Publications by authors named "Stephanie M Fullerton"

81Publications

Clinical Genetics Lacks Standard Definitions and Protocols for the Collection and Use of Diversity Measures.

Am J Hum Genet 2020 07 6;107(1):72-82. Epub 2020 Jun 6.

Stanford Center for Biomedical Ethics, Stanford University School of Medicine, Stanford, CA 94305, USA; Department of Genetics, Stanford University, Stanford, CA 94305, USA.

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http://dx.doi.org/10.1016/j.ajhg.2020.05.005DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7332657PMC
July 2020

Diversity and Inclusion in Unregulated mHealth Research: Addressing the Risks.

J Law Med Ethics 2020 03;48(1_suppl):115-121

Shawneequa Callier, M.A., J.D., is an Associate Professor of Clinical Research and Leadership in the Department of Clinical Research and Leadership at the School of Medicine and Health Sciences at The George Washington University in Washington, D.C. She is also a Special Volunteer at the Center for Research on Genomics and Global Health, National Human Genome Research Institute, National Institutes of Health. Stephanie M. Fullerton, D.Phil., is a Professor in the Department of Bioethics and Humanities at the University of Washington School of Medicine in Seattle, WA.

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http://dx.doi.org/10.1177/1073110520917036DOI Listing
March 2020

Third-Party Genetic Interpretation Tools: A Mixed-Methods Study of Consumer Motivation and Behavior.

Am J Hum Genet 2019 07 13;105(1):122-131. Epub 2019 Jun 13.

Department of Bioethics and Humanities, University of Washington School of Medicine, Seattle, WA 98195, USA.

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http://dx.doi.org/10.1016/j.ajhg.2019.05.014DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6612532PMC
July 2019

Ethics of inclusion: Cultivate trust in precision medicine.

Science 2019 Jun;364(6444):941-942

Department of Social and Behavioral Sciences, University of California, San Francisco, CA, USA.

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http://dx.doi.org/10.1126/science.aaw8299DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7261394PMC
June 2019

The Feelings About genomiC Testing Results (FACToR) Questionnaire: Development and Preliminary Validation.

J Genet Couns 2019 04 14;28(2):477-490. Epub 2018 Dec 14.

Department of Health Services, School of Public Health, University of Washington, Box 357660, Seattle, WA, 98195-7660, USA.

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http://dx.doi.org/10.1007/s10897-018-0286-9DOI Listing
April 2019

Practice Implications of Expanded Genetic Testing in Oncology.

Cancer Invest 2019 24;37(1):39-45. Epub 2019 Jan 24.

d Bioethics and Humanities , University of Washington , Seattle , WA , USA.

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http://dx.doi.org/10.1080/07357907.2018.1564926DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6410730PMC
March 2019

Cumulative Antidepressant Use and Risk of Dementia in a Prospective Cohort Study.

J Am Geriatr Soc 2018 10 17;66(10):1948-1955. Epub 2018 Sep 17.

Kaiser Permanente Washington Health Research Institute, Seattle, Washington.

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http://dx.doi.org/10.1111/jgs.15508DOI Listing
October 2018

Informed Consent in Translational Genomics: Insufficient Without Trustworthy Governance.

J Law Med Ethics 2018 03 27;46(1):79-86. Epub 2018 Mar 27.

Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, 2525 West End Aves, Suite 400, Nashville TN 37203; Work phone: 615-936-2686.

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http://dx.doi.org/10.1177/1073110518766023DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6023399PMC
March 2018

Hereditary cancer gene panel test reports: wide heterogeneity suggests need for standardization.

Genet Med 2018 11 1;20(11):1438-1445. Epub 2018 Mar 1.

Department of Bioethics and Humanities, University of Washington, Seattle, Washington, USA.

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http://dx.doi.org/10.1038/gim.2018.23DOI Listing
November 2018

"Bridge to the Literature"? Third-Party Genetic Interpretation Tools and the Views of Tool Developers.

J Genet Couns 2018 08 7;27(4):770-781. Epub 2018 Feb 7.

Department of Bioethics & Humanities, University of Washington, Seattle, WA, USA.

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http://dx.doi.org/10.1007/s10897-018-0217-9DOI Listing
August 2018

Discordance in selected designee for return of genomic findings in the event of participant death and estate executor.

Mol Genet Genomic Med 2017 Mar 16;5(2):172-176. Epub 2017 Jan 16.

Division of Medical GeneticsUniversity of WashingtonSeattleWashington; Department of Genome SciencesUniversity of WashingtonSeattleWashington.

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http://doi.wiley.com/10.1002/mgg3.274
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http://dx.doi.org/10.1002/mgg3.274DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5370224PMC
March 2017

Patient safety in genomic medicine: an exploratory study.

Genet Med 2016 11 24;18(11):1136-1142. Epub 2016 Mar 24.

Bioethics and Humanities, University of Washington, Seattle, Washington, USA.

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http://dx.doi.org/10.1038/gim.2016.16DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5035552PMC
November 2016

Genomics is failing on diversity.

Nature 2016 10;538(7624):161-164

University of Washington, Seattle, USA.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5089703PMC
http://dx.doi.org/10.1038/538161aDOI Listing
October 2016

Allocation of Resources to Communication of Research Result Summaries.

J Empir Res Hum Res Ethics 2016 10 19;11(4):364-369. Epub 2016 Sep 19.

2 University of Washington, Seattle, USA.

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http://dx.doi.org/10.1177/1556264616667126DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5334211PMC
October 2016

Using Genetic Technologies To Reduce, Rather Than Widen, Health Disparities.

Health Aff (Millwood) 2016 08;35(8):1367-73

José M. Ordovás is director of the Nutrition and Genomics Laboratory at the Jean Mayer USDA Human Nutrition Research Center on Aging at Tufts University.

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http://dx.doi.org/10.1377/hlthaff.2015.1476DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5100696PMC
August 2016

Patients' Choices for Return of Exome Sequencing Results to Relatives in the Event of Their Death.

J Law Med Ethics 2015 ;43(3):476-85

Head of the Division of Medical Genetics and holds the Arno G. Motulsky Chair of Medicine at the University of Washington, Seattle, where she is a Professor of Medicine (Medical Genetics) and Genome Sciences. She received her Ph.D. in Human Genetics at the University of Michigan and her M.D. at the University of Iowa in the Medical Scientists Training Program. She completed her residency in Internal Medicine at the Hospital of the University of Pennsylvania and her fellowship in Medical Genetics at the University of Washington.

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http://dx.doi.org/10.1111/jlme.12290DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4617192PMC
January 2017

Looking for Trouble and Finding It.

Am J Bioeth 2015 ;15(7):15-7

a University of Washington.

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http://dx.doi.org/10.1080/15265161.2015.1039731DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4526022PMC
February 2016

"Getting off the Bus Closer to Your Destination": Patients' Views about Pharmacogenetic Testing.

Perm J 2015 1;19(3):21-7. Epub 2015 Jun 1.

Executive Director and Senior Investigator at the Group Health Research Institute in Seattle, WA.

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http://dx.doi.org/10.7812/TPP/15-046DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4500477PMC
April 2016

Actionable exomic incidental findings in 6503 participants: challenges of variant classification.

Genome Res 2015 Mar 30;25(3):305-15. Epub 2015 Jan 30.

Department of Medicine, Division of Medical Genetics, University of Washington, Seattle, Washington 98195, USA; Department of Genome Sciences, University of Washington, Seattle, Washington 98195, USA;

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http://dx.doi.org/10.1101/gr.183483.114DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4352885PMC
March 2015

Returning pleiotropic results from genetic testing to patients and research participants.

JAMA 2014 Feb;311(8):795-6

Public Health Sciences, Fred Hutchinson Cancer Research Center, Seattle, Washington3Department of Bioethics and Humanities, School of Medicine, University of Washington, Seattle.

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http://dx.doi.org/10.1001/jama.2014.369DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3976043PMC
February 2014

Forensic familial searching: scientific and social implications.

Nat Rev Genet 2013 Jul;14(7):445

Stanford Center for Biomedical Ethics, Stanford University School of Medicine, Stanford, California 94305, USA.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3744325PMC
http://dx.doi.org/10.1038/nrg3519DOI Listing
July 2013

Using genetically informed, randomized prevention trials to test etiological hypotheses about child and adolescent drug use and psychopathology.

Am J Public Health 2013 Oct 8;103 Suppl 1:S19-24. Epub 2013 Aug 8.

Gene H. Brody and Steven R. H. Beach are with the Center for Family Research, University of Georgia, Athens. Karl G. Hill is with the School of Social Work, University of Washington, Seattle. George W. Howe is with the Department of Psychology, George Washington University, Washington, DC. Guillermo Prado is with the Department of Epidemiology and Public Health, University of Miami, Miami, FL. Stephanie M. Fullerton is with the Department of Bioethics and Humanities, University of Washington.

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http://dx.doi.org/10.2105/AJPH.2012.301080DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3783004PMC
October 2013

Transdisciplinary approaches to understanding and eliminating ethnic health disparities: are we on the right track?

Ethn Dis 2012 ;22(4):504-8

Ethics & Policy Core, Partnership to Understand and Eliminate Disparate Outcomes for Latinas, Fred Hutchinson Cancer Research Center, Seattle, WA, USA.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3519365PMC
December 2012

Recommendations for ethical approaches to genotype-driven research recruitment.

Hum Genet 2012 Sep 24;131(9):1423-31. Epub 2012 May 24.

Duke Institute for Genome Sciences and Policy, Duke University, Durham, NC 27708, USA.

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http://dx.doi.org/10.1007/s00439-012-1177-zDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3686635PMC
September 2012

Research guidelines in the era of large-scale collaborations: an analysis of Genome-wide Association Study Consortia.

Am J Epidemiol 2012 May 5;175(9):962-9. Epub 2012 Apr 5.

Department of Epidemiology, School of Public Health, University of Washington, Seattle, USA.

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http://dx.doi.org/10.1093/aje/kwr441DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3339312PMC
May 2012

Offering aggregate results to participants in genomic research: opportunities and challenges.

Genet Med 2012 Apr 26;14(4):490-6. Epub 2012 Jan 26.

Center for Genome Ethics, Law, and Policy, Duke Institute for Genome Sciences and Policy, Durham, North Carolina, USA.

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http://www.nature.com/articles/gim201162
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http://dx.doi.org/10.1038/gim.2011.62DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3612423PMC
April 2012

Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment.

J Empir Res Hum Res Ethics 2011 Dec;6(4):41-52

Seattle Children's Research Institute University of Washington, Treuman Katz Center for Pediatric Bioethics, 1900 Ninth Ave., Seattle, WA 98101, USA.

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http://dx.doi.org/10.1525/jer.2011.6.4.41DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3426316PMC
December 2011

What are our AIMs? Interdisciplinary Perspectives on the Use of Ancestry Estimation in Disease Research.

AJOB Prim Res 2012 ;3(4):87-97

Associate Professor, University of Washington - Bioethics & Humanities, Seattle, WA,

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http://dx.doi.org/10.1080/21507716.2012.717339DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4238888PMC
January 2012

dbGaP data access requests: a call for greater transparency.

Sci Transl Med 2011 Dec;3(113):113cm34

Institute for Public Health Genetics, University of Washington, Seattle, WA 98195, USA.

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http://dx.doi.org/10.1126/scitranslmed.3002788DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3432400PMC
December 2011

Secondary uses and the governance of de-identified data: lessons from the human genome diversity panel.

BMC Med Ethics 2011 Sep 26;12:16. Epub 2011 Sep 26.

Department of Bioethics & Humanities, University of Washington School of Medicine, Seattle, 98195, USA.

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http://dx.doi.org/10.1186/1472-6939-12-16DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3195203PMC
September 2011

Genomic research and wide data sharing: views of prospective participants.

Genet Med 2010 Aug;12(8):486-95

Department of Bioethics & Humanities, University of Washington, Seattle, WA 98195-7120, USA.

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http://dx.doi.org/10.1097/GIM.0b013e3181e38f9eDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3045967PMC
August 2010

Population description and its role in the interpretation of genetic association.

Hum Genet 2010 Mar 16;127(5):563-72. Epub 2010 Feb 16.

Department of Bioethics and Humanities, Center for Genomics and Healthcare Equality, University of Washington School of Medicine, Box 357120, Seattle, WA 98195, USA.

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http://dx.doi.org/10.1007/s00439-010-0800-0DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2864578PMC
March 2010

SPANX gene variation in fertile and infertile males.

Syst Biol Reprod Med 2010 Feb;55:18-26

Institute of Public Health Genetics, University of Washington, Seattle, WA, USA.

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http://dx.doi.org/10.3109/19396360903312015DOI Listing
February 2010

Race-based medicine and justice as recognition: exploring the phenomenon of BiDil.

Camb Q Healthc Ethics 2009 ;18(1):57-67

Institute for Public Health Genetics and Center for Genomics and Healthcare Equality, University of Washington.

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http://dx.doi.org/10.1017/S0963180108090099DOI Listing
January 2009

Strategies and stakeholders: minority recruitment in cancer genetics research.

Community Genet 2008 14;11(4):241-9. Epub 2008 Apr 14.

Department of Medical History and Ethics and Genome Sciences, School of Public Health, Boston University, Boston, Mass., USA.

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http://dx.doi.org/10.1159/000116878DOI Listing
May 2008

Racialized genetics and the study of complex diseases: the thrifty genotype revisited.

Perspect Biol Med 2007 ;50(2):203-27

Menzies School of Health Research, Institute of Advanced Studies, Charles Darwin University, Casuarina NT, Australia.

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http://muse.jhu.edu/content/crossref/journals/perspectives_i
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http://dx.doi.org/10.1353/pbm.2007.0020DOI Listing
May 2007

Relationships with test-tubes: where's the reciprocity?

Am J Bioeth 2006 Nov-Dec;6(6):36-8; author reply W10-2

University of Washington School of Medicine, USA.

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http://dx.doi.org/10.1080/15265160600938294DOI Listing
January 2007

Dissecting complex disease: the quest for the Philosopher's Stone?

Int J Epidemiol 2006 Jun 15;35(3):562-71. Epub 2006 Mar 15.

Department of Anthropology, Penn State University, University Park, PA 16802, USA.

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http://dx.doi.org/10.1093/ije/dyl001DOI Listing
June 2006

Sequence polymorphism at the human apolipoprotein AII gene ( APOA2): unexpected deficit of variation in an African-American sample.

Hum Genet 2002 Jul 14;111(1):75-87. Epub 2002 Jun 14.

Institute of Molecular Evolutionary Genetics, Department of Biology, Pennsylvania State University, University Park 16802, USA.

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http://link.springer.com/10.1007/s00439-002-0763-x
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http://dx.doi.org/10.1007/s00439-002-0763-xDOI Listing
July 2002