Publications by authors named "John Wilbanks"

26Publications

Bringing Code to Data: Do Not Forget Governance.

J Med Internet Res 2020 Jul 28;22(7):e18087. Epub 2020 Jul 28.

Centre of Genomics and Policy, McGill University, Montreal, QC, Canada.

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http://dx.doi.org/10.2196/18087DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7420687PMC
July 2020

Unregulated Health Research Using Mobile Devices: Ethical Considerations and Policy Recommendations.

J Law Med Ethics 2020 03;48(1_suppl):196-226

Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine. John T. Wilbanks is Chief Commons Officer of Sage Bionetworks. Laura M. Beskow, M.P.H., Ph.D., is Professor and Ann Geddes Stahlman Chair in Medical Ethics at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center Kathleen M. Brelsford, Ph.D., M.P.H., is Research Assistant Professor at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Kyle B. Brothers, M.D., Ph.D., is Endowed Chair of Pediatric Clinical and Translational Research, University of Louisville School of Medicine. Megan Doerr, M.S., L.G.C., is Principal Scientist, Governance at Sage Bionetworks. Barbara J. Evans, J.D., Ph.D., is Mary Ann and Lawrence E. Faust Professor of Law, Professor of Electrical and Computer Engineering, and Director of the Center for Biotechnology and Law, University of Houston. Catherine M. Hammack-Aviran, M.A., J.D., is Associate in Health Policy at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center. Michelle L. McGowan, Ph.D., is Associate Professor, Department of Pediatrics and Department of Women's, Gender, and Sexuality Studies, Cincinnati Children's Hospital Medical Center. Stacey A. Tovino, J.D., Ph.D., is Judge Jack and Lulu Lehman Professor of Law at the William S. Boyd School of Law, University of Nevada-Las Vegas.

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http://dx.doi.org/10.1177/1073110520917047DOI Listing
March 2020

Introduction: Unregulated Health Research Using Mobile Devices.

J Law Med Ethics 2020 03;48(1_suppl):7-8

Mark A. Rothstein, J.D., is Herbert F. Boehl Chair of Law and Medicine and Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine. John T. Wilbanks is Chief Commons Officer of Sage Bionetworks.

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http://dx.doi.org/10.1177/1073110520917026DOI Listing
March 2020

Electronic Informed Consent in Mobile Applications Research.

Authors:
John T Wilbanks

J Law Med Ethics 2020 03;48(1_suppl):147-153

John T. Wilbanks is the Chief Commons Officer at Sage Bionetworks and a Senior Fellow at FasterCures. He has worked as the Executive Director of the Science Commons project at Creative Commons, as Assistant Director of the Berkman Klein Center at Harvard, in Congress as a legislative aide, and founded and led to acquisition Incellico, a bioinformatics company. He holds a degree in philosophy from Tulane University in New Orleans, LA.

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http://dx.doi.org/10.1177/1073110520917040DOI Listing
March 2020

The Rise of Citizen Science in Health and Biomedical Research.

Am J Bioeth 2019 08;19(8):3-14

b Sage Bionetworks.

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http://dx.doi.org/10.1080/15265161.2019.1619859DOI Listing
August 2019

Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons.

J Law Med Ethics 2019 03;47(1):12-20

Amy L. McGuire, J.D., Ph.D., is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Dr. McGuire serves on the program committee for the Greenwall Foundation Faculty Scholars Program in Bioethics and is immediate past president of the Association of Bioethics Program Directors. Mary A. Majumder, J.D., Ph.D., is an Associate Professor of Medicine at the Center for Medical Ethics and Health Policy, Baylor College of Medicine. Angela G. Villanueva, M.P.H., is a Research Associate at the Center for Medical Ethics and Health Policy at Baylor College of Medicine. Jessica Bardill, Ph.D., is an Assistant Professor of Indigenous Canadian Literatures and Cultures at Concordia University in Montreal, Quebec. Juli M. Bollinger, M.S., is a Research Associate in the Center for Medical Ethics and Health Policy at the Baylor College of Medicine and a Research Associate and Associate Faculty at the Berman Institute of Bioethics at Johns Hopkins University. Eric Boerwinkle, Ph.D., is the Dean of the University of Texas Health Science Center at Houston, School of Public Health and the Associate Director, Human Genome Sequencing Center at Baylor College of Medicine. Tania Bubela, Ph.D., J.D., is the Dean of the Faculty of Health Sciences at Simon Fraser University and a Fellow of the Canadian Academy of Health Sciences. Patricia Deverka, M.D., M.S., M.B.E., is Director, Value Evidence and Outcomes at Geisinger National Precision Health, where she focuses Outcomes at Geisinger National Precision Health, where she focuses systems and policymakers. Barbara Evans, MS, Ph.D., J.D., LL.M., is the Mary Ann and Lawrence E. Faust Professor of Law and Director of the Center for Biotechnology & Law at the University of Houston Law Center and holds a joint appointment as Professor of Electrical and Computer Engineering at the UH Cullen College of Engineering. Nanibaa' A. Garrison, Ph.D. (Navajo), is an Assistant Professor at the Treuman Katz Center for Pediatric Bioethics at Seattle Children's Hospital and Research Institute and at the Department of Pediatrics at the University of Washington School of Medicine. David Glazer is an engineering director at Verily Life Sciences, where he helps life science organizations use cloud computing to accelerate and scale their work with big data. Melissa M. Goldstein, J.D., is an Associate Professor in the Department of Health Policy and Management at the Milken Institute School of Public Health at the George Washington University. Henry T. Greely, J.D., is the Deane F. and Kate Edelman Johnson Professor of Law and a professor (by courtesy) of Genetics at Stanford University, where he directs the Center for Law and the Biosciences. He is President of the International Neuroethics Society, co-chair of the Neuroethics Work Group of the NIH BRAIN Initiative, and a member of the National Academies' Committee on Science, Technology, and Law. Scott D. Kahn, Ph.D., is the Chief Information Officer at LunaDNA where he is responsible for all informatics and data science strategy. Bartha M. Knoppers, Ph.D., (Comparative Medical Law), is a Full Professor, Canada Research Chair in Law and Medicine and Director of the Centre of Genomics and Policy of the Faculty of Medicine at McGill University. Barbara A. Koenig, Ph.D., is Professor of Bioethics and Medical Anthropology, based at the Institute for Health & Aging, University of California, San Francisco. She also serve as Director of the UCSF Program in Bioethics. J. Mark Lambright, M.B.A., is the Chairman, Trident Advisors, LLC - CEO (Interim), Private Access, Inc. Mark Lambright has been a senior executive of a number of healthcare and technology companies ranging in size from startup to multi-billion in revenue. John Mattison, M.D., is Assistant Medical Director, KP, SCAL, Chief Health Information Officer. Founder of CDA/CCD (XML standard for healthcare interoperability). Co-Editor of Healthcare Information Technology (2017 McGraw Hill). Christopher J. O'Donnell, M.D., M.P.H., is Chief, Cardiology Section and Director, Center for Population Genomics, of the Boston VA Healthcare System and co-Principal Investigator (Chief Scientist) of the national VA Million Veteran Program; and is VA Contact Principal Investigator of the NIH All of Us Research Program. He is also a faculty member of the Department of Medicine, Brigham and Women's Hospital and Associate Professor of Medicine, Harvard Medical School. Arti K. Rai, J.D., is the Elvin R. Latty Professor of Law and co-Director of the Center for Innovation Policy at Duke Law. Laura L. Rodriguez, Ph.D., is the Director of the Division of Policy, Communications, and Education at the National Human Genome Research Institute. Tania Simoncelli, M.S., is the Director of Science Policy at the Chan Zuckerberg Initiative. Formerly Executive Director, Count Me In at the Broad Institute, Assistant Director of Forensic Science and Biomedical Innovation, White House Office of Science & Technology Policy, and Science Advisor to the American Civil Liberties Union. Sharon F. Terry, M.A., is the president and CEO of Genetic Alliance. Adrian Thorogood, B.C.L./LL.B., is a lawyer and Academic Associate at the Centre of Genomics and Policy at McGill University in Montreal, Canada. He manages the Regulatory and Ethics Work Stream of the Global Alliance for Genomics and Health. Michael S. Watson, M.S., Ph.D., is the Executive Director, American College of Medical Genetics and Genomics and ACMG Foundation for Genetic and Genomic Medicine and an Adjunct Professor of Pediatrics at Washington University School of Medicine. John T. Wilbanks is the Chief Commons Officer at Sage Bionetworks, and co-PI on awards for AllofUs Research Program, ELSI Issues in Unregulated Mobile Research, CTSA Center for Data To Health. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University.

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http://dx.doi.org/10.1177/1073110519840480DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6738947PMC
March 2019

Implementing a universal informed consent process for the Research Program.

Pac Symp Biocomput 2019 ;24:427-438

Center for Translational Bioethics & Health Care Policy, Geisinger, 100 N. Academy Ave., MC 30-42, Danville, PA 17822, USA.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6417826PMC
January 2020

The Role of Government in Precision Medicine, Precision Public Health and the Intersection With Healthy Living.

Prog Cardiovasc Dis 2019 Jan - Feb;62(1):50-54. Epub 2018 Dec 7.

Institute for Precision Cardiovascular Medicine, American Heart Association, Dallas, TX, United States of America; Department of Medicine, University of Minnesota, Minneapolis, MN, United States of America; Department of Clinical Sciences, University of Texas Southwestern Medical Center, Dallas, TX, United States of America.

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http://dx.doi.org/10.1016/j.pcad.2018.12.002DOI Listing
March 2019

Design Issues in E-Consent.

Authors:
John Wilbanks

J Law Med Ethics 2018 03 27;46(1):110-118. Epub 2018 Mar 27.

Chief Commons Officer at Sage Bionetworks. Previously, Wilbanks worked as a legislative aide to Congressman Fortney "Pete" Stark, served as the first assistant director at Harvard's Berkman Center for Internet & Society, founded and led to acquisition the bioinformatics company Incellico, Inc., and was Executive Director of the Science Commons project at Creative Commons.

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http://dx.doi.org/10.1177/1073110518766025DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6062847PMC
March 2018

An open source pharma roadmap.

PLoS Med 2017 04 18;14(4):e1002276. Epub 2017 Apr 18.

Sage Bionetworks, Seattle, Washington, United States of America.

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http://dx.doi.org/10.1371/journal.pmed.1002276DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5395155PMC
April 2017

Stop the privatization of health data.

Nature 2016 07;535(7612):345-8

Scripps Research Institute in La Jolla, California, USA.

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http://dx.doi.org/10.1038/535345aDOI Listing
July 2016

First, design for data sharing.

Nat Biotechnol 2016 Apr;34(4):377-9

Sage Bionetworks, Seattle, Washington, USA.

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http://dx.doi.org/10.1038/nbt.3516DOI Listing
April 2016

Citizen Science on Your Smartphone: An ELSI Research Agenda.

J Law Med Ethics 2015 ;43(4):897-903

Assistant Professor of Pediatrics at the University of Louisville School of Medicine.

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http://dx.doi.org/10.1111/jlme.12327DOI Listing
February 2017

Custom-fit your journey to improved patient safety.

Authors:
John Wilbanks

Mod Healthc 2014 Sep;44(39):34

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September 2014

Licence restrictions: A fool's errand.

Authors:
John Wilbanks

Nature 2013 Mar;495(7442):440-1

Sage Bionetworks, Seattle, Washington, USA.

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http://dx.doi.org/10.1038/495440aDOI Listing
March 2013

Why open drug discovery needs four simple rules for licensing data and models.

PLoS Comput Biol 2012 27;8(9):e1002706. Epub 2012 Sep 27.

Royal Society of Chemistry, Wake Forest, North Carolina, USA.

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http://dx.doi.org/10.1371/journal.pcbi.1002706DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3459841PMC
January 2013

Openness as infrastructure.

Authors:
John Wilbanks

J Cheminform 2011 Oct 14;3(1):36. Epub 2011 Oct 14.

VP of Science, Creative Commons, San Francisco, California, USA.

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http://dx.doi.org/10.1186/1758-2946-3-36DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3197551PMC
October 2011

Another reason for opening access to research.

Authors:
John Wilbanks

BMJ 2006 Dec;333(7582):1306-8

Science Commons Project, Creative Commons, c/o Massachusetts Institute of Technology Computer Science and Artificial Intelligence Laboratory, Cambridge, MA 02127, USA.

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http://dx.doi.org/10.1136/sbmj.39063.730660.F7DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1761190PMC
December 2006

Transgenic mouse with human mutant p53 expression in the prostate epithelium.

Prostate 2004 Sep;61(1):26-34

Department of Genetics, Kaul Building 624, University of Alabama at Birmingham, Birmingham, AL 35294, USA.

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http://dx.doi.org/10.1002/pros.20071DOI Listing
September 2004