Publications by authors named "Merrilee Needham"

47Publications

Assessing the content validity of patient-reported outcome measures in adult myositis: A report from the OMERACT myositis working group.

Semin Arthritis Rheum 2020 10 17;50(5):943-948. Epub 2020 Jun 17.

Division of Rheumatology, Department of Medicine, Johns Hopkins University, 5200 Eastern Ave, MFL Bldg, Center Tower, Suite 4100, Baltimore 21224, MD, USA. Electronic address:

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October 2020

Exploring the efficacy of the expiratory muscle strength trainer to improve swallowing in inclusion body myositis: A pilot study.

Neuromuscul Disord 2020 04 24;30(4):294-300. Epub 2020 Feb 24.

School of Medicine, The University of Notre Dame, Fremantle, Western Australia 6160, Australia; Department of Neurology, Fiona Stanley Hospital, Murdoch, Western Australia, Australia; The Institute for Immunology and Infectious Diseases, Murdoch University, Murdoch, Western Australia, Australia.

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April 2020

Dysphagia in Patients with Sporadic Inclusion Body Myositis: Management Challenges.

Int J Gen Med 2019 5;12:465-474. Epub 2019 Dec 5.

School of Medicine, The University of Notre Dame, Fremantle, Western Australia, Australia.

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December 2019

OMERACT 2018 Modified Patient-reported Outcome Domain Core Set in the Life Impact Area for Adult Idiopathic Inflammatory Myopathies.

J Rheumatol 2019 10 15;46(10):1351-1354. Epub 2019 Feb 15.

From the Department of Learning, Informatics and Medical Education, Karolinska Institutet; Function Area Occupational Therapy and Physical Therapy, Allied Health Professionals Function, Karolinska University Hospital, Department of Neurobiology, Care Science and Society, Division of Physiotherapy and Department of Medicine, Karolinska Institutet; Division of Rheumatology, Rheumatology Unit, Department of Medicine, Karolinska Institutet, Solna, Sweden; Division of Rheumatology, Department of Medicine, Johns Hopkins University, Baltimore, Maryland, USA; Division of Rheumatology, Department of Internal Medicine, Medical Research Center, College of Medicine, Department of Molecular Medicine and Biopharmaceutical Sciences, Seoul National University, Seoul, Korea; Division of Rheumatology, Fiona Stanley Hospital, Institute for Immunology and Infectious Diseases, Murdoch University, Perth; The Notre Dame University Fremantle, Fremantle, Australia; Amsterdam UMC, University of Amsterdam, Department of Neurology, Amsterdam Neuroscience, Amsterdam, the Netherlands; Center for Global Health, University of Ottawa, Ottawa, Ontario, Canada.

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October 2019

Imaging in the diagnosis of idiopathic inflammatory myopathies; indications and utility.

Expert Rev Neurother 2019 02 7;19(2):173-184. Epub 2019 Feb 7.

b School of Medicine , Notre Dame University Australia , Fremantle , Australia.

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February 2019

Perceptions of Patients, Caregivers, and Healthcare Providers of Idiopathic Inflammatory Myopathies: An International OMERACT Study.

J Rheumatol 2019 01 15;46(1):106-111. Epub 2018 Sep 15.

From the Division of Rheumatology, Department of Medicine, Johns Hopkins University, Baltimore, Maryland, USA; Division of Rheumatology, Department of Internal Medicine, Seoul National University Hospital, Seoul, South Korea; Department of Neurology, Care Science and Society, Division of Physiotherapy, and Department of Medicine, Rheumatology Unit, Karolinska Institutet; Function Area Occupational Therapy and Physical Therapy, Allied Health Professionals Function, Karolinska University Hospital; Department of Learning, Informatics and Medical Education, Karolinska Institutet, Solna, Sweden; Department of Neurology, Fiona Stanley Hospital, IIID Murdoch University and Notre Dame University, Murdoch, Australia; Patient Research Partner, the Netherlands and USA; Division of Rheumatology, Rheumatology Unit, Department of Medicine, Karolinska University, Karolinska Institutet, Solna, Sweden; Center for Global Health, University of Ottawa, Ottawa, Ontario, Canada; Department of Neurology, Academic Medical Center, University of Amsterdam, the Netherlands; Medical Research Center, College of Medicine, Department of Molecular Medicine and Biopharmaceutical Sciences, Seoul National University, Seoul, South Korea.

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January 2019

Primary lateral sclerosis-like picture in a patient with a remote history of anti-N-methyl-D- aspartate receptor (anti-NMDAR) antibody encephalitis.

BMJ Case Rep 2018 Jun 10;2018. Epub 2018 Jun 10.

Department of Clinical Immunology, Fiona Stanley Hospital, Perth, Western Australia, Australia.

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June 2018

Clinical Utility Gene Card for: autosomal dominant myotonia congenita (Thomsen Disease).

Eur J Hum Genet 2018 07 26;26(7):1072-1077. Epub 2018 Apr 26.

Centre for Medical Research, Faculty of Health and Medical Sciences, The University of Western Australia; and Harry Perkins Institute of Medical Research, QQ Block, QEII Medical Centre, Nedlands, WA, 6009, Australia.

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July 2018

Clinical Utility Gene Card for: Becker muscular dystrophy.

Eur J Hum Genet 2018 07 21;26(7):1065-1071. Epub 2018 Feb 21.

Centre for Medical Research, Faculty of Health and Medical Sciences, The University of Western Australia, and Harry Perkins Institute of Medical Research, QQ Block, QEII Medical Centre, Nedlands, WA, 6009, Australia.

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July 2018

CUGC for Duchenne muscular dystrophy (DMD).

Eur J Hum Genet 2018 05 12;26(5):749-757. Epub 2018 Jan 12.

Harry Perkins Institute of Medical Research, QQ Block, QEII Medical Centre, Nedlands, WA, Nedlands, 6009, Australia.

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May 2018

A Systematic Review and Meta-Analysis of Prevalence Studies of Sporadic Inclusion Body Myositis.

J Neuromuscul Dis 2017;4(2):127-137

IIID Murdoch University, Notre Dame University and Department of Neurology, Fiona Stanley Hospital, Western Australia, Australia.

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July 2019

Treatment and outcomes in necrotising autoimmune myopathy: An Australian perspective.

Neuromuscul Disord 2016 11 3;26(11):734-740. Epub 2016 Sep 3.

Fiona Stanley Hospital, Murdoch, WA, Australia; West Australian Neuroscience Research Institute, Queen Elizabeth II Medical Centre, Nedlands, WA, Australia; Murdoch University, Murdoch, WA, Australia; Notre Dame University, Fremantle, WA, Australia.

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November 2016

Rare variants in SQSTM1 and VCP genes and risk of sporadic inclusion body myositis.

Neurobiol Aging 2016 11 8;47:218.e1-218.e9. Epub 2016 Aug 8.

Department of Molecular Neuroscience, Institute of Neurology, University College London, Queen Square, London, UK; MRC Centre for Neuromuscular Diseases, Institute of Neurology, University College London, Queen Square, London, UK; Neurogenetics Laboratory, Institute of Neurology, University College London, Queen Square, London, UK. Electronic address:

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November 2016