Publications

Stiffness Is the Cardinal Symptom of Inflammatory Musculoskeletal Diseases, Yet Still Variably Measured: Report from the OMERACT 2016 Stiffness Special Interest Group.
J Rheumatol 2017 Dec 15;44(12):1904-1910. Epub 2016 Dec 15.
From the Department of Nursing and Midwifery, University of the West of England; University of Bristol Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol; Leeds Institute of Rheumatic and Musculoskeletal Medicine, Leeds; Department of Rheumatology, Ashford and St. Peter's National Health Service (NHS) Foundation Trust, Chertsey; Patient Research Partner PMR-GCA Scotland, Forest Lodge, Foulden, Berwickshire, UK; Institute of Bone and Joint Research, Kolling Institute, Northern Sydney Local Health District; Department of Rheumatology, Royal North Shore Hospital, New South Wales; University of Sydney, Sydney; Rheumatology Unit, The Queen Elizabeth Hospital, Adelaide; Discipline of Medicine, University of Adelaide, Adelaide, Australia; Division of Clinical Epidemiology, Division of Rheumatology, and Division Respiratory Epidemiology, McGill University/McGill University Health Centers, Montreal, Québec; Patient Research Partner, Toronto Western Hospital, Toronto; Cochrane Musculoskeletal Group, Institute of Population Health, Ottawa, Ontario, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland; University of Illinois-Chicago, Chicago, Illinois; Healthy Motivation and Global Alliance for Musculoskeletal Health the Bone and Joint Decade, Santa Barbara, California, USA; Schlosspark-Klinik, University Medicine Berlin, Berlin, Germany; Horizon Pharma LTD, Dublin, Ireland; Department of Rheumatology and Immunology, Singapore General Hospital, Singapore.


Content and Construct Validity, Reliability, and Responsiveness of the Rheumatoid Arthritis Flare Questionnaire: OMERACT 2016 Workshop Report.
J Rheumatol 2017 Oct 15;44(10):1536-1543. Epub 2017 Aug 15.
From McGill University, Montreal, Quebec; University of British Columbia, Vancouver, British Columbia, Canada; Johns Hopkins University, Baltimore, Maryland; Hospital for Special Surgery, New York, New York; University of California, Los Angeles; Healthy Motivation, Santa Barbara, California, USA; Cardiff University, Cardiff; University of the West of England, Bristol, UK; Schlosspark-Klinik University Medicine, Berlin, Germany; Parker Institute, Copenhagen University, Copenhagen, Denmark; Sint Maartenskliniek, Nijmege; Vrije Universiteit (VU), Amsterdam, the Netherlands; Pierre et Marie Curie University, Paris; University of Lorraine, Lorraine, France; University of Sydney, Sydney, Australia.


Montreal Accord on Patient-Reported Outcomes (PROs) use series - Paper 3: patient-reported outcomes can facilitate shared decision-making and guide self-management.
J Clin Epidemiol 2017 Sep 20;89:125-135. Epub 2017 Apr 20.
School of Physical and Occupational Therapy, McGill University, 3654 Prom Sir-William-Osler, Montreal, Québec, Canada H3G 1Y5; Divisions of Clinical Epidemiology, McGill University Health Center, 687 Pine Avenue W, Montreal, Québec, Canada H3A 1A1; Centre de recherche interdisciplinaire en réadaptation (CRIR), Constance-Lethbridge Rehabilitation Center, 2275 Laurier Ave E, Montreal, Quebec, Canada H2H 2N8.

Montreal Accord on Patient-Reported Outcomes (PROs) use series - Paper 1: introduction.
J Clin Epidemiol 2017 Sep 19;89:114-118. Epub 2017 Apr 19.
Department of Medicine, McGill University/McGill University Health Center (RVH), 687 Pine Ave W R4.29, Montreal, Québec, Canada H3A 1A1; School of Physical and Occupational Therapy, McGill University, 3654 Prom Sir-William-Osler, Montreal, Québec, Canada H3G 1Y5; Centre de recherche interdisciplinaire en réadaptation (CRIR), 2275 Laurier Ave. E, Montreal, Quebec, Canada H2H 2N8.

Montreal Accord on Patient-Reported Outcomes (PROs) use series - Paper 2: terminology proposed to measure what matters in health.
J Clin Epidemiol 2017 Sep 20;89:119-124. Epub 2017 Apr 20.
Department of Medicine, McGill University/McGill University Health Center, 687 Pine Ave W R4.29, Montreal, Quebec, Canada H3A 1A1; Division of Rheumatology, Johns Hopkins School of Medicine, 5200 Eastern Avenue #4100, Baltimore, MD 21224, USA.

Montreal Accord on Patient-Reported Outcomes (PROs) use series - Paper 6: creating national initiatives to support development and use-the PROMIS example.
J Clin Epidemiol 2017 Sep 20;89:148-153. Epub 2017 Apr 20.
Department of Medicine, McGill University/McGill University Health Center, 687 Pine Avenue W R4.29, Montreal, QC, Canada H3A 1A1; School of Physical and Occupational Therapy, McGill University, 3654 Prom Sir-William-Osler, Montreal, QC, Canada H3G 1Y5; Centre de recherche interdisciplinaire en réadaptation (CRIR), 2275 Laurier Ave E, Montreal, Quebec, Canada H2H 2N8.

Montreal Accord on Patient-Reported Outcomes (PROs) use series - Paper 8: patient-reported outcomes in electronic health records can inform clinical and policy decisions.
J Clin Epidemiol 2017 Sep 20;89:160-167. Epub 2017 Apr 20.
Division of Rheumatology, Johns Hopkins School of Medicine, 5200 Eastern Avenue #4100, Baltimore, MD 21224, USA; Department of Medicine, McGill University/McGill University Health Center (RVH), 687 Pine Ave. W., Ross Pavilion R4.29, Montreal, Québec, Canada H3A 1A1.

Montreal Accord on Patient-Reported Outcomes (PROs) use series - Paper 9: anonymization and ethics considerations for capturing and sharing patient reported outcomes.
J Clin Epidemiol 2017 Sep 20;89:168-172. Epub 2017 Apr 20.
Electronic Health Information Laboratory, Children's Hospital of Eastern Ontario Research Institute, 401 Smyth Road, Ottawa, Ontario, Canada K1H 8L1; Department of Pediatrics, Faculty of Medicine, University of Ottawa, 401 Smyth Road, Ottawa, Canada K1H 8L1. Electronic address:

Montreal Accord on Patient-Reported Outcomes (PROs) use series - Paper 4: patient-reported outcomes can inform clinical decision making in chronic care.
J Clin Epidemiol 2017 Sep 20;89:136-141. Epub 2017 Apr 20.
Johns Hopkins Division of Rheumatology, 5200 Eastern Avenue, Mason F. Lord Bldg, Suite 4100, Baltimore, MD 21224, USA; Department of Medicine, McGill University/McGill University Health Center (RVH), 687 Pine Avenue West, Ross Pavilion R4.29, Montreal, Québec, Canada H3A 1A1.

Montreal Accord on Patient-Reported Outcomes (PROs) use series - Paper 5: patient-reported outcomes can be linked to epidemiologic measures to monitor populations and inform public health decisions.
J Clin Epidemiol 2017 Sep 21;89:142-147. Epub 2017 Apr 21.
Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, 1020 Pine Avenue West, Montreal, Quebec, Canada H3A 1A2. Electronic address:



Examination of the association of sex and race/ethnicity with appearance concerns: a Scleroderma Patient-centered Intervention Network (SPIN) Cohort study.
Clin Exp Rheumatol 2016 Sep-Oct;34 Suppl 100(5):92-99. Epub 2016 Aug 1.
Lady Davis Inst.Med.Res, Jewish Gen.Hosp; Depts. Educational & Counselling Psychology, Psychiatry, McGill Univ; Dept.of Medicine, McGill Univ; Depts. Psychology, Epidemiology, Biostats & Occupational Health, School Nursing, McGill Univ, Montreal, Canada.



Feasibility and Domain Validation of Rheumatoid Arthritis (RA) Flare Core Domain Set: Report of the OMERACT 2014 RA Flare Group Plenary.
J Rheumatol 2015 Nov 15;42(11):2185-9. Epub 2015 Feb 15.
From McGill University, Montreal, Quebec, Canada; Johns Hopkins University, Baltimore, Maryland; Hospital for Special Surgery, New York, New York, USA; Swansea University, Swansea; Cardiff University, Cardiff, UK; Schlosspark-Klinik, University Medicine Berlin, Berlin, Germany; The Parker Institute, Copenhagen University Hospital at Frederiksberg, Copenhagen, Denmark; University of California, Los Angeles, California, USA; University of Lorraine, Nancy, France; University of the West of England, Bristol, UK; Healthy Motivation, Santa Barbara, California, USA; University of Sydney, Sydney, Australia; and University of Twente, Enschede, The Netherlands.S.J. Bartlett, PhD, McGill University; and Johns Hopkins University; V.P. Bykerk, MD, Hospital for Special Surgery; R. Cooksey, MSc, Swansea University; E.H. Choy, MD, Cardiff University; R. Alten, Schlosspark-Klinik, University Medicine Berlin; R. Christensen, PhD, Parker Institute, Copenhagen University Hospital at Frederiksberg; D.E. Furst, MD, University of California, Los Angeles; F. Guillemin, MD, PhD, University of Lorraine; S. Halls, MSc; S. Hewlett, PhD, RN, University of the West of England; A.L. Leong, Healthy Motivation; A. Lyddiatt; University of Sydney; L. March, MD, PhD; P. Montie; A.M. Orbai, MD, MHS, Johns Hopkins University; C. Pohl, MD, Schlosspark-Klinik, University Medicine; M. Scholte Voshaar, University of Twente; T.G. Woodworth, MD, University of California, Los Angeles; and C.O. Bingham 3rd, MD, Johns Hopkins University.

Optimal Strategies for Reporting Pain in Clinical Trials and Systematic Reviews: Recommendations from an OMERACT 12 Workshop.
J Rheumatol 2015 Oct 15;42(10):1962-1970. Epub 2015 May 15.
From the Michael G. DeGroote Institute for Pain Research and Care, McMaster University; Department of Anesthesia, McMaster University; Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Ontario; Department of Medicine, McGill University, Divisions of Rheumatology and Clinical Epidemiology, Royal Victoria Hospital, Montreal, Quebec, Canada; Paris Descartes University, APHP Cochin Hospital, Rheumatology Department, Cochin Hospital, INSERM (U1153) Clinical Epidemiology and Biostatistics, PRES Sorbonne Paris-Cité, Paris, France; The Hospital for Sick Children Research Institute, Toronto; Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto; Department of Anesthesia and Pain Medicine, The Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada; University of Bristol Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; University of Pittsburgh and Veterans Affairs (VA) Pittsburgh Healthcare System, Pittsburgh, Pennsylvania, USA; Institute of Population Health, University of Ottawa, Ottawa, Ontario, Canada; Pain Research, University of Oxford, Nuffield Division of Anaesthetics, The Churchill, Oxford, UK; Birmingham VA Medical Center and University of Alabama at Birmingham, Birmingham, Alabama; Inflammation and Immunology Clinical Research, Celgene Corporation, Summit, New Jersey; Department of Medicine, Division of Rheumatology, the State University of New Jersey, New Brunswick, New Jersey; Division of Immunology/Rheumatology, Stanford University, Palo Alto, California; University of Texas MD Anderson Cancer Center, Houston, Texas, USA; Department of Medicine, Faculty of Medicine, Institute of Population Health, University of Ottawa; Ottawa Hospital Research Institute, Clinical Epidemiology Program; Department of Epidemiology and Community Medicine, University of Ottawa, Ottawa, Ontario, Canada.

Yoga in Sedentary Adults with Arthritis: Effects of a Randomized Controlled Pragmatic Trial.
J Rheumatol 2015 Jul 1;42(7):1194-202. Epub 2015 Apr 1.
From the Maryland University of Integrative Health, Laurel; Department of Medicine, and School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA; Division of Clinical Epidemiology, Royal Victoria Hospital, McGill University, Montreal, Quebec, Canada.S.H. Moonaz, PhD, Maryland University of Integrative Health; C.O. Bingham III, MD, Department of Medicine, Division of Rheumatology, Johns Hopkins University; L. Wissow, MD, MPH, School of Public Health, Johns Hopkins University; S.J. Bartlett, PhD, Associate Professor of Medicine, Division of Clinical Epidemiology, Royal Victoria Hospital, McGill University.

Updating the OMERACT filter: implications for patient-reported outcomes.
J Rheumatol 2014 May 1;41(5):1011-5. Epub 2014 Mar 1.
From the University of Bristol, Academic Rheumatology Unit, and the University of the West of England, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Department of Medicine, McGill University, Montreal, Quebec, Canada; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; Department of Occupational Sciences and Occupational Therapy, Institute for Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada; Departments of Epidemiology and Biostatistics, and Rheumatology, and Department of Medical Humanities, VU University Medical Center, Amsterdam, The Netherlands; National Rheumatoid Arthritis Society, Maidenhead, Berkshire, UK; Faculty of Health Sciences, University of Queensland, Royal Brisbane and Women's Hospital, Herston, Brisbane, Australia; Section of Rheumatology, Cardiff University School of Medicine, Cardiff, UK; Université de Lorraine, Université Paris Descartes, Paris, France; Department of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway; Department of Clinical Immunology and Rheumatology, Academic Medical Center, University of Amsterdam and Atrium Medical Center Heerlen, Amsterdam, The Netherlands; Healthy Motivation, Bone and Joint Decade, Santa Barbara, California, USA; Cochrane Musculoskeletal Group, Institute of Population Health, Ottawa, Ontario, Canada; Department of Rheumatology, Royal North Shore Hospital, St. Leonards, New South Wales, Australia; Consumer Advisory Board, Arthritis Research Centre of Canada, Richmond, British Columbia, Canada; UCB Pharma S.A., Brussels, Belgium; Division of Immunology/Rheumatology, Stanford University School of Medicine, Palo Alto, California, USA; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Université Pierre et Marie Curie (UPMC) - Paris 6, GRC-UMPC 08 (EEMOIS); AP-HP Pitié Salpêtrière Hospital, Department of Rheumatology, Paris, France.

Establishing a core domain set to measure rheumatoid arthritis flares: report of the OMERACT 11 RA flare Workshop.
J Rheumatol 2014 Apr 1;41(4):799-809. Epub 2014 Mar 1.
From the Department of Rheumatology, Hospital for Special Surgery, New York, New York, USA; Department of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway; Johns Hopkins University, Baltimore, Maryland, USA; McGill University, Montreal, Quebec, Canada; Schlosspark Klinik, Charité University Medicine, Berlin, Germany; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, Maastricht, The Netherlands; Musculoskeletal Statistics Unit, The Parker Institute, Department of Rheumatology, Copenhagen University Hospital, Bispebjerg and Frederiksberg, Denmark; David Geffen School of Medicine, University of California at Los Angeles, Los Angeles, California, USA; University of the West of England, Bristol, UK; Healthy Motivation, Bone and Joint Decade, Santa Barbara, California, USA; Musculoskeletal Group, Cochrane Collaboration; University of Sydney Department of Rheumatology, Royal North Shore Hospital, St. Leonards, Australia; National Fathers' Network, Seattle, Washington, USA; Arthritis Research Center, Vancouver, British Columbia, Canada; Tools2use.eu, Bussum, The Netherlands; and the Department of Rheumatology, Cardiff University, Cardiff, UK.






Randomized trial of the effect of drug presentation on asthma outcomes: the American Lung Association Asthma Clinical Research Centers.
J Allergy Clin Immunol 2009 Sep 25;124(3):436-44, 444e1-8. Epub 2009 Jul 25.
Division of Pulmonary and Critical Care Medicine, Department of Medicine, the Johns Hopkins University School of Medicine, Baltimore, Md 21224, USA.

Identifying flares in rheumatoid arthritis: reliability and construct validation of the OMERACT RA Flare Core Domain Set.
RMD Open 2016 26;2(1):e000225. Epub 2016 May 26.
Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Divisions of Clinical Epidemiology, Rheumatology, and Respiratory Clinical Trials Unit, McGill University, Montreal, Québec, Canada.

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