Publications by authors named "Lainie Friedman Ross"

100Publications

The Pediatrician's Moral Obligation to Counsel Directively Against Youth Tackle Football.

J Clin Ethics 2020 ;31(4):331-337

University of Chicago Departments of Pediatrics, Medicine, Surgery and the College; MacLean Center for Clinical Medical Ethics, Chicago, IL USA.

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January 2020

Should We Mandate a COVID-19 Vaccine for Children?

JAMA Pediatr 2020 Sep 14. Epub 2020 Sep 14.

Department of Pediatrics, The University of Chicago, Chicago, Illinois.

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http://dx.doi.org/10.1001/jamapediatrics.2020.3019DOI Listing
September 2020

Reopening K-12 Schools in the Era of Coronavirus Disease 2019: Review of State-Level Guidance Addressing Equity Concerns.

J Pediatr 2020 Dec 29;227:38-44.e7. Epub 2020 Aug 29.

Department of Pediatrics, University of Chicago, Chicago, IL; MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, IL; Institute for Translational Medicine, University of Chicago, Chicago, IL. Electronic address:

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http://dx.doi.org/10.1016/j.jpeds.2020.08.069DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7455545PMC
December 2020

50 Years Ago in The Journal of Pediatrics: Plus ça Change: Halfway Technologies in Pediatrics.

J Pediatr 2020 Sep;224:29

Department of Pediatrics, University of Chicago, Chicago, Illinois.

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http://dx.doi.org/10.1016/j.jpeds.2020.02.043DOI Listing
September 2020

Reflections on Charlie Gard and the Best Interests Standard From Both Sides of the Atlantic Ocean.

Pediatrics 2020 08;146(Suppl 1):S60-S65

The College and Departments of Pediatrics, Medicine, and Surgery, University of Chicago, Chicago, Illinois

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http://dx.doi.org/10.1542/peds.2020-0818LDOI Listing
August 2020

Ethical Issues Raised by the Media Portrayal of Adolescent Transplant Refusals.

Pediatrics 2020 08;146(Suppl 1):S33-S41

Departments of Pediatrics, Medicine, and Surgery, University of Chicago, Chicago, Illinois

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http://dx.doi.org/10.1542/peds.2020-0818HDOI Listing
August 2020

Abusive Head Trauma and Parental Participation in Pediatric Decision Making.

J Clin Ethics 2020 ;31(2):121-125

Carolyn and Matthew Bucksbaum Professor of Clinical Ethics; Professor, Departments of Pediatrics, Medicine, and Surgery; Co-Director of the Institute for Translational Medicine and Associate Director of the MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Illinois USA.

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September 2020

The Harms of Carrier Status Identification: A Cautionary Warning Against Newborn Sequencing.

J Pediatr 2020 Sep 15;224:22-23. Epub 2020 May 15.

Department of Pediatrics, MacLean Center for Clinical Medical Ethics, Institute for Translational Medicine, University of Chicago, Chicago, Illinois. Electronic address:

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http://dx.doi.org/10.1016/j.jpeds.2020.05.014DOI Listing
September 2020

50 Years Ago in TheJournalofPediatrics: Shifting Attitudes toward the Disclosure of Serious Illness.

J Pediatr 2020 05;220:48

Department of Pediatrics, University of Chicago, Chicago, Illinois.

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http://dx.doi.org/10.1016/j.jpeds.2019.11.025DOI Listing
May 2020

50 Years Ago in TheJournalofPediatrics: Renal Homotransplantations in Children.

J Pediatr 2020 03;218:15

Department of Pediatrics, University of Chicago, Chicago, Illinois.

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http://dx.doi.org/10.1016/j.jpeds.2019.09.001DOI Listing
March 2020

50 Years Ago in TheJournal ofPediatrics: A New Diagnostic Test for Hemoglobin S.

J Pediatr 2020 01;216:18

Department of Pediatrics, University of Chicago, Chicago, Illinois.

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http://dx.doi.org/10.1016/j.jpeds.2019.07.023DOI Listing
January 2020

Delegating Decision-Making Authority To a Surrogate.

Ann Thorac Surg 2019 12;108(6):1615-1616

Departments of Pediatrics, Medicine, Surgery, and the MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Illinois; Department of Pediatrics, University of Chicago, 5841 S Maryland Ave, MC 6082, Chicago, IL 60637. Electronic address:

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http://dx.doi.org/10.1016/j.athoracsur.2019.08.014DOI Listing
December 2019

Ethical Issues in Newborn Sequencing Research: The Case Study of BabySeq.

Pediatrics 2019 12 12;144(6). Epub 2019 Nov 12.

Department of Pediatrics, Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, Tennessee.

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http://dx.doi.org/10.1542/peds.2019-1031DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6889970PMC
December 2019

Surrogate Decision Making for Children: Who Should Decide?

J Pediatr 2020 05 8;220:221-226. Epub 2019 Nov 8.

Department of Pediatrics, University of Chicago, Chicago, IL. Electronic address:

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http://dx.doi.org/10.1016/j.jpeds.2019.10.023DOI Listing
May 2020

In Further Defense of "Better than Best (Interest)".

J Clin Ethics 2019 ;30(3):232-239

Carolyn and Matthew Bucksbaum Professor of Clinical Medical Ethics; Professor of Pediatrics, Medicine, Surgery, and the College; Associate Director of the MacLean Center for Clinical Medical Ethics; and Codirector of the Institute for Translational Medicine at the University of Chicago in Chicago, Illinois USA. Lross@ uchicago.edu.

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October 2019

Better than Best (Interest Standard) in Pediatric Decision Making.

J Clin Ethics 2019 ;30(3):183-195

Carolyn and Matthew Bucksbaum Professor of Clinical Medical Ethics; Professor of Pediatrics, Medicine, Surgery, and the College; Associate Director of the MacLean Center for Clinical Medical Ethics; and Codirector of the Institute for Translational Medicine at the University of Chicago in Chicago, Illinois USA. Lross@ uchicago.edu.

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October 2019

Child maltreatment and modifying factors in Shanghai, China.

J Pediatr 2019 Oct;213:1-3

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http://dx.doi.org/10.1016/j.jpeds.2019.08.003DOI Listing
October 2019

Spinal Muscular Atrophy: Past, Present, and Future.

Neoreviews 2019 08;20(8):e437-e451

Department of Neurology, University of Wisconsin School of Medicine and Public Health, Madison, WI.

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http://dx.doi.org/10.1542/neo.20-8-e437DOI Listing
August 2019

Living Donation by Individuals with Life-Limiting Conditions.

J Law Med Ethics 2019 03;47(1):112-122

Lainie Friedman Ross, M.D., Ph.D., is the Carolyn and Matthew Bucksbaum Professor of Clinical Ethics, Professor, Departments of Pediatrics, Medicine and Surgery, Associate Director, MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago IL. J. Richard Thistlethwaite, M.D., Ph.D., is Professor Emeritus, Department of Surgery and the MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago IL.

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http://dx.doi.org/10.1177/1073110519840490DOI Listing
March 2019

Missed Opportunities in the Preparticipation Physical Examination for High School Athletes.

Clin Pediatr (Phila) 2019 05 21;58(5):547-554. Epub 2019 Feb 21.

1 University of Chicago, Chicago, IL, USA.

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http://dx.doi.org/10.1177/0009922819832021DOI Listing
May 2019

African-Americans with End Stage Renal Disease in the Early Years of Kidney Transplantation.

J Natl Med Assoc 2019 Aug 16;111(4):352-362. Epub 2019 Feb 16.

Departments of Pediatrics, Medicine and Surgery, MacLean Center for Clinical Medical Ethics, University of Chicago, USA. Electronic address:

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http://dx.doi.org/10.1016/j.jnma.2019.01.005DOI Listing
August 2019

Respecting Choice in Definitions of Death.

Hastings Cent Rep 2018 Nov;48 Suppl 4:S53-S55

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http://dx.doi.org/10.1002/hast.956DOI Listing
November 2018

50 Years Ago in The Journal of Pediatrics: Prenatal Detection of Genetic Defects.

J Pediatr 2019 01;204:45

Department of Pediatrics University of Chicago Chicago, Illinois.

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http://dx.doi.org/10.1016/j.jpeds.2018.06.063DOI Listing
January 2019

Public Attitudes and Knowledge About Youth Sports Participation and Concussion Risk in an Urban Area.

J Natl Med Assoc 2018 Dec 28;110(6):635-643. Epub 2018 Oct 28.

Department of Pediatrics, University of Chicago, 5841 S Maryland Ave, Chicago, IL, 60637, USA; MacLean Center for Clinical Medical Ethics, University of Chicago, 5841 S Maryland Ave, Chicago, IL, 60637, USA. Electronic address:

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https://linkinghub.elsevier.com/retrieve/pii/S00279684183006
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http://dx.doi.org/10.1016/j.jnma.2018.10.001DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6226021PMC
December 2018

50 Years Ago in The Journal of Pediatrics: Maternal Phenylketonuria: Implications for Growth and Development.

J Pediatr 2018 10;201:121

University of Massachusetts Boston Boston, Massachusetts.

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http://dx.doi.org/10.1016/j.jpeds.2018.03.044DOI Listing
October 2018

Pediatric Decision Making Requires Both Guidance and Intervention Principles.

Am J Bioeth 2018 08;18(8):44-46

b University of Chicago.

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http://dx.doi.org/10.1080/15265161.2018.1485777DOI Listing
August 2018

The Role of Gender in Publication in The Journal of Pediatrics 2015-2016: Equal Reviews, Unequal Opportunities.

J Pediatr 2018 09 17;200:254-260.e1. Epub 2018 Jul 17.

University of Chicago, Department of Pediatrics, Chicago, IL; MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, IL. Electronic address:

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http://dx.doi.org/10.1016/j.jpeds.2018.06.059DOI Listing
September 2018

The Complexities of Ascertaining Public Preferences for Newborn Screening Policies.

J Pediatr 2018 10 17;201:8-9. Epub 2018 Jul 17.

University of Chicago MacLean Center for Medical Ethics Chicago, Illinois.

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http://dx.doi.org/10.1016/j.jpeds.2018.06.032DOI Listing
October 2018

Unspoken ambivalence in kinship obligation in living donation.

Prog Transplant 2018 09 12;28(3):250-255. Epub 2018 Jun 12.

2 MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, IL, USA.

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http://dx.doi.org/10.1177/1526924818781562DOI Listing
September 2018

Ethical Analysis and Policy Recommendations Regarding Domino Liver Transplantation.

Transplantation 2018 05;102(5):803-808

Department of Surgery, University of Chicago, Chicago IL.

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http://dx.doi.org/10.1097/TP.0000000000002095DOI Listing
May 2018

50 Years Ago in The Journal of Pediatrics: Variability in the Manifestations of Phenylketonuria/Transient Hyperphenylalaninemia.

J Pediatr 2018 04;195:65

University of Massachusetts Boston Boston, Massachusetts.

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http://dx.doi.org/10.1016/j.jpeds.2017.10.001DOI Listing
April 2018

Impact of the kidney allocation system on young pediatric recipients.

Clin Transplant 2018 04 14;32(4):e13223. Epub 2018 Mar 14.

Department of Surgery, Stanford University, Palo Alto, CA, USA.

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http://dx.doi.org/10.1111/ctr.13223DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6029615PMC
April 2018

50 Years Ago in The Journal of Pediatrics: Editorial Comment: Therapeutic Orphans.

J Pediatr 2018 01;192:59

Department of Pediatrics University of Chicago Chicago, Illinois.

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http://dx.doi.org/10.1016/j.jpeds.2017.07.017DOI Listing
January 2018

Threading the Needle for the Tiniest Babies.

J Pediatr 2017 11;190:8-9

Clinical Ethics Department of Pediatrics Section of Academic Pediatrics and the MacLean Center for Clinical Medical Ethics University of Chicago Chicago, Illinois. Electronic address:

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https://linkinghub.elsevier.com/retrieve/pii/S00223476173103
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http://dx.doi.org/10.1016/j.jpeds.2017.07.030DOI Listing
November 2017

A Historical and Current Review of Newborn Screening for Neuromuscular Disorders From Around the World: Lessons for the United States.

Pediatr Neurol 2017 Dec 25;77:12-22. Epub 2017 Aug 25.

Clinical Genetics, Institute of Cancer & Genetics, School of Medicine, Cardiff University, Cardiff, UK.

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http://dx.doi.org/10.1016/j.pediatrneurol.2017.08.012DOI Listing
December 2017

Gender Differences in the Authorship of Original Research in Pediatric Journals, 2001-2016.

J Pediatr 2017 12 12;191:244-249.e1. Epub 2017 Oct 12.

Department of Pediatrics, University of Chicago, Chicago, IL; Department of Surgery, University of Chicago, Chicago, IL; MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, IL. Electronic address:

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https://linkinghub.elsevier.com/retrieve/pii/S00223476173110
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http://dx.doi.org/10.1016/j.jpeds.2017.08.044DOI Listing
December 2017

Reply.

J Pediatr 2017 08 15;187:336-337. Epub 2017 May 15.

Pritzker School of Medicine University of Chicago Chicago, Illinois.

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http://dx.doi.org/10.1016/j.jpeds.2017.04.036DOI Listing
August 2017

Attitudes and Counseling Practices of Pediatricians Regarding Youth Sports Participation and Concussion Risks.

J Pediatr 2017 05 24;184:19-25. Epub 2017 Feb 24.

MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, IL; Department of Pediatrics, University of Chicago, Chicago, IL. Electronic address:

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http://dx.doi.org/10.1016/j.jpeds.2017.01.048DOI Listing
May 2017

50 Years Ago in The Journal of Pediatrics: Conference on Treatment of Phenylketonuria.

J Pediatr 2017 01;180:169

Department of Pediatrics University of Chicago Chicago, Illinois.

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http://dx.doi.org/10.1016/j.jpeds.2016.07.028DOI Listing
January 2017

Kidney Donor Profile Index Does Not Accurately Predict the Graft Survival of Pediatric Deceased Donor Kidneys.

Transplantation 2016 Nov;100(11):2471-2478

1 Department of Internal Medicine, Section of Pulmonary Critical Care, University of Chicago, Chicago, IL. 2 MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, IL. 3 Section of Transplantation, Department of Surgery, University of Chicago, Chicago, IL. 4 Departments of Medicine, Pediatrics and Surgery, University of Chicago, Chicago, IL.

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http://content.wkhealth.com/linkback/openurl?sid=WKPTLP:land
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http://dx.doi.org/10.1097/TP.0000000000001028DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4940335PMC
November 2016

50 Years Ago in TheJournal ofPediatrics: Evaluation of the Effects of Terminating the Diet in Phenylketonuria.

J Pediatr 2016 10;177:113

Department of Pediatrics, University of Chicago, Chicago, Illinois.

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https://linkinghub.elsevier.com/retrieve/pii/S00223476163002
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http://dx.doi.org/10.1016/j.jpeds.2016.04.001DOI Listing
October 2016

Introducing Genetic Tests With Uncertain Implications in Living Donor Kidney Transplantation: ApoL1 as a Case Study.

Prog Transplant 2016 Sep 14;26(3):203-6. Epub 2016 Jun 14.

MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, IL, USA Department of Surgery, Section of Transplantation, University of Chicago, Chicago, IL, USA.

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http://journals.sagepub.com/doi/10.1177/1526924816654608
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http://dx.doi.org/10.1177/1526924816654608DOI Listing
September 2016

The Advantages and Challenges of Testing Children for Heritable Predisposition to Cancer.

Am Soc Clin Oncol Educ Book 2016 ;35:251-69

From the Department of Oncology, St. Jude Children's Research Hospital, Memphis, TN; Departments of Pediatrics, Medicine, and Surgery, MacLean Center for Clinical Medical Ethics, The University of Chicago, Chicago, IL; Department of Medicine, Department of Medical Ethics and Health Policy, Perelman School of Medicine of the University of Pennsylvania, Philadelphia, PA.

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http://dx.doi.org/10.1200/EDBK_160621DOI Listing
January 2017

Theory and Practice of Pediatric Bioethics.

Perspect Biol Med 2016 ;58(3):267-80

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https://muse.jhu.edu/content/crossref/journals/perspectives_
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http://dx.doi.org/10.1353/pbm.2016.0008DOI Listing
March 2017

The 1966 Ciba Symposium on Transplantation Ethics: 50 Years Later.

Transplantation 2016 Jun;100(6):1191-7

1 Departments of Pediatrics, Medicine, and Surgery, MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago IL. 2 Department of Surgery, MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago IL.

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http://dx.doi.org/10.1097/TP.0000000000001170DOI Listing
June 2016

Consent Is the Cornerstone of Ethically Valid Research: Ethical Issues in Recontacting Subjects Who Enrolled in Research as a Minor.

Am J Bioeth 2015 ;15(10):61-3

b University of Chicago, MacLean Center for Clinical Medical Ethics.

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http://dx.doi.org/10.1080/15265161.2015.1075800DOI Listing
May 2016

Pediatric Resident Preparedness and Educational Experiences With Informed Consent.

Acad Pediatr 2016 Apr 13;16(3):298-304. Epub 2015 Oct 13.

Departments of Pediatrics, Medicine, and Surgery, and MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Ill.

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http://dx.doi.org/10.1016/j.acap.2015.10.001DOI Listing
April 2016

To tell or not to tell: attitudes of transplant surgeons and transplant nephrologists regarding the disclosure of recipient information to living kidney donors.

Clin Transplant 2015 Dec 20;29(12):1203-12. Epub 2015 Nov 20.

Departments of Medicine, Pediatrics and Surgery, University of Chicago, Chicago, IL, USA.

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http://dx.doi.org/10.1111/ctr.12651DOI Listing
December 2015

Should Medical Errors Be Disclosed to Pediatric Patients? Pediatricians' Attitudes Toward Error Disclosure.

Acad Pediatr 2016 07 29;16(5):482-488. Epub 2015 Aug 29.

Department of Pediatrics, University of Chicago, Chicago, Ill; MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Ill.

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http://dx.doi.org/10.1016/j.acap.2015.06.011DOI Listing
July 2016

Disclosing Health and Health Behavior Information between Living Donors and Their Recipients.

Clin J Am Soc Nephrol 2015 Sep 13;10(9):1609-16. Epub 2015 Aug 13.

MacLean Center for Clinical Medical Ethics, and Departments of Medicine, Pediatrics, and Surgery, University of Chicago, Chicago, Illinois;

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http://dx.doi.org/10.2215/CJN.02280215DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4559508PMC
September 2015

50 Years Ago in The Journal of Pediatrics: Phenylketonuria in a Negro Infant.

J Pediatr 2015 Aug;167(2):304

Department of Pediatrics, University of Miami, Miami, Florida.

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http://dx.doi.org/10.1016/j.jpeds.2015.01.048DOI Listing
August 2015

Age and equity in liver transplantation: An organ allocation model.

Liver Transpl 2015 Oct;21(10):1241-9

Department of Medical and Surgical Sciences, Policlinico Sant'Orsola-Malpighi Hospital, Alma Mater Studiorum, University of Bologna, Bologna, Italy.

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http://dx.doi.org/10.1002/lt.24211DOI Listing
October 2015

Ethical and policy issues in newborn screening of children for neurologic and developmental disorders.

Pediatr Clin North Am 2015 Jun 7;62(3):787-98. Epub 2015 Apr 7.

Department of Pediatrics, University of Chicago, 5841 South Maryland Avenue, Chicago, IL 60637, USA; Department of Medicine, University of Chicago, 5841 South Maryland Avenue, Chicago, IL 60637, USA; Department of Surgery, University of Chicago, 5841 South Maryland Avenue, Chicago, IL 60637, USA. Electronic address:

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https://linkinghub.elsevier.com/retrieve/pii/S00313955150002
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http://dx.doi.org/10.1016/j.pcl.2015.03.009DOI Listing
June 2015

Living kidney donors and ESRD.

Am J Kidney Dis 2015 Jul 30;66(1):23-7. Epub 2015 Apr 30.

Departments of Pediatrics, Medicine, and Surgery and the MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, IL. Electronic address:

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http://dx.doi.org/10.1053/j.ajkd.2015.01.032DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4485582PMC
July 2015

Racial disparities in reaching the renal transplant waitlist: is geography as important as race?

Clin Transplant 2015 Jun 27;29(6):531-8. Epub 2015 Apr 27.

MacLean Center for Clinical Medical Ethics, University of Chicago Medical Center, Chicago, IL, USA.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5088709PMC
http://dx.doi.org/10.1111/ctr.12547DOI Listing
June 2015

Pediatric Professionals' Attitudes about Secondary Findings in Genomic Sequencing of Children.

J Pediatr 2015 May 26;166(5):1276-1282.e7. Epub 2015 Feb 26.

Department of Pediatrics, University of Chicago, Chicago, IL; MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, IL. Electronic address:

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http://dx.doi.org/10.1016/j.jpeds.2015.01.032DOI Listing
May 2015

Universal state newborn screening programs can reduce health disparities.

JAMA Pediatr 2015 Jan;169(1):7-8

Department of Pediatrics, University of Chicago, Chicago, Illinois4MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Illinois.

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http://dx.doi.org/10.1001/jamapediatrics.2014.2465DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4528613PMC
January 2015

The moral and legal need to disclose despite a certificate of confidentiality.

Am J Bioeth 2014 ;14(10):51-3

a Ann & Robert H. Lurie Children's Hospital of Chicago , Northwestern University.

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http://dx.doi.org/10.1080/15265161.2014.947817DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4169009PMC
October 2015

Outcomes after kidney donation.

JAMA 2014 Jul;312(1):94

Department of Surgery, University of Chicago, Chicago, Illinois.

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http://jama.jamanetwork.com/article.aspx?doi=10.1001/jama.20
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http://dx.doi.org/10.1001/jama.2014.6111DOI Listing
July 2014

The need to promote all pediatric stem cell donors' understanding and interests.

Pediatrics 2014 May;133(5):e1356-7

Lee Ault Carter Chair of Pediatric Ethics, Director, Ethics Center, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio.

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http://dx.doi.org/10.1542/peds.2014-0375DOI Listing
May 2014

Decision making in liver transplantation--limited application of the liver donor risk index.

Liver Transpl 2014 Jul;20(7):831-7

Pritzker School of Medicine, University of Chicago University, Chicago, IL.

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http://dx.doi.org/10.1002/lt.23879DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4072766PMC
July 2014

Relational autonomy: moving beyond the limits of isolated individualism.

Pediatrics 2014 Feb;133 Suppl 1:S16-23

Pediatric Advanced Care Team and Department of Medical Ethics, Children's Hospital of Philadelphia and Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania; and.

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http://dx.doi.org/10.1542/peds.2013-3608DDOI Listing
February 2014

Predictive genetic testing of children and the role of the best interest standard.

J Law Med Ethics 2013 ;41(4):899-906, Table of Contents

The Carolyn and Matthew Bucksbaum Professor of Clinical Ethics, a Professor in the Departments of Pediatrics, Medicine, Surgery and the College, and the Associate Director of the MacLean Center for Clinical Medical Ethics at the University of Chicago.

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http://journals.sagepub.com/doi/10.1111/jlme.12099
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http://dx.doi.org/10.1111/jlme.12099DOI Listing
April 2015

Premature guidance about whole-genome sequencing.

Per Med 2013 08;10(6):523-526

Center for Biomedical Ethics & Society, Vanderbilt University, 2525 West End Avenue, Suite 400, Nashville, TN 37203, USA.

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http://dx.doi.org/10.2217/pme.13.51DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3859526PMC
August 2013

Mandatory extended searches in all genome sequencing: "incidental findings," patient autonomy, and shared decision making.

JAMA 2013 Jul;310(4):367-8

Department of Pediatrics, University of Chicago, Chicago, Illinois 60637, USA.

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http://dx.doi.org/10.1001/jama.2013.41700DOI Listing
July 2013

A pilot study to evaluate awareness of and attitudes about prenatal and neonatal genetic testing in postpartum African American women.

J Natl Med Assoc 2013 ;105(1):85-91

Department of Pediatrics, MacLean Center for Clinical, University of Chicago, Chicago IL 60637, USA.

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http://dx.doi.org/10.1016/s0027-9684(15)30089-4DOI Listing
July 2013

Young physicians' recall about pediatric training in ethics and professionalism and its practical utility.

J Pediatr 2013 Oct 21;163(4):1196-201. Epub 2013 May 21.

Medical Education Research, Innovation, Teaching and Scholarship program, University of Chicago Pritzker School of Medicine, Chicago, IL; MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, IL.

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http://dx.doi.org/10.1016/j.jpeds.2013.04.006DOI Listing
October 2013

Technical report: Ethical and policy issues in genetic testing and screening of children.

Genet Med 2013 Mar 21;15(3):234-45. Epub 2013 Feb 21.

Department of Pediatrics, University of Chicago, Chicago, Illinois, USA.

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http://dx.doi.org/10.1038/gim.2012.176DOI Listing
March 2013

Newborns and other children: in defense of differential attitudes and treatment.

J Pediatr 2013 Jun 15;162(6):1096-9. Epub 2013 Feb 15.

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http://dx.doi.org/10.1016/j.jpeds.2013.01.018DOI Listing
June 2013

Age should not be considered in the allocation of deceased donor kidneys.

Semin Dial 2012 Nov-Dec;25(6):675-81. Epub 2012 Oct 19.

Department of Medicine and the MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Illinois 60637, USA.

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http://dx.doi.org/10.1111/sdi.12016DOI Listing
May 2013

Identification and management of sickle cell trait by young physicians.

J Natl Med Assoc 2012 May-Jun;104(5-6):299-304

Pediatric Emergency Medicine, Ann & Robert H. Lurie Children's Hospital of Chicago, Northwestern University, Illinois, USA.

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http://dx.doi.org/10.1016/s0027-9684(15)30155-3DOI Listing
October 2012

50 years ago in the Journal of Pediatrics: comparison of serum phenylalanine levels with growth in Guthrie's inhibition assay in newborn infants.

J Pediatr 2012 Sep;161(3):530

Department of Pediatrics, University of Chicago, Chicago, Illinois, USA.

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http://dx.doi.org/10.1016/j.jpeds.2012.04.061DOI Listing
September 2012

50 years ago in the Journal of Pediatrics: identification of heterozygotes with phenylketonuria on basis of blood tyrosine responses.

J Pediatr 2012 Sep;161(3):487

Department of Pediatrics, University of Chicago, Chicago, Illinois, USA.

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http://linkinghub.elsevier.com/retrieve/pii/S002234761200496
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http://dx.doi.org/10.1016/j.jpeds.2012.04.060DOI Listing
September 2012

50 years ago in the Journal of Pediatrics: mass screening for phenylketonuria.

J Pediatr 2012 Sep;161(3):433

Department of Pediatrics, University of Chicago, Chicago, Illinois, USA.

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http://dx.doi.org/10.1016/j.jpeds.2012.04.059DOI Listing
September 2012

Different standards are not double standards: all elective surgical patients are not alike.

J Clin Ethics 2012 ;23(2):118-28

Department of Pediatrics, MacLean Center for Clinical Medical Ethics, University of Chicago, USA.

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August 2012

Parents: critical stakeholders in expanding newborn screening.

J Pediatr 2012 Sep 22;161(3):385-9. Epub 2012 Jun 22.

Department of Pediatrics, University of Chicago, Chicago, IL, USA.

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http://dx.doi.org/10.1016/j.jpeds.2012.04.035DOI Listing
September 2012

Research ethics education for community-engaged research: a review and research agenda.

J Empir Res Hum Res Ethics 2012 Apr;7(2):3-19

Neiswanger Institute for Bioethics and Health Policy, Stritch School of Medicine, Loyola University Chicago, Maywood, IL 60153, USA.

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http://dx.doi.org/10.1525/jer.2012.7.2.3DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3483026PMC
April 2012

Engaging African-Americans about biobanks and the return of research results.

J Community Genet 2012 Oct 28;3(4):275-83. Epub 2012 Mar 28.

Department of Anthropology, University of Chicago, 1126 E 59th St, Chicago, IL, 60637, USA.

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http://link.springer.com/10.1007/s12687-012-0091-3
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http://dx.doi.org/10.1007/s12687-012-0091-3DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3461227PMC
October 2012

Biobank participation and returning research results: perspectives from a deliberative engagement in South Side Chicago.

Am J Med Genet A 2012 May 21;158A(5):1029-37. Epub 2012 Mar 21.

Institute for Health and Society, Center for Bioethics and Medical Humanities, Medical College of Wisconsin, Milwaukee, Wisconsin 53226, USA.

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http://doi.wiley.com/10.1002/ajmg.a.34414
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http://dx.doi.org/10.1002/ajmg.a.34414DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3331902PMC
May 2012

Incidental findings of therapeutic misconception in biobank-based research.

Genet Med 2012 Jun 26;14(6):611-5. Epub 2012 Jan 26.

Department of Anthropology, University of Chicago, Chicago, Illinois, USA.

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http://dx.doi.org/10.1038/gim.2011.50DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4251740PMC
June 2012

Newborn screening for lysosomal storage diseases: an ethical and policy analysis.

J Inherit Metab Dis 2012 Jul 22;35(4):627-34. Epub 2011 Dec 22.

University of Chicago, 5841 S Maryland Ave, MC 6082, Chicago, IL 60637, USA.

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http://dx.doi.org/10.1007/s10545-011-9435-0DOI Listing
July 2012

Ethical and policy issues raised by heterozygote carrier identification and predictive genetic testing of adolescents.

Adolesc Med State Art Rev 2011 Aug;22(2):251-64, ix

Department of Pediatrics, MacLean Center for Clinical Medical Ethics, University of Chicago, 5841 South Maryland Avenue, MC 6082, Chicago, IL 60637, USA.

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August 2011

A re-examination of the use of ethnicity in prenatal carrier testing.

Am J Med Genet A 2012 Jan 21;158A(1):19-23. Epub 2011 Nov 21.

Department of Pediatrics, University of Chicago, Chicago, Illinois, USA.

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http://doi.wiley.com/10.1002/ajmg.a.34361
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http://dx.doi.org/10.1002/ajmg.a.34361DOI Listing
January 2012