research to support the development, approval and reimbursement of health interventions that best meet patients' needs. However, there is currently little guidance on how meaningful patient engagement may be achieved. An expert working group, representing a wide range of stakeholders and disciplines, was convened by the European Society for Clinical and Economic Aspects of Osteoporosis, Osteoarthritis and Musculoskeletal Diseases (ESCEO) and the World Health Organization (WHO). Through a structured, collaborative process the group generated practical guidance to facilitate optimal patient engagement in clinical development and regulatory decisions. Patient engagement is a relational process. The principles outlined in this report were based on lessons learned through applied experience and on an extensive dialogue among the expert participants. This practice guidance forms a starting point from which tailoring of the approach to suit different chronic diseases may be undertaken.

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http://dx.doi.org/10.1007/s40520-019-01193-8DOI Listing
April 2019
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