Sarah Hewlett

Sarah Hewlett

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Sarah Hewlett

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Investigating Dimensions of Stiffness in Rheumatoid and Psoriatic Arthritis: The Australian Rheumatology Association Database Registry and OMERACT Collaboration.

J Rheumatol 2019 Nov 1;46(11):1462-1469. Epub 2019 Apr 1.

From the Institute of Bone and Joint Research, Kolling Institute; Rheumatology Department, Royal North Shore Hospital, St Leonards; Sydney Medical School, University of Sydney; School of Public Health and Community Medicine, University of New South Wales, Sydney; Monash Department of Clinical Epidemiology, Cabrini Institute; Department of Epidemiology and Preventive Medicine, School of Public Health and Preventive Medicine, Monash University, Melbourne; Rheumatology Unit, The Queen Elizabeth Hospital; Discipline of Medicine, University of Adelaide, Adelaide; Rheumatology Department, St George Hospital, Kogarah, Australia; Divisions of Clinical Epidemiology, Rheumatology, and Respiratory Epidemiology, McGill University, Montreal, Quebec, Canada; Division of Rheumatology, Johns Hopkins Medicine, Baltimore, Maryland, USA; Department of Nursing and Midwifery, University of the West of England, Bristol, UK.

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http://dx.doi.org/10.3899/jrheum.181251DOI Listing
November 2019

Psychometric properties and cross-language equivalence of the revised Bristol Rheumatoid Arthritis Fatigue and the Rheumatoid Arthritis Impact of Disease scales in rheumatoid arthritis.

Qual Life Res 2019 Sep 26;28(9):2543-2552. Epub 2019 Apr 26.

Department of Psychology, Health and Technology, University of Twente, PO BOX 50 000, 7500 KA, Enschede, The Netherlands.

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http://dx.doi.org/10.1007/s11136-019-02188-8DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6698264PMC
September 2019

Diagnosis and initial management in psoriatic arthritis: a qualitative study with patients.

Rheumatol Adv Pract 2019 26;3(2):rkz022. Epub 2019 Aug 26.

Department of Nursing & Midwifery, University of the West of England.

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http://dx.doi.org/10.1093/rap/rkz022DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6735807PMC
August 2019

Training and delivery of a novel fatigue intervention: a qualitative study of rheumatology health-care professionals' experiences.

Rheumatol Adv Pract 2019 27;3(2):rkz032. Epub 2019 Aug 27.

Department of Nursing and Midwifery, University of the West of England.

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http://dx.doi.org/10.1093/rap/rkz032DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6755488PMC
August 2019

Developing a group intervention to manage fatigue in rheumatoid arthritis through modifying physical activity.

BMC Musculoskelet Disord 2019 May 4;20(1):194. Epub 2019 May 4.

Faculty of Health & Applied Sciences, University of the West of England, Blackberry Hill, Bristol, BS16 1DD, UK.

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https://bmcmusculoskeletdisord.biomedcentral.com/articles/10
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http://dx.doi.org/10.1186/s12891-019-2558-4DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6500086PMC
May 2019

Dose reduction of biologic therapy in inflammatory arthritis: A qualitative study of patients' perceptions and needs.

Musculoskeletal Care 2019 03 6;17(1):63-71. Epub 2018 Nov 6.

Rheumatology Unit, North Bristol NHS Trust, Bristol, UK.

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http://dx.doi.org/10.1002/msc.1367DOI Listing
March 2019

Exploring the illness representations of people with psoriatic arthritis: a secondary analysis of focus group data.

Rheumatol Adv Pract 2018 8;2(2):rky023. Epub 2018 Aug 8.

Academic Rheumatology, University of the West of England, Bristol Royal Infirmary, Bristol, UK.

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http://dx.doi.org/10.1093/rap/rky023DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6649914PMC
August 2018

Development and testing of candidate items for inclusion in a new rheumatoid arthritis stiffness patient-reported outcome measure.

Rheumatology (Oxford) 2018 02;57(2):263-272

Faculty of Health and Applied Sciences, University of the West of England, Bristol, UK.

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http://academic.oup.com/rheumatology/article/57/2/263/360339
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http://dx.doi.org/10.1093/rheumatology/kex085DOI Listing
February 2018

'Everyone assumes a man to be quite strong': Men, masculinity and rheumatoid arthritis: A case-study approach.

Sociol Health Illn 2018 01 15;40(1):115-129. Epub 2017 Oct 15.

Academic Rheumatology, University of the West of England, Bristol, UK.

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http://dx.doi.org/10.1111/1467-9566.12628DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5813274PMC
January 2018

Stiffness Is the Cardinal Symptom of Inflammatory Musculoskeletal Diseases, Yet Still Variably Measured: Report from the OMERACT 2016 Stiffness Special Interest Group.

J Rheumatol 2017 Dec 15;44(12):1904-1910. Epub 2016 Dec 15.

From the Department of Nursing and Midwifery, University of the West of England; University of Bristol Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol; Leeds Institute of Rheumatic and Musculoskeletal Medicine, Leeds; Department of Rheumatology, Ashford and St. Peter's National Health Service (NHS) Foundation Trust, Chertsey; Patient Research Partner PMR-GCA Scotland, Forest Lodge, Foulden, Berwickshire, UK; Institute of Bone and Joint Research, Kolling Institute, Northern Sydney Local Health District; Department of Rheumatology, Royal North Shore Hospital, New South Wales; University of Sydney, Sydney; Rheumatology Unit, The Queen Elizabeth Hospital, Adelaide; Discipline of Medicine, University of Adelaide, Adelaide, Australia; Division of Clinical Epidemiology, Division of Rheumatology, and Division Respiratory Epidemiology, McGill University/McGill University Health Centers, Montreal, Québec; Patient Research Partner, Toronto Western Hospital, Toronto; Cochrane Musculoskeletal Group, Institute of Population Health, Ottawa, Ontario, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland; University of Illinois-Chicago, Chicago, Illinois; Healthy Motivation and Global Alliance for Musculoskeletal Health the Bone and Joint Decade, Santa Barbara, California, USA; Schlosspark-Klinik, University Medicine Berlin, Berlin, Germany; Horizon Pharma LTD, Dublin, Ireland; Department of Rheumatology and Immunology, Singapore General Hospital, Singapore.

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http://dx.doi.org/10.3899/jrheum.161073DOI Listing
December 2017

Content and Construct Validity, Reliability, and Responsiveness of the Rheumatoid Arthritis Flare Questionnaire: OMERACT 2016 Workshop Report.

J Rheumatol 2017 Oct 15;44(10):1536-1543. Epub 2017 Aug 15.

From McGill University, Montreal, Quebec; University of British Columbia, Vancouver, British Columbia, Canada; Johns Hopkins University, Baltimore, Maryland; Hospital for Special Surgery, New York, New York; University of California, Los Angeles; Healthy Motivation, Santa Barbara, California, USA; Cardiff University, Cardiff; University of the West of England, Bristol, UK; Schlosspark-Klinik University Medicine, Berlin, Germany; Parker Institute, Copenhagen University, Copenhagen, Denmark; Sint Maartenskliniek, Nijmege; Vrije Universiteit (VU), Amsterdam, the Netherlands; Pierre et Marie Curie University, Paris; University of Lorraine, Lorraine, France; University of Sydney, Sydney, Australia.

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http://dx.doi.org/10.3899/jrheum.161145DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6649670PMC
October 2017

Patients' Perspectives on the Psychological Impact of Inflammatory Arthritis and Meeting the Associated Support Needs: Open-Ended Responses in a Multi-Centre Survey.

Musculoskeletal Care 2017 09 8;15(3):175-185. Epub 2016 Sep 8.

Faculty of Health and Life Sciences, University of the West of England, Bristol, UK.

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http://dx.doi.org/10.1002/msc.1159DOI Listing
September 2017

The experience of foot problems and decisions to access foot care in patients with rheumatoid arthritis: a qualitative study.

J Foot Ankle Res 2017 25;10. Epub 2017 Jan 25.

Faculty of Health and Applied Sciences, University of the West of England, Bristol, UK.

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http://dx.doi.org/10.1186/s13047-017-0188-3DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5264322PMC
May 2017

Men, rheumatoid arthritis, psychosocial impact and self-management: A narrative review.

J Health Psychol 2016 10 9;21(10):2168-82. Epub 2015 Mar 9.

University of Bristol, UK.

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http://dx.doi.org/10.1177/1359105315572452DOI Listing
October 2016

Translating patient reported outcome measures: methodological issues explored using cognitive interviewing with three rheumatoid arthritis measures in six European languages.

Rheumatology (Oxford) 2016 Jun 24;55(6):1009-16. Epub 2016 Feb 24.

Sorbonne Universités, UPMC Univ Paris 06, Institut Pierre Louis d'Epidémiologie et de Santé Publique, GRC-UPMC 08 (EEMOIS) Department of Rheumatology, AP-HP, Pitié Salpêtrière Hospital, Paris, France.

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http://dx.doi.org/10.1093/rheumatology/kew011DOI Listing
June 2016

Identifying flares in rheumatoid arthritis: reliability and construct validation of the OMERACT RA Flare Core Domain Set.

RMD Open 2016 26;2(1):e000225. Epub 2016 May 26.

Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Divisions of Clinical Epidemiology, Rheumatology, and Respiratory Clinical Trials Unit, McGill University, Montreal, Québec, Canada.

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http://dx.doi.org/10.1136/rmdopen-2015-000225DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4885442PMC
June 2016

Biologic interventions for fatigue in rheumatoid arthritis.

Cochrane Database Syst Rev 2016 Jun 6(6):CD008334. Epub 2016 Jun 6.

Faculty of Health & Life Sciences, University of the West of England, Courtyard Building, BRI, Bristol, UK, BS2 8HW.

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http://dx.doi.org/10.1002/14651858.CD008334.pub2DOI Listing
June 2016

Patient preferences for psychological support in inflammatory arthritis: a multicentre survey.

Ann Rheum Dis 2016 Jan 26;75(1):142-7. Epub 2014 Sep 26.

Faculty of Health and Applied Sciences, University of the West of England, Bristol, UK.

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http://ard.bmj.com/content/early/2014/09/26/annrheumdis-2014
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http://dx.doi.org/10.1136/annrheumdis-2014-205636DOI Listing
January 2016

Remission in Rheumatoid Arthritis: Working Toward Incorporation of the Patient Perspective at OMERACT 12.

J Rheumatol 2016 Jan 15;43(1):203-7. Epub 2015 Feb 15.

From the Department of Rheumatology, and the Department of Epidemiology and Biostatistics, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Department of Medicine, Medical University of Vienna, Vienna, Austria; University of Bristol, and the University of the West of England, Academic Rheumatology Unit, Bristol Royal Infirmary; Bristol, UK; Quintiles Inc., Morrisville; Division of Rheumatology, Department of Medicine, Duke University School of Medicine, Durham, North Carolina, USA; Queen Elizabeth Hospital Department of Rheumatology, Woodville, South Australia; University of Adelaide, The Health Observatory Woodville, South Australia, Australia; Reade/Jan van Breemen Research Institute, Amsterdam, the Netherlands; Department of Epidemiology and Community Medicine, University of Ottawa Heart Institute, Ottawa, Ontario, Canada.L.H. van Tuyl, Postdoctoral Researcher, PhD, Department of Rheumatology, VU University Medical Center; M. Sadlonova, Occupational Therapist, MSc, Division of Rheumatology, Department of Medicine, Medical University of Vienna; B. Davis, Patient Research Partner, University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary; C. Flurey, Research Fellow, PhD, University of the West of England, Academic Rheumatology Unit, Bristol Royal Infirmary; N. Goel, MD, Senior Medical Director and Adjunct Assistant Professor of Medicine, Quintiles Inc., and Division of Rheumatology, Department of Medicine, Duke University School of Medicine; S.E. Hewlett, Professor of Rheumatology Nursing, PhD, University of the West of England, Academic Rheumatology Unit, Bristol Royal Infirmary; Queen Elizabeth Hospital, Department of Rheumatology, Woodville; C.L. Hill, MD, Rheumatologist, Queen Elizabeth Hospital Department of Rheumatology, Woodville, University of Adelaide, Health Observatory Woodville; W. Hoogland, MD, Patient Research Partner, Department of Rheumatology, VU University Medical Center; J.R. Kirwan, Professor o

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http://dx.doi.org/10.3899/jrheum.141113DOI Listing
January 2016

Feasibility and Domain Validation of Rheumatoid Arthritis (RA) Flare Core Domain Set: Report of the OMERACT 2014 RA Flare Group Plenary.

J Rheumatol 2015 Nov 15;42(11):2185-9. Epub 2015 Feb 15.

From McGill University, Montreal, Quebec, Canada; Johns Hopkins University, Baltimore, Maryland; Hospital for Special Surgery, New York, New York, USA; Swansea University, Swansea; Cardiff University, Cardiff, UK; Schlosspark-Klinik, University Medicine Berlin, Berlin, Germany; The Parker Institute, Copenhagen University Hospital at Frederiksberg, Copenhagen, Denmark; University of California, Los Angeles, California, USA; University of Lorraine, Nancy, France; University of the West of England, Bristol, UK; Healthy Motivation, Santa Barbara, California, USA; University of Sydney, Sydney, Australia; and University of Twente, Enschede, The Netherlands.S.J. Bartlett, PhD, McGill University; and Johns Hopkins University; V.P. Bykerk, MD, Hospital for Special Surgery; R. Cooksey, MSc, Swansea University; E.H. Choy, MD, Cardiff University; R. Alten, Schlosspark-Klinik, University Medicine Berlin; R. Christensen, PhD, Parker Institute, Copenhagen University Hospital at Frederiksberg; D.E. Furst, MD, University of California, Los Angeles; F. Guillemin, MD, PhD, University of Lorraine; S. Halls, MSc; S. Hewlett, PhD, RN, University of the West of England; A.L. Leong, Healthy Motivation; A. Lyddiatt; University of Sydney; L. March, MD, PhD; P. Montie; A.M. Orbai, MD, MHS, Johns Hopkins University; C. Pohl, MD, Schlosspark-Klinik, University Medicine; M. Scholte Voshaar, University of Twente; T.G. Woodworth, MD, University of California, Los Angeles; and C.O. Bingham 3rd, MD, Johns Hopkins University.

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http://www.jrheum.org/cgi/doi/10.3899/jrheum.141169
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http://dx.doi.org/10.3899/jrheum.141169DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4747421PMC
November 2015

Stiffness is more than just duration and severity: a qualitative exploration in people with rheumatoid arthritis.

Rheumatology (Oxford) 2015 Apr 16;54(4):615-22. Epub 2014 Sep 16.

Faculty of Health and Applied Sciences, University of the West of England, School of Clinical Sciences, University of Bristol and Rheumatology Department, Bristol Royal Infirmary, Bristol, UK.

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https://academic.oup.com/rheumatology/article-lookup/doi/10.
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http://dx.doi.org/10.1093/rheumatology/keu379DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4372677PMC
April 2015

Updating the OMERACT filter: implications for imaging and soluble biomarkers.

J Rheumatol 2014 May 1;41(5):1016-24. Epub 2014 Mar 1.

From Versailles-Saint Quentin En Yvelines University, Department of Rheumatology, Ambroise Paré Hospital, APHP, Boulogne-Billancourt, France; Departments of Epidemiology and Biostatistics, and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Department of Rheumatology, Leiden University Medical Center, Leiden, The Netherlands; Copenhagen Center for Arthritis Research, Center for Rheumatology and Spine Diseases, Copenhagen University Hospital Glostrup, Copenhagen, Denmark; Department of Internal Medicine 3 and Institute for Clinical Immunology, University of Erlangen-Nuremberg, Erlangen, Germany; Department of Clinical Immunology and Rheumatology, Academic Medical Center, University of Amsterdam and Atrium Medical Center, Amsterdam, The Netherlands; Department of Medicine, University of Alberta, Edmonton, Alberta, Canada; Department of Rheumatology, Hospital General Universitario Gregorio Marañón, Madrid, Spain; Paris-Descartes University, Medicine Faculty, APHP, Cochin Hospital, Rheumatology B, Paris, France; Rheumatology Unit, Sapienza Università di Roma, Rome, Italy; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; University of Melbourne, Medicine, Dentistry and Health Sciences, Melbourne, Australia; St. Michael's Hospital, Mobility Program Clinical Research Unit; Institute for Work and Health; University of Toronto, Department of Health Policy, Management and Evaluation, Department of Rehabilitation Science and Department of Occupational Science and Occupational Therapy, Toronto, Ontario, Canada; Pierre et Marie Curie University (UPMC) - Paris, GRC-UPMC 08 (EEMOIS); AP-HP Pitié Salpêtrière Hospital, Department of Rheumatology, Paris; Université de Lorraine, Université Paris Descartes, EA 4360 APEMAC, Nancy and Inserm CIC-EC, CHU de Nancy, Nancy, France; Department of Nursing, University of the West of England, Bris

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http://dx.doi.org/10.3899/jrheum.131313DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4223089PMC
May 2014

Updating the OMERACT filter: implications for patient-reported outcomes.

J Rheumatol 2014 May 1;41(5):1011-5. Epub 2014 Mar 1.

From the University of Bristol, Academic Rheumatology Unit, and the University of the West of England, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Department of Medicine, McGill University, Montreal, Quebec, Canada; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; Department of Occupational Sciences and Occupational Therapy, Institute for Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada; Departments of Epidemiology and Biostatistics, and Rheumatology, and Department of Medical Humanities, VU University Medical Center, Amsterdam, The Netherlands; National Rheumatoid Arthritis Society, Maidenhead, Berkshire, UK; Faculty of Health Sciences, University of Queensland, Royal Brisbane and Women's Hospital, Herston, Brisbane, Australia; Section of Rheumatology, Cardiff University School of Medicine, Cardiff, UK; Université de Lorraine, Université Paris Descartes, Paris, France; Department of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway; Department of Clinical Immunology and Rheumatology, Academic Medical Center, University of Amsterdam and Atrium Medical Center Heerlen, Amsterdam, The Netherlands; Healthy Motivation, Bone and Joint Decade, Santa Barbara, California, USA; Cochrane Musculoskeletal Group, Institute of Population Health, Ottawa, Ontario, Canada; Department of Rheumatology, Royal North Shore Hospital, St. Leonards, New South Wales, Australia; Consumer Advisory Board, Arthritis Research Centre of Canada, Richmond, British Columbia, Canada; UCB Pharma S.A., Brussels, Belgium; Division of Immunology/Rheumatology, Stanford University School of Medicine, Palo Alto, California, USA; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Université Pierre et Marie Curie (UPMC) - Paris 6, GRC-UMPC 08 (EEMOIS); AP-HP Pitié Salpêtrière Hospital, Department of Rheumatology, Paris, France.

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http://dx.doi.org/10.3899/jrheum.131312DOI Listing
May 2014

Updating the OMERACT filter: core areas as a basis for defining core outcome sets.

J Rheumatol 2014 May 15;41(5):994-9. Epub 2014 Mar 15.

From the University of Bristol Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Departments of Epidemiology and Biostatistics, and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; University of the West of England, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Department of Occupational Sciences and Occupational Therapy, Institute for Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; Section of Rheumatology, Cardiff University School of Medicine, Cardiff, UK; Division of Musculoskeletal Disease, University of Leeds; UK National Institute for Health Research (NIHR) Leeds Musculoskeletal Biomedical Research Unit, Leeds, UK; Versailles-Saint Quentin En Yvelines University, Department of Rheumatology, Ambroise Paré Hospital, APHP, Boulogne-Billancourt; Paris-Descartes University, Medicine Faculty, APHP, Cochin Hospital, Rheumatology B, Paris, France; University of California, Geffen School of Medicine, Los Angeles, California, USA; Université de Lorraine, Université Paris Descartes, Nancy; Université Pierre et Marie Curie (UPMC), Paris; AP-HP Pitié Salpêtrière Hospital, Department of Rheumatology, Paris, France; Departments of Rheumatology and Clinical Epidemiology, Leiden University Medical Center, Leiden, The Netherlands; Department of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway; Department of Clinical Immunology and Rheumatology, Academic Medical Center, University of Amsterdam and Atrium Medical Center Heerlen, the Netherlands; NIHR-Leeds Musculoskeletal Biomedical Research Unit, Division of Rheumatic and Musculoskeletal Diseases, University of Leeds, Leeds, UK; Division of Rheumatology, Mayo Clinic College of Medicine, Rochester, Minnesota, USA; Seattle Rheumatology Associates, Swedish Medical Center Rheumatology Research Division, University of Washington School of Medicine,

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http://dx.doi.org/10.3899/jrheum.131309DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4217644PMC
May 2014

Updating the OMERACT filter: discrimination and feasibility.

J Rheumatol 2014 May 1;41(5):1005-10. Epub 2014 Apr 1.

From the Cardiovascular Research Methods Centre, Department of Epidemiology and Community Medicine, University of Ottawa; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Departments of Epidemiology and Biostatistics, and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; University of Bristol Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Department of Occupational Sciences and Occupational Therapy, Institute for Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, Maastricht University, Maastricht, The Netherlands; Australian Health Workforce Institute (AHWI), School of Population Health, University of Melbourne, Melbourne, Australia; Division of Musculoskeletal Disease, University of Leeds, and UK National Institute for Health Research (NIHR) Leeds Musculoskeletal Biomedical Research Unit, Leeds, UK; Versailles-Saint Quentin En Yvelines University, Department of Rheumatology, Ambroise Paré Hospital, APHP, Boulogne-Billancourt; Paris-Descartes University, Medicine Faculty, APHP, Cochin Hospital, Rheumatology B, Paris, France; Section of Rheumatology, Cardiff University School of Medicine, Cardiff, UK; Department of Rheumatology, Geffen School of Medicine at the University of California in Los Angeles; Los Angeles, California, USA; Université Pierre et Marie Curie (UPMC) - Paris 6, GRC-UMPC 08 (EEMOIS); AP-HP Pitié Salpêtrière Hospital, Department of Rheumatology, Paris; Université de Lorraine, Université Paris Descartes, Nancy, France; University of Leeds, Section of Musculoskeletal Disease, LIMM Chapel Allerton Hospital, Leeds West Yorkshire; University of the West of England, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Department of Rh

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http://dx.doi.org/10.3899/jrheum.131311DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4212640PMC
May 2014

Updating the OMERACT filter: implications of filter 2.0 to select outcome instruments through assessment of "truth": content, face, and construct validity.

J Rheumatol 2014 May 1;41(5):1000-4. Epub 2014 Apr 1.

From the Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Departments of Epidemiology and Biostatistics, and Rheumatology, VU University Medical Center, Amsterdam, The Netherlands; Versailles-Saint Quentin En Yvelines University, Department of Rheumatology, Ambroise Paré Hospital, APHP, Boulogne-Billancourt; Paris-Descartes University, Medicine Faculty, APHP, Cochin Hospital, Rheumatology B, Paris, France; Department of Occupational Sciences and Occupational Therapy, Institute for Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, Maastricht University, The Netherlands; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; Section of Rheumatology, Cardiff University School of Medicine, Cardiff, UK; Division of Musculoskeletal Disease, University of Leeds, and the UK National Institute for Health Research (NIHR) Leeds Musculoskeletal Biomedical Research Unit, UK; Rheumatology Department, Centro Hospitalar e Universitário de Coimbra, Coimbra, Portugal; Department of Rheumatology, Geffen School of Medicine at the University of California in Los Angeles, Los Angeles, California, USA; Université de Lorraine, EA 4360 APEMAC, Nancy; Université Pierre et Marie Curie (UPMC) - Paris 6, GRC-UMPC 08 (EEMOIS); AP-HP Pitié Salpêtrière Hospital, Department of Rheumatology, Paris, France; Oslo University Hospital and Lovisenberg Diaconal University College, Oslo, Norway; Department of Rheumatology, Leiden University Medical Center, Leiden, The Netherlands; University of the West of England, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Department of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway; Department of Clinical Immunology and Rheumatology, Academic Medical Center, University of Amsterdam and Atrium Medical Center Heerlen, Heerlen, The

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http://dx.doi.org/10.3899/jrheum.131310DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4212637PMC
May 2014

It's like a juggling act: rheumatoid arthritis patient perspectives on daily life and flare while on current treatment regimes.

Rheumatology (Oxford) 2014 Apr 19;53(4):696-703. Epub 2013 Dec 19.

Academic Rheumatology Unit, The Courtyard, Bristol Royal Infirmary, Bristol BS2 8HW.

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http://dx.doi.org/10.1093/rheumatology/ket416DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3970565PMC
April 2014

Establishing a core domain set to measure rheumatoid arthritis flares: report of the OMERACT 11 RA flare Workshop.

J Rheumatol 2014 Apr 1;41(4):799-809. Epub 2014 Mar 1.

From the Department of Rheumatology, Hospital for Special Surgery, New York, New York, USA; Department of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway; Johns Hopkins University, Baltimore, Maryland, USA; McGill University, Montreal, Quebec, Canada; Schlosspark Klinik, Charité University Medicine, Berlin, Germany; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, Maastricht, The Netherlands; Musculoskeletal Statistics Unit, The Parker Institute, Department of Rheumatology, Copenhagen University Hospital, Bispebjerg and Frederiksberg, Denmark; David Geffen School of Medicine, University of California at Los Angeles, Los Angeles, California, USA; University of the West of England, Bristol, UK; Healthy Motivation, Bone and Joint Decade, Santa Barbara, California, USA; Musculoskeletal Group, Cochrane Collaboration; University of Sydney Department of Rheumatology, Royal North Shore Hospital, St. Leonards, Australia; National Fathers' Network, Seattle, Washington, USA; Arthritis Research Center, Vancouver, British Columbia, Canada; Tools2use.eu, Bussum, The Netherlands; and the Department of Rheumatology, Cardiff University, Cardiff, UK.

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http://www.jrheum.org/lookup/doi/10.3899/jrheum.131252
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http://dx.doi.org/10.3899/jrheum.131252DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4365895PMC
April 2014

Different wording of the Patient Global Visual Analogue Scale (PG-VAS) affects rheumatoid arthritis patients' scoring and the overall Disease Activity Score (DAS28): a cross-sectional study.

Musculoskeletal Care 2013 Dec 4;11(4):229-37. Epub 2013 Feb 4.

Rheumatology Department, Bristol Royal Infirmary, Bristol, UK.

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http://dx.doi.org/10.1002/msc.1046DOI Listing
December 2013

Reliability and sensitivity to change of the Bristol Rheumatoid Arthritis Fatigue scales.

Rheumatology (Oxford) 2013 Oct 9;52(10):1832-9. Epub 2013 Jul 9.

Academic Rheumatology, Bristol Royal Infirmary, Bristol BS2 8HW, UK.

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http://dx.doi.org/10.1093/rheumatology/ket218DOI Listing
October 2013

Non-pharmacological interventions for fatigue in rheumatoid arthritis.

Cochrane Database Syst Rev 2013 Aug 23(8):CD008322. Epub 2013 Aug 23.

Faculty of Health & Life Sciences, University of the West of England, Glenside campus, Blackberry Hill, Bristol, UK, BS16 1DD.

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http://dx.doi.org/10.1002/14651858.CD008322.pub2DOI Listing
August 2013

Exploring the cultural validity of rheumatology outcomes.

Br J Nurs 2012 Sep 27-Oct 10;21(17):1015-20, 1522-3

University of the West of England.

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December 2012

'To suddenly have a name for this thing… was wonderful': the patient's experience of receiving a diagnosis of systemic lupus erythematosus.

Musculoskeletal Care 2012 Sep 18;10(3):135-41. Epub 2012 Apr 18.

The Royal National Hospital for Rheumatic Diseases, Bath, UK.

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http://dx.doi.org/10.1002/msc.1010DOI Listing
September 2012

Cognitive-behavioural approaches to self-management in rheumatic disease.

Nat Rev Rheumatol 2012 09 17;8(9):553-9. Epub 2012 Jul 17.

University of the West of England, Academic Rheumatology, Bristol Royal Infirmary, Upper Maudlin Street, Bristol BS2 8HW, UK.

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http://dx.doi.org/10.1038/nrrheum.2012.108DOI Listing
September 2012

Furthering our understanding of fatigue in rheumatoid arthritis.

J Rheumatol 2012 Sep;39(9):1775-7

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http://dx.doi.org/10.3899/jrheum.120724DOI Listing
September 2012

Utilizing qualitative data from nominal groups: exploring the influences on treatment outcome prioritization with rheumatoid arthritis patients.

J Health Psychol 2012 Jan 27;17(1):132-42. Epub 2011 Jun 27.

University of the West of England, Bristol, UK.

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http://dx.doi.org/10.1177/1359105311410758DOI Listing
January 2012

'It's more scary not to know': a qualitative study exploring the information needs of patients with systemic lupus erythematosus at the time of diagnosis.

Musculoskeletal Care 2011 Dec 13;9(4):228-38. Epub 2011 Oct 13.

The Royal National Hospital for Rheumatic Diseases, Bath, UK.

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http://dx.doi.org/10.1002/msc.221DOI Listing
December 2011

Patient perspective: choosing or developing instruments.

J Rheumatol 2011 Aug;38(8):1716-9

University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK.

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http://www.jrheum.org/lookup/doi/10.3899/jrheum.110390
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http://dx.doi.org/10.3899/jrheum.110390DOI Listing
August 2011

Men's experiences of rheumatoid arthritis: an inductive thematic analysis.

Musculoskeletal Care 2011 Jun;9(2):102-12

Plymouth University, Plymouth, UK.

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http://dx.doi.org/10.1002/msc.203DOI Listing
June 2011

Shifting normalities: interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis.

Sociol Health Illn 2011 May 1;33(4):618-33. Epub 2011 Feb 1.

Faculty of Health and Life Sciences, University of the West of England, Glenside Campus, Blackberry Hill, Stapleton, Bristol.

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http://dx.doi.org/10.1111/j.1467-9566.2010.01305.xDOI Listing
May 2011

Persistent pain after joint replacement: prevalence, sensory qualities, and postoperative determinants.

Pain 2011 Mar 15;152(3):566-72. Epub 2011 Jan 15.

University of Bristol, Musculoskeletal Research Unit, Avon Orthopaedic Centre, Southmead Hospital, Bristol, UK.

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http://dx.doi.org/10.1016/j.pain.2010.11.023DOI Listing
March 2011

Collaboration with patients in the design of patient-reported outcome measures: capturing the experience of fatigue in rheumatoid arthritis.

Arthritis Care Res (Hoboken) 2010 Nov 23;62(11):1552-8. Epub 2010 May 23.

University of the West of England, Bristol, UK.

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http://doi.wiley.com/10.1002/acr.20264
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November 2010

Evaluation of the Personal Impact Health Assessment Questionnaire (PI HAQ) to capture the impact of disability in osteoarthritis.

Musculoskeletal Care 2010 Jun;8(2):87-98

University of Bristol, Bristol Implant Research Centre, Avon Orthopaedic Centre, Southmead Hospital, Bristol, UK.

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http://dx.doi.org/10.1002/msc.170DOI Listing
June 2010

Developing a standardized definition for disease "flare" in rheumatoid arthritis (OMERACT 9 Special Interest Group).

J Rheumatol 2009 Oct 14;36(10):2335-41. Epub 2009 Aug 14.

Division of Rheumatology, Johns Hopkins University, 5200 Eastern Avenue, Mason Lord Center Tower, Room 404, Baltimore, MD 21224, USA.

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http://dx.doi.org/10.3899/jrheum.090369DOI Listing
October 2009

Fatigue in patients with rheumatoid arthritis: British and Dutch nurses' knowledge, attitudes and management.

J Adv Nurs 2009 Apr 19;65(4):901-11. Epub 2009 Feb 19.

Radboud University Nijmegen Medical Centre, The Netherlands.

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http://dx.doi.org/10.1111/j.1365-2648.2008.04904.xDOI Listing
April 2009

Clinical and psychological outcomes of patient education in rheumatoid arthritis.

Musculoskeletal Care 2005 ;3(1):1-16

Rheumatology Unit, University of Bristol Division of Medicine, Bristol, UK.

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http://dx.doi.org/10.1002/msc.21DOI Listing
June 2007

Outcomes generated by patients with rheumatoid arthritis: how important are they?

Musculoskeletal Care 2005 ;3(3):131-42

Academic Rheumatology Unit, University of Bristol.

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http://dx.doi.org/10.1002/msc.3DOI Listing
June 2007

Patient perspective: reasons and methods for measuring fatigue in rheumatoid arthritis.

J Rheumatol 2007 May;34(5):1171-3

University of Bristol Academic Rheumatology Unit, United Bristol Healthcare NHS Trust, and Faculty of Health and Social Care, University of the West of England, Bristol, UK.

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May 2007

Patient perspective: fatigue as a recommended patient centered outcome measure in rheumatoid arthritis.

J Rheumatol 2007 May;34(5):1174-7

University of Bristol Academic Rheumatology Unit, and United Bristol Healthcare NHS Trust, Bristol, UK.

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May 2007

Personal impact of disability in osteoarthritis: patient, professional and public values.

Musculoskeletal Care 2006 Sep;4(3):152-66

Academic Orthopaedic Unit, University of Bristol, Southmead Hospital, Bristol, UK.

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http://doi.wiley.com/10.1002/msc.86
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September 2006

Patients and professionals as research partners: challenges, practicalities, and benefits.

Arthritis Rheum 2006 Aug;55(4):676-80

University of the West of England, Bristol, United Kingdom.

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http://doi.wiley.com/10.1002/art.22091
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August 2006

Implementing a patient-led service for chronic conditions.

Nurs Times 2005 Dec 6-12;101(49):28-31

Rheumatology Centre, Bristol Royal Infirmary.

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March 2006

Rheumatology telephone helplines: patient and health professionals' requirements.

Musculoskeletal Care 2006 Mar;4(1):24-37

Royal National Hospital for Rheumatic Disease NHS Foundation Trust, Bath, and University of Bristol, UK.

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http://dx.doi.org/10.1002/msc.20DOI Listing
March 2006

Progress since OMERACT 6 on including patient perspective in rheumatoid arthritis outcome assessment.

J Rheumatol 2005 Nov;32(11):2246-9

University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK.

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November 2005

Incorporating the patient perspective into outcome assessment in rheumatoid arthritis--progress at OMERACT 7.

J Rheumatol 2005 Nov;32(11):2250-6

University of Bristol Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK.

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November 2005

Consent to research in arthritis: quantity of information versus quality.

Authors:
Sarah Hewlett

Arthritis Rheum 2003 Jun;49(3):281-2

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http://dx.doi.org/10.1002/art.11048DOI Listing
June 2003

MCID/Low Disease Activity State Workshop: summary, recommendations, and research agenda.

J Rheumatol 2003 May;30(5):1115-8

Department of Clinical Epidemiology and Community Medicine, University of Ottawa, Ottawa, Ontario, Canada.

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May 2003

Patients and clinicians have different perspectives on outcomes in arthritis.

Authors:
Sarah A Hewlett

J Rheumatol 2003 Apr;30(4):877-9

Academic Rheumatology, University of Bristol, Bristol Royal Infirmary, Bristol, UK.

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April 2003

Rheumatology outcomes: the patient's perspective.

J Rheumatol 2003 Apr;30(4):880-3

Academic Rheumatology, University of Nottingham, Nottingham, UK.

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April 2003