Victoria Hedley

Victoria Hedley

UNVERIFIED PROFILE

Are you Victoria Hedley?   Register this Author

Register author
Victoria Hedley

Victoria Hedley

Publications by authors named "Victoria Hedley"

Are you Victoria Hedley?   Register this Author

5Publications

137Reads

21Profile Views

How the EUCERD Joint Action supported initiatives on Rare Diseases.

Eur J Med Genet 2017 Mar 10;60(3):185-189. Epub 2017 Jan 10.

John Walton Muscular Dystrophy Research Centre, Newcastle University, Newcastle upon Tyne, UK.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.ejmg.2017.01.002DOI Listing
March 2017

Challenges raised by cross-border testing of rare diseases in the European union.

Eur J Hum Genet 2016 11 6;24(11):1547-1552. Epub 2016 Jul 6.

National Institute for Health and Welfare, Helsinki, Finland.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1038/ejhg.2016.70DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5110067PMC
November 2016

The context for the thematic grouping of rare diseases to facilitate the establishment of European Reference Networks.

Orphanet J Rare Dis 2016 Feb 24;11:17. Epub 2016 Feb 24.

John Walton Muscular Dystrophy Research Centre and MRC Centre for Neuromuscular Diseases, Institute of Genetic Medicine, Newcastle University, Newcastle upon Tyne, NE1 3BZ, UK.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1186/s13023-016-0398-yDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4765230PMC
February 2016