Publications by authors named "Katie L Lewis"

34Publications

Using the diffusion of innovations model to guide participant engagement in the genomics era.

J Genet Couns 2019 04 17;28(2):419-427. Epub 2019 Jan 17.

Center for Pediatric Genomic Medicine, Children's Mercy Kansas City, Kansas City, Missouri.

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http://dx.doi.org/10.1002/jgc4.1090DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6456416PMC
April 2019

Ethnic identity and engagement with genome sequencing research.

Genet Med 2019 08 20;21(8):1735-1743. Epub 2018 Dec 20.

Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD, USA.

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http://dx.doi.org/10.1038/s41436-018-0410-0DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6586548PMC
August 2019

Health behaviors among unaffected participants following receipt of variants of uncertain significance in cardiomyopathy-associated genes.

Genet Med 2019 03 12;21(3):748-752. Epub 2018 Jul 12.

Medical Genomics and Metabolic Genetics Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA.

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http://dx.doi.org/10.1038/s41436-018-0083-8DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6330155PMC
March 2019

Web-Based Platform vs Genetic Counselors in Educating Patients About Carrier Results From Exome Sequencing-Reply.

JAMA Intern Med 2018 07;178(7):999

Medical Genomics and Metabolic Genetics Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland.

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http://dx.doi.org/10.1001/jamainternmed.2018.2236DOI Listing
July 2018

Ability of Patients to Distinguish Among Cardiac Genomic Variant Subclassifications.

Circ Genom Precis Med 2018 06;11(6):e001975

Division of Cancer Control and Population Sciences, National Cancer Institute (W.M.P.K.).

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http://dx.doi.org/10.1161/CIRCGEN.117.001975DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5986092PMC
June 2018

Outcomes of Counseling after Education about Carrier Results: A Randomized Controlled Trial.

Am J Hum Genet 2018 04 8;102(4):540-546. Epub 2018 Mar 8.

Social and Behavioral Research Branch, National Human Genome Research Institute, NIH, Bethesda, MD 20892, USA. Electronic address:

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http://dx.doi.org/10.1016/j.ajhg.2018.02.009DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5985358PMC
April 2018

Intentions to share exome sequencing results with family members: exploring spousal beliefs and attitudes.

Eur J Hum Genet 2018 05 23;26(5):735-739. Epub 2018 Feb 23.

Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes Health, Bethesda, MD, USA.

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http://dx.doi.org/10.1038/s41431-018-0118-2DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5945607PMC
May 2018

A common haplotype containing functional CACNA1H variants is frequently coinherited with increased TPSAB1 copy number.

Genet Med 2018 04 21;20(5):503-512. Epub 2017 Sep 21.

Genetics and Pathogenesis of Allergy Section, Laboratory of Allergic Diseases, National Institute of Allergy and Infectious Diseases, National Institutes of Health, Bethesda, Maryland, USA.

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http://www.nature.com/doifinder/10.1038/gim.2017.136
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http://dx.doi.org/10.1038/gim.2017.136DOI Listing
April 2018

Feasibility of Coping Effectiveness Training for Caregivers of Children with Autism Spectrum Disorder: a Genetic Counseling Intervention.

J Genet Couns 2018 02 6;27(1):252-262. Epub 2017 Sep 6.

Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes Health, 31 Center Dr, MSC 2073, Building 31, Room B1B36, Bethesda, MD, 20892-2073, USA.

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http://link.springer.com/10.1007/s10897-017-0144-1
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http://dx.doi.org/10.1007/s10897-017-0144-1DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7350656PMC
February 2018

Engagement and communication among participants in the ClinSeq Genomic Sequencing Study.

Genet Med 2017 01 20;19(1):98-103. Epub 2016 Oct 20.

Genetics Services Research Unit, Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA.

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http://dx.doi.org/10.1038/gim.2016.71DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5225070PMC
January 2017

The Dynamics of a Genetic Counseling Peer Supervision Group.

J Genet Couns 2017 Jun 13;26(3):532-540. Epub 2016 Sep 13.

American College of Medical Genetics and Genomics, Bethesda, MD, USA.

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http://dx.doi.org/10.1007/s10897-016-0013-3DOI Listing
June 2017

Participant use and communication of findings from exome sequencing: a mixed-methods study.

Genet Med 2016 06 5;18(6):577-83. Epub 2015 Nov 5.

Social and Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA.

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http://dx.doi.org/10.1038/gim.2015.133DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4860179PMC
June 2016

Characterizing Participants in the ClinSeq Genome Sequencing Cohort as Early Adopters of a New Health Technology.

PLoS One 2015 17;10(7):e0132690. Epub 2015 Jul 17.

Medical Genomics and Metabolic Genetics Branch, National Human Genome Research Institute, Bethesda, Maryland, United States of America; Social and Behavioral Research Branch, National Human Genome Research Institute, Bethesda, Maryland, United States of America.

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http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132690PLOS
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4506048PMC
May 2016

Information Avoidance Tendencies, Threat Management Resources, and Interest in Genetic Sequencing Feedback.

Ann Behav Med 2015 Aug;49(4):616-21

National Cancer Institute, National Institutes of Health, 9609 Medical Center Drive, Room 3E642, Bethesda, MD, 20892-9761, USA,

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http://dx.doi.org/10.1007/s12160-014-9679-7DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4498968PMC
August 2015

The role of current affect, anticipated affect and spontaneous self-affirmation in decisions to receive self-threatening genetic risk information.

Cogn Emot 2015 8;29(8):1456-65. Epub 2014 Dec 8.

c Medical Genomics and Metabolic Genetics Branch , National Human Genome Research Institute, National Institutes of Health , Bethesda , MD , USA.

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http://dx.doi.org/10.1080/02699931.2014.985188DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4503523PMC
July 2016

How do research participants perceive "uncertainty" in genome sequencing?

Genet Med 2014 Dec 29;16(12):977-80. Epub 2014 May 29.

Maine Medical Center Research Institute, Center for Outcomes Research and Evaluation, Scarborough, Maine, USA.

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http://dx.doi.org/10.1038/gim.2014.57DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4247806PMC
December 2014

Preferences for results delivery from exome sequencing/genome sequencing.

Genet Med 2014 Jun 5;16(6):442-7. Epub 2013 Dec 5.

Social & Behavioral Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA.

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http://dx.doi.org/10.1038/gim.2013.170DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4597884PMC
June 2014

Interpreting secondary cardiac disease variants in an exome cohort.

Circ Cardiovasc Genet 2013 Aug 16;6(4):337-46. Epub 2013 Jul 16.

Genetic Disease Research Branch, National Human Genome Research Institute, National Institutes of Health, Bethesda, MD 20892, USA.

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http://dx.doi.org/10.1161/CIRCGENETICS.113.000039DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3887521PMC
August 2013