Publications by authors named "Sara Chandros Hull"

50Publications

The Meaning of Informed Consent: Genome Editing Clinical Trials for Sickle Cell Disease.

AJOB Empir Bioeth 2020 Oct-Dec;11(4):195-207. Epub 2020 Oct 12.

Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA.

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October 2020

Single IRBs Are Responsible to Ensure Consent Language Effectively Conveys the Local Context.

Am J Bioeth 2019 Apr;19(4):85-86

National Institute of Environmental Health Sciences, National Institutes of Health.

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April 2019

Noninvasive Prenatal Whole Genome Sequencing: Pregnant Women's Views and Preferences.

Obstet Gynecol 2019 03;133(3):525-532

National Institutes of Health Clinical Center and National Human Genome Research Institute, Bethesda, Maryland; Harvard Medical School, Boston, Massachusetts; INOVA Translational Medicine Institute, Falls Church, Virginia; and RTI International, Research Triangle Park, North Carolina.

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March 2019

Constructing identities: the implications of DTC ancestry testing for tribal communities.

Genet Med 2019 08 21;21(8):1744-1750. Epub 2019 Jan 21.

Department of Bioethics, Clinical Center, National Institutes of Health, Bethesda, MD, USA.

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August 2019

Implementing the Single Institutional Review Board Model: Lessons from the Undiagnosed Diseases Network.

Clin Transl Sci 2018 01 23;11(1):28-31. Epub 2017 Oct 23.

Office of Research and Development, United States Department of Veterans Affairs, Washington, District of Columbia, USA.

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January 2018

Harms of Deception in FMR1 Premutation Genotype-Driven Recruitment.

Am J Bioeth 2017 04;17(4):62-63

b National Institutes of Health Clinical Center and National Human Genome Research Institute (NHGRI).

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April 2017

Recontacting participants for expanded uses of existing samples and data: a case study.

Genet Med 2017 08 26;19(8):883-889. Epub 2017 Jan 26.

Department of Bioethics, Clinical Center, National Institutes of Health, Bethesda, Maryland, USA.

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August 2017

Views of American OB/GYNs on the ethics of prenatal whole-genome sequencing.

Prenat Diagn 2016 Dec 6;36(13):1250-1256. Epub 2016 Dec 6.

Department of Bioethics, Clinical Center, National Institutes of Health, Bethesda, MD, USA.

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December 2016

Patient attitudes about the clinical use of placebo: qualitative perspectives from a telephone survey.

BMJ Open 2016 Apr 4;6(4):e011012. Epub 2016 Apr 4.

Department of Pain Translation Symptom Science; School of Medicine, Department of Anesthesiology, University of Maryland, School of Nursing, Center to Advance Chronic Pain Research (CACPR), Baltimore, Maryland, USA.

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April 2016

Institutional review board perspectives on obligations to disclose genetic incidental findings to research participants.

Genet Med 2016 07 19;18(7):705-11. Epub 2015 Nov 19.

Department of Bioethics, Clinical Center, National Institutes of Health, Bethesda, Maryland, USA.

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July 2016

Scrutinizing the Right Not to Know.

Am J Bioeth 2015 ;15(7):17-9

a National Institutes of Health.

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February 2016

The DISCUSS Project: Revised Points to Consider for the Derivation of Induced Pluripotent Stem Cell Lines From Previously Collected Research Specimens.

Stem Cells Transl Med 2015 Feb 5;4(2):123-9. Epub 2015 Jan 5.

Centre of Genomics and Policy, Faculty of Medicine, Department of Human Genetics, McGill University, Montreal, Quebec, Canada.

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February 2015

The unintended implications of blurring the line between research and clinical care in a genomic age.

Per Med 2014 ;11(3):285-295

Department of Bioethics, Clinical Center, NIH, Bethesda, MD, USA ; Faculty of Law, University of Tasmania, Australia.

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January 2014