Nanibaa' A Garrison

Nanibaa' A Garrison

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Nanibaa' A Garrison

Nanibaa' A Garrison

Publications by authors named "Nanibaa' A Garrison"

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Stress across generations: A qualitative study of stress, coping, and caregiving among Mexican immigrant mothers.

Ethn Health 2019 05 3;24(4):378-394. Epub 2017 Jul 3.

d Treuman Katz Center for Pediatric Bioethics , Seattle Children's Hospital and Research Institute , Seattle , WA , USA.

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http://dx.doi.org/10.1080/13557858.2017.1346184DOI Listing
May 2019

Understanding as an Ethical Aspiration in an Era of Digital Technology-Based Communication: An Analysis of Informed Consent Functions.

Am J Bioeth 2019 May;19(5):34-36

a University of Washington School of Medicine and Seattle Children's Hospital and Research Institute.

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http://dx.doi.org/10.1080/15265161.2019.1587035DOI Listing
May 2019

The Responsibility to Recontact Research Participants after Reinterpretation of Genetic and Genomic Research Results.

Am J Hum Genet 2019 Apr;104(4):578-595

Social Issues Committee, American Society of Human Genetics, Rockville, MD 20852, USA; Division of General Internal Medicine, Department of Medicine, Johns Hopkins University, Baltimore, MD 21205, USA; McKusick-Nathans Institute of Genetic Medicine, Johns Hopkins University, Baltimore, MD 21205, USA.

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http://dx.doi.org/10.1016/j.ajhg.2019.02.025DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6451731PMC
April 2019

Genomic Research Through an Indigenous Lens: Understanding the Expectations.

Annu Rev Genomics Hum Genet 2019 Mar 20. Epub 2019 Mar 20.

Native Nations Institute, Udall Center for Studies in Public Policy, University of Arizona, Tucson, Arizona 85719, USA; email: , ,

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http://dx.doi.org/10.1146/annurev-genom-083118-015434DOI Listing
March 2019

Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons.

J Law Med Ethics 2019 Mar;47(1):12-20

Amy L. McGuire, J.D., Ph.D., is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Dr. McGuire serves on the program committee for the Greenwall Foundation Faculty Scholars Program in Bioethics and is immediate past president of the Association of Bioethics Program Directors. Mary A. Majumder, J.D., Ph.D., is an Associate Professor of Medicine at the Center for Medical Ethics and Health Policy, Baylor College of Medicine. Angela G. Villanueva, M.P.H., is a Research Associate at the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Jessica Bardill, Ph.D., is an Assistant Professor of Indigenous Canadian Literatures and Cultures at Concordia University in Montreal, Quebec. Juli M. Bollinger, M.S., is a Research Associate in the Center for Medical Ethics and Health Policy at the Baylor College of Medicine and a Research Associate and Associate Faculty at the Berman Institute of Bioethics at Johns Hopkins University. Eric Boerwinkle, Ph.D., is the Dean of the University of Texas Health Science Center at Houston, School of Public Health and the Associate Director, Human Genome Sequencing Center at Baylor College of Medicine. Tania Bubela, Ph.D., J.D., is the Dean of the Faculty of Health Sciences at Simon Fraser University and a Fellow of the Canadian Academy of Health Sciences. Patricia Deverka, M.D., M.S., M.B.E., is Director, Value Evidence and Outcomes at Geisinger National Precision Health, where she focuses Outcomes at Geisinger National Precision Health, where she focuses systems and policymakers. Barbara Evans, MS, Ph.D., J.D., LL.M., is the Mary Ann and Lawrence E. Faust Professor of Law and Director of the Center for Biotechnology & Law at the University of Houston Law Center and holds a joint appointment as Professor of Electrical and Computer Engineering at the UH Cullen College of Engineering. Nanibaa' A. Garrison, Ph.D. (Navajo), is an Assistant Professor at the Treuman Katz Center for Pediatric Bioethics at Seattle Children's Hospital and Research Institute and at the Department of Pediatrics at the University of Washington School of Medicine. David Glazer is an engineering director at Verily Life Sciences, where he helps life science organizations use cloud computing to accelerate and scale their work with big data. Melissa M. Goldstein, J.D., is an Associate Professor in the Department of Health Policy and Management at the Milken Institute School of Public Health at the George Washington University. Henry T. Greely, J.D., is the Deane F. and Kate Edelman Johnson Professor of Law and a professor (by courtesy) of Genetics at Stanford University, where he directs the Center for Law and the Biosciences. He is President of the International Neuroethics Society, co-chair of the Neuroethics Work Group of the NIH BRAIN Initiative, and a member of the National Academies' Committee on Science, Technology, and Law. Scott D. Kahn, Ph.D., is the Chief Information Officer at LunaDNA where he is responsible for all informatics and data science strategy. Bartha M. Knoppers, Ph.D., (Comparative Medical Law), is a Full Professor, Canada Research Chair in Law and Medicine and Director of the Centre of Genomics and Policy of the Faculty of Medicine at McGill University. Barbara A. Koenig, Ph.D., is Professor of Bioethics and Medical Anthropology, based at the Institute for Health & Aging, University of California, San Francisco. She also serve as Director of the UCSF Program in Bioethics. J. Mark Lambright, M.B.A., is the Chairman, Trident Advisors, LLC - CEO (Interim), Private Access, Inc. Mark Lambright has been a senior executive of a number of healthcare and technology companies ranging in size from startup to multi-billion in revenue. John Mattison, M.D., is Assistant Medical Director, KP, SCAL, Chief Health Information Officer. Founder of CDA/CCD (XML standard for healthcare interoperability). Co-Editor of Healthcare Information Technology (2017 McGraw Hill). Christopher J. O'Donnell, M.D., M.P.H., is Chief, Cardiology Section and Director, Center for Population Genomics, of the Boston VA Healthcare System and co-Principal Investigator (Chief Scientist) of the national VA Million Veteran Program; and is VA Contact Principal Investigator of the NIH All of Us Research Program. He is also a faculty member of the Department of Medicine, Brigham and Women's Hospital and Associate Professor of Medicine, Harvard Medical School. Arti K. Rai, J.D., is the Elvin R. Latty Professor of Law and co-Director of the Center for Innovation Policy at Duke Law. Laura L. Rodriguez, Ph.D., is the Director of the Division of Policy, Communications, and Education at the National Human Genome Research Institute. Tania Simoncelli, M.S., is the Director of Science Policy at the Chan Zuckerberg Initiative. Formerly Executive Director, Count Me In at the Broad Institute, Assistant Director of Forensic Science and Biomedical Innovation, White House Office of Science & Technology Policy, and Science Advisor to the American Civil Liberties Union. Sharon F. Terry, M.A., is the president and CEO of Genetic Alliance. Adrian Thorogood, B.C.L./LL.B., is a lawyer and Academic Associate at the Centre of Genomics and Policy at McGill University in Montreal, Canada. He manages the Regulatory and Ethics Work Stream of the Global Alliance for Genomics and Health. Michael S. Watson, M.S., Ph.D., is the Executive Director, American College of Medical Genetics and Genomics and ACMG Foundation for Genetic and Genomic Medicine and an Adjunct Professor of Pediatrics at Washington University School of Medicine. John T. Wilbanks is the Chief Commons Officer at Sage Bionetworks, and co-PI on awards for AllofUs Research Program, ELSI Issues in Unregulated Mobile Research, CTSA Center for Data To Health. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University.

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http://dx.doi.org/10.1177/1073110519840480DOI Listing
March 2019

Pathways from autism spectrum disorder diagnosis to genetic testing.

Genet Med 2018 07 19;20(7):737-744. Epub 2017 Oct 19.

Department of Bioethics and Humanities, University of Washington School of Medicine, Seattle, Washington, USA.

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http://www.nature.com/articles/gim2017166
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http://dx.doi.org/10.1038/gim.2017.166DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5908763PMC
July 2018

A framework for enhancing ethical genomic research with Indigenous communities.

Nat Commun 2018 07 27;9(1):2957. Epub 2018 Jul 27.

Treuman Katz Center for Pediatric Bioethics, Seattle Children's Hospital and Research Institute, 1900 Ninth Avenue, Seattle, 98101, WA, USA.

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http://dx.doi.org/10.1038/s41467-018-05188-3DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6063854PMC
July 2018

Rationales for expanding minority physician representation in the workforce: a scoping review.

Med Educ 2018 Jun 22. Epub 2018 Jun 22.

Center for Ethics and Humanities in the Life Sciences, College of Human Medicine, Michigan State University, East Lansing, Michigan, USA.

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http://dx.doi.org/10.1111/medu.13618DOI Listing
June 2018

Advancing the ethics of paleogenomics.

Science 2018 04 26;360(6387):384-385. Epub 2018 Apr 26.

All affiliations and members of the SING Consortium are listed in the supplementary materials.

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http://dx.doi.org/10.1126/science.aaq1131DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6150602PMC
April 2018

Response to Koeller et al.

Genet Med 2017 12 10;19(12). Epub 2017 Aug 10.

Department of Bioethics and Humanities, School of Medicine, University of Washington, Seattle, Washington, USA.

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http://dx.doi.org/10.1038/gim.2017.117DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5720912PMC
December 2017

Carnitine palmitoyltransferase 1A P479L and infant death: policy implications of emerging data.

Genet Med 2017 08 26;19(8):851-857. Epub 2017 Jan 26.

Department of Bioethics and Humanities, School of Medicine, University of Washington, Seattle, Washington, USA.

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http://dx.doi.org/10.1038/gim.2016.202DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5620101PMC
August 2017

Naming Indigenous Concerns, Framing Considerations for Stored Biospecimens.

Am J Bioeth 2015 ;15(9):73-5

a East Carolina University.

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http://dx.doi.org/10.1080/15265161.2015.1062164DOI Listing
July 2017

Chaco Canyon Dig Unearths Ethical Concerns.

Hum Biol 2017 07;89(3):177-180

11 Treuman Katz Center for Pediatric Bioethics, Seattle Children's Hospital and Research Institute, Seattle, Washington, USA.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5951383PMC
July 2017

Response to Patryn and Zagaja.

Genet Med 2016 07 14;18(7):751. Epub 2016 Apr 14.

Division of Genetics and Genomics and The Manton Center for Orphan Diseases Research, Boston Children's Hospital, Boston, Massachusetts, USA.

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http://dx.doi.org/10.1038/gim.2016.27DOI Listing
July 2016

New Words and Old Stories: Indigenous Teachings in Health Care and Bioethics.

Am J Bioeth 2016 05;16(5):50-2

b Seattle Children's Research Institute.

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http://dx.doi.org/10.1080/15265161.2016.1159762DOI Listing
May 2016

Impact of Psychiatric Information on Potential Jurors in Evaluating High-Functioning Autism Spectrum Disorder (hfASD).

J Ment Health Res Intellect Disabil 2015 Jul 28;8(3-4):140-167. Epub 2015 May 28.

Stanford Center for Biomedical Ethics Stanford University, and Department of Pediatrics Stanford School of Medicine.

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http://dx.doi.org/10.1080/19315864.2015.1040176DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4733480PMC
July 2015

Awareness and Acceptable Practices: IRB and Researcher Reflections on the Havasupai Lawsuit.

AJOB Prim Res 2013 Oct;4(4):55-63

Stanford Center for Biomedical Ethics, Stanford University, 1215 Welch Road, Modular A, Stanford, CA, USA 94305-5417.

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http://dx.doi.org/10.1080/21507716.2013.770104DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3786163PMC
October 2013

Forensic familial searching: scientific and social implications.

Nat Rev Genet 2013 Jul;14(7):445

Stanford Center for Biomedical Ethics, Stanford University School of Medicine, Stanford, California 94305, USA.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3744325PMC
July 2013

Genomic Justice for Native Americans: Impact of the Havasupai Case on Genetic Research.

Sci Technol Human Values 2013 21;38(2):201-223. Epub 2012 Dec 21.

Center for Integration of Research on Genetics & Ethics, Stanford Center for Biomedical Ethics, Stanford, CA, USA.

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http://dx.doi.org/10.1177/0162243912470009DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5310710PMC
December 2012

Customers or research participants? Guidance for research practices in commercialization of personal genomics.

Genet Med 2012 Oct 14;14(10):833-5. Epub 2012 Jun 14.

Center for Biomedical Ethics, School of Medicine, Stanford University, Stanford, California, USA.

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http://dx.doi.org/10.1038/gim.2012.64DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5289753PMC
October 2012