Mary A Majumder

Mary A Majumder

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Mary A Majumder

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Exome sequencing disclosures in pediatric cancer care: Patterns of communication among oncologists, genetic counselors, and parents.

Patient Educ Couns 2019 04 12;102(4):680-686. Epub 2018 Nov 12.

Department of Medicine, Baylor College of Medicine, 6620 Main St., Houston, TX 77030, United States; Department of Communication, Texas A&M University, TAMU 4234, College Station, TX 77843, United States; Center for Innovation in Healthcare Quality, Effectiveness, & Safety, Michael E. DeBakey Veterans Affairs Medical Center, 2450 Holcombe Blvd., Suite 01Y, Houston, TX 77021, United States. Electronic address:

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http://dx.doi.org/10.1016/j.pec.2018.11.007DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6440863PMC
April 2019

Introduction: Sharing Data in a Medical Information Commons.

J Law Med Ethics 2019 Mar;47(1):7-11

Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University. He is a physician and molecular biologist who turned to policy and then entered academe through Georgetown, Stanford, and Duke Universities before joining ASU. Mary A. Majumder, J.D., Ph.D., is an Associate Professor of Medicine at the Center for Medical Ethics and Health Policy, Baylor College of Medicine. Amy L. McGuire, J.D., Ph.D., is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Dr. McGuire serves on the program committee for the Greenwall Foundation Faculty Scholars Program in Bioethics and is immediate past president of the Association of Bioethics Program Directors.

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http://journals.sagepub.com/doi/10.1177/1073110519840479
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http://dx.doi.org/10.1177/1073110519840479DOI Listing
March 2019

Genomic Data-Sharing Practices.

J Law Med Ethics 2019 Mar;47(1):31-40

Angela G. Villanueva, M.P.H., is a Research Associate at the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University. He is a physician and molecular biologist who turned to policy and then entered academe through Georgetown, Stanford, and Duke Universities before joining ASU. Jill O. Robinson, M.A., is the Research Manager at the Center for Medical Ethics and Health Policy, Baylor College of Medicine. She received her B.A. in sociology and political science and her M.A. in sociology from the University of Houston. Amy L. McGuire, J.D., Ph.D., is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Dr. McGuire serves on the program committee for the Greenwall Foundation Faculty Scholars Program in Bioethics and is immediate past president of the Association of Bioethics Program Directors. Mary A. Majumder, J.D., Ph.D., is an Associate Professor of Medicine at the Center for Medical Ethics and Health Policy, Baylor College of Medicine.

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http://dx.doi.org/10.1177/1073110519840482DOI Listing
March 2019

What is a Medical Information Commons?

J Law Med Ethics 2019 Mar;47(1):41-50

Juli M. Bollinger, M.S., is a Research Associate in the Center for Medical Ethics and Health Policy at the Baylor College of Medicine and a Research Associate and Associate Faculty at the Berman Institute of Bioethics at Johns Hopkins University. Peter D. Zuk is a Research Associate in the Center for Medical Ethics and Health Policy at Baylor College of Medicine and Ph.D. candidate in Philosophy at Rice University (both Houston, TX). Mary A. Majumder, J.D., Ph.D., is an Associate Professor of Medicine at the Center for Medical Ethics and Health Policy, Baylor College of Medicine. Erika Versalovic is a Ph.D. student in the philosophy department at the University of Washington and a neuroethics fellow with the Center for Neurotechnology in Seattle, WA. Angela G. Villanueva, M.P.H., is a Research Associate at the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Rebecca L. Hsu is a research coordinator with the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Amy L. McGuire, J.D., Ph.D., is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Dr. McGuire serves on the program committee for the Greenwall Foundation Faculty Scholars Program in Bioethics and is immediate past president of the Association of Bioethics Program Directors. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University.

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http://dx.doi.org/10.1177/1073110519840483DOI Listing
March 2019

Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons.

J Law Med Ethics 2019 Mar;47(1):12-20

Amy L. McGuire, J.D., Ph.D., is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Dr. McGuire serves on the program committee for the Greenwall Foundation Faculty Scholars Program in Bioethics and is immediate past president of the Association of Bioethics Program Directors. Mary A. Majumder, J.D., Ph.D., is an Associate Professor of Medicine at the Center for Medical Ethics and Health Policy, Baylor College of Medicine. Angela G. Villanueva, M.P.H., is a Research Associate at the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Jessica Bardill, Ph.D., is an Assistant Professor of Indigenous Canadian Literatures and Cultures at Concordia University in Montreal, Quebec. Juli M. Bollinger, M.S., is a Research Associate in the Center for Medical Ethics and Health Policy at the Baylor College of Medicine and a Research Associate and Associate Faculty at the Berman Institute of Bioethics at Johns Hopkins University. Eric Boerwinkle, Ph.D., is the Dean of the University of Texas Health Science Center at Houston, School of Public Health and the Associate Director, Human Genome Sequencing Center at Baylor College of Medicine. Tania Bubela, Ph.D., J.D., is the Dean of the Faculty of Health Sciences at Simon Fraser University and a Fellow of the Canadian Academy of Health Sciences. Patricia Deverka, M.D., M.S., M.B.E., is Director, Value Evidence and Outcomes at Geisinger National Precision Health, where she focuses Outcomes at Geisinger National Precision Health, where she focuses systems and policymakers. Barbara Evans, MS, Ph.D., J.D., LL.M., is the Mary Ann and Lawrence E. Faust Professor of Law and Director of the Center for Biotechnology & Law at the University of Houston Law Center and holds a joint appointment as Professor of Electrical and Computer Engineering at the UH Cullen College of Engineering. Nanibaa' A. Garrison, Ph.D. (Navajo), is an Assistant Professor at the Treuman Katz Center for Pediatric Bioethics at Seattle Children's Hospital and Research Institute and at the Department of Pediatrics at the University of Washington School of Medicine. David Glazer is an engineering director at Verily Life Sciences, where he helps life science organizations use cloud computing to accelerate and scale their work with big data. Melissa M. Goldstein, J.D., is an Associate Professor in the Department of Health Policy and Management at the Milken Institute School of Public Health at the George Washington University. Henry T. Greely, J.D., is the Deane F. and Kate Edelman Johnson Professor of Law and a professor (by courtesy) of Genetics at Stanford University, where he directs the Center for Law and the Biosciences. He is President of the International Neuroethics Society, co-chair of the Neuroethics Work Group of the NIH BRAIN Initiative, and a member of the National Academies' Committee on Science, Technology, and Law. Scott D. Kahn, Ph.D., is the Chief Information Officer at LunaDNA where he is responsible for all informatics and data science strategy. Bartha M. Knoppers, Ph.D., (Comparative Medical Law), is a Full Professor, Canada Research Chair in Law and Medicine and Director of the Centre of Genomics and Policy of the Faculty of Medicine at McGill University. Barbara A. Koenig, Ph.D., is Professor of Bioethics and Medical Anthropology, based at the Institute for Health & Aging, University of California, San Francisco. She also serve as Director of the UCSF Program in Bioethics. J. Mark Lambright, M.B.A., is the Chairman, Trident Advisors, LLC - CEO (Interim), Private Access, Inc. Mark Lambright has been a senior executive of a number of healthcare and technology companies ranging in size from startup to multi-billion in revenue. John Mattison, M.D., is Assistant Medical Director, KP, SCAL, Chief Health Information Officer. Founder of CDA/CCD (XML standard for healthcare interoperability). Co-Editor of Healthcare Information Technology (2017 McGraw Hill). Christopher J. O'Donnell, M.D., M.P.H., is Chief, Cardiology Section and Director, Center for Population Genomics, of the Boston VA Healthcare System and co-Principal Investigator (Chief Scientist) of the national VA Million Veteran Program; and is VA Contact Principal Investigator of the NIH All of Us Research Program. He is also a faculty member of the Department of Medicine, Brigham and Women's Hospital and Associate Professor of Medicine, Harvard Medical School. Arti K. Rai, J.D., is the Elvin R. Latty Professor of Law and co-Director of the Center for Innovation Policy at Duke Law. Laura L. Rodriguez, Ph.D., is the Director of the Division of Policy, Communications, and Education at the National Human Genome Research Institute. Tania Simoncelli, M.S., is the Director of Science Policy at the Chan Zuckerberg Initiative. Formerly Executive Director, Count Me In at the Broad Institute, Assistant Director of Forensic Science and Biomedical Innovation, White House Office of Science & Technology Policy, and Science Advisor to the American Civil Liberties Union. Sharon F. Terry, M.A., is the president and CEO of Genetic Alliance. Adrian Thorogood, B.C.L./LL.B., is a lawyer and Academic Associate at the Centre of Genomics and Policy at McGill University in Montreal, Canada. He manages the Regulatory and Ethics Work Stream of the Global Alliance for Genomics and Health. Michael S. Watson, M.S., Ph.D., is the Executive Director, American College of Medical Genetics and Genomics and ACMG Foundation for Genetic and Genomic Medicine and an Adjunct Professor of Pediatrics at Washington University School of Medicine. John T. Wilbanks is the Chief Commons Officer at Sage Bionetworks, and co-PI on awards for AllofUs Research Program, ELSI Issues in Unregulated Mobile Research, CTSA Center for Data To Health. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University.

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http://dx.doi.org/10.1177/1073110519840480DOI Listing
March 2019

Characterizing the Biomedical Data-Sharing Landscape.

J Law Med Ethics 2019 Mar;47(1):21-30

Angela G. Villanueva, M.P.H., is a Research Associate at the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University. Barbara A. Koenig, Ph.D., is Professor of Bioethics and Medical Anthropology, based at the Institute for Health & Aging, University of California, San Francisco. Patricia A. Deverka, M.D., M.S., M.B.E., is Director, Value Evidence and Outcomes at Geisinger National Precision Health, where she focuses on demonstrating the value of genomic sequencing for health systems and policy-makers.Erika Versalovic is a Ph.D. student in the philosophy department at the University of Washington and a neuroethics fellow with the Center for Neurotechnology in Seattle, WA. Amy L. McGuire, J.D., Ph.D., is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Mary A. Majumder, J.D., Ph.D., is an Associate Professor of Medicine at the Center for Medical Ethics and Health Policy, Baylor College of Medicine.

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http://dx.doi.org/10.1177/1073110519840481DOI Listing
March 2019

Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons.

J Law Med Ethics 2019 Mar;47(1):70-87

Patricia A. Deverka, M.D., M.S., M.B.E., is Director, Value Evidence and Outcomes at Geisinger National Precision Health, where she focuses on demonstrating the value of genomic sequencing for health systems and policymakers. Dierdre Gilmore, M.A., is a Senior Researcher at the American Institutes for Research. Gilmore earned a MA in Medical Anthropology at the University of London. Jennifer Richmond, M.S.P.H., is a Research Associate at the American Institutes for Research and a doctoral student in the Department of Health Behavior at the University of North Carolina at Chapel Hill (UNC-CH) Gillings School of Global Public Health. Zachary Smith is a Research Assistant at the American Institutes for Research. Rikki Mangrum, M.L.S., is a Senior Research Scientist at the American Institutes for Research. Barbara A. Koenig, Ph.D., is Professor of Bioethics and Medical Anthropology, based at the Institute for Health & Aging, University of California, San Francisco. She serves as Director of the UCSF Program in Bioethics. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University. He is a physician and molecular biologist who turned to policy and then entered academe through Georgetown, Stanford, and Duke Universities before joining ASU. Angela G. Villanueva, M.P.H., is a Research Associate at the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Mary A. Majumder, J.D., Ph.D., is an Associate Professor of Medicine at the Center for Medical Ethics and Health Policy, Baylor College of Medicine. Amy L. McGuire, J.D., Ph.D., is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Dr. McGuire serves on the program committee for the Greenwall Foundation Faculty Scholars Program in Bioethics and is immediate past president of the Association of Bioethics Program Directors.

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http://dx.doi.org/10.1177/1073110519840486DOI Listing
March 2019

The Role of Participants in a Medical Information Commons.

J Law Med Ethics 2019 Mar;47(1):51-61

Mary A. Majumder, J.D., Ph.D., is an Associate Professor of Medicine at the Center for Medical Ethics and Health Policy, Baylor College of Medicine. Juli M. Bollinger, M.S., is a Research Associate in the Center for Medical Ethics and Health Policy at the Baylor College of Medicine and a Research Associate and Associate Faculty at the Berman Institute of Bioethics at Johns Hopkins University. Angela G. Villanueva, M.P.H., is a Research Associate at the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Patricia A. Deverka, M.D., M.S., M.B.E., is Director, Value Evidence and Outcomes at Geisinger National Precision Health, where she focuses on demonstrating the value of genomic sequencing for health systems and policymakers. Barbara A. Koenig, Ph.D., is Professor of Bioethics and Medical Anthropology, based at the Institute for Health & Aging, University of California, San Francisco. She serves as Director of the UCSF Program in Bioethics. Previously, Prof. Koenig was the founding executive director of the Center for Biomedical Ethics at Stanford University; she created and led the Bioethics Research Program at the Mayo Clinic in Rochester, Minn.

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http://dx.doi.org/10.1177/1073110519840484DOI Listing
March 2019

Citizen science, public policy.

Science 2018 07;361(6398):134-136

Baylor College of Medicine, Center for Medical Ethics and Health Policy, 1 Baylor Plaza, Houston, TX 77030, USA.

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http://www.sciencemag.org/lookup/doi/10.1126/science.aar8379
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http://dx.doi.org/10.1126/science.aar8379DOI Listing
July 2018

Cultivating Administrative Support for a Clinical Ethics Consultation Service.

J Clin Ethics 2016 ;27(4):341-351

4712 Holly St., Bellaire, Texas 77402 USA.

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March 2018

Sharing data under the 21st Century Cures Act.

Genet Med 2017 12 25;19(12):1289-1294. Epub 2017 May 25.

Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA.

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http://dx.doi.org/10.1038/gim.2017.59DOI Listing
December 2017

Constraints on gene patent protection fuel secrecy concerns: a qualitative study.

J Law Biosci 2017 Dec 16;4(3):542-564. Epub 2017 Nov 16.

The University of Texas, School of Public Health, 1200 Pressler St., Houston TX 77030, USA.

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http://dx.doi.org/10.1093/jlb/lsx034DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5965503PMC
December 2017

Do privacy and security regulations need a status update? Perspectives from an intergenerational survey.

PLoS One 2017 19;12(9):e0184525. Epub 2017 Sep 19.

Institute for Bioethics, Health Policy, and Law, University of Louisville School of Medicine, Louisville, Kentucky, United States of America.

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http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0184525PLOS
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5604938PMC
October 2017

Myriad take two: Can genomic databases remain secret?

Science 2017 05;356(6338):586-587

Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX 77030, USA.

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http://dx.doi.org/10.1126/science.aal3224DOI Listing
May 2017

The "Permanent" Patient Problem.

J Law Med Ethics 2014 ;42(1):88-92

Received her doctorate of jurisprudence from Yale Law School in New Haven, Connecticut and her doctorate in religious studies from Rice University in Houston, Texas.

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http://journals.sagepub.com/doi/10.1111/jlme.12121
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http://dx.doi.org/10.1111/jlme.12121DOI Listing
November 2016

Beyond Our Borders? Public Resistance to Global Genomic Data Sharing.

PLoS Biol 2016 Nov 2;14(11):e2000206. Epub 2016 Nov 2.

Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, United States of America.

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https://dx.plos.org/10.1371/journal.pbio.2000206
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http://dx.doi.org/10.1371/journal.pbio.2000206DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5091881PMC
November 2016

Ethical and Legal Challenges Associated with Public Molecular Autopsies.

J Law Med Ethics 2016 06;44(2):309-18

Quianta L. Moore, M.D., J.D., is a Research Associate in the Center for Medical Ethics and Health Policy at Baylor College of Medicine and a Scholar in Health Policy at the Baker Institute for Public Policy at Rice University. She has a M.D. from Baylor College of Medicine and a J.D. from the University of Houston Law Center. Mary A. Majumder, J.D., Ph.D., is an Associate Professor of Medicine in the Center for Medical Ethics and Health Policy at Baylor College of Medicine. She has a J.D. from Yale Law School and a Ph.D. from Rice University. Lindsey K. Rutherford, J.D., holds the title of Assistant County Attorney for Harris County, Texas and serves as the General Counsel to the Chief Medical Examiner and Harris County Institute of Forensic Sciences. She obtained her B.S. degree in Biology from Texas A&M University, her J.D. degree from the University of Houston Law Center and is licensed to practice law in the state of Texas. Amy L. McGuire, J.D., Ph.D., is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. She received her J.D. from the University of Houston Law Center and Ph.D. from the University of Texas Medical School at Galveston.

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http://dx.doi.org/10.1177/1073110516654124DOI Listing
June 2016

Developing context-specific next-generation sequencing policy.

Nat Biotechnol 2016 05;34(5):466-70

Baylor College of Medicine, Center for Medical Ethics and Health Policy, Houston, Texas, USA.

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http://dx.doi.org/10.1038/nbt.3545DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5117622PMC
May 2016

Persistent confusion and controversy surrounding gene patents.

Nat Biotechnol 2016 Feb;34(2):145-7

Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA.

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http://www.nature.com/articles/nbt.3470
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http://dx.doi.org/10.1038/nbt.3470DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5094359PMC
February 2016

Legal Barriers to Adolescent Participation in Research About HIV and Other Sexually Transmitted Infections.

Am J Public Health 2016 Jan 12;106(1):40-4. Epub 2015 Nov 12.

Quianta L. Moore, Amy L. McGuire, and Mary A. Majumder are with the Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX. Quianta L. Moore is also with the Baker Institute for Public Policy, Rice University, Houston. Mary E. Paul is with the Department of Pediatrics, Retrovirology, Baylor College of Medicine.

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http://dx.doi.org/10.2105/AJPH.2015.302940DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4695940PMC
January 2016

Ethical analysis as a tool for addressing treatment controversies: radiotherapy timing in children with orbital rhabdomyosarcoma as a case example.

J Am Coll Radiol 2015 May 18;12(5):484-90. Epub 2014 Dec 18.

Department of Radiation Oncology, University of Texas MD Anderson Cancer Center, Houston, Texas; Department of Pediatrics, Baylor College of Medicine, Houston, Texas. Electronic address:

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http://dx.doi.org/10.1016/j.jacr.2014.10.010DOI Listing
May 2015

"Systematizing" ethics consultation services.

HEC Forum 2015 Mar;27(1):35-45

Center for Medical Ethics & Health Policy, Baylor College of Medicine, One Baylor Plaza, MS: BCM 420, Houston, TX, 77030, USA,

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http://dx.doi.org/10.1007/s10730-014-9254-4DOI Listing
March 2015

Case study. Bad words. Commentary.

Hastings Cent Rep 2014 Mar-Apr;44(2):14

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June 2014

Same goal, different path.

Am J Bioeth 2014 ;14(1):23-4

a Baylor College of Medicine and Houston Methodist Hospital System.

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http://www.tandfonline.com/doi/abs/10.1080/15265161.2013.861
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http://dx.doi.org/10.1080/15265161.2013.861039DOI Listing
May 2014

Ethical dilemmas surrounding the use of ventricular assist devices in supporting patients with end-stage organ dysfunction.

Methodist Debakey Cardiovasc J 2013 Jan-Mar;9(1):11-4

The Methodist Hospital, Houston, Texas, USA.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3600878PMC
September 2013

Patient-to-patient encounters: benefits and challenges.

J Heart Lung Transplant 2013 Jun 4;32(6):658-9. Epub 2013 Apr 4.

Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA.

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http://dx.doi.org/10.1016/j.healun.2013.03.009DOI Listing
June 2013

Genomic and stem cell policy issues: more alike than different?

Authors:
Mary A Majumder

Genome Med 2011 Jun 7;3(6):35. Epub 2011 Jun 7.

Center for Medical Ethics and Health Policy, Baylor College of Medicine, One Baylor Plaza, Houston, TX 77030, USA.

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http://genomemedicine.biomedcentral.com/articles/10.1186/gm2
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http://dx.doi.org/10.1186/gm251DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3218809PMC
June 2011

Taking DNA from the dead.

Nat Rev Genet 2010 May 23;11(5):318. Epub 2010 Mar 23.

Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA.

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http://dx.doi.org/10.1038/nrg2792DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4065415PMC
May 2010

Research ethics. The NIH draft guidelines on human stem cell research.

Science 2009 Jun;324(5935):1648-9

Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX 77030, USA.

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http://dx.doi.org/10.1126/science.1176253DOI Listing
June 2009

Future directions for oversight of stem cell research in the United States: an update.

Kennedy Inst Ethics J 2009 Jun;19(2):195-200

Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA.

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June 2009

Future directions for oversight of stem cell research in the United States.

Kennedy Inst Ethics J 2009 Mar;19(1):79-100

Kennedy Institute of Ethics, Georgetown University, Washington, DC, USA.

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March 2009

The ethics of lawyer-ethicists.

J Law Med Ethics 2005 ;33(3):603-7

The Center for Medical Ethics and Health Policy, Baylor College of Medicine, USA.

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April 2006