Pamela Sankar

Pamela Sankar

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Pamela Sankar

Pamela Sankar

Publications by authors named "Pamela Sankar"

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46Publications

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Bipolar Disorder, Genetic Risk, and Reproductive Decision-Making: A Qualitative Study of Social Media Discussion Boards.

Qual Health Res 2019 Aug 14:1049732319867670. Epub 2019 Aug 14.

2 University of Pennsylvania, Philadelphia, Pennsylvania, USA.

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http://dx.doi.org/10.1177/1049732319867670DOI Listing
August 2019

Attitudes Toward Physician-Assisted Death From Individuals Who Learn They Have an Alzheimer Disease Biomarker.

JAMA Neurol 2019 Jul;76(7):864-866

Department of Medical Ethics and Health Policy, University of Pennsylvania Perelman School of Medicine, Philadelphia.

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http://dx.doi.org/10.1001/jamaneurol.2019.0797DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6583872PMC
July 2019

Normative and conceptual ELSI research: what it is, and why it's important.

Genet Med 2019 02 4;21(2):505-509. Epub 2018 Jul 4.

NHGRI ELSI Program Director, National Institutes of Health, Building 31, Room 4B09 31 Center Drive, MSC 2152, 9000, Bethesda, Maryland, 20892-2152, USA.

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http://dx.doi.org/10.1038/s41436-018-0065-xDOI Listing
February 2019

Comprehension of an Elevated Amyloid Positron Emission Tomography Biomarker Result by Cognitively Normal Older Adults.

JAMA Neurol 2018 01;75(1):44-50

Department of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania, Philadelphia.

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http://dx.doi.org/10.1001/jamaneurol.2017.2954DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5833492PMC
January 2018

The Precision Medicine Initiative's All of Us Research Program: an agenda for research on its ethical, legal, and social issues.

Genet Med 2017 07 8;19(7):743-750. Epub 2016 Dec 8.

Department of Human Genetics, Center for Bioethics &Health Law, University of Pittsburgh, Pittsburgh, Pennsylvania, USA.

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http://dx.doi.org/10.1038/gim.2016.183DOI Listing
July 2017

"Set in Stone" or "Ray of Hope": Parents' Beliefs About Cause and Prognosis After Genomic Testing of Children Diagnosed with ASD.

J Autism Dev Disord 2017 May;47(5):1453-1463

Division of Genomic Diagnostics and the Division of Human Genetics, Children's Hospital of Philadelphia, University of Pennsylvania, Philadelphia, PA, USA.

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http://dx.doi.org/10.1007/s10803-017-3067-7DOI Listing
May 2017

Factors affecting willingness to share electronic health data among California consumers.

BMC Med Ethics 2017 04 4;18(1):25. Epub 2017 Apr 4.

University of California Davis, Betty Irene Moore School of Nursing, 2450 48th Street, Suite 2600, Sacramento, CA, 95817, USA.

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http://dx.doi.org/10.1186/s12910-017-0185-xDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5381052PMC
April 2017

Mandating Moral Reflection?

Am J Bioeth 2017 01;17(1):32-34

a University of Pennsylvania.

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http://dx.doi.org/10.1080/15265161.2016.1251654DOI Listing
January 2017

Reporting Race and Ethnicity in Genetics Research: Do Journal Recommendations or Resources Matter?

Sci Eng Ethics 2015 Oct 19;21(5):1353-66. Epub 2014 Nov 19.

Jefferson Medical College, 1025 Walnut Street, Philadelphia, PA, 19107, USA.

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http://dx.doi.org/10.1007/s11948-014-9596-yDOI Listing
October 2015

Parents' perceptions of the usefulness of chromosomal microarray analysis for children with autism spectrum disorders.

J Autism Dev Disord 2015 Oct;45(10):3262-75

Division of Genomic Diagnostics and Human Genetics, Children's Hospital of Philadelphia, Philadelphia, PA, USA.

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http://dx.doi.org/10.1007/s10803-015-2489-3DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4573251PMC
October 2015

The relative contributions of disease label and disease prognosis to Alzheimer's stigma: A vignette-based experiment.

Soc Sci Med 2015 Oct 18;143:117-27. Epub 2015 Aug 18.

University of Pennsylvania, Perelman School of Medicine, Division of Geriatrics, USA; University of Pennsylvania, Department of Medical Ethics and Health Policy, USA.

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http://dx.doi.org/10.1016/j.socscimed.2015.08.031DOI Listing
October 2015

Development of a process to disclose amyloid imaging results to cognitively normal older adult research participants.

Alzheimers Res Ther 2015 12;7(1):26. Epub 2015 May 12.

Departments of Medicine, Medical Ethics & Health Policy, University of Pennsylvania Perelman School of Medicine, Penn Neurodegenerative Disease Ethics & Policy Program, University of Pennsylvania, 3615 Chestnut St, Philadelphia, PA 19104 USA.

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http://dx.doi.org/10.1186/s13195-015-0112-7DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4428104PMC
May 2015

A memory and organizational aid improves Alzheimer disease research consent capacity: results of a randomized, controlled trial.

Am J Geriatr Psychiatry 2010 Dec;18(12):1124-32

Delaware Education Research and Development Center, University of Delaware School of Education, Newark, USA.

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http://dx.doi.org/10.1097/JGP.0b013e3181dd1c3bDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2992096PMC
December 2010

Older adults' attitudes toward enrollment of non-competent subjects participating in Alzheimer's research.

Am J Psychiatry 2009 Feb 15;166(2):182-8. Epub 2008 Oct 15.

Institute on Aging, 3615 Chestnut St., Philadelphia, PA 19104, USA.

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http://dx.doi.org/10.1176/appi.ajp.2008.08050645DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2635420PMC
February 2009

Adults' values and attitudes about genetic testing for obesity risk in children.

Int J Pediatr Obes 2007 ;2(1):11-21

Institute on Disabilities, Temple University, Philadelphia Research Center for Health Care Decision-making, Wyndmoor.

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http://dx.doi.org/10.1080/17477160601127921DOI Listing
September 2007

Race and ethnicity in genetic research.

Am J Med Genet A 2007 May;143A(9):961-70

Department of Medical Ethics; Center for Bioethics; Leonard Davis Institute for Health Economics, University of Pennsylvania, Philadelphia, PA 19130, USA.

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http://dx.doi.org/10.1002/ajmg.a.31575DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2271134PMC
May 2007

BiDil: race medicine or race marketing?

Health Aff (Millwood) 2005 Jul-Dec;Suppl Web Exclusives:W5-455-63

Department of Medical Ethics, University of Pennsylvania, Philadelphia, USA.

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http://dx.doi.org/10.1377/hlthaff.w5.455DOI Listing
March 2007

Being specific about race-specific medicine.

Health Aff (Millwood) 2006 Sep-Oct;25(5):w375-7. Epub 2006 Aug 15.

Hamline University School of Law in St. Paul, Minnesota, USA.

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http://dx.doi.org/10.1377/hlthaff.25.w375DOI Listing
March 2007

Predictors of uptake of obesity genetic testing among affected adults.

Hum Genet 2007 Jan 21;120(5):641-52. Epub 2006 Sep 21.

The Research Center for Health Care Decision-Making, Inc., 8200 Flourtown Avenue, Suite 1-C, Wyndmoor, PA 19038, USA.

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http://dx.doi.org/10.1007/s00439-006-0252-8DOI Listing
January 2007

How do women decide? Accepting or declining BRCA1/2 testing in a nationwide clinical sample in the United States.

Community Genet 2006 ;9(2):78-86

Center for Bioethics, University of Pennsylvania, Philadelphia, PA 19104, USA.

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http://dx.doi.org/10.1159/000091484DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1317096PMC
September 2006

Genetics, epidemiology, and cancer disparities: is it black and white?

J Clin Oncol 2006 May;24(14):2164-9

Department of Biostatistics and Epidemiology, Center for Clinical Epidemiology and Biostatistics, University of Pennsylvania School of Medicine, Philadelphia, PA 19104-6021, USA.

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http://dx.doi.org/10.1200/JCO.2005.05.1656DOI Listing
May 2006

What is in a cause? Exploring the relationship between genetic cause and felt stigma.

Genet Med 2006 Jan;8(1):33-42

Center for Bioethics, University of Pennsylvania, 3401 Market Street, Philadelphia, PA 19104, USA.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2271135PMC
http://dx.doi.org/10.109701.gim.0000195894.67756.8bDOI Listing
January 2006

Ethnicity, ancestry, and race in molecular epidemiologic research.

Cancer Epidemiol Biomarkers Prev 2005 Nov;14(11 Pt 1):2467-71

Department of Biostatistics and Epidemiology, University of Pennsylvania School of Medicine, 904 Blockley Hall, 423 Guardian Drive, Philadelphia, PA 19104-6021, USA.

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http://dx.doi.org/10.1158/1055-9965.EPI-05-0649DOI Listing
November 2005

To tell or not to tell: primary care patients' disclosure deliberations.

Arch Intern Med 2005 Nov;165(20):2378-83

Center for Bioethics, University of Pennsylvania, Philadelphia, PA 19104, USA.

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http://dx.doi.org/10.1001/archinte.165.20.2378DOI Listing
November 2005

Communication and miscommunication in informed consent to research.

Authors:
Pamela Sankar

Med Anthropol Q 2004 Dec;18(4):429-46

Center for Bioethics, University of Pennsylvania, USA.

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https://pdfs.semanticscholar.org/8cc2/1928a8f2951ad8081cb76e
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https://scholar.sun.ac.za/bitstream/handle/10019.1/20157/mol
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December 2004

Forensic genetics and ethical, legal and social implications beyond the clinic.

Nat Genet 2004 Nov;36(11 Suppl):S8-12

Stanford Center for Biomedical Ethics, 701A Welch Road, Suite 1105, Palo Alto, California 94304, USA.

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http://dx.doi.org/10.1038/ng1594DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2271138PMC
November 2004

Research issues in genetic testing of adolescents for obesity.

Nutr Rev 2004 Aug;62(8):307-20

Research Center for Health Care Decision-making, Inc., Wyndmoor, PA 19038, USA.

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http://nutritionreviews.oxfordjournals.org/content/nutrition
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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1402742PMC
http://dx.doi.org/10.1301/nr.2004.aug.307-320DOI Listing
August 2004

Genetic research and health disparities.

JAMA 2004 Jun;291(24):2985-9

Center for Bioethics, School of Medicine, University of Pennsylvania, Philadelphia 19104-3308, USA.

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http://dx.doi.org/10.1001/jama.291.24.2985DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2271142PMC
June 2004

"Iceland Inc."?: On the ethics of commercial population genomics.

Soc Sci Med 2004 Mar;58(6):1201-9

Center for Bioethics, University of Pennsylvania, Philadelphia, PA 19104-3308, USA.

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http://dx.doi.org/10.1016/s0277-9536(03)00256-9DOI Listing
March 2004

Pilot study: does the white coat influence research participation?

IRB 2002 Jul-Aug;24(4):6-8

Department of Medical Ethics, University of Pennsylvania School of Medicine, USA.

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September 2003

Patient perspectives of medical confidentiality: a review of the literature.

J Gen Intern Med 2003 Aug;18(8):659-69

Center for Bioethics, University of Pennsylvania, Philadelphia, PA 19104-3308, USA.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1494903PMC
http://dx.doi.org/10.1046/j.1525-1497.2003.20823.xDOI Listing
August 2003

Genetic privacy.

Authors:
Pamela Sankar

Annu Rev Med 2003 3;54:393-407. Epub 2001 Dec 3.

Center for Bioethics, University of Pennsylvania, 3401 Market Street, Suite 320, Philadelphia, Pennsylvania 19104-3308, USA.

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http://dx.doi.org/10.1146/annurev.med.54.101601.152131DOI Listing
June 2003

MEDLINE definitions of race and ethnicity and their application to genetic research.

Authors:
Pamela Sankar

Nat Genet 2003 Jun;34(2):119; discussion 120

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http://dx.doi.org/10.1038/ng0603-119DOI Listing
June 2003

Genetics. Toward a new vocabulary of human genetic variation.

Science 2002 Nov;298(5597):1337-8

Center for Bioethics, University of Pennsylvania, Philadelphia, PA 19104-3308, USA.

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http://dx.doi.org/10.1126/science.1074447DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2271140PMC
November 2002

Obtaining informed consent for cancer pain research: do patients with advanced cancer and patients with chronic pain have different concerns?

J Pain Symptom Manage 2002 Nov;24(5):506-16

Center for Health Equity Research and Promotion, Philadelphia, PA, USA.

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http://dx.doi.org/10.1016/s0885-3924(02)00527-4DOI Listing
November 2002

Bringing down barriers.

Authors:
Pamela Sankar

Hastings Cent Rep 1997 Mar-Apr;27(2):44

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September 1997