Sharon F Terry

Sharon F Terry

UNVERIFIED PROFILE

Are you Sharon F Terry?   Register this Author

Register author
Sharon F Terry

Sharon F Terry

Publications by authors named "Sharon F Terry"

Are you Sharon F Terry?   Register this Author

98Publications

718Reads

-Profile Views

Add Water and Serve: Liquid Biopsies Making Waves.

Authors:
Sharon F Terry

Genet Test Mol Biomarkers 2019 Apr 28;23(4):233-234. Epub 2019 Mar 28.

Genetic Alliance, Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2019.29045.sjtDOI Listing
April 2019

Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons.

J Law Med Ethics 2019 Mar;47(1):12-20

Amy L. McGuire, J.D., Ph.D., is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Dr. McGuire serves on the program committee for the Greenwall Foundation Faculty Scholars Program in Bioethics and is immediate past president of the Association of Bioethics Program Directors. Mary A. Majumder, J.D., Ph.D., is an Associate Professor of Medicine at the Center for Medical Ethics and Health Policy, Baylor College of Medicine. Angela G. Villanueva, M.P.H., is a Research Associate at the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Jessica Bardill, Ph.D., is an Assistant Professor of Indigenous Canadian Literatures and Cultures at Concordia University in Montreal, Quebec. Juli M. Bollinger, M.S., is a Research Associate in the Center for Medical Ethics and Health Policy at the Baylor College of Medicine and a Research Associate and Associate Faculty at the Berman Institute of Bioethics at Johns Hopkins University. Eric Boerwinkle, Ph.D., is the Dean of the University of Texas Health Science Center at Houston, School of Public Health and the Associate Director, Human Genome Sequencing Center at Baylor College of Medicine. Tania Bubela, Ph.D., J.D., is the Dean of the Faculty of Health Sciences at Simon Fraser University and a Fellow of the Canadian Academy of Health Sciences. Patricia Deverka, M.D., M.S., M.B.E., is Director, Value Evidence and Outcomes at Geisinger National Precision Health, where she focuses Outcomes at Geisinger National Precision Health, where she focuses systems and policymakers. Barbara Evans, MS, Ph.D., J.D., LL.M., is the Mary Ann and Lawrence E. Faust Professor of Law and Director of the Center for Biotechnology & Law at the University of Houston Law Center and holds a joint appointment as Professor of Electrical and Computer Engineering at the UH Cullen College of Engineering. Nanibaa' A. Garrison, Ph.D. (Navajo), is an Assistant Professor at the Treuman Katz Center for Pediatric Bioethics at Seattle Children's Hospital and Research Institute and at the Department of Pediatrics at the University of Washington School of Medicine. David Glazer is an engineering director at Verily Life Sciences, where he helps life science organizations use cloud computing to accelerate and scale their work with big data. Melissa M. Goldstein, J.D., is an Associate Professor in the Department of Health Policy and Management at the Milken Institute School of Public Health at the George Washington University. Henry T. Greely, J.D., is the Deane F. and Kate Edelman Johnson Professor of Law and a professor (by courtesy) of Genetics at Stanford University, where he directs the Center for Law and the Biosciences. He is President of the International Neuroethics Society, co-chair of the Neuroethics Work Group of the NIH BRAIN Initiative, and a member of the National Academies' Committee on Science, Technology, and Law. Scott D. Kahn, Ph.D., is the Chief Information Officer at LunaDNA where he is responsible for all informatics and data science strategy. Bartha M. Knoppers, Ph.D., (Comparative Medical Law), is a Full Professor, Canada Research Chair in Law and Medicine and Director of the Centre of Genomics and Policy of the Faculty of Medicine at McGill University. Barbara A. Koenig, Ph.D., is Professor of Bioethics and Medical Anthropology, based at the Institute for Health & Aging, University of California, San Francisco. She also serve as Director of the UCSF Program in Bioethics. J. Mark Lambright, M.B.A., is the Chairman, Trident Advisors, LLC - CEO (Interim), Private Access, Inc. Mark Lambright has been a senior executive of a number of healthcare and technology companies ranging in size from startup to multi-billion in revenue. John Mattison, M.D., is Assistant Medical Director, KP, SCAL, Chief Health Information Officer. Founder of CDA/CCD (XML standard for healthcare interoperability). Co-Editor of Healthcare Information Technology (2017 McGraw Hill). Christopher J. O'Donnell, M.D., M.P.H., is Chief, Cardiology Section and Director, Center for Population Genomics, of the Boston VA Healthcare System and co-Principal Investigator (Chief Scientist) of the national VA Million Veteran Program; and is VA Contact Principal Investigator of the NIH All of Us Research Program. He is also a faculty member of the Department of Medicine, Brigham and Women's Hospital and Associate Professor of Medicine, Harvard Medical School. Arti K. Rai, J.D., is the Elvin R. Latty Professor of Law and co-Director of the Center for Innovation Policy at Duke Law. Laura L. Rodriguez, Ph.D., is the Director of the Division of Policy, Communications, and Education at the National Human Genome Research Institute. Tania Simoncelli, M.S., is the Director of Science Policy at the Chan Zuckerberg Initiative. Formerly Executive Director, Count Me In at the Broad Institute, Assistant Director of Forensic Science and Biomedical Innovation, White House Office of Science & Technology Policy, and Science Advisor to the American Civil Liberties Union. Sharon F. Terry, M.A., is the president and CEO of Genetic Alliance. Adrian Thorogood, B.C.L./LL.B., is a lawyer and Academic Associate at the Centre of Genomics and Policy at McGill University in Montreal, Canada. He manages the Regulatory and Ethics Work Stream of the Global Alliance for Genomics and Health. Michael S. Watson, M.S., Ph.D., is the Executive Director, American College of Medical Genetics and Genomics and ACMG Foundation for Genetic and Genomic Medicine and an Adjunct Professor of Pediatrics at Washington University School of Medicine. John T. Wilbanks is the Chief Commons Officer at Sage Bionetworks, and co-PI on awards for AllofUs Research Program, ELSI Issues in Unregulated Mobile Research, CTSA Center for Data To Health. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1177/1073110519840480DOI Listing
March 2019

Magnesium Supplementation in the Treatment of Pseudoxanthoma Elasticum (PXE); a randomized trial.

J Am Acad Dermatol 2019 Feb 28. Epub 2019 Feb 28.

Icahn School of Medicine at Mount Sinai, Dermatology, One Gustave L. Levy Place, Box 1048, New York, NY 10029, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.jaad.2019.02.055DOI Listing
February 2019

A Role for Storytelling in Improving Consumer Understanding of Genetic Testing.

Genet Test Mol Biomarkers 2019 Jan 28;23(1):1-2. Epub 2018 Dec 28.

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2018.29041.sjtDOI Listing
January 2019

CRISPR-Cas9: New Heights, New Hesitations.

Genet Test Mol Biomarkers 2018 Nov 15;22(11):635-636. Epub 2018 Nov 15.

2 Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
https://www.liebertpub.com/doi/10.1089/gtmb.2018.0267
Publisher Site
http://dx.doi.org/10.1089/gtmb.2018.0267DOI Listing
November 2018

To Test or Not to Test?

Authors:
Sharon F Terry

Genet Test Mol Biomarkers 2018 Oct;22(10):583-584

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2018.0254DOI Listing
October 2018

Newborn Screening and Health Communications.

Genet Test Mol Biomarkers 2018 Sep;22(9):507-508

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2018.0234DOI Listing
September 2018

Reuniting Families Using Genetic Testing?

Genet Test Mol Biomarkers 2018 Aug;22(8):453-455

1 PXE International , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2018.0201DOI Listing
August 2018

The Price of Precision: Genetic Testing and Drug Costs in America.

Genet Test Mol Biomarkers 2018 Jul;22(7):403-404

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2018.0169DOI Listing
July 2018

Application of a Dynamic Map for Learning, Communicating, Navigating, and Improving Therapeutic Development.

Clin Transl Sci 2018 03 22;11(2):166-174. Epub 2017 Dec 22.

National Center for Advancing Translational Sciences, National Institutes of Health, Bethesda, Maryland, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1111/cts.12531DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5866991PMC
March 2018

Including all voices in international data-sharing governance.

Hum Genomics 2018 03 7;12(1):13. Epub 2018 Mar 7.

CNRS, Toulouse, France; Joint research unit on epidemiology and public health, Inserm (National Institute for Health and Medical Research) and University Toulouse III Paul Sabatier, Toulouse, France.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1186/s40246-018-0143-9DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5842530PMC
March 2018

Beyond Recommendation: Requiring Returning Findings to Research Participants.

Genet Test Mol Biomarkers 2018 Mar;22(3):141-142

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2018.0052DOI Listing
March 2018

A dynamic map for learning, communicating, navigating and improving therapeutic development.

Nat Rev Drug Discov 2018 Feb 22;17(2):150. Epub 2017 Dec 22.

National Center for Advancing Translational Sciences, National Institutes of Health, Bethesda, Maryland 20817, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1038/nrd.2017.217DOI Listing
February 2018

A Crack in the Wall of Competition: Will Compassion Prevail?

Authors:
Sharon F Terry

Genet Test Mol Biomarkers 2017 11;21(11):635-636

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2017.29037.sjtDOI Listing
November 2017

The International Rare Diseases Research Consortium Announces New Vision and Goals.

Authors:
Sharon F Terry

Genet Test Mol Biomarkers 2017 10;21(10):578-579

Genetic Alliance, Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2017.29035.sjtDOI Listing
October 2017

Research for the People by the People.

Authors:
Sharon F Terry

Genet Test Mol Biomarkers 2017 09;21(9):521-522

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2017.29034.sjtDOI Listing
September 2017

An Evidence Framework for Genetic Testing.

Authors:
Sharon F Terry

Genet Test Mol Biomarkers 2017 07;21(7):407-408

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2017.29032.sjtDOI Listing
July 2017

A New Day Dawns for Direct-to-Consumer Marketing.

Genet Test Mol Biomarkers 2017 05;21(5):273-274

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2017.29031.sjtDOI Listing
May 2017

Turning Toward Participants in Biobanking.

Authors:
Sharon F Terry

Genet Test Mol Biomarkers 2017 03;21(3):132-133

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2017.29029.sjtDOI Listing
March 2017

Data Sharing as the New Norm: What About the People Part?

Genet Test Mol Biomarkers 2017 Feb;21(2):63-65

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2017.29026.sjtDOI Listing
February 2017

The study is open: Participants are now recruiting investigators.

Authors:
Sharon F Terry

Sci Transl Med 2017 01;9(371)

Sharon F. Terry, President and CEO of Genetic Alliance, Washington, DC 20008, USA, and serves as a member of the PCORnet leadership and the Cohort Advisory Panel of the U.S. Precision Medicine Initiative.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1126/scitranslmed.aaf1001DOI Listing
January 2017

Clinical trial result reporting: Time to move into the 21st century.

Authors:
Sharon F Terry

Clin Trials 2016 12 29;13(6):597-598. Epub 2016 Aug 29.

Genetic Alliance, Washington, DC, USA

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1177/1740774516665599DOI Listing
December 2016

Expanded Carrier Screening and Its Implications on Genetic Testing Protocols.

Genet Test Mol Biomarkers 2016 Nov;20(11):643-644

2 Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2016.29023.sjtDOI Listing
November 2016

Future of Microbiomes Through the National Microbiome Initiative.

Genet Test Mol Biomarkers 2016 Oct;20(10):561-562

2 Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2016.29022.sjtDOI Listing
October 2016

Data Acquisition, Curation, and Use for a Continuously Learning Health System.

JAMA 2016 Oct;316(16):1669-1670

Johnson & Johnson, New Brunswick, New Jersey.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1001/jama.2016.12537DOI Listing
October 2016

Epigenetics and Racial Health Inequities.

Genet Test Mol Biomarkers 2016 Sep;20(9):483-4

2 Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2016.29021.sjtDOI Listing
September 2016

Rising Concern Regarding Pregnant Women and Zika Virus.

Genet Test Mol Biomarkers 2016 Aug 14;20(8):411-2. Epub 2016 Jul 14.

2 Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2016.29018.sjtDOI Listing
August 2016

GINA and ADA: New Rule Seriously Dents Previous Protections.

Genet Test Mol Biomarkers 2016 Jul 23;20(7):339-40. Epub 2016 Jun 23.

2 Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2016.29017.sjtDOI Listing
July 2016

Bipartisan Genetic Research Privacy Protection Act Introduced.

Authors:
Sharon F Terry

Genet Test Mol Biomarkers 2016 Jun;20(6):274-5

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2016.29016.sjtDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4892189PMC
June 2016

New Institute of Medicine Report on Molecular Biomarkers.

Authors:
Sharon F Terry

Genet Test Mol Biomarkers 2016 May 14;20(5):221-2. Epub 2016 Apr 14.

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2016.29014.sjtDOI Listing
May 2016

Governance Through Privacy, Fairness, and Respect for Individuals.

EGEMS (Wash DC) 2016 31;4(2):1207. Epub 2016 Mar 31.

Genetic Alliance.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.13063/2327-9214.1207DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4827784PMC
May 2016

Making Personalized Health Care Even More Personalized: Insights From Activities of the IOM Genomics Roundtable.

Ann Fam Med 2015 Jul-Aug;13(4):373-80

Roundtable on Translating Genomic-Based Research for Health, Institute of Medicine (IOM) of the National Academies Center for Applied Genomics and Precision Medicine, Duke University School of Medicine, Durham, North Carolina.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1370/afm.1772DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4508182PMC
April 2016

The Day the President of the United States Said "That Data is Mine".

Authors:
Sharon F Terry

Genet Test Mol Biomarkers 2016 Apr 22;20(4):165-6. Epub 2016 Mar 22.

Genetic Alliance, Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2016.29013.sjtDOI Listing
April 2016

Genetic Testing and the Workplace.

Genet Test Mol Biomarkers 2016 Mar 19;20(3):103-4. Epub 2016 Feb 19.

Genetic Alliance, Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2016.29011.sjtDOI Listing
March 2016

Research Progress in Pseudoxanthoma Elasticum and Related Ectopic Mineralization Disorders.

J Invest Dermatol 2016 Mar;136(3):550-556

Department of Dermatology and Cutaneous Biology, Thomas Jefferson University, Philadelphia, Pennsylvania, USA. Electronic address:

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.jid.2015.10.065DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4765001PMC
March 2016

Life as a numerator: Putting the person in personal genomics.

Authors:
Sharon F Terry

Appl Transl Genom 2016 Mar 1;8:40-1. Epub 2016 Feb 1.

Genetic Alliance and PXE International, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.atg.2016.01.007DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4796705PMC
March 2016

To Pay or Not to Pay? Is that the Question?

Genet Test Mol Biomarkers 2016 Feb 28;20(2):53-4. Epub 2016 Jan 28.

2 Genetic Alliance, Washington, District of Columbia .

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2016.29010.sjtDOI Listing
February 2016

The effects of bisphosphonates on ectopic soft tissue mineralization caused by mutations in the ABCC6 gene.

Cell Cycle 2015 ;14(7):1082-9

a Department of Dermatology and Cutaneous Biology; Sidney Kimmel Medical College ; Thomas Jefferson University ; Philadelphia , PA USA.

View Article

Download full-text PDF

Source
https://www.tandfonline.com/doi/full/10.1080/15384101.2015.1
Publisher Site
http://dx.doi.org/10.1080/15384101.2015.1007809DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4615006PMC
December 2015

Benefits and Risks of Sharing Genomic Information.

Genet Test Mol Biomarkers 2015 Dec 20;19(12):648-9. Epub 2015 Nov 20.

2 Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2015.29008.sjtDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4677837PMC
December 2015

NIST RM 8398: Standardizing Discoveries.

Genet Test Mol Biomarkers 2015 Nov 26;19(11):589-90. Epub 2015 Oct 26.

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2015.29006.sjtDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4653828PMC
November 2015

Hearing voices: FDA seeks advice from patients.

Sci Transl Med 2015 Nov;7(313):313ed12

Sharon F. Terry is President and Chief Executive Officer, Genetic Alliance, Washington, DC 20008, USA. E-mail: Patrick-Lake is Director of Stakeholder Engagement, Clinical Trials Transformation Initiative, Duke University, Durham, NC 27701, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1126/scitranslmed.aad5866DOI Listing
November 2015

Participant-driven matchmaking in the genomic era.

Hum Mutat 2015 Oct 27;36(10):965-73. Epub 2015 Aug 27.

Genetic Alliance, Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1002/humu.22852DOI Listing
October 2015

21st-Century Healthcare Policy and the Regulation of Laboratory-Developed Tests.

Genet Test Mol Biomarkers 2015 Sep;19(9):467-8

2 Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://www.geneticalliance.org/sites/default/files/bibliogra
Web Search
http://online.liebertpub.com/doi/10.1089/gtmb.2015.29004.ljc
Publisher Site
http://dx.doi.org/10.1089/gtmb.2015.29004.ljcDOI Listing
September 2015

Dangerous Liaisons: Connecting CRISPR/Cas9 to Clinical Science.

Genet Test Mol Biomarkers 2015 Aug;19(8):409-10

2 Genetic Alliance, Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2015.29001.kjeDOI Listing
August 2015

The science, applications, and ethical concerns surrounding low copy number DNA analysis.

Genet Test Mol Biomarkers 2015 Jun;19(6):281-2

2 Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2015.29000.rjsDOI Listing
June 2015

Will the wall come tumbling down?

Genet Test Mol Biomarkers 2015 May;19(5):226-7

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2015.1566DOI Listing
May 2015

Participating in next generation sequencing.

Authors:
Sharon F Terry

Genet Test Mol Biomarkers 2015 Apr;19(4):174

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2015.1564DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4394179PMC
April 2015

Obama's Precision Medicine Initiative.

Authors:
Sharon F Terry

Genet Test Mol Biomarkers 2015 Mar;19(3):113-4

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2015.1563DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4361161PMC
March 2015

Evidence synthesis and guideline development in genomic medicine: current status and future prospects.

Genet Med 2015 Jan 19;17(1):63-7. Epub 2014 Jun 19.

1] Epidemiology and Genomics Research Program, Division of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, Maryland, USA [2] Office of Public Health Genomics, Centers for Disease Control and Prevention, Atlanta, Georgia, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1038/gim.2014.69DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4272332PMC
January 2015

Linking personal health data to genomic research.

Genet Test Mol Biomarkers 2015 Jan;19(1):1-2

1 Brown University , Providence, Rhode Island.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2015.1562DOI Listing
January 2015

FDA's framework for regulatory oversight of LDTs.

Genet Test Mol Biomarkers 2014 Dec;18(12):785-6

1 University of Maryland , College Park, Maryland.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2014.1561DOI Listing
December 2014

Moving forward: putting genetic testing to use.

Genet Test Mol Biomarkers 2014 Oct 8;18(10):663-4. Epub 2014 Sep 8.

1 Cornell University , Ithaca, New York.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2014.1559DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4183895PMC
October 2014

Genetic testing and native peoples: the call for community-based participatory research.

Genet Test Mol Biomarkers 2014 Aug;18(8):531-2

1 Yale University , New Haven, Connecticut.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2014.1557DOI Listing
August 2014

Five principles: returning genetic testing results to research participants.

Genet Test Mol Biomarkers 2014 Jul;18(7):453-4

1 Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2014.1556DOI Listing
July 2014

The global alliance for genomics & health.

Authors:
Sharon F Terry

Genet Test Mol Biomarkers 2014 Jun;18(6):375-6

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2014.1555DOI Listing
June 2014

Companions: tests and drug for better healthcare.

Genet Test Mol Biomarkers 2014 May;18(5):287-8

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2014.1554DOI Listing
May 2014

Sharing your thoughts about sharing clinical trial data.

Authors:
Sharon F Terry

Genet Test Mol Biomarkers 2014 Apr;18(4):221-2

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2014.1553DOI Listing
April 2014

A call for participatory oversight.

Authors:
Sharon F Terry

Genet Test Mol Biomarkers 2014 Feb;18(2):71-2

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2014.1552DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3926140PMC
February 2014

Free the Data.

Genet Test Mol Biomarkers 2014 Jan;18(1):1-2

Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2014.1551DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3887419PMC
January 2014

Reforming biobank consent policy: a necessary move away from broad consent toward dynamic consent.

Genet Test Mol Biomarkers 2013 Dec;17(12):855-6

1 Genetic Alliance , Washington, District of Columbia.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2013.1550DOI Listing
December 2013

The need to build trust: a perspective on disparities in genetic testing.

Genet Test Mol Biomarkers 2013 Sep;17(9):647-8

Harvard College, Cambridge, MA, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2013.1548DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3761437PMC
September 2013

Free the data: the end of genetic data as trade secrets.

Genet Test Mol Biomarkers 2013 Aug;17(8):579-80

University of Virginia School of Law, Charlottesville, Virginia, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2013.1547DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3732415PMC
August 2013

Let's try it: me for you.

Authors:
Sharon F Terry

Genet Test Mol Biomarkers 2013 Jul;17(7):513-4

Genetic Alliance, Washington, District of Columbia, Washington, DC 20008, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2013.1546DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3700458PMC
July 2013

Assessing NIH's big idea.

Sci Transl Med 2013 Jul;5(196):196ed11

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1126/scitranslmed.3006851DOI Listing
July 2013

Pseudoxanthoma elasticum: progress in research toward treatment: summary of the 2012 PXE international research meeting.

J Invest Dermatol 2013 Jun;133(6):1444-9

Department of Dermatology and Cutaneous Biology, Jefferson Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania 19107, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1038/jid.2013.20DOI Listing
June 2013

Don't just invite us to the table: authentic community engagement.

Authors:
Sharon F Terry

Genet Test Mol Biomarkers 2013 Jun;17(6):443-5

Genetic Alliance, Washington, DC 20008, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2013.1545DOI Listing
June 2013

Disease advocacy organizations catalyze translational research.

Authors:
Sharon F Terry

Front Genet 2013 4;4:101. Epub 2013 Jun 4.

Genetic Alliance Washington, DC, USA ; PXE International Washington, DC, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.3389/fgene.2013.00101DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3671180PMC
June 2013

Nothing about us without us: guidelines for genetic testing.

Genet Test Mol Biomarkers 2013 May;17(5):357-8

Genetic Alliance, 4301 Connecticut Avenue, NW Suite 404, Washington, DC 20008, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2013.1544DOI Listing
May 2013

Point-counterpoint. Ethics and genomic incidental findings.

Science 2013 May 16;340(6136):1047-8. Epub 2013 May 16.

Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX 77030, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1126/science.1240156DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3772710PMC
May 2013

Warfarin accelerates ectopic mineralization in Abcc6(-/-) mice: clinical relevance to pseudoxanthoma elasticum.

Am J Pathol 2013 Apr 15;182(4):1139-50. Epub 2013 Feb 15.

Department of Dermatology and Cutaneous Biology, Jefferson Medical College, Thomas Jefferson University, Philadelphia, Pennsylvania 19107, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.ajpath.2012.12.037DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3620423PMC
April 2013

The haystack is made of needles.

Genet Test Mol Biomarkers 2013 Mar;17(3):175-7

Genetic Alliance, Washington, District of Columbia 20008, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2012.1542DOI Listing
March 2013

Test now, share now.

Genet Test Mol Biomarkers 2013 Feb;17(2):89-90

Georgetown University, Washington, District of Columbia, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2012.1541DOI Listing
February 2013

An end to the myth: there is no drug development pipeline.

Sci Transl Med 2013 Feb;5(171):171cm1

Genetic Alliance, Washington, DC 20008, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1126/scitranslmed.3003505DOI Listing
February 2013

Sharing clinical research data: perspectives on an IOM workshop.

Genet Test Mol Biomarkers 2013 Jan;17(1):1-2

School of Public Health and Health Services, George Washington University, Washington, District of Columbia, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2012.1540DOI Listing
January 2013

Is this a genesis in prenatal testing: genomic knowledge, risk or benefit?

Genet Test Mol Biomarkers 2012 Dec;16(12):1347-8

Genetic Alliance, Washington, District of Columbia 20008, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2012.1538DOI Listing
December 2012

Companion diagnostics: the next step in personalized clinical care.

Genet Test Mol Biomarkers 2012 Oct;16(10):1155-6

St. George's University School of Medicine, True Blue, Grenada.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2012.1539DOI Listing
October 2012

Beyond genetic tests and biomarkers: what about therapeutic misconception?

Genet Test Mol Biomarkers 2012 Sep;16(9):999-1000

Genetic Alliance, Washington, District of Columbia 20008, USA.

View Article

Download full-text PDF

Source
http://www.liebertpub.com/doi/10.1089/gtmb.2012.1535
Publisher Site
http://dx.doi.org/10.1089/gtmb.2012.1535DOI Listing
September 2012

Are they really incidental after all?

Genet Test Mol Biomarkers 2012 Aug;16(8):833-4

Genetic Alliance, Washington, District of Columbia 20008, USA.

View Article

Download full-text PDF

Source
http://www.liebertpub.com/doi/10.1089/gtmb.2012.1534
Publisher Site
http://dx.doi.org/10.1089/gtmb.2012.1534DOI Listing
August 2012

Not just trials and tribulations-we need results!

Genet Test Mol Biomarkers 2012 Jul;16(7):649-50

Pennsylvania State University-Dickinson School of Law , University Park, Pennsylvania, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2012.1533DOI Listing
July 2012

Reporting actionable research results: shared secrets can save lives.

Sci Transl Med 2012 Jul;4(143):143cm8

Computational Bioscience Program, University of Colorado School of Medicine, Aurora, CO 80045, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1126/scitranslmed.3003958DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3501742PMC
July 2012

Consumer perceptions of genetic testing.

Genet Test Mol Biomarkers 2012 Jun;16(6):463-4

Genetic Alliance, Washington, District of Columbia 20008, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2012.1532DOI Listing
June 2012

Permission to share biospecimens.

Genet Test Mol Biomarkers 2012 May;16(5):311-2

Genetic Alliance, Washington, District of Columbia, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2012.1531DOI Listing
May 2012

Genetic testing registry launched.

Genet Test Mol Biomarkers 2012 Apr;16(4):227-8

Genetic Alliance, Washington, District of Columbia 20008, USA.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/gtmb.2012.1530DOI Listing
April 2012