Patient-powered research networks: building capacity for conducting patient-centered clinical outcomes research.

Authors:

J Am Med Inform Assoc 2014 Jul-Aug;21(4):583-6. Epub 2014 May 12.

Patient-Centered Outcomes Research Institute, Washington, DC, USA.

The Patient-Centered Outcomes Research Institute (PCORI) recently launched PCORnet to establish a single inter-operable multicenter data research network that will support observational research and randomized clinical trials. This paper provides an overview of the patient-powered research networks (PPRNs), networks of patient organizations focused on a particular health condition that are interested in sharing health information and engaging in research. PPRNs will build on their foundation of trust within the patient communities and draw on their expertise, working with participants to identify true patient-centered outcomes and direct a patient-centered research agenda. The PPRNs will overcome common challenges including enrolling a diverse and representative patient population; engaging patients in governance; designing the data infrastructure; sharing data securely while protecting privacy; prioritizing research questions; scaling small networks into a larger network; and identifying pathways to sustainability. PCORnet will be the first distributed research network to bring PCOR to national scale.

Download full-text PDF

Source
http://dx.doi.org/10.1136/amiajnl-2014-002758DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4078295PMC
August 2014
27 Reads

Publication Analysis

Top Keywords

patient-centered outcomes
8
patient-powered networks
8
pprns will
8
sharing health
4
enrolling diverse
4
including enrolling
4
interested sharing
4
engaging pprns
4
data securely
4
will build
4
networks larger
4
condition interested
4
health engaging
4
health condition
4
diverse representative
4
patient organizations
4
networks patient
4
pprns networks
4
networks pprns
4
network identifying
4

Similar Publications