Epilepsia 2010 May 7;51(5):777-82. Epub 2010 Jan 7.
Department of Paediatric Neurology, The Leeds Teaching Hospitals NHS Trust, UK.
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Epilepsy Behav 2017 02 11;67:33-38. Epub 2017 Jan 11.
Department of Health Sciences, University of Milan, Milan, Italy; ASST S. Paolo and S. Carlo Hospital, Via A. Di Rudinì, 8-20142 Milan, Italy.
Background And Objectives: Although there has recently been significant debate regarding the importance of disclosing the risk of SUDEP, professional societies and clinical practice guidelines currently recommend that the risk of SUDEP be disclosed as part of a comprehensive epilepsy education program. Therefore, the primary aim of the present study was to examine whether healthcare providers treating pediatric patients with epilepsy in Italy would disclose the risk of SUDEP to the parents of children with epilepsy.
Methods: The present study assessed data from a questionnaire that collected sociodemographic information and clinicians' attitudes towards SUDEP. Read More
Epilepsy Behav 2013 Dec 26;29(3):560-4. Epub 2013 Oct 26.
Department of Pediatrics (Neurology), McMaster University, 1280 Main Street West, Hamilton, Ontario L8S 4K1, Canada. Electronic address:
Purpose: Our objective was to understand the range of parental views on whether and how to approach the issue of SUDEP with families, to clarify the optimal timing and formulation of the information, and to learn from parents the optimal counseling strategies in order to minimize the inherent emotional burden.
Methods: The principles of fundamental qualitative description were used to guide this descriptive and exploratory study of parental experiences and perceptions. Stratified purposeful sampling included parents (i) who lost children to SUDEP, (ii) of children with moderate to severe epilepsy, (iii) of children with mild epilepsy, and (iv) of children with new-onset epilepsy. Read More
Epilepsy Behav 2017 10 12;75:6-12. Epub 2017 Aug 12.
Division of Paediatric Neurology, Department of Paediatrics, University of Malaya, Kuala Lumpur, Malaysia.
Sudden unexpected death in epilepsy (SUDEP) is an important cause of mortality in epilepsy. To date, there is only one published UK study evaluating information provision of SUDEP among parents of children with epilepsy (CWE), and there are no studies published from Asia. Although SUDEP information provision is recommended among parents of CWE, it is uncertain if these recommendations are applicable to Asian countries due to the different cultural attitude towards epilepsy. Read More