Patricia A Deverka

Patricia A Deverka

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Patricia A Deverka

Patricia A Deverka

Publications by authors named "Patricia A Deverka"

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Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons.

J Law Med Ethics 2019 Mar;47(1):12-20

Amy L. McGuire, J.D., Ph.D., is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Dr. McGuire serves on the program committee for the Greenwall Foundation Faculty Scholars Program in Bioethics and is immediate past president of the Association of Bioethics Program Directors. Mary A. Majumder, J.D., Ph.D., is an Associate Professor of Medicine at the Center for Medical Ethics and Health Policy, Baylor College of Medicine. Angela G. Villanueva, M.P.H., is a Research Associate at the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Jessica Bardill, Ph.D., is an Assistant Professor of Indigenous Canadian Literatures and Cultures at Concordia University in Montreal, Quebec. Juli M. Bollinger, M.S., is a Research Associate in the Center for Medical Ethics and Health Policy at the Baylor College of Medicine and a Research Associate and Associate Faculty at the Berman Institute of Bioethics at Johns Hopkins University. Eric Boerwinkle, Ph.D., is the Dean of the University of Texas Health Science Center at Houston, School of Public Health and the Associate Director, Human Genome Sequencing Center at Baylor College of Medicine. Tania Bubela, Ph.D., J.D., is the Dean of the Faculty of Health Sciences at Simon Fraser University and a Fellow of the Canadian Academy of Health Sciences. Patricia Deverka, M.D., M.S., M.B.E., is Director, Value Evidence and Outcomes at Geisinger National Precision Health, where she focuses Outcomes at Geisinger National Precision Health, where she focuses systems and policymakers. Barbara Evans, MS, Ph.D., J.D., LL.M., is the Mary Ann and Lawrence E. Faust Professor of Law and Director of the Center for Biotechnology & Law at the University of Houston Law Center and holds a joint appointment as Professor of Electrical and Computer Engineering at the UH Cullen College of Engineering. Nanibaa' A. Garrison, Ph.D. (Navajo), is an Assistant Professor at the Treuman Katz Center for Pediatric Bioethics at Seattle Children's Hospital and Research Institute and at the Department of Pediatrics at the University of Washington School of Medicine. David Glazer is an engineering director at Verily Life Sciences, where he helps life science organizations use cloud computing to accelerate and scale their work with big data. Melissa M. Goldstein, J.D., is an Associate Professor in the Department of Health Policy and Management at the Milken Institute School of Public Health at the George Washington University. Henry T. Greely, J.D., is the Deane F. and Kate Edelman Johnson Professor of Law and a professor (by courtesy) of Genetics at Stanford University, where he directs the Center for Law and the Biosciences. He is President of the International Neuroethics Society, co-chair of the Neuroethics Work Group of the NIH BRAIN Initiative, and a member of the National Academies' Committee on Science, Technology, and Law. Scott D. Kahn, Ph.D., is the Chief Information Officer at LunaDNA where he is responsible for all informatics and data science strategy. Bartha M. Knoppers, Ph.D., (Comparative Medical Law), is a Full Professor, Canada Research Chair in Law and Medicine and Director of the Centre of Genomics and Policy of the Faculty of Medicine at McGill University. Barbara A. Koenig, Ph.D., is Professor of Bioethics and Medical Anthropology, based at the Institute for Health & Aging, University of California, San Francisco. She also serve as Director of the UCSF Program in Bioethics. J. Mark Lambright, M.B.A., is the Chairman, Trident Advisors, LLC - CEO (Interim), Private Access, Inc. Mark Lambright has been a senior executive of a number of healthcare and technology companies ranging in size from startup to multi-billion in revenue. John Mattison, M.D., is Assistant Medical Director, KP, SCAL, Chief Health Information Officer. Founder of CDA/CCD (XML standard for healthcare interoperability). Co-Editor of Healthcare Information Technology (2017 McGraw Hill). Christopher J. O'Donnell, M.D., M.P.H., is Chief, Cardiology Section and Director, Center for Population Genomics, of the Boston VA Healthcare System and co-Principal Investigator (Chief Scientist) of the national VA Million Veteran Program; and is VA Contact Principal Investigator of the NIH All of Us Research Program. He is also a faculty member of the Department of Medicine, Brigham and Women's Hospital and Associate Professor of Medicine, Harvard Medical School. Arti K. Rai, J.D., is the Elvin R. Latty Professor of Law and co-Director of the Center for Innovation Policy at Duke Law. Laura L. Rodriguez, Ph.D., is the Director of the Division of Policy, Communications, and Education at the National Human Genome Research Institute. Tania Simoncelli, M.S., is the Director of Science Policy at the Chan Zuckerberg Initiative. Formerly Executive Director, Count Me In at the Broad Institute, Assistant Director of Forensic Science and Biomedical Innovation, White House Office of Science & Technology Policy, and Science Advisor to the American Civil Liberties Union. Sharon F. Terry, M.A., is the president and CEO of Genetic Alliance. Adrian Thorogood, B.C.L./LL.B., is a lawyer and Academic Associate at the Centre of Genomics and Policy at McGill University in Montreal, Canada. He manages the Regulatory and Ethics Work Stream of the Global Alliance for Genomics and Health. Michael S. Watson, M.S., Ph.D., is the Executive Director, American College of Medical Genetics and Genomics and ACMG Foundation for Genetic and Genomic Medicine and an Adjunct Professor of Pediatrics at Washington University School of Medicine. John T. Wilbanks is the Chief Commons Officer at Sage Bionetworks, and co-PI on awards for AllofUs Research Program, ELSI Issues in Unregulated Mobile Research, CTSA Center for Data To Health. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University.

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http://dx.doi.org/10.1177/1073110519840480DOI Listing
March 2019

Characterizing the Biomedical Data-Sharing Landscape.

J Law Med Ethics 2019 Mar;47(1):21-30

Angela G. Villanueva, M.P.H., is a Research Associate at the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University. Barbara A. Koenig, Ph.D., is Professor of Bioethics and Medical Anthropology, based at the Institute for Health & Aging, University of California, San Francisco. Patricia A. Deverka, M.D., M.S., M.B.E., is Director, Value Evidence and Outcomes at Geisinger National Precision Health, where she focuses on demonstrating the value of genomic sequencing for health systems and policy-makers.Erika Versalovic is a Ph.D. student in the philosophy department at the University of Washington and a neuroethics fellow with the Center for Neurotechnology in Seattle, WA. Amy L. McGuire, J.D., Ph.D., is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Mary A. Majumder, J.D., Ph.D., is an Associate Professor of Medicine at the Center for Medical Ethics and Health Policy, Baylor College of Medicine.

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http://dx.doi.org/10.1177/1073110519840481DOI Listing
March 2019

Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons.

J Law Med Ethics 2019 Mar;47(1):70-87

Patricia A. Deverka, M.D., M.S., M.B.E., is Director, Value Evidence and Outcomes at Geisinger National Precision Health, where she focuses on demonstrating the value of genomic sequencing for health systems and policymakers. Dierdre Gilmore, M.A., is a Senior Researcher at the American Institutes for Research. Gilmore earned a MA in Medical Anthropology at the University of London. Jennifer Richmond, M.S.P.H., is a Research Associate at the American Institutes for Research and a doctoral student in the Department of Health Behavior at the University of North Carolina at Chapel Hill (UNC-CH) Gillings School of Global Public Health. Zachary Smith is a Research Assistant at the American Institutes for Research. Rikki Mangrum, M.L.S., is a Senior Research Scientist at the American Institutes for Research. Barbara A. Koenig, Ph.D., is Professor of Bioethics and Medical Anthropology, based at the Institute for Health & Aging, University of California, San Francisco. She serves as Director of the UCSF Program in Bioethics. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University. He is a physician and molecular biologist who turned to policy and then entered academe through Georgetown, Stanford, and Duke Universities before joining ASU. Angela G. Villanueva, M.P.H., is a Research Associate at the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Mary A. Majumder, J.D., Ph.D., is an Associate Professor of Medicine at the Center for Medical Ethics and Health Policy, Baylor College of Medicine. Amy L. McGuire, J.D., Ph.D., is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Dr. McGuire serves on the program committee for the Greenwall Foundation Faculty Scholars Program in Bioethics and is immediate past president of the Association of Bioethics Program Directors.

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http://dx.doi.org/10.1177/1073110519840486DOI Listing
March 2019

The Role of Participants in a Medical Information Commons.

J Law Med Ethics 2019 Mar;47(1):51-61

Mary A. Majumder, J.D., Ph.D., is an Associate Professor of Medicine at the Center for Medical Ethics and Health Policy, Baylor College of Medicine. Juli M. Bollinger, M.S., is a Research Associate in the Center for Medical Ethics and Health Policy at the Baylor College of Medicine and a Research Associate and Associate Faculty at the Berman Institute of Bioethics at Johns Hopkins University. Angela G. Villanueva, M.P.H., is a Research Associate at the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Patricia A. Deverka, M.D., M.S., M.B.E., is Director, Value Evidence and Outcomes at Geisinger National Precision Health, where she focuses on demonstrating the value of genomic sequencing for health systems and policymakers. Barbara A. Koenig, Ph.D., is Professor of Bioethics and Medical Anthropology, based at the Institute for Health & Aging, University of California, San Francisco. She serves as Director of the UCSF Program in Bioethics. Previously, Prof. Koenig was the founding executive director of the Center for Biomedical Ethics at Stanford University; she created and led the Bioethics Research Program at the Mayo Clinic in Rochester, Minn.

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http://dx.doi.org/10.1177/1073110519840484DOI Listing
March 2019

Methodological Issues in Assessing the Economic Value of Next-Generation Sequencing Tests: Many Challenges and Not Enough Solutions.

Value Health 2018 09 8;21(9):1033-1042. Epub 2018 Aug 8.

Nuffield Department of Population Health, Medical Sciences Division, University of Oxford, Oxford, UK.

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http://dx.doi.org/10.1016/j.jval.2018.06.017DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6159915PMC
September 2018

A New Framework for Patient Engagement in Cancer Clinical Trials Cooperative Group Studies.

J Natl Cancer Inst 2018 Jun;110(6):553-559

Hutchinson Institute for Cancer Outcomes Research, Fred Hutchinson Cancer Research Center, Seattle, WA.

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http://dx.doi.org/10.1093/jnci/djy064DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6005117PMC
June 2018

Genetic Test Availability And Spending: Where Are We Now? Where Are We Going?

Health Aff (Millwood) 2018 05;37(5):710-716

Michael P. Douglas is a program manager in the Center for Translational and Policy Research on Personalized Medicine, Department of Clinical Pharmacy, UCSF.

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http://dx.doi.org/10.1377/hlthaff.2017.1427DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5987210PMC
May 2018

Insurance coverage for genomic tests.

Science 2018 Apr 19;360(6386):278-279. Epub 2018 Apr 19.

Center for Business Models in Healthcare, Northwestern University Feinberg School of Medicine, Chicago, IL 60611, USA.

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http://www.sciencemag.org/lookup/doi/10.1126/science.aas9268
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http://dx.doi.org/10.1126/science.aas9268DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5991085PMC
April 2018

Making genomic medicine evidence-based and patient-centered: a structured review and landscape analysis of comparative effectiveness research.

Genet Med 2017 10 13;19(10):1081-1091. Epub 2017 Apr 13.

University of California at San Francisco, Department of Clinical Pharmacy, Center for Translational and Policy Research on Personalized Medicine (TRANSPERS), San Francisco, California, USA.

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http://dx.doi.org/10.1038/gim.2017.21DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5629101PMC
October 2017

Payer coverage policies for multigene tests.

Nat Biotechnol 2017 07;35(7):614-617

Division of Medical Genetics, Department of Medicine, University of Washington, Seattle, Washington, USA.

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http://dx.doi.org/10.1038/nbt.3912DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5553867PMC
July 2017

Payer decision making for next-generation sequencing-based genetic tests: insights from cell-free DNA prenatal screening.

Genet Med 2017 05 22;19(5):559-567. Epub 2016 Sep 22.

Department of Clinical Pharmacy, Center for Translational and Policy Research on Personalized Medicine (TRANSPERS), University of California San Francisco, San Francisco, California, USA.

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http://dx.doi.org/10.1038/gim.2016.145DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5362360PMC
May 2017

Payer Coverage for Hereditary Cancer Panels: Barriers, Opportunities, and Implications for the Precision Medicine Initiative.

J Natl Compr Canc Netw 2017 02 10;15(2):219-228. Epub 2017 Feb 10.

From UCSF Center for Translational and Policy Research on Personalized Medicine (TRANSPERS), Department of Clinical Pharmacy, University of California, San Francisco, San Franscisco, California; Center for Business Models in Healthcare, Chicago, Illinois; Feinberg School of Medicine, Northwestern University, Chicago, Illinois; Departments of Medicine and of Health Research and Policy, Stanford University School of Medicine, Stanford, California; Department of Medicine, Division of Hematology/Oncology, University of California, San Francisco, San Francisco, Califorina; Helen Diller Family Comprehensive Cancer Center, University of California, San Francisco, San Francisco, California; American Institutes for Research, Chapel Hill, North Carolina; and Philip R. Lee Institute for Health Policy, University of California, San Francisco, San Francisco, California.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5508568PMC
February 2017

Decision Making on Medical Innovations in a Changing Health Care Environment: Insights from Accountable Care Organizations and Payers on Personalized Medicine and Other Technologies.

Value Health 2017 01;20(1):40-46

UCSF Center for Translational and Policy Research on Personalized Medicine (TRANSPERS), Department of Clinical Pharmacy, University of California, San Franscisco, CA, USA; Helen Diller Family Comprehensive Cancer Center, University of California, San Francisco, CA, USA; Philip R. Lee Institute for Health Policy, University of California, San Francisco, CA, USA.

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http://dx.doi.org/10.1016/j.jval.2016.09.2402DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5319741PMC
January 2017

EXAMINING EVIDENCE IN U.S. PAYER COVERAGE POLICIES FOR MULTI-GENE PANELS AND SEQUENCING TESTS.

Int J Technol Assess Health Care 2017 Jan 25;33(4):534-540. Epub 2017 Oct 25.

University of California at San Francisco,Department of Clinical Pharmacy.

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http://dx.doi.org/10.1017/S0266462317000903DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5732073PMC
January 2017

Clinical integration of next generation sequencing: coverage and reimbursement challenges.

J Law Med Ethics 2014 ;42 Suppl 1:22-41

Adjunct Associate Professor at the University of North Carolina at Chapel Hill School of Pharmacy where she focuses on issues related to personalized medicine, comparative effectiveness research, evidence standards and stakeholder engagement.

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http://dx.doi.org/10.1111/jlme.12160DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5108048PMC
November 2016

Comparative effectiveness research and demonstrating clinical utility for molecular diagnostic tests.

Clin Chem 2015 Jan 1;61(1):142-4. Epub 2014 Oct 1.

Institute for Genome Sciences & Policy, Duke University, Durham, NC.

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http://dx.doi.org/10.1373/clinchem.2014.223412DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4454379PMC
January 2015

Overcoming the reimbursement barriers for clinical sequencing.

JAMA 2014 Nov;312(18):1857-8

Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5087268PMC
http://dx.doi.org/10.1001/jama.2014.14915DOI Listing
November 2014

Stakeholder engagement in comparative effectiveness research: how will we measure success?

J Comp Eff Res 2012 Sep;1(5):397-407

Surgical Outcomes Research Center, University of Washington, 1107 NE 45th Street, Suite 502 Seattle, WA 98105, USA.

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http://dx.doi.org/10.2217/cer.12.44DOI Listing
September 2012

Stakeholder participation in comparative effectiveness research: defining a framework for effective engagement.

J Comp Eff Res 2012 Mar;1(2):181-194

Center for Medical Technology Policy, 401 East Pratt Street, Suite 631, Baltimore, MD 21202-3117, USA.

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http://dx.doi.org/10.2217/cer.12.7DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3371639PMC
March 2012

Economic opportunities and challenges for pharmacogenomics.

Annu Rev Pharmacol Toxicol 2010 ;50:423-37

UNC Institute for Pharmacogenomics and Individualized Therapy, Department of Health Policy and Management, Lineberger Comprehensive Cancer Center, University of North Carolina, Chapel Hill, 27599, USA.

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http://dx.doi.org/10.1146/annurev.pharmtox.010909.105805DOI Listing
March 2010

The effect of three-tier formulary adoption on medication continuation and spending among elderly retirees.

Health Serv Res 2007 Oct;42(5):1926-42

Harvard Medical School, Department of Health Care Policy, 180 Longwood Avenue, Boston, MA 02115, USA.

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http://dx.doi.org/10.1111/j.1475-6773.2007.00722.xDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2254563PMC
October 2007

Impact of 3-tier formularies on drug treatment of attention-deficit/hyperactivity disorder in children.

Arch Gen Psychiatry 2005 Apr;62(4):435-41

Department of Health Care Policy, Harvard Medical School, 180 Longwood Avenue, Boston, MA 02115, USA.

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http://dx.doi.org/10.1001/archpsyc.62.4.435DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1403292PMC
April 2005

The effect of incentive-based formularies on prescription-drug utilization and spending.

N Engl J Med 2003 Dec;349(23):2224-32

Department of Health Care Policy, Harvard Medical School, Boston, MA 02115, USA.

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http://dx.doi.org/10.1056/NEJMsa030954DOI Listing
December 2003