Marieke Scholte-Voshaar

Marieke Scholte-Voshaar

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Marieke Scholte-Voshaar

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OMERACT Development of a Core Domain Set of Outcomes for Shared Decision-making Interventions.

J Rheumatol 2019 Feb 1. Epub 2019 Feb 1.

From the Children's Hospital of Eastern Ontario Research Institute; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa; School of Nursing, University of Ottawa; Division of Rheumatology, Department of Medicine, and School of Epidemiology and Public Health, Faculty of Medicine, University of Ottawa; Ottawa Hospital Research Institute, Centre for Practice-Changing Research; Clinical Epidemiology Program, Ottawa Hospital Research Institute; School of Rehabilitation Therapy, Queen's University, Kingston; Toronto Western Hospital, University Health Network; Institute for Work & Health; Institute of Health Policy, Management and Evaluation, University of Toronto; Involved Medicine, University of Toronto, Toronto, Ontario; Department of Physical Therapy, University of British Columbia; Arthritis Research Canada, Vancouver, British Columbia; Department of Family Medicine and Emergency Medicine, Université Laval, Quebec City; McGill University, Montreal, Quebec, Canada; Portland Health Care System; Oregon Health & Science University, Portland, Oregon; Department of Internal Medicine, Yale University, New Haven, Connecticut; The Ohio State University, Columbus; Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio; Department of General Internal Medicine, Section of Rheumatology and Clinical Immunology, University of Texas MD Anderson Cancer Center, Houston, Texas; University of Alabama at Birmingham, Birmingham, Alabama, USA; School of Population and Global Health, University of Melbourne; Centre for Health Communication and Participation, School of Psychology and Public Health, La Trobe University, Melbourne; Western Sydney University; Faculty of Medicine, University of Sydney; Department of Medicine, University of Sydney, Institute of Bone and Joint Research; Department of Rheumatology, Royal North Shore Hospital, Sydney; Canberra Rheumatology, Department of Rheumatology, Canberra Hospital; College of Health and Medicine, Australian National University, Canberra, Australia; Amsterdam University Medical Centre, Department of Medical Humanities, Amsterdam; Department of Psychology, Health and Technology, University of Twente, Enschede; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center; Caphri Research Institute, Maastricht University, Maastricht; Access to Medicine Foundation, Haarlem, the Netherlands; Musculoskeletal Statistics Unit, The Parker Institute, Bispebjerg and Frederiksberg Hospital, Copenhagen; Department of Rheumatology, Odense University Hospital, Odense, Denmark; Department of Internal Medicine II, Rheumatology Research Center, Rheumatology, Clinical Immunology, Osteology, Physical Therapy and Sports Medicine, Schlosspark-Klinik, Charité, University Medicine Berlin, Berlin, Germany; Rheumatology and Rehabilitation Ain Shams University, Cairo, Egypt; King's College London, London, UK. K. Toupin-April is funded by the Children's Hospital of Eastern Ontario Research Institute and The Arthritis Society. J.L. Barton's research reported in this publication was supported by the US National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), part of the National Institutes of Health (NIH), under Award Number K23-AR-064372. L. Fraenkel's research reported in this publication was supported by NIAMS, part of the NIH, under Award Number AR060231-01. D. Stacey holds a University of Ottawa Research Chair in Knowledge Translation to Patients. F. Légaré holds a Tier 1 Canada Research Chair in Shared Decision Making and Knowledge Translation. R. Christensen's research at the Parker Institute is supported by grants from The Oak Foundation (OCAY-13-309). L. March's research is supported by the Northern Sydney Local Health District. S. Hill is supported by La Trobe University. P.S. Tugwell holds a Canada Research Chair. K. Toupin-April, PhD, Associate Scientist, Children's Hospital of Eastern Ontario Research Institute, and Assistant Professor, Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa; J.L. Barton, MD, VA Portland Health Care System, and Associate Professor, Oregon Health & Science University; L. Fraenkel, MD, Professor of Medicine, Department of Internal Medicine, Yale University; A. Meara, MD, The Ohio State University; L.C. Li, PT, PhD, Professor, Department of Physical Therapy, University of British Columbia, and Senior Scientist, Arthritis Research Canada; P. Brooks, MD, Professor, School of Population and Global Health, University of Melbourne; M. de Wit, PhD, Patient Research Partner, Amsterdam University Medical Centre, Department of Medical Humanities; D. Stacey, RN, PhD, Full Professor, School of Nursing, University of Ottawa, and Senior Scientist, The Ottawa Hospital Research Institute; F. Légaré, MD, PhD, Full Professor, Department of Family Medicine and Emergency Medicine, Université Laval; B. Shea, PhD, Clinical Scientist, Bruyère Research Institute, Senior Methodologist, Ottawa Hospital Research Institute, and Adjunct Professor, Department of Epidemiology and Community Medicine, University of Ottawa; A. Lyddiatt, Patient Research Partner; C. Hofstetter, Patient Research Partner; R. Christensen, MSc, PhD, Professor, Musculoskeletal Statistics Unit, The Parker Institute, Bispebjerg and Frederiksberg Hospital, and Department of Rheumatology, Odense University Hospital; M. Scholte-Voshaar, MSc, Patient Research Partner, Department of Psychology, Health and Technology, University of Twente; M.E. Suarez-Almazor, MD, PhD, Professor, Department of General Internal Medicine, Section of Rheumatology and Clinical Immunology, University of Texas MD Anderson Cancer Center; A. Boonen, MD, PhD, Professor of Rheumatology, Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center, and Caphri Research Institute, Maastricht University; T. Meade, PhD, Professor, Western Sydney University, and Faculty of Medicine, University of Sydney; L. March, MD, PhD, Professor, Department of Medicine, University of Sydney, Institute of Bone and Joint Research and Department of Rheumatology, Royal North Shore Hospital; J.E. Jull, OT, PhD, Assistant Professor, School of Rehabilitation Therapy, Queen's University; W. Campbell, LLB, Patient Research Partner, Toronto Western Hospital, University Health Network; R. Alten, MD, PhD, Professor of Medicine, Head of Department of Internal Medicine II, Director of Rheumatology Research Center, Rheumatology, Clinical Immunology, Osteology, Physical Therapy and Sports Medicine, Schlosspark-Klinik, Charité, University Medicine Berlin; S. Karuranga, Researcher, Access to Medicine Foundation; E.M. Morgan, MD, Associate Professor, Division of Rheumatology, Cincinnati Children's Hospital Medical Center; A. Kelly, MD, PhD Student, Canberra Rheumatology, Department of Rheumatology, Canberra Hospital, and College of Health and Medicine, Australian National University; J. Kaufman, Centre for Health Communication and Participation, School of Psychology and Public Health, La Trobe University; S. Hill, Centre for Health Communication and Participation, School of Psychology and Public Health, La Trobe University; L.J. Maxwell, PhD, Ottawa Hospital Research Institute, Centre for Practice-Changing Research and University of Ottawa; D. Beaton, PhD, Senior Scientist, Institute for Work & Health, Associate Professor, Institute of Health Policy, Management and Evaluation, University of Toronto; Y. El-Miedany, MD, Professor, Rheumatology and Rehabilitation Ain Shams University, and Honorary Senior Clinical Lecturer, King's College London; S. Mittoo, MD, Rheumatologist, Involved Medicine and Adjunct Professor, University of Toronto; S.J. Bartlett, Professor, McGill University; J.A. Singh, MD, Professor, University of Alabama at Birmingham; P.S. Tugwell, MD, Professor, Division of Rheumatology, Department of Medicine, and School of Epidemiology and Public Health, Faculty of Medicine, University of Ottawa, and Senior Scientist, Clinical Epidemiology Program, Ottawa Hospital Research Institute. Address correspondence to Dr. K. Toupin-April, Children's Hospital of Eastern Ontario Research Institute, 401 Smyth Road, Ottawa, Ontario K1H 8L1, Canada. E-mail: Accepted for publication December 28, 2018.

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February 2019

Addressing Challenges in Developing a Core Domain Set in Adherence Interventions in Rheumatology: A Report from the OMERACT-Adherence Group.

J Rheumatol 2019 Jan 15. Epub 2019 Jan 15.

From the Canberra Rheumatology; College of Health and Medicine, Australian National University; Clear Vision Consulting; Discipline of Optometry, University of Canberra; Department of Rheumatology, Canberra Hospital, Canberra; Centre for Kidney Research, The Children's Hospital at Westmead; Dragon Claw (Web site for patients with rheumatic disease); Department of Rheumatology, Liverpool Hospital; Ingham Institute of Applied Medical Research; Department of Rheumatology, Royal North Shore Hospital; Institute of Bone and Joint Research, Kolling Institute of Medical Research; Northern Clinical School, and the School of Public Health, The University of Sydney, Sydney; Lord Street Specialist Centre, Port Macquarie; Mayo Hospital Specialist Centre, Taree; Mid- North Coast Arthritis Clinic; University of New South Wales Rural Clinical School, Coffs Harbour, Australia; Department of Medicine, McGill University; Centre for Outcomes Research and Evaluation, McGill University Health Centers, Montreal; Musculoskeletal Health and Outcomes Research, Li Ka Shing Knowledge Institute, St. Michael's Hospital; Institute for Work and Health; Department of Occupational Science and Occupational Therapy and the Institute of Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland; Medicine Service, VA Medical Center, Birmingham; Department of Medicine, School of Medicine, and the Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Amsterdam University Medical Centre, Department of Medical Humanities, Amsterdam Public Health, Amsterdam; University of Twente, Department of Psychology, Health and Technology, Enschede, the Netherlands. The work of OMERACT-Adherence to date has been supported by a 2018 Arthritis Australia project grant. JAS is a member of the executive of OMERACT, an organization that develops outcome measures in rheumatology and receives arms-length funding from 36 companies. A. Kelly, FRACP, Australian National University, Canberra Rheumatology, and College of Health and Medicine, Australian National University, and Centre for Kidney Research, The Children's Hospital at Westmead; S.J. Bartlett, PhD, Department of Medicine, McGill University, and Centre for Outcomes Research and Evaluation, McGill University Health Centers, and Division of Rheumatology, Johns Hopkins School of Medicine; M.P. de Wit, PhD, Amsterdam University Medical Centre, Department of Medical Humanities, Amsterdam Public Health, and OMERACT Patient Research Partner; D.E. Beaton, PhD, University of Toronto Musculoskeletal Health and Outcomes Research, Li Ka Shing Knowledge Institute, St. Michael's Hospital, and Institute for Work and Health, and Department of Occupational Science and Occupational Therapy, and the Institute of Health Policy Management and Evaluation, University of Toronto; T. Dawson, MPH, Lord Street Specialist Centre, and Mayo Hospital Specialist Centre; V. Evans, PhD, Clear Vision Consulting, and OMERACT Patient Research Partner, and Discipline of Optometry, University of Canberra; M. Gill, BA, Australian National University, and Dragon Claw, and OMERACT Patient Research Partner; G. Hassett, PhD, University of New South Wales, and Department of Rheumatology, Liverpool Hospital, and Ingham Institute of Applied Medical Research; L. March, PhD, Department of Rheumatology, Royal North Shore Hospital, and Institute of Bone and Joint Research, Kolling Institute of Medical Research, and Northern Clinical School, The University of Sydney; M. Scholte-Voshaar, MSc, Vrije Universiteit Amsterdam, and University of Twente, Department of Psychology, Health and Technology, Enschede, and OMERACT Patient Research Partner; J.A. Singh, MD, Medicine Service, VA Medical Center, and Department of Medicine, School of Medicine, University of Alabama, and Division of Epidemiology, School of Public Health, University of Alabama; A. Tong, PhD, Centre for Kidney Research, The Children's Hospital at Westmead, and University of Sydney, School of Public Health; P. Tugwell, MD, Division of Rheumatology, Department of Medicine, and School of Epidemiology and Public Health, Faculty of Medicine, University of Ottawa, and Clinical Epidemiology Program, Ottawa Hospital Research Institute; P. Wong, PhD, Mid-North Coast Arthritis Clinic, and University of New South Wales Rural Clinical School; K. Tymms, FRACP, Canberra Rheumatology, and College of Health and Medicine, Australian National University, and Department of Rheumatology, Canberra Hospital. Address correspondence to Dr. A. Kelly, Canberra Rheumatology, Level 9, 40 Marcus Clarke St., Canberra City, Canberra ACT 2601, Australia. E-mail: Accepted for publication November 26, 2018.

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January 2019

Achieving Consensus on Total Joint Replacement Trial Outcome Reporting Using the OMERACT Filter: Endorsement of the Final Core Domain Set for Total Hip and Total Knee Replacement Trials for Endstage Arthritis.

J Rheumatol 2017 Nov 15;44(11):1723-1726. Epub 2017 Jan 15.

From the University of Alabama at Birmingham and Birmingham Veterans Affairs Medical Center, Birmingham, Alabama; Department of Orthopedics, Mayo Clinic College of Medicine, Rochester, Minnesota, USA; University of Melbourne Department of Surgery, St. Vincent's Hospital, Melbourne, Australia; Department of Orthopedic Surgery and Department of Medicine, University of Arizona, Tucson, Arizona; Weill Cornell Medical School and Hospital for Special Surgery, New York, New York; Healthy Motivation, and Global Alliance for Musculoskeletal Health, the Bone and Joint Decade, Santa Barbara, California, USA; Department of Psychology, Health and Technology, University of Twente, Enschede, the Netherlands.

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November 2017

An OMERACT Initiative Toward Consensus to Identify and Characterize Candidate Contextual Factors: Report from the Contextual Factors Working Group.

J Rheumatol 2017 Nov 1;44(11):1734-1739. Epub 2017 May 1.

From the Empowerment, Participation and Social Integration Unit, Swiss Paraplegic Research, Nottwil, Switzerland; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Centre; CAPHRI Research Institute, Maastricht University, Maastricht; Department of Psychology, Health and Technology, University of Twente, Enschede; Department of Rheumatology, and Department of Clinical Epidemiology, Leiden University Medical Centre, Leiden, the Netherlands; Division of Rheumatology, David Geffen School of Medicine, University of California, Los Angeles; Bone and Joint Decade, the Global Alliance for Musculoskeletal Health, and Healthy Motivation, Santa Barbara, California; Department of Rehabilitation and Movement Science, The University of Vermont, Burlington, Vermont, USA; Musculoskeletal Statistics Unit, The Parker Institute, Bispebjerg and Frederiksberg Hospital, Copenhagen, Denmark; Faculty of Health and Applied Sciences, University of the West of England, Bristol; Arthritis Research UK Epidemiology Unit, University of Manchester, Manchester, UK; Division of Rheumatology, Department of Medicine, University of Ottawa and Ottawa Hospital; Centre for Global Health, Institute of Population Health, University of Ottawa and Ottawa Hospital; Department of Clinical Epidemiology, Ottawa Hospital Research Institute; Department of Epidemiology and Community Medicine, University of Ottawa, Ottawa; Musculoskeletal Health and Outcomes Research, Li Ka Shing Knowledge Institute, St. Michael's Hospital; Institute for Work and Health, and Institute of Health Policy, Management and Evaluation, Rehabilitation Sciences Institute, and Departments of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Ontario, Canada; Schlosspark-Klinik, University Medicine Berlin, Berlin, Germany; University of Lorraine, EA 4360 APEMAC, Nancy, France; Institute of Bone and Joint Research, University of Sydney; Rheumatology and Musculoskeletal Epidemiology, Sydney Medical School, Sydney; Department of Rheumatology, Royal North Shore Hospital, St Leonards, Australia.

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November 2017

Toward the Development of a Core Set of Outcome Domains to Assess Shared Decision-making Interventions in Rheumatology: Results from an OMERACT Delphi Survey and Consensus Meeting.

J Rheumatol 2017 Oct 1;44(10):1544-1550. Epub 2017 Aug 1.

From the Children's Hospital of Eastern Ontario Research Institute, Ottawa; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, and Department of Epidemiology and Community Medicine, and Department of Medicine, Faculty of Medicine, University of Ottawa; School of Nursing, University of Ottawa; Integrated Knowledge Translation Network and University of Ottawa; Ottawa Hospital Research Institute, Centre for Practice-Changing Research and University of Ottawa; Bruyère Research Institute, Bruyère Continuing Care and School of Epidemiology, Public Health and Preventive Medicine, University of Ottawa; Clinical Epidemiology Program, Ottawa Hospital Research Institute, Department of Epidemiology and Community Medicine, Faculty of Medicine, and Institute of Population Health, Centre for Global Health, University of Ottawa, Ottawa; Musculoskeletal Health and Outcomes Research, Li Ka Shing Knowledge Institute, St. Michael's Hospital; Institute for Work and Health, Institute Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario; Department of Physical Therapy, University of British Columbia; Arthritis Research Centre of Canada, Vancouver, British, Columbia; Department of Family Medicine and Emergency Medicine, Université Laval, Quebec City, Montreal, Canada; VA Portland Health Care System; Oregon Health and Science University, Portland, Oregon; Department of Internal Medicine, Yale University, New Haven, Connecticut; The Ohio State University, Columbus; Division of Rheumatology, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio; Department of General Internal Medicine, Section of Rheumatology and Clinical Immunology, University of Texas MD Anderson Cancer Center, Houston, Texas, USA; School of Population and Global Health, University of Melbourne; Centre for Health Communication and Participation, School of Psychology and Public Health, La Trobe University, Melbourne; Western Sydney University and Faculty of Medicine, University of Sydney; Department of Medicine, University of Sydney, Institute of Bone and Joint Research and Department of Rheumatology, Royal North Shore Hospital, Sydney, Australia; VU Medical Centre, Amsterdam; Department Psychology, Health and Technology, University of Twente, Enschede; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, Maastricht University, Maastricht; Access to Medicine Foundation, Haarlem, the Netherlands; Sorbonne Universités, UPMC Univ Paris 06, GRC-08; Pitie-Salpétrière Hospital, AP-HP, Rheumatology Department, Paris, France; Musculoskeletal Statistics Unit, The Parker Institute, Bispebjerg and Frederiksberg Hospital, Copenhagen, Denmark; Department of Internal Medicine II Rheumatology, Clinical Immunology, Osteology, Physical Therapy and Sports Medicine, Schlosspark-Klinik, Charité, University Medicine Berlin, Berlin, Germany; Rheumatology and Rehabilitation, Ain Shams University, Cairo, Egypt; King's College London, London, UK.

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http://dx.doi.org/10.3899/jrheum.161241DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5624820PMC
October 2017

Content and Construct Validity, Reliability, and Responsiveness of the Rheumatoid Arthritis Flare Questionnaire: OMERACT 2016 Workshop Report.

J Rheumatol 2017 Oct 15;44(10):1536-1543. Epub 2017 Aug 15.

From McGill University, Montreal, Quebec; University of British Columbia, Vancouver, British Columbia, Canada; Johns Hopkins University, Baltimore, Maryland; Hospital for Special Surgery, New York, New York; University of California, Los Angeles; Healthy Motivation, Santa Barbara, California, USA; Cardiff University, Cardiff; University of the West of England, Bristol, UK; Schlosspark-Klinik University Medicine, Berlin, Germany; Parker Institute, Copenhagen University, Copenhagen, Denmark; Sint Maartenskliniek, Nijmege; Vrije Universiteit (VU), Amsterdam, the Netherlands; Pierre et Marie Curie University, Paris; University of Lorraine, Lorraine, France; University of Sydney, Sydney, Australia.

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October 2017

Remission in Rheumatoid Arthritis: Working Toward Incorporation of the Patient Perspective at OMERACT 12.

J Rheumatol 2016 Jan 15;43(1):203-7. Epub 2015 Feb 15.

From the Department of Rheumatology, and the Department of Epidemiology and Biostatistics, VU University Medical Center, Amsterdam, The Netherlands; Division of Rheumatology, Department of Medicine, Medical University of Vienna, Vienna, Austria; University of Bristol, and the University of the West of England, Academic Rheumatology Unit, Bristol Royal Infirmary; Bristol, UK; Quintiles Inc., Morrisville; Division of Rheumatology, Department of Medicine, Duke University School of Medicine, Durham, North Carolina, USA; Queen Elizabeth Hospital Department of Rheumatology, Woodville, South Australia; University of Adelaide, The Health Observatory Woodville, South Australia, Australia; Reade/Jan van Breemen Research Institute, Amsterdam, the Netherlands; Department of Epidemiology and Community Medicine, University of Ottawa Heart Institute, Ottawa, Ontario, Canada.L.H. van Tuyl, Postdoctoral Researcher, PhD, Department of Rheumatology, VU University Medical Center; M. Sadlonova, Occupational Therapist, MSc, Division of Rheumatology, Department of Medicine, Medical University of Vienna; B. Davis, Patient Research Partner, University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary; C. Flurey, Research Fellow, PhD, University of the West of England, Academic Rheumatology Unit, Bristol Royal Infirmary; N. Goel, MD, Senior Medical Director and Adjunct Assistant Professor of Medicine, Quintiles Inc., and Division of Rheumatology, Department of Medicine, Duke University School of Medicine; S.E. Hewlett, Professor of Rheumatology Nursing, PhD, University of the West of England, Academic Rheumatology Unit, Bristol Royal Infirmary; Queen Elizabeth Hospital, Department of Rheumatology, Woodville; C.L. Hill, MD, Rheumatologist, Queen Elizabeth Hospital Department of Rheumatology, Woodville, University of Adelaide, Health Observatory Woodville; W. Hoogland, MD, Patient Research Partner, Department of Rheumatology, VU University Medical Center; J.R. Kirwan, Professor o

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January 2016

Recommendations for the Involvement of Patient Research Partners (PRP) in OMERACT Working Groups. A Report from the OMERACT 2014 Working Group on PRP.

J Rheumatol 2016 Jan 15;43(1):187-93. Epub 2015 Apr 15.

From the Division of Rheumatology, National University Hospital, Singapore; Medical Humanities, VU Medical Centre, Amsterdam, The Netherlands; Division of Rheumatology, Johns Hopkins University, Baltimore, Maryland, USA; University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK; Healthy Motivation, Bone and Joint Decade, Santa Barbara, California, USA; Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital, St. Leonards, New South Wales, Australia; Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada, Vancouver, British Columbia, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Sorbonne Universités, Université Pierre et Marie Curie (UPMC) Univ Paris 06, Institut Pierre Louis d'Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology, F-75013, Paris, France.P.P. Cheung, PhD, FRACP, Division of Rheumatology, National University Hospital; M. de Wit, PhD, Medical Humanities, VU Medical Centre; C.O. Bingham 3rd, MD, Division of Rheumatology, Johns Hopkins University; J.R. Kirwan, MD, FRCP, University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary; A. Leong, MBA, Healthy Motivation, Bone and Joint Decade; L.M. March, PhD, FRACP, Institute of Bone and Joint Research and Sydney Medical School and School of Public Health, University of Sydney, and Department of Rheumatology, Royal North Shore Hospital; P. Montie, Arthritis Patient Advisory Board of the Arthritis Research Centre of Canada; M. Scholte-Voshaar, MSc, Department of Psychology, Health and Technology, University of Twente; L. Gossec, MD, PhD, Sorbonne Universités, UPMC Univ Paris 06, Institut Pierre Louis d'Epidémiologie et de Santé Publique; AP-HP, Pitié Salpêtrière Hospital, Department of Rheumatology.

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January 2016

Development of a Draft Core Set of Domains for Measuring Shared Decision Making in Osteoarthritis: An OMERACT Working Group on Shared Decision Making.

J Rheumatol 2015 Dec 15;42(12):2442-7. Epub 2015 Apr 15.

From the Children's Hospital of Eastern Ontario Research Institute and Department of Pediatrics, University of Ottawa, Ottawa, Ontario, Canada; VA Portland Health Care System, and Oregon Health and Science University, Portland, Oregon, USA; Department of Internal Medicine, Yale University, New Haven, Connecticut, USA; Department of Physical Therapy, University of British Columbia and Arthritis Research Centre of Canada, Vancouver, British Columbia, Canada; School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Rheumatic Diseases, University of Lorraine, Nancy, France; Institute of Population Health, Centre for Global Health, and School of Nursing, University of Ottawa, Ottawa, Ontario, Canada; Department of Family Medicine and Emergency Medicine, Université Laval, Québec City, Québec, Canada; Bruyere Research Institute, University of Ottawa, Ottawa, Ontario, Canada; University of Twente, Enschede; VU Medical Centre, Amsterdam, The Netherlands; Department of Medicine, University of Sydney, Institute of Bone and Joint Research; University of Western Sydney, Sydney, Australia; Musculoskeletal Statistics Unit, The Parker Institute, Department of Rheumatology, University of Copenhagen, Bispebjerg and Frederiksberg Hospitals, Copenhagen, Denmark; Department of Rheumatology, Nîmes University Hospital, Montpellier I University, Nîmes, France; Department of General Internal Medicine, Section of Rheumatology and Clinical Immunology, University of Texas MD Anderson Cancer Center, Houston, Texas, USA; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, Maastricht University, Maastricht, The Netherlands; Department of Internal Medicine II Rheumatology, Clinical Immunology, Osteology, Physical Therapy and Sports Medicine, Schlosspark-Klinik, Teaching Hospital of the Charité, University Medicine, Berlin, Germany; Rheumatology, Michigan State University College of Human Medic

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http://dx.doi.org/10.3899/jrheum.141205DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4607553PMC
December 2015

Feasibility and Domain Validation of Rheumatoid Arthritis (RA) Flare Core Domain Set: Report of the OMERACT 2014 RA Flare Group Plenary.

J Rheumatol 2015 Nov 15;42(11):2185-9. Epub 2015 Feb 15.

From McGill University, Montreal, Quebec, Canada; Johns Hopkins University, Baltimore, Maryland; Hospital for Special Surgery, New York, New York, USA; Swansea University, Swansea; Cardiff University, Cardiff, UK; Schlosspark-Klinik, University Medicine Berlin, Berlin, Germany; The Parker Institute, Copenhagen University Hospital at Frederiksberg, Copenhagen, Denmark; University of California, Los Angeles, California, USA; University of Lorraine, Nancy, France; University of the West of England, Bristol, UK; Healthy Motivation, Santa Barbara, California, USA; University of Sydney, Sydney, Australia; and University of Twente, Enschede, The Netherlands.S.J. Bartlett, PhD, McGill University; and Johns Hopkins University; V.P. Bykerk, MD, Hospital for Special Surgery; R. Cooksey, MSc, Swansea University; E.H. Choy, MD, Cardiff University; R. Alten, Schlosspark-Klinik, University Medicine Berlin; R. Christensen, PhD, Parker Institute, Copenhagen University Hospital at Frederiksberg; D.E. Furst, MD, University of California, Los Angeles; F. Guillemin, MD, PhD, University of Lorraine; S. Halls, MSc; S. Hewlett, PhD, RN, University of the West of England; A.L. Leong, Healthy Motivation; A. Lyddiatt; University of Sydney; L. March, MD, PhD; P. Montie; A.M. Orbai, MD, MHS, Johns Hopkins University; C. Pohl, MD, Schlosspark-Klinik, University Medicine; M. Scholte Voshaar, University of Twente; T.G. Woodworth, MD, University of California, Los Angeles; and C.O. Bingham 3rd, MD, Johns Hopkins University.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4747421PMC
November 2015

Dissemination and evaluation of the European League Against Rheumatism recommendations for the role of the nurse in the management of chronic inflammatory arthritis: results of a multinational survey among nurses, rheumatologists and patients.

Rheumatology (Oxford) 2014 Aug 31;53(8):1491-6. Epub 2014 Mar 31.

Department of Patient and Care, Division of Rheumatology, Department of Internal Medicine, Maastricht University Medical Centre, School for Public Health and Primary Care (CAPHRI), University of Maastricht, Maastricht, The Netherlands, Academic and Clinical Unit for Musculoskeletal Nursing (ACUMeN), Section of Clinical Biomechanics and Physical Medicine, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK, Charité Universitätsmedizin, Department Rheumatology, Berlin, Germany, Service de Rhumatologie 4e HE, Hôpital Gabriel Montpied, Clermont-Ferrand, France, Clinica Reumatologica, Università Politecnica delle Marche, Ospedale C. Urbani, Jesi (An), Italy, Staffordshire and Stoke on Trent NHS Partnership Trust, Rheumatology Centre, Stoke on Trent, UK, Tools, Foundation for Patient Empowerment, Bussum, The Netherlands and Department of Rheumatology, Alicante General and University Hospital, Alicante, Spain.Department of Patient and Care, Division of Rheumatology, Department of Internal Medicine, Maastricht University Medical Centre, School for Public Health and Primary Care (CAPHRI), University of Maastricht, Maastricht, The Netherlands, Academic and Clinical Unit for Musculoskeletal Nursing (ACUMeN), Section of Clinical Biomechanics and Physical Medicine, Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK, Charité Universitätsmedizin, Department Rheumatology, Berlin, Germany, Service de Rhumatologie 4e HE, Hôpital Gabriel Montpied, Clermont-Ferrand, France, Clinica Reumatologica, Università Politecnica delle Marche, Ospedale C. Urbani, Jesi (An), Italy, Staffordshire and Stoke on Trent NHS Partnership Trust, Rheumatology Centre, Stoke on Trent, UK, Tools, Foundation for Patient Empowerment, Bussum, The Netherlands and Department of Rheumatology, Alicante General and University Hospital, Alicante, Spain.

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August 2014

Establishing a core domain set to measure rheumatoid arthritis flares: report of the OMERACT 11 RA flare Workshop.

J Rheumatol 2014 Apr 1;41(4):799-809. Epub 2014 Mar 1.

From the Department of Rheumatology, Hospital for Special Surgery, New York, New York, USA; Department of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway; Johns Hopkins University, Baltimore, Maryland, USA; McGill University, Montreal, Quebec, Canada; Schlosspark Klinik, Charité University Medicine, Berlin, Germany; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center and Caphri Research Institute, Maastricht, The Netherlands; Musculoskeletal Statistics Unit, The Parker Institute, Department of Rheumatology, Copenhagen University Hospital, Bispebjerg and Frederiksberg, Denmark; David Geffen School of Medicine, University of California at Los Angeles, Los Angeles, California, USA; University of the West of England, Bristol, UK; Healthy Motivation, Bone and Joint Decade, Santa Barbara, California, USA; Musculoskeletal Group, Cochrane Collaboration; University of Sydney Department of Rheumatology, Royal North Shore Hospital, St. Leonards, Australia; National Fathers' Network, Seattle, Washington, USA; Arthritis Research Center, Vancouver, British Columbia, Canada; Tools2use.eu, Bussum, The Netherlands; and the Department of Rheumatology, Cardiff University, Cardiff, UK.

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http://dx.doi.org/10.3899/jrheum.131252DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4365895PMC
April 2014

[Participation of patients in medical research].

Ned Tijdschr Geneeskd 2011 ;155(29):A3501

VU Medisch Centrum, afd. Reumatologie, Amsterdam, the Netherlands.

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November 2011

Patient perspective on remission in rheumatoid arthritis.

J Rheumatol 2011 Aug;38(8):1735-8

VU University Medical Center, Amsterdam, The Netherlands.

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http://dx.doi.org/10.3899/jrheum.110394DOI Listing
August 2011