Tania Bubela

Tania Bubela

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Tania Bubela

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Recommendations for Regulating the Environmental Risk of Shedding for Gene Therapy and Oncolytic Viruses in Canada.

Front Med (Lausanne) 2019 28;6:58. Epub 2019 Mar 28.

Arthritis Program, Krembil Research Institute, University Health Network, Toronto, ON, Canada.

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https://www.frontiersin.org/article/10.3389/fmed.2019.00058/
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http://dx.doi.org/10.3389/fmed.2019.00058DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6447701PMC
March 2019

Medical Information Commons to Support Learning Healthcare Systems: Examples From Canada.

J Law Med Ethics 2019 Mar;47(1):97-105

Tania Bubela, Ph.D., J.D., F.C.A.H.S., is an expert in health and intellectual property law and policy, combining her training in genetics (Ph.D. Biology, University of Sydney) and law (Gold medalist, University of Alberta). She is the Dean of Faculty of Health Sciences at Simon Fraser University (Burnaby, British Columbia), developing sector-leading policies, processes, practices, and infrastructure to support excellence in interdisciplinary education, research, and engagement that will improve health, health equity, and well-being. Shelagh K. Genuis, Ph.D., is the project manager for the Genome Canada's Precision Medicine Policy Network, based in the Faculty of Medicine and Dentistry at the University of Alberta, Alberta. Naveed Z. Janjua, M.D., Ph.D., is a Senior Scientist at the BC Centre for Disease Control and Clinical Associate Professor at School of Population and Public Health, University of British Columbia. Mel Krajden, M.D., F.R.C.P.C., is the Director of BC's Public Health Laboratory and the Medical Head, Hepatitis at the British Columbia Centre for Disease Control. He is also a Professor of Pathology and Laboratory Medicine at the University of British Columbia. He has extensive clinical trials expertise and is a Co-investigator/Mentor on the CIHR funded National Research Training Program (CanHepC). Nicole Mittmann, Ph.D., is the Chief Research Officer at CCO. She is an Assistant Professor at the University of Toronto in the Department of Pharmacology and Toxicology and an Associate Scientist at Sunnybrook Health Sciences Centre. Katerina Podolak is the Group Manager for Data Acquisition and Disclosure at Cancer Care Ontario, working with data partners to bring data into CCO, and health system partners who want access to CCO data. Katerina has extensive experience with information management in the hospital setting, as well as Ontario's Ministry of Health and Long-term Care. Larry Svenson, Ph.D., F.R.S.P.H., is the Provincial Health Analytics Officer and Executive Director for Analytics and Performance Reporting at Alberta Health. He is also an Associate Professor with the Division of Preventive Medicine at the University of Alberta and an Adjunct Professor with the School of Public Health at the University of Alberta and the Cumming School of Medicine at the University of Calgary.

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http://dx.doi.org/10.1177/1073110519840488DOI Listing
March 2019

Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons.

J Law Med Ethics 2019 Mar;47(1):12-20

Amy L. McGuire, J.D., Ph.D., is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Dr. McGuire serves on the program committee for the Greenwall Foundation Faculty Scholars Program in Bioethics and is immediate past president of the Association of Bioethics Program Directors. Mary A. Majumder, J.D., Ph.D., is an Associate Professor of Medicine at the Center for Medical Ethics and Health Policy, Baylor College of Medicine. Angela G. Villanueva, M.P.H., is a Research Associate at the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Jessica Bardill, Ph.D., is an Assistant Professor of Indigenous Canadian Literatures and Cultures at Concordia University in Montreal, Quebec. Juli M. Bollinger, M.S., is a Research Associate in the Center for Medical Ethics and Health Policy at the Baylor College of Medicine and a Research Associate and Associate Faculty at the Berman Institute of Bioethics at Johns Hopkins University. Eric Boerwinkle, Ph.D., is the Dean of the University of Texas Health Science Center at Houston, School of Public Health and the Associate Director, Human Genome Sequencing Center at Baylor College of Medicine. Tania Bubela, Ph.D., J.D., is the Dean of the Faculty of Health Sciences at Simon Fraser University and a Fellow of the Canadian Academy of Health Sciences. Patricia Deverka, M.D., M.S., M.B.E., is Director, Value Evidence and Outcomes at Geisinger National Precision Health, where she focuses Outcomes at Geisinger National Precision Health, where she focuses systems and policymakers. Barbara Evans, MS, Ph.D., J.D., LL.M., is the Mary Ann and Lawrence E. Faust Professor of Law and Director of the Center for Biotechnology & Law at the University of Houston Law Center and holds a joint appointment as Professor of Electrical and Computer Engineering at the UH Cullen College of Engineering. Nanibaa' A. Garrison, Ph.D. (Navajo), is an Assistant Professor at the Treuman Katz Center for Pediatric Bioethics at Seattle Children's Hospital and Research Institute and at the Department of Pediatrics at the University of Washington School of Medicine. David Glazer is an engineering director at Verily Life Sciences, where he helps life science organizations use cloud computing to accelerate and scale their work with big data. Melissa M. Goldstein, J.D., is an Associate Professor in the Department of Health Policy and Management at the Milken Institute School of Public Health at the George Washington University. Henry T. Greely, J.D., is the Deane F. and Kate Edelman Johnson Professor of Law and a professor (by courtesy) of Genetics at Stanford University, where he directs the Center for Law and the Biosciences. He is President of the International Neuroethics Society, co-chair of the Neuroethics Work Group of the NIH BRAIN Initiative, and a member of the National Academies' Committee on Science, Technology, and Law. Scott D. Kahn, Ph.D., is the Chief Information Officer at LunaDNA where he is responsible for all informatics and data science strategy. Bartha M. Knoppers, Ph.D., (Comparative Medical Law), is a Full Professor, Canada Research Chair in Law and Medicine and Director of the Centre of Genomics and Policy of the Faculty of Medicine at McGill University. Barbara A. Koenig, Ph.D., is Professor of Bioethics and Medical Anthropology, based at the Institute for Health & Aging, University of California, San Francisco. She also serve as Director of the UCSF Program in Bioethics. J. Mark Lambright, M.B.A., is the Chairman, Trident Advisors, LLC - CEO (Interim), Private Access, Inc. Mark Lambright has been a senior executive of a number of healthcare and technology companies ranging in size from startup to multi-billion in revenue. John Mattison, M.D., is Assistant Medical Director, KP, SCAL, Chief Health Information Officer. Founder of CDA/CCD (XML standard for healthcare interoperability). Co-Editor of Healthcare Information Technology (2017 McGraw Hill). Christopher J. O'Donnell, M.D., M.P.H., is Chief, Cardiology Section and Director, Center for Population Genomics, of the Boston VA Healthcare System and co-Principal Investigator (Chief Scientist) of the national VA Million Veteran Program; and is VA Contact Principal Investigator of the NIH All of Us Research Program. He is also a faculty member of the Department of Medicine, Brigham and Women's Hospital and Associate Professor of Medicine, Harvard Medical School. Arti K. Rai, J.D., is the Elvin R. Latty Professor of Law and co-Director of the Center for Innovation Policy at Duke Law. Laura L. Rodriguez, Ph.D., is the Director of the Division of Policy, Communications, and Education at the National Human Genome Research Institute. Tania Simoncelli, M.S., is the Director of Science Policy at the Chan Zuckerberg Initiative. Formerly Executive Director, Count Me In at the Broad Institute, Assistant Director of Forensic Science and Biomedical Innovation, White House Office of Science & Technology Policy, and Science Advisor to the American Civil Liberties Union. Sharon F. Terry, M.A., is the president and CEO of Genetic Alliance. Adrian Thorogood, B.C.L./LL.B., is a lawyer and Academic Associate at the Centre of Genomics and Policy at McGill University in Montreal, Canada. He manages the Regulatory and Ethics Work Stream of the Global Alliance for Genomics and Health. Michael S. Watson, M.S., Ph.D., is the Executive Director, American College of Medical Genetics and Genomics and ACMG Foundation for Genetic and Genomic Medicine and an Adjunct Professor of Pediatrics at Washington University School of Medicine. John T. Wilbanks is the Chief Commons Officer at Sage Bionetworks, and co-PI on awards for AllofUs Research Program, ELSI Issues in Unregulated Mobile Research, CTSA Center for Data To Health. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University.

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http://dx.doi.org/10.1177/1073110519840480DOI Listing
March 2019

Provenance and risk in transfer of biological materials.

PLoS Biol 2018 08 13;16(8):e2006031. Epub 2018 Aug 13.

Centre for Law and Genetics, Faculty of Law, University of Tasmania, Hobart, Tasmania, Australia.

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http://dx.doi.org/10.1371/journal.pbio.2006031DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6107254PMC
August 2018

Paving the road to personalized medicine: recommendations on regulatory, intellectual property and reimbursement challenges.

J Law Biosci 2017 Dec 1;4(3):453-506. Epub 2017 Nov 1.

School of Public Health, University of Alberta, Edmonton, AB, Canada.

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http://dx.doi.org/10.1093/jlb/lsx030DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5965495PMC
December 2017

Opportunities and challenges for the cellular immunotherapy sector: a global landscape of clinical trials.

Regen Med 2017 09 29;12(6):623-636. Epub 2017 Aug 29.

School of Public Health, University of Alberta, Edmonton, Alberta, Canada.

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http://dx.doi.org/10.2217/rme-2017-0031DOI Listing
September 2017

More Haste, Less Speed: Could Public-Private Partnerships Advance Cellular Immunotherapies?

Front Med (Lausanne) 2017 16;4:134. Epub 2017 Aug 16.

Faculty of Law, McGill University, Montreal, QC, Canada.

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http://dx.doi.org/10.3389/fmed.2017.00134DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5561330PMC
August 2017

Responsible Translation of Stem Cell Research: An Assessment of Clinical Trial Registration and Publications.

Stem Cell Reports 2017 05 13;8(5):1190-1201. Epub 2017 Apr 13.

School of Public Health, Edmonton Clinic Health Academy, University of Alberta, Edmonton, AB T6G 1C9, Canada. Electronic address:

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https://linkinghub.elsevier.com/retrieve/pii/S22136711173011
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http://dx.doi.org/10.1016/j.stemcr.2017.03.013DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5425617PMC
May 2017

The ethics of genome editing in the clinic: A dose of realism for healthcare leaders.

Healthc Manage Forum 2017 May 7;30(3):159-163. Epub 2017 Apr 7.

2 Faculty of Law, University of Tasmania, Hobart, Tasmania, Australia.

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http://dx.doi.org/10.1177/0840470416689313DOI Listing
May 2017

L'éthique de la modification du génome en clinique : une dose de réalisme pour les leaders en santé.

Healthc Manage Forum 2017 May;30(3):164-169

2 Faculté de droit, université de la Tasmanie, Hobart (Tasmanie) Australie.

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http://dx.doi.org/10.1177/0840470417707091DOI Listing
May 2017

Bringing regenerative medicines to the clinic: the future for regulation and reimbursement.

Regen Med 2015 13;10(7):897-911. Epub 2015 Nov 13.

Philip S Orsino Cell Therapy Facility, Princess Margaret Cancer Centre, 610 University Avenue, Suite 5-303, Toronto, ON, M5G 2M9, Canada.

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http://dx.doi.org/10.2217/rme.15.51DOI Listing
September 2016

Choroideremia research: Report and perspectives on the second international scientific symposium for choroideremia.

Ophthalmic Genet 2016 09 8;37(3):267-75. Epub 2016 Feb 8.

a Department of Ophthalmology and Visual Sciences , University of Alberta , Edmonton , Alberta , Canada.

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http://dx.doi.org/10.3109/13816810.2015.1088958DOI Listing
September 2016

DNA barcoding in the media: does coverage of cool science reflect its social context?

Genome 2016 Sep 27;59(9):738-50. Epub 2016 Jul 27.

School of Public Health, University of Alberta, Edmonton, AB, Canada.

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http://dx.doi.org/10.1139/gen-2015-0210DOI Listing
September 2016

Current practices and reform proposals for the regulation of advanced medicinal products in Canada.

Regen Med 2015 ;10(5):647-63

School of Public Health, University of Alberta, Edmonton, AB, Canada.

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https://www.futuremedicine.com/doi/10.2217/rme.15.28
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http://dx.doi.org/10.2217/rme.15.28DOI Listing
May 2016

The mouse that trolled (again).

J Law Biosci 2016 Apr 15;3(1):185-191. Epub 2016 Mar 15.

School of Public Health, University of Alberta, Canada.

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http://dx.doi.org/10.1093/jlb/lsw006DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5033443PMC
April 2016

Cell therapy licensing: a web for the unwary in Kimble v. Marvel Entertainment?

Regen Med 2016 Mar 15;11(2):125-7. Epub 2016 Feb 15.

Faculty of Law, McGill University, 3664 Peel Street, Montreal, QC, H3A 1Y9, Canada.

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http://dx.doi.org/10.2217/rme.15.86DOI Listing
March 2016

Stepping Into and Out of the Void: Funding Dynamics of Human Embryonic Stem Cell Research in California, Sweden, and South Korea.

Stem Cell Rev 2016 Feb;12(1):8-14

School of Public Health, University of Alberta, Edmonton, AB, T6G 1C9, Canada.

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http://dx.doi.org/10.1007/s12015-015-9626-4DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4720698PMC
February 2016

Communicating the promise for ocular gene therapies: challenges and recommendations.

Am J Ophthalmol 2015 Sep 30;160(3):408-415.e2. Epub 2015 May 30.

School of Public Health, Edmonton, Alberta, Canada. Electronic address:

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http://dx.doi.org/10.1016/j.ajo.2015.05.026DOI Listing
September 2015

Drugs: Regulate 'home-brew' opiates.

Nature 2015 May;521(7552):281-3

School of Public Health, University of Alberta, Edmonton, Canada.

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http://dx.doi.org/10.1038/521281aDOI Listing
May 2015

"If they tell me to get it, I'll get it. If they don't...": Immunization decision-making processes of immigrant mothers.

Can J Public Health 2015 Apr 29;106(4):e230-5. Epub 2015 Apr 29.

University of Alberta.

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http://dx.doi.org/10.17269/cjph.106.4803DOI Listing
April 2015

Use and misuse of material transfer agreements: lessons in proportionality from research, repositories, and litigation.

PLoS Biol 2015 Feb 3;13(2):e1002060. Epub 2015 Feb 3.

School of Public Health, University of Alberta, Edmonton, Alberta, Canada.

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http://dx.doi.org/10.1371/journal.pbio.1002060DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4315468PMC
February 2015

Keeping score, strengthening policy and fighting bad actors over access to research tools.

Nat Biotechnol 2015 Feb;33(2):143-7

Sanford School of Public Policy, Duke University, Durham, North Carolina, USA and a Senior Fellow at FasterCures, a Center of the Milken Institute in Washington, DC.

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http://dx.doi.org/10.1038/nbt.3131DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4332873PMC
February 2015

Implementing socially responsible licensing for global health: beyond neglected diseases.

Sci Transl Med 2014 Oct 29;6(260):260cm11. Epub 2014 Oct 29.

School of Public Health, University of Alberta, Edmonton, Alberta T6G 1C9, Canada.

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http://dx.doi.org/10.1126/scitranslmed.3009422DOI Listing
October 2014

Ocular gene transfer in the spotlight: implications of newspaper content for clinical communications.

BMC Med Ethics 2014 Jul 16;15:58. Epub 2014 Jul 16.

Department of Public Health Sciences, School of Public Health, Edmonton Clinic Health Academy, University of Alberta, 11405 87 Ave NW, Edmonton, Alberta, Canada.

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http://dx.doi.org/10.1186/1472-6939-15-58DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4107594PMC
July 2014

Value-engineered translation: developing biotherapeutics that align with health-system needs.

Am J Manag Care 2014 Jul;20(10 Spec No):E3

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July 2014

"Is a cure in my sight?" Multi-stakeholder perspectives on phase I choroideremia gene transfer clinical trials.

Genet Med 2014 May 26;16(5):379-85. Epub 2013 Sep 26.

School of Public Health, University of Alberta, Edmonton Clinic Health Academy, Edmonton, Alberta, Canada.

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http://dx.doi.org/10.1038/gim.2013.148DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4018498PMC
May 2014

Legal agreements and the governance of research commons: lessons from materials sharing in mouse genomics.

OMICS 2014 Apr 19;18(4):254-73. Epub 2014 Feb 19.

School of Public Health, University of Alberta , Edmonton, Alberta, Canada .

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http://dx.doi.org/10.1089/omi.2013.0158DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3976585PMC
April 2014

The global landscape of stem cell clinical trials.

Regen Med 2014 Jan 18;9(1):27-39. Epub 2013 Nov 18.

School of Public Health, 3-279 Edmonton Clinic Health Academy, 11405-87 Ave, University of Alberta, Edmonton, AB, T6G 1C9, Canada.

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http://dx.doi.org/10.2217/rme.13.80DOI Listing
January 2014

When pictures waste a thousand words: analysis of the 2009 H1N1 pandemic on television news.

PLoS One 2013 17;8(5):e64070. Epub 2013 May 17.

Department of Public Health Sciences, School of Public Health, University of Alberta, Edmonton, Canada.

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http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0064070PLOS
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3656930PMC
December 2013

Value-engineered translation for regenerative medicine: meeting the needs of health systems.

Stem Cells Dev 2013 Dec;22 Suppl 1:89-93

1 School of Public Health, University of Alberta , Edmonton, Canada .

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https://www.liebertpub.com/doi/10.1089/scd.2013.0398
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http://dx.doi.org/10.1089/scd.2013.0398DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3883180PMC
December 2013

Patents and misplaced angst: lessons for translational stem cell research from genomics.

Cell Stem Cell 2013 May;12(5):508-12

Johns Hopkins Berman Institute of Bioethics, 1809 Ashland Avenue, Baltimore, MD 21205, USA.

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http://dx.doi.org/10.1016/j.stem.2013.04.015DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3776312PMC
May 2013

Prospects for scaling-up supervised injection facilities in Canada: the role of evidence in legal and political decision-making.

Addiction 2013 Mar 3;108(3):468-76. Epub 2013 Jan 3.

Addiction and Mental Health Research Laboratory, School of Public Health, University of Alberta, Edmonton, AB, Canada.

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http://doi.wiley.com/10.1111/add.12064
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http://dx.doi.org/10.1111/add.12064DOI Listing
March 2013

Patent landscaping for life sciences innovation: toward consistent and transparent practices.

Nat Biotechnol 2013 Mar;31(3):202-6

School of Public Health, University of Alberta, Edmonton, Alberta, Canada.

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http://dx.doi.org/10.1038/nbt.2521DOI Listing
March 2013

Is belief larger than fact: expectations, optimism and reality for translational stem cell research.

BMC Med 2012 Nov 6;10:133. Epub 2012 Nov 6.

Department of Public Health Sciences, School of Public Health, Edmonton Clinic Health Academy, University of Alberta, Edmonton, Alberta, Canada.

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http://dx.doi.org/10.1186/1741-7015-10-133DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3520764PMC
November 2012

Synthetic biology confronts publics and policy makers: challenges for communication, regulation and commercialization.

Trends Biotechnol 2012 Mar 25;30(3):132-7. Epub 2011 Nov 25.

Department of Public Health Sciences, School of Public Health, University of Alberta, Edmonton Clinic Health Academy, 11405-87 Avenue, Edmonton, Alberta, Canada, T6G 1C9.

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http://dx.doi.org/10.1016/j.tibtech.2011.10.003DOI Listing
March 2012

Recalibrating intellectual property rights to enhance translational research collaborations.

Sci Transl Med 2012 Feb;4(122):122cm3

Department of Public Health Sciences, School of Public Health, University of Alberta, Edmonton Clinic Health Academy, 11405 87 Avenue, Edmonton, Alberta, T6G 1C9, Canada.

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http://dx.doi.org/10.1126/scitranslmed.3003490DOI Listing
February 2012

Lost in translation: the Canadian access to medicines regime from transnational activism to domestic implementation.

Health Law J 2010 ;18:113-57

Department of Public Health Sciences, School of Public Health, University of Alberta.

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January 2012

Role and reality: technology transfer at Canadian universities.

Trends Biotechnol 2010 Sep 1;28(9):447-51. Epub 2010 Jul 1.

School of Public Health, Department of Public Health Sciences, 3030 Research Transition Facility, University of Alberta, Edmonton, Alberta, Canada.

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http://dx.doi.org/10.1016/j.tibtech.2010.06.002DOI Listing
September 2010

Commercialization and collaboration: competing policies in publicly funded stem cell research?

Cell Stem Cell 2010 Jul;7(1):25-30

Department of Public Health Sciences, School of Public Health, University of Alberta, Edmonton AB T6G 2G3, Canada.

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http://dx.doi.org/10.1016/j.stem.2010.06.010DOI Listing
July 2010

Post-publication sharing of data and tools.

Nature 2009 Sep;461(7261):171-3

Department of Physiology, Development and Neuroscience, University of Cambridge, Cambridge, CB2 3EG, UK.

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http://dx.doi.org/10.1038/461171aDOI Listing
September 2009

Challenges for intellectual property management of HIV vaccine-related research and development: part 1, the global context.

Health Law J 2008 ;16:55-95

Health Law Institute, University of Alberta, Edmonton, Alberta.

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July 2009

Challenges for intellectual property management of HIV vaccine-related research and development: part 2, the Canadian context.

Health Law J 2008 ;16:97-142

San Patten & Associates, Sackville, New Brunswick.

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July 2009

The Perils of Taking Property Too Far.

Stanf J Law Sci Policy 2009 May;1:46-64

Duke Institute for Genome Sciences and Policy, McGill University Centre for Intellectual Property Policy.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2902196PMC
May 2009

Myriad and the mass media: the covering of a gene patent controversy.

Genet Med 2007 Dec;9(12):850-5

Health Law Institute, University of Alberta, Edmonton, Alberta, Canada.

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http://dx.doi.org/10.1097GIM.0b013e31815bf965DOI Listing
December 2007

Why a criminal ban? Analyzing the arguments against somatic cell nuclear transfer in the Canadian parliamentary debate.

Am J Bioeth 2007 Feb;7(2):51-61

University of Alberta, Edmonton, Alberta, Canada.

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http://dx.doi.org/10.1080/15265160601109655DOI Listing
February 2007

Media portrayal of conflicts of interest in herbal remedy clinical trials.

Health Law Rev 2006 ;15(1):9-11

Health Law Institute, University of Alberta, Edmonton, Alberta, Canada.

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January 2007

Stem cells, politics and the progress paradigm.

Health Law Rev 2006 ;15(1):50-2

Health Law Institute, University of Albert, Edmonton, Alberta, Canada.

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January 2007

Do the print media "hype" genetic research? A comparison of newspaper stories and peer-reviewed research papers.

CMAJ 2004 Apr;170(9):1399-407

Health Law Institute, University of Alberta, Edmonton.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC400292PMC
April 2004