Scott R Plotkin

Scott R Plotkin

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Scott R Plotkin

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First report of quality of life in adults with neurofibromatosis 2 who are deafened or have significant hearing loss: results of a live-video randomized control trial.

J Neurooncol 2019 Jul 2;143(3):505-513. Epub 2019 May 2.

Integrated Brain Health Clinical and Research Program, Massachusetts General Hospital, Boston, MA, USA.

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http://dx.doi.org/10.1007/s11060-019-03182-3DOI Listing
July 2019

Benign Intracranial Tumors.

Neurol Clin 2018 08;36(3):501-516

Department of Neurology and Cancer Center, Massachusetts General Hospital, Harvard Medical School, 55 Fruit Street, Yawkey 9E, Boston, MA 02114, USA. Electronic address:

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http://dx.doi.org/10.1016/j.ncl.2018.04.007DOI Listing
August 2018

Cutaneous neurofibromas: Current clinical and pathologic issues.

Neurology 2018 07;91(2 Suppl 1):S5-S13

From the Departments of Pathology (N.O.) and Dermatology (P.W.), French Referral Center for Neurofibromatoses, Henri-Mondor Hospital, AP-HP, University Paris Est Créteil, France; Department of Neurology (J.O.B., S.K.V.), Johns Hopkins University School of Medicine, The Neurofibromatosis Therapuetic Acceleration Program, Baltimore, MD; University of Alabama at Birmingham (B.K.); Cancer Center and Department of Neurology (S.R.P.) and Department of Pathology, Division of Neuropathology (A.S.-R.), Massachusetts General Hospital, Boston; The Neurofibromatosis Institute (V.M.R.), La Crescenta, CA; Department of Pathology & Anatomical Sciences (D.C.M.), University of Missouri School of Medicine, Columbia; Manchester Centre for Genomic Medicine (S.H.), Central Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Institute of Biomedicine (J.P.), University of Turku, Finland; Department of Pathology and Laboratory Medicine (A.R.), Jackson Memorial Hospital/University of Miami Miller School of Medicine, FL; Department of Pathology and Laboratory Medicine (S.L.C.), Medical University of South Carolina, Charleston; Clinics and Polyclinics of Neurology (V.M.), University Hospital Hamburg-Eppendorf, Hamburg, Germany; and Division of Cancer and Genetics (M.U.), Institute of Medical Genetics, Cardiff University, UK.

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http://dx.doi.org/10.1212/WNL.0000000000005792DOI Listing
July 2018

Considerations for development of therapies for cutaneous neurofibroma.

Neurology 2018 07;91(2 Suppl 1):S21-S30

From the Department of Neurology (S.K.V., J.O.B.), The Johns Hopkins University School of Medicine, The Neurofibromatosis Therapeutic Acceleration Program, Baltimore, MD; The NF Institute (V.M.R.), La Crescenta, CA; Department of Neurology and Cancer Center (S.R.P.), Massachusetts General Hospital, Boston; Division of Plastic Surgery (H.W.), Mount Sinai Hospital, Icahn School of Medicine at Mount Sinai, New York, NY; Department of Dermatology (R.R.A.), Harvard Medical School, Boston, MA; BioPharm Tech (K.J.), San Mateo, CA; and Dermavant Sciences (J.L.), Durham, NC.

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http://dx.doi.org/10.1212/WNL.0000000000005791DOI Listing
July 2018

Volumetric MRI Analysis of Plexiform Neurofibromas in Neurofibromatosis Type 1: Comparison of Two Methods.

Acad Radiol 2018 02 31;25(2):144-152. Epub 2017 Oct 31.

Center for Cancer Research, Pediatric Oncology Branch, National Cancer Institute, 10 Center Drive, CRC Room 1-5750, Bethesda, MD 20892. Electronic address:

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http://dx.doi.org/10.1016/j.acra.2017.09.004DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5794522PMC
February 2018

Neurofibromatosis and Schwannomatosis.

Semin Neurol 2018 02 16;38(1):73-85. Epub 2018 Mar 16.

Department of Neurology, University Hospital of Heidelberg, Heidelberg, Germany.

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http://dx.doi.org/10.1055/s-0038-1627471DOI Listing
February 2018

Anti-VEGF treatment improves neurological function in tumors of the nervous system.

Exp Neurol 2018 01 11;299(Pt B):326-333. Epub 2017 Sep 11.

Edwin Steele Laboratories, Department of Radiation Oncology, Massachusetts General Hospital, Harvard Medical School, Boston, MA 02114, USA. Electronic address:

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http://dx.doi.org/10.1016/j.expneurol.2017.09.008DOI Listing
January 2018

Health literacy assessment in adults with neurofibromatosis: electronic and short-form measurement using FCCHL and Health LiTT.

J Neurooncol 2018 Jan 8;136(2):335-342. Epub 2017 Nov 8.

Department of Psychiatry, Behavioral Medicine Service, Massachusetts General Hospital, Harvard Medical School, One Bowdoin Square, 7th floor, Suite 758, Boston, MA, 02114, USA.

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http://dx.doi.org/10.1007/s11060-017-2657-8DOI Listing
January 2018

Genotype-Phenotype Correlation in NF1: Evidence for a More Severe Phenotype Associated with Missense Mutations Affecting NF1 Codons 844-848.

Am J Hum Genet 2018 01 28;102(1):69-87. Epub 2017 Dec 28.

Department of Genetics, University of Alabama at Birmingham, Birmingham, AL 35294, USA. Electronic address:

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http://dx.doi.org/10.1016/j.ajhg.2017.12.001DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5777934PMC
January 2018

First report of factors associated with satisfaction in patients with neurofibromatosis.

Am J Med Genet A 2017 03;173(3):671-677

Department of Psychiatry, Behavioral Medicine Service, Massachusetts General Hospital, Harvard Medical School, Boston, Massachusetts.

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http://dx.doi.org/10.1002/ajmg.a.38079DOI Listing
March 2017

First use of patient reported outcomes measurement information system (PROMIS) measures in adults with neurofibromatosis.

J Neurooncol 2017 01 29;131(2):413-419. Epub 2016 Nov 29.

Department of Psychiatry, Behavioral Medicine Service, Massachusetts General Hospital, Harvard Medical School, One Bowdoin Square, 7th Floor, Boston, MA, 02114, USA.

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http://dx.doi.org/10.1007/s11060-016-2314-7DOI Listing
January 2017

Mind-body therapy via videoconferencing in patients with neurofibromatosis: An RCT.

Neurology 2016 Aug 22;87(8):806-14. Epub 2016 Jul 22.

From the Behavioral Medicine Service (A.-M.V.), Benson-Henry Institute for Mind Body Medicine (E.R., E.R.P.), and Department of Neurology and Cancer Center (V.L.M., S.R.P.), Massachusetts General Hospital, Boston; Biostatistics Center (E.A.M.), Massachusetts General Hospital and Harvard Medical School, Boston, MA.

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http://dx.doi.org/10.1212/WNL.0000000000003005DOI Listing
August 2016

Sleep and pulmonary outcomes for clinical trials of airway plexiform neurofibromas in NF1.

Neurology 2016 Aug;87(7 Suppl 1):S13-20

From the Neurology Department and Cancer Center (S.R.P.), Massachusetts General Hospital, Boston; Section of Pediatric Pulmonology, Allergy and Sleep Medicine (S.D.D.), and Stem Cell Transplantation Program (K.A.R.), Riley Children's Hospital, Indiana University School of Medicine, Indianapolis; Pediatric Oncology Branch (S.A., B.C.W.), National Cancer Institute, Bethesda, MD; Division of Pulmonary Medicine (J.A.), Division of Oncology (M.J.F.), and Sleep Center (C.L.M.), Children's Hospital of Philadelphia; Department of Pediatrics (M.J.F.) and Sleep Center (C.L.M.), The Perelman School of Medicine at the University of Pennsylvania (J.A.), Philadelphia; Department of Neurology (J.O.B.), John Hopkins Medical Institute, Baltimore, MD; and Department of Neurology (R.E.F.), Guy's and St. Thomas' NHS Foundation Trust and Institute of Psychiatry, King's College London, UK.

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http://dx.doi.org/10.1212/WNL.0000000000002933DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5578358PMC
August 2016

Current whole-body MRI applications in the neurofibromatoses: NF1, NF2, and schwannomatosis.

Neurology 2016 Aug;87(7 Suppl 1):S31-9

From The Russell H. Morgan Department of Radiology and Radiological Science (S.A., L.M.F., M.A.J.), Sidney Kimmel Comprehensive Cancer Center (M.A.J.), and Department of Neurology (J.O.B.), Johns Hopkins University, Baltimore, MD; Khyber Medical College (M.S.K.), Peshawar, Pakistan; Department of Radiology (M.A.B., G.J.H., W.C.), Massachusetts General Hospital and Harvard Medical School, Boston; Genomic Medicine (D.G.E.), Manchester Academic Health Science Centre, The University of Manchester, UK; Department of Neurology (S.F., V.F.M.), University Medical Center Hamburg-Eppendorf, Hamburg, Germany; Radiology & Orthopedic Surgery (A.C.), UT Southwestern Medical Center, Dallas, TX; Department of Diagnostic and Interventional Radiology (J.M.S.), University Hospital Hamburg-Eppendorf; Radiological Practice Altona (R.W.), Hamburg, Germany; Pediatric Oncology Branch (E.D.), National Cancer Institute, Bethesda, MD; and Department of Neurology and Cancer Center (S.R.P.), Massachusetts General Hospital, Boston.

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http://dx.doi.org/10.1212/WNL.0000000000002929DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5578359PMC
August 2016

Current status and recommendations for biomarkers and biobanking in neurofibromatosis.

Neurology 2016 Aug;87(7 Suppl 1):S40-8

From Plymouth University (C.O.H.), Peninsula Schools of Medicine and Dentistry, The Institute of Translational and Stratified Medicine, Plymouth, UK; Department of Neurology (J.O.B.), Johns Hopkins University Medical School, Baltimore, MD; Department of Pediatrics (F.P.N.) and Department of Pediatrics, School of Medicine (K.R., M.F.), Indiana University; Tailored Therapeutics (F.P.N.), Eli Lilly and Company, Indianapolis, IN; Department of Pathology (A.S.-R.), Neuro-oncology (S.R.P.), Massachusetts General Hospital, Boston; Neurologische Klinik (V.M.), Uniklinik Eppendorf, Hamburg; Berlin-Brandenburg Center for Regenerative Therapies (A.K.), Charité Universitätsmedizin Berlin, Germany; Seoul National University (A.K.), College of Veterinary Medicine and Research Institute for Veterinary Science, Republic of Korea; NCI (B.C.W.), Pediatric Oncology Branch, Bethesda, MD; Genomic Medicine (D.G.E.), University of Manchester, UK; National Neurofibromatosis Service (R.F.), Department of Neurology, Guy's and St. Thomas' NHS Foundation Trust, London UK; Department of Pathology and Laboratory Medicine (S.L.C.), Medical University of South Carolina, Charleston; and Heflin Center for Genomic Sciences (B.K.), University of Alabama at Birmingham; Dermatology (P.W.), GHU Henri Mondor, Paris, France; Children's Tumor Foundation (P.K.), New York.

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http://dx.doi.org/10.1212/WNL.0000000000002932DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5578360PMC
August 2016

Health-related Quality of Life of Individuals With Neurofibromatosis Type 2: Results From the NF2 Natural History Study.

Otol Neurotol 2016 06;37(5):574-9

*Department of Neurology and Cancer Center, Massachusetts General Hospital, Boston, Massachusetts †Department of Neurology, Johns Hopkins Hospital, Baltimore, Maryland ‡Department of Psychiatry, Massachusetts General Hospital, Boston, Massachusetts §Biostatistics Center, Massachusetts General Hospital, Boston, Massachusetts ||Department of Neurotology, House Clinic, Los Angeles, California.

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https://insights.ovid.com/crossref?an=00129492-201606000-000
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http://dx.doi.org/10.1097/MAO.0000000000001019DOI Listing
June 2016

Therapeutic advances for the tumors associated with neurofibromatosis type 1, type 2, and schwannomatosis.

Neuro Oncol 2016 05 6;18(5):624-38. Epub 2016 Feb 6.

Neurology, Neurosurgery and Oncology, Johns Hopkins University, Baltimore, MD (J.O.B.); Neurology, Harvard Medical School, Stephen E. and Catherine Pappas Center for Neuro-Oncology, Massachusetts General Hospital, Boston, MA (S.R.P.).

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http://dx.doi.org/10.1093/neuonc/nov200DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4827037PMC
May 2016

Efficacy and Biomarker Study of Bevacizumab for Hearing Loss Resulting From Neurofibromatosis Type 2-Associated Vestibular Schwannomas.

J Clin Oncol 2016 05 14;34(14):1669-75. Epub 2016 Mar 14.

Jaishri O. Blakeley, Xiaobu Ye, Amanda L. Bergner, Laura M. Fayad, Shivani Ahlawat, and Michael A. Jacobs, Johns Hopkins University, Baltimore; Christopher Zalewski, National Institute on Deafness and Other Communication Disorders; Eva Dombi and Brigitte C. Widemann, National Cancer Institute, Bethesda, MD; Dan G. Duda, Alona Muzikansky, Vanessa L. Merker, Elizabeth R. Gerstner, Rakesh K. Jain, and Scott R. Plotkin, Massachusetts General Hospital; and Chris F. Halpin, Massachusetts Eye and Ear Infirmary, Boston, MA.

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http://dx.doi.org/10.1200/JCO.2015.64.3817DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4872317PMC
May 2016

Laryngeal Manifestations of Neurofibromatosis.

Otolaryngol Head Neck Surg 2016 Mar 19;154(3):494-7. Epub 2016 Jan 19.

Department of Otolaryngology, Massachusetts Eye and Ear Infirmary, Boston, Massachusetts, USA Department of Otology and Laryngology, Harvard Medical School, Boston, Massachusetts, USA.

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http://dx.doi.org/10.1177/0194599815626133DOI Listing
March 2016

Glioblastoma care in the elderly.

Cancer 2016 Jan 30;122(2):189-97. Epub 2015 Nov 30.

Pappas Center for Neuro-Oncology, Massachusetts General Hospital, Boston, Massachusetts.

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http://dx.doi.org/10.1002/cncr.29742DOI Listing
January 2016

Increased Risk of Cerebrovascular Disease Among Patients With Neurofibromatosis Type 1: Population-Based Approach.

Stroke 2016 Jan 8;47(1):60-5. Epub 2015 Dec 8.

From the Department of Neurosurgery, Duke University Medical Center/Duke Raleigh Hospital, Raleigh, NC (A.R.T.); and Department of Neurology, Massachusetts General Hospital, Boston (J.T.J., L.S., S.R.P.).

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http://dx.doi.org/10.1161/STROKEAHA.115.011406DOI Listing
January 2016

Pregnancy complications in women with rare tumor suppressor syndromes affecting central and peripheral nervous system.

Am J Obstet Gynecol 2015 Jul 14;213(1):108-109. Epub 2015 Feb 14.

Department of Neurology and Cancer Center, Massachusetts General Hospital, Boston, MA.

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http://dx.doi.org/10.1016/j.ajog.2015.02.013DOI Listing
July 2015

Quality of life among children and adolescents with neurofibromatosis 1: a systematic review of the literature.

J Neurooncol 2015 Apr 7;122(2):219-28. Epub 2015 Feb 7.

Department of Psychiatry, Massachusetts General Hospital/Harvard Medical School, ne Bowdoin Square, Boston, MA, 02114, USA,

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http://dx.doi.org/10.1007/s11060-015-1725-1DOI Listing
April 2015

Outcomes of preimplantation genetic diagnosis in neurofibromatosis type 1.

Fertil Steril 2015 Mar 31;103(3):761-8.e1. Epub 2014 Dec 31.

Department of Neurology and Cancer Center, Massachusetts General Hospital, Boston, Massachusetts. Electronic address:

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http://dx.doi.org/10.1016/j.fertnstert.2014.11.021DOI Listing
March 2015

Examining perceived cancer risk among patients with neurofibromatosis type 1.

J Neurooncol 2015 Mar 6;122(1):127-33. Epub 2015 Jan 6.

Department of Psychiatry, Mongan Institute for Health Policy, Benson-Henry Institute for Mind-Body Medicine, Cancer Center, Massachusetts General Hospital/Harvard Medical School, 50 Staniford St, 907, Boston, MA, 02114, USA,

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http://dx.doi.org/10.1007/s11060-014-1689-6DOI Listing
March 2015

Turner syndrome and meningioma: support for a possible increased risk of neoplasia in Turner syndrome.

Eur J Med Genet 2014 May-Jun;57(6):269-74. Epub 2014 Mar 25.

Medical Genetics Unit, MassGeneral Hospital for Children, Boston, MA, USA. Electronic address:

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http://dx.doi.org/10.1016/j.ejmg.2014.03.005DOI Listing
February 2015

A phase I trial of high dose gefitinib for patients with leptomeningeal metastases from non-small cell lung cancer.

Oncotarget 2015 Feb;6(6):4527-36

Department of Neurosciences, Translational Neuro-Oncology Laboratories, Moores UCSD Cancer Center, University of California, San Diego, La Jolla CA, USA.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4414209PMC
http://dx.doi.org/10.18632/oncotarget.2886DOI Listing
February 2015

Phase II trial of sunitinib for recurrent and progressive atypical and anaplastic meningioma.

Neuro Oncol 2015 Jan 6;17(1):116-21. Epub 2014 Aug 6.

Department of Neurology, Memorial Sloan Kettering Cancer Center, New York, New York (T.J.K., S.K., A.B.L., C.P.N., L.M.D., I.G., L.E.A., A.O.); Center for Neuro-Oncology, Dana-Farber Cancer Institute/Brigham and Women's Center, Boston, Massachusetts (P.W., K.L., S.H., A.N., J.D., E.Q.L.); Department of Neurology, University of Virginia, Charlottesville, Virginia (D.S., B.P.); Department of Neurology, Massachusetts General Hospital, Boston, Massachusetts (S.R.P., T.B.).

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http://dx.doi.org/10.1093/neuonc/nou148DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4483051PMC
January 2015

Phase II study of monthly pasireotide LAR (SOM230C) for recurrent or progressive meningioma.

Neurology 2015 Jan 19;84(3):280-6. Epub 2014 Dec 19.

From the Division of Cancer Neurology, Department of Neurology (A.D.N., E.Q.L., P.Y.W.), and Departments of Pathology (K.L.L.) and Medicine (R.B.), Brigham and Women's Hospital, Boston, MA; Center for Neuro-Oncology (A.D.N., S.N.H., D.A.R., R.B., E.Q.L., L.D., D.L., M.G., K.H.S., C.M., P.Y.W.), Dana-Farber/Brigham and Women's Cancer Center; Department of Medicine (R.B.), Harvard Medical School (A.D.N., K.L.L., D.A.R., T.T.B., S.R.P., E.T.W., R.B., E.Q.L., P.Y.W.), Boston; Department of Medical Oncology, Center for Molecular Oncologic Pathology (K.L.L., S.H.), and Departments of Medical Oncology and Cancer Biology (R.B.), Dana-Farber Cancer Institute, Boston; Massachusetts General Hospital Biostatistics Center (A.M.); Brain Tumor Center (T.J.K.), Memorial Sloan-Kettering Cancer Center, New York, NY; Pappas Center for Neuro-Oncology (T.T.B., S.R.P.), Massachusetts General Hospital, Boston; Department of Neurology (J.J.R.), Northwestern University Feinberg School of Medicine, Chicago, IL; Brain Tumor Center (E.T.W.), Beth-Israel Deaconess Medical Center, Boston; Adult Neuro-Oncology Program (J.D.), University of Pittsburgh Medical Center, Pittsburgh, PA; Comprehensive Cancer Center (G.J.L.), Wake Forest University Baptist Medical Center, Winston-Salem, NC; and Departments of Neurosurgery and Neurology (S.P.), Cedars-Sinai Medical Center, Los Angeles, CA.

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http://dx.doi.org/10.1212/WNL.0000000000001153DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4335993PMC
January 2015

The relaxation response resiliency program (3RP) in patients with neurofibromatosis 1, neurofibromatosis 2, and schwannomatosis: results from a pilot study.

J Neurooncol 2014 Oct 15;120(1):103-9. Epub 2014 Jul 15.

Department of Psychiatry, Massachusetts General Hospital, One Bowdoin Square, 7th floor, Boston, MA, 02114, USA,

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http://link.springer.com/content/pdf/10.1007%2Fs11060-014-15
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http://link.springer.com/10.1007/s11060-014-1522-2
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http://dx.doi.org/10.1007/s11060-014-1522-2DOI Listing
October 2014

Posterior reversible encephalopathy syndrome (PRES) complicating newly-diagnosed diffuse large B-cell lymphoma.

Clin Lymphoma Myeloma Leuk 2014 Aug 2;14(4):e111-3. Epub 2014 Feb 2.

Center for Lymphoma, Massachusetts General Hospital Cancer Center, Boston, MA.

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http://jco.ascopubs.org/content/25/17/2484.full.pdf
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http://linkinghub.elsevier.com/retrieve/pii/S215226501400021
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http://dx.doi.org/10.1016/j.clml.2014.01.005DOI Listing
August 2014

Relationship between whole-body tumor burden, clinical phenotype, and quality of life in patients with neurofibromatosis.

Am J Med Genet A 2014 Jun 24;164A(6):1431-7. Epub 2014 Mar 24.

Department of Neurology and Cancer Center, Massachusetts General Hospital, Boston, Massachusetts.

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http://dx.doi.org/10.1002/ajmg.a.36466DOI Listing
June 2014

Long-term toxicity of bevacizumab therapy in neurofibromatosis 2 patients.

Cancer Chemother Pharmacol 2014 Jun 8;73(6):1197-204. Epub 2014 Apr 8.

Center for Neurofibromatosis and Allied Disorders, Center for Human Genetic Research, Massachusetts General Hospital, Boston, MA, USA.

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http://dx.doi.org/10.1007/s00280-014-2456-2DOI Listing
June 2014

Anatomic and metabolic evaluation of peripheral nerve sheath tumors in patients with neurofibromatosis 1 using whole-body MRI and (18)F-FDG PET fusion.

Clin Nucl Med 2014 May;39(5):e301-7

From the *Department of Radiology, †Department of Neurology and Cancer Center, ‡Biostatistics Center, Massachusetts General Hospital, Boston, MA; and §Corades, S.L., Madrid, Spain.

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https://insights.ovid.com/crossref?an=00003072-201405000-000
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http://dx.doi.org/10.1097/RLU.0b013e3182a757d3DOI Listing
May 2014

Teaching NeuroImages: brain mass with hilar adenopathy: the importance of histologic diagnosis.

Neurology 2014 May;82(18):e161-2

From the Division of Neuro-Oncology (J.T.J., S.R.P.), Department of Neurology (H.-S.Y., D.N.), Massachusetts General Hospital, Boston.

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http://dx.doi.org/10.1212/WNL.0000000000000393DOI Listing
May 2014

Chemoprevention for neurofibromatosis 2: just over the horizon?

Authors:
Scott R Plotkin

Neuro Oncol 2014 Apr;16(4):471-2

Department of Neurology and Cancer Center, Massachusetts General Hospital, Yawkey 9E, Massachusetts General Hospital, 55 Fruit Street, Boston, MA 02114.

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http://dx.doi.org/10.1093/neuonc/nou037DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3956365PMC
April 2014

Natural history of vestibular schwannoma growth and hearing decline in newly diagnosed neurofibromatosis type 2 patients.

Otol Neurotol 2014 Jan;35(1):e50-6

*Department of Neurology and Cancer Center, †Biostatistics Center, and ‡Neurosurgical Service, Massachusetts General Hospital, Boston, Massachusetts; and §Neurotology, House Clinic, Los Angeles, California, U.S.A.

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http://dx.doi.org/10.1097/MAO.0000000000000239DOI Listing
January 2014

Appearance concerns among women with neurofibromatosis: examining sexual/bodily and social self-consciousness.

Psychooncology 2013 Dec 19;22(12):2711-9. Epub 2013 Jul 19.

Department of Obstetrics & Gynaecology, University of British Columbia, BC, Canada.

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http://dx.doi.org/10.1002/pon.3350DOI Listing
December 2013

Achieving consensus for clinical trials: the REiNS International Collaboration.

Neurology 2013 Nov;81(21 Suppl 1):S1-5

From the Neurology Department and Cancer Center (S.R.P.), Massachusetts General Hospital, Boston, MA; Department of Neurology, Neurosurgery, and Oncology (J.O.B.), Johns Hopkins, Baltimore, MD; Pediatric Oncology Branch (E.D., P.L.W., B.C.W.), National Cancer Institute, Bethesda, MD; Division of Oncology, Department of Pediatrics (M.J.F.), The Children's Hospital of Pennsylvania, Philadelphia; Plymouth University Peninsula Schools of Medicine and Dentistry (C.O.H.), Plymouth, United Kingdom; and The Jennifer and Daniel Gilbert Neurofibromatosis Institute (K.S.W.), Children's National Medical Center, Washington, DC.

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http://dx.doi.org/10.1212/01.wnl.0000435743.49414.b6DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3908338PMC
November 2013

Hearing and facial function outcomes for neurofibromatosis 2 clinical trials.

Neurology 2013 Nov;81(21 Suppl 1):S25-32

From the Neurology Department and Cancer Center (S.R.P.) and Neurosurgical Service (F.G.B.), Massachusetts General Hospital, Boston, MA; Department of Neurology and Neurosurgery (S.L.A.-H.), The Children's Hospital at Westmead, University of Sydney, Australia; Department of Neurology and Oncology (J.O.B.), John Hopkins Medical Institute, Baltimore, MD; University Department of Medical Genetics (D.G.E.), St Mary's Hospital, Manchester, UK; Department of Neurology (R.E.F.), Guy's and St. Thomas' NHS Foundation Trust and Institute of Psychiatry, King's College London, UK; Department of Otolaryngology (T.A.H.) and Audiology (C.H.), Massachusetts Eye and Ear Infirmary; and Harvard Medical School (T.A.H.), Boston, MA.

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http://dx.doi.org/10.1212/01.wnl.0000435746.02780.f6DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3908336PMC
November 2013

Recommendations for imaging tumor response in neurofibromatosis clinical trials.

Neurology 2013 Nov;81(21 Suppl 1):S33-40

From the Pediatric Oncology Branch (E.D., B.C.W.), National Cancer Institute, Bethesda, MD; Department of Neurology (S.L.A.-H.), The Children's Hospital at Westmead, Sydney, Australia; Department of Medical Genetics (D. B.-V.), Mayo Clinic, Rochester, MN; Neurosurgical Service (F.G.B.), Department of Radiology (G.J.H.), and Department of Neurology and Cancer Center (S.R.P.), Massachusetts General Hospital, Boston, MA; Department of Neuroradiology (S.C.), King's College Hospital, London, UK; Department of Genetic Medicine (D.G.E.), MAHSC, St Mary's Hospital, Manchester, UK; Division of Oncology (M.J.F.) and Department of Radiology (D.J.), The Children's Hospital of Philadelphia; Department of Pediatrics (M.J.F.), The Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA; Department of Neurosurgery (S.G.), Hôpital Beaujon, Clichy, France; Division of Pediatric Hematology/Oncology and NYU Cancer Institute (M.A.K.), NYU Langone Medical Center, New York, NY; Department of Genetics (B.R.K.), University of Alabama at Birmingham, Birmingham, AL; Department of Neurology (V.M.), University Medical Center Hamburg-Eppendorf, Hamburg, Germany; Department of Radiology (T.Y.P.), Boston Children's Hospital, Boston, MA; and Department of Pediatrics (K.R., C.-S.S.), Riley Hospital for Children, Indianapolis, IN.

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November 2013

Conclusions and future directions for the REiNS International Collaboration.

Neurology 2013 Nov;81(21 Suppl 1):S41-4

From the Pediatric Oncology Branch (B.C.W., E.D., P.L.W.), National Cancer Institute, Bethesda, MD; Department of Neurology, Neurosurgery, and Oncology (J.O.B.), Johns Hopkins, Baltimore, MD; Division of Oncology, Department of Pediatrics (M.J.F.), The Children's Hospital of Pennsylvania, Philadelphia; Plymouth University Peninsula Schools of Medicine and Dentistry (C.O.H.), Plymouth, United Kingdom; The Jennifer and Daniel Gilbert Neurofibromatosis Institute (K.S.W.), Children's National Medical Center, Washington, DC; and Neurology Department and Cancer Center (S.R.P.). Massachusetts General Hospital, Boston, MA.

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November 2013

Quality of life among adult patients with neurofibromatosis 1, neurofibromatosis 2 and schwannomatosis: a systematic review of the literature.

J Neurooncol 2013 Sep 2;114(3):257-62. Epub 2013 Jul 2.

Department of Psychiatry, Massachusetts General Hospital, Harvard Medical School, Boston, MA 02114, USA.

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September 2013

Neurofibromatosis type 1 and pregnancy complications: a population-based study.

Am J Obstet Gynecol 2013 Jul 25;209(1):46.e1-8. Epub 2013 Mar 25.

Neurosurgical Service, Massachusetts General Hospital, Boston, MA. Electronic address:

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July 2013

Clinical features of schwannomatosis: a retrospective analysis of 87 patients.

Oncologist 2012 27;17(10):1317-22. Epub 2012 Aug 27.

Pappas Center for Neuro-Oncology, Yawkey 9E, Massachusetts General Hospital, 55 Fruit Street, Boston, Massachusetts 02114, USA.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3481897PMC
June 2013

Understanding relationships between autism, intelligence, and epilepsy: a cross-disorder approach.

Dev Med Child Neurol 2013 Feb 4;55(2):146-53. Epub 2012 Dec 4.

Department of Neurology, The Carol and James Herscot Center for Tuberous Sclerosis Complex, Massachusetts General Hospital, Boston, MA, USA.

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February 2013

Role of resection of malignant peripheral nerve sheath tumors in patients with neurofibromatosis type 1.

J Neurosurg 2013 Jan 26;118(1):142-8. Epub 2012 Oct 26.

Department of Neurosurgery, Massachusetts General Hospital, Harvard Medical School, Boston, Massachusetts 02114, USA.

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January 2013

Emotional functioning of patients with neurofibromatosis tumor suppressor syndrome.

Genet Med 2012 Dec 9;14(12):977-82. Epub 2012 Aug 9.

Department of Neurology and Cancer Center, Massachusetts General Hospital/Harvard Medical School, Boston, Massachusetts, USA.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3982605PMC
December 2012

Expression of SMARCB1 (INI1) mutations in familial schwannomatosis.

Hum Mol Genet 2012 Dec 4;21(24):5239-45. Epub 2012 Sep 4.

Department of Neurology, Massachusetts General Hospital, Boston, MA 02114, USA.

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December 2012

Whole-body MRI in neurofibromatosis: incidental findings and prevalence of scoliosis.

Skeletal Radiol 2012 Aug 7;41(8):917-23. Epub 2011 Dec 7.

Musculoskeletal Imaging and Intervention, Department of Radiology, Massachusetts General Hospital and Harvard Medical School, 55 Fruit Street, Boston, MA 02114, USA.

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August 2012

Facial reanimation of patients with neurofibromatosis type 2.

Neurosurgery 2012 Jun;70(2 Suppl Operative):237-43

Department of Otology and Laryngology, Division of Facial Plastic and Reconstructive Surgery, Massachusetts Eye and Ear infirmary and Harvard Medical School, Boston, Massachusetts 02114, USA.

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June 2012

Outcomes of hospitalization in pregnant women with CNS neoplasms: a population-based study.

Neuro Oncol 2012 Jun 18;14(6):768-76. Epub 2012 Apr 18.

Neurosurgical Service, White 502, Massachusetts General Hospital, Boston, MA 02114, USA.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3367848PMC
June 2012

Neurofibromatoses.

Adv Exp Med Biol 2012 ;724:266-77

Massachusetts General Hospital, Boston, MA, USA.

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April 2012

Chemotherapy: present and future.

Otolaryngol Clin North Am 2012 Apr;45(2):471-86, x

Department of Neurosurgery, Massachusetts General Hospital, White 502, 55 Fruit Street, Boston, MA 02114, USA.

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April 2012

Phase I trial with biomarker studies of vatalanib (PTK787) in patients with newly diagnosed glioblastoma treated with enzyme inducing anti-epileptic drugs and standard radiation and temozolomide.

J Neurooncol 2011 Jun 7;103(2):325-32. Epub 2010 Sep 7.

Stephen E. & Catherine Pappas Center for Neuro-Oncology, Massachusetts General Hospital Cancer Center, Harvard Medical School, 55 Fruit Street, Yawkey 9E, Boston, MA 02114, USA.

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June 2011

Spinal ependymomas in neurofibromatosis Type 2: a retrospective analysis of 55 patients.

J Neurosurg Spine 2011 Apr 4;14(4):543-7. Epub 2011 Feb 4.

Department of Neurology and Cancer Center, Massachusetts General Hospital, Boston, Massachusetts 02114, USA.

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April 2011

Exacerbation of cerebral radiation necrosis by bevacizumab.

J Clin Oncol 2011 Mar 13;29(7):e159-62. Epub 2010 Dec 13.

Massachusetts General Hospital, Boston, MA, USA.

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March 2011

Erlotinib for progressive vestibular schwannoma in neurofibromatosis 2 patients.

Otol Neurotol 2010 Sep;31(7):1135-43

Department of Neurology, Massachusetts General Hospital, Boston, Massachusetts 02114, U.S.A.

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September 2010

Anti-vascular endothelial growth factor therapies as a novel therapeutic approach to treating neurofibromatosis-related tumors.

Cancer Res 2010 May 20;70(9):3483-93. Epub 2010 Apr 20.

Department of Radiation Oncology, Steele Laboratory, Massachusetts General Hospital Cancer Center, Boston, Massachusetts, USA.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4785015PMC
May 2010

The neurofibromatoses. Part 2: NF2 and schwannomatosis.

Rev Neurol Dis 2009 ;6(3):E81-6

Department of Neurology, University of Washington, Seattle, WA, USA.

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March 2010

Use of video to facilitate end-of-life discussions with patients with cancer: a randomized controlled trial.

J Clin Oncol 2010 Jan 30;28(2):305-10. Epub 2009 Nov 30.

Departments of Medicine, Neurology and Cancer Center, and Oncology, Massachusetts General Hospital, 50 Staniford St, 9th floor, Boston, MA 02114, USA.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3040012PMC
January 2010

The Neurofibromatoses. Part 1: NF1.

Rev Neurol Dis 2009 ;6(2):E47-53

Department of Neurology, University of Washington, Seattle, WA, USA.

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October 2009

Patient and physician attitudes regarding clinical trials in neurofibromatosis 1.

J Neurosci Nurs 2008 Dec;40(6):341-5

Wardenburg Health Center at University of Colorado at Boulder, USA.

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December 2008

Three-dimensional volumetrics for tracking vestibular schwannoma growth in neurofibromatosis type II.

Neurosurgery 2008 Jun;62(6):1314-9; discussion 1319-20

3D Imaging Service, Department of Radiology, Massachusetts General Hospital, Boston, Massachusetts, USA.

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June 2008