Publications by authors named "Heleen Maurice-Stam"

60Publications

Online psychosocial group intervention for parents: Positive effects on anxiety and depression.

J Pediatr Psychol 2020 Nov 23. Epub 2020 Nov 23.

Department of Psychosocial Research and Care Innovation, Psychosocial Research and Care Innovation, Princess Máxima Center for Pediatric Oncology.

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November 2020

Illness cognitions associated with health-related quality of life in young adult men with haemophilia.

Haemophilia 2020 Sep 25;26(5):793-799. Epub 2020 Aug 25.

Psychosocial Department, Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands.

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September 2020

Matching Psychosocial Support Needs of Parents of a Child with a Chronic Illness to a Feasible Intervention.

Matern Child Health J 2020 Oct;24(10):1238-1247

Psychosocial Department (G8-136), Emma Children's Hospital, Amsterdam University Medical Centers, Meibergdreef 9, 1105 AZ, Amsterdam, the Netherlands.

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October 2020

Review about the impact of growing up with a chronic disease showed delays achieving psychosocial milestones.

Acta Paediatr 2019 12 1;108(12):2157-2169. Epub 2019 Aug 1.

Psychosocial Department, Emma Children's Hospital, Amsterdam University Medical Centers, University of Amsterdam, Amsterdam, The Netherlands.

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December 2019

Pediatric Perceived Cognitive Functioning: Psychometric Properties and Normative Data of the Dutch Item Bank and Short Form.

J Int Neuropsychol Soc 2019 09 10;25(8):845-856. Epub 2019 Jun 10.

Pediatric Psychosocial Department, Emma Children's Hospital, Amsterdam UMC University Medical Centers, 1105AZ Amsterdam, The Netherlands.

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September 2019

Professional functioning of young adults with congenital coagulation disorders in the Netherlands.

Haemophilia 2019 May 12;25(3):e138-e145. Epub 2019 Mar 12.

Department of Pediatric-Hematology and Hemophilia Comprehensive Care Treatment Center, Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands.

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May 2019

Online cognitive-behavioral based group interventions for adolescents with chronic illness and parents: study protocol of two multicenter randomized controlled trials.

BMC Pediatr 2018 07 18;18(1):235. Epub 2018 Jul 18.

Psychosocial Department, Emma Children's Hospital, Amsterdam UMC, University of Amsterdam, Amsterdam, the Netherlands.

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July 2018

Parental distress 6 months after a pediatric cancer diagnosis in relation to family psychosocial risk at diagnosis.

Cancer 2018 01 13;124(2):381-390. Epub 2017 Sep 13.

Psychosocial Department, Emma Children's Hospital, Academic Medical Center, Amsterdam, the Netherlands.

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January 2018

Distress and everyday problems in Dutch mothers and fathers of young adolescents with Down syndrome.

Res Dev Disabil 2017 Aug 12;67:19-27. Epub 2017 Jun 12.

Academic Medical Center, University of Amsterdam, Psychosocial Department, Emma Children's Hospital, Amsterdam Public Health research institute, Post Box 22660, 1100 DD, Amsterdam, The Netherlands. Electronic address:

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August 2017

First experience with electronic feedback of the Psychosocial Assessment Tool in pediatric cancer care.

Support Care Cancer 2017 10 11;25(10):3113-3121. Epub 2017 May 11.

Psychosocial Department, Academic Medical Center/Emma Children's Hospital, Amsterdam, the Netherlands.

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October 2017

Growing up with Down syndrome: Development from 6 months to 10.7 years.

Res Dev Disabil 2016 Dec 14;59:437-450. Epub 2016 Oct 14.

Department of Paediatric Endocrinology & Psychosocial Department, Emma Children's Hospital Academic Medical Center, University of Amsterdam, Post Box 22660, 1100 DD, Amsterdam, The Netherlands. Electronic address:

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December 2016

Mothers and fathers of young Dutch adolescents with Down syndrome: Health related quality of life and family functioning.

Res Dev Disabil 2016 Dec 28;59:359-369. Epub 2016 Sep 28.

Psychosocial Department, Emma Children's Hospital, Academic Medical Center, University of Amsterdam, Post box 22660, 1100 DD, Amsterdam, The Netherlands. Electronic address:

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December 2016

Neurofeedback ineffective in paediatric brain tumour survivors: Results of a double-blind randomised placebo-controlled trial.

Eur J Cancer 2016 09 22;64:62-73. Epub 2016 Jun 22.

Emma Children's Hospital/Academic Medical Center (AMC), Psychosocial Department, Amsterdam, The Netherlands; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands. Electronic address:

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September 2016

Impact of Renal Replacement Therapy in Childhood on Long-Term Socioprofessional Outcomes: A 30-year Follow-Up Study.

J Pediatr 2016 Apr 6;171:189-95.e1-2. Epub 2016 Jan 6.

Department of Pediatric Nephrology, Emma Children's Hospital, Academic Medical Center, Amsterdam, The Netherlands.

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April 2016

Psychosocial profile of pediatric brain tumor survivors with neurocognitive complaints.

Qual Life Res 2016 Feb 20;25(2):435-446. Epub 2015 Aug 20.

Pediatric Psychosocial Department, Emma Children's Hospital AMC, Meibergdreef 9, Room A3-241, 1105 AZ, Amsterdam, The Netherlands.

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February 2016

Effects of early thyroxine treatment on development and growth at age 10.7 years: follow-up of a randomized placebo-controlled trial in children with Down's syndrome.

J Clin Endocrinol Metab 2014 Dec;99(12):E2722-9

Department of Pediatric Endocrinology (J.P.M., N.A.I., F.C.C.K., K.W.J.V., M.E.W., A.S.P.v.T.), and Psychosocial Department (J.P.M., H.M.-S., M.A.G.), Academic Medical Center/Emma Children's Hospital, 1100 DD, Amsterdam, The Netherlands; and Department of Medical Psychology (B.A.H.), Deventer Hospital, 7416 SE, Deventer, The Netherlands.

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December 2014

Health related quality of life and parental perceptions of child vulnerability among parents of a child with juvenile idiopathic arthritis: results from a web-based survey.

Pediatr Rheumatol Online J 2014 7;12:34. Epub 2014 Aug 7.

Department of Pediatric Hematology, Immunology and Infectious Diseases, and Reade (Location Jan van Breemen), Department of Pediatric Rheumatology, Amsterdam, the Netherlands.

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May 2015

Psychometric properties and Dutch norm data of the PedsQL Multidimensional Fatigue Scale for Young Adults.

Qual Life Res 2014 Dec 13;23(10):2841-7. Epub 2014 Jun 13.

Psychosocial Department, Emma Children's Hospital, Academic Medical Center, A3-241, Postbox 22660, 1100 DD, Amsterdam, the Netherlands,

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December 2014

Long-term quality of life and social outcome of childhood end-stage renal disease.

J Pediatr 2014 Aug 14;165(2):336-342.e1. Epub 2014 May 14.

Department of Pediatric Nephrology, Emma Children's Hospital, Academic Medical Center, Amsterdam, The Netherlands.

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August 2014

Psychosocial well-being in young adults with chronic illness since childhood: the role of illness cognitions.

Child Adolesc Psychiatry Ment Health 2014 15;8:12. Epub 2014 Apr 15.

Psychosocial Department, Emma Children's Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands.

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May 2014

Feasibility of an online cognitive behavioral-based group intervention for adolescents treated for cancer: a pilot study.

J Psychosoc Oncol 2014 ;32(3):310-21

a Pediatric Psychosocial Department, Emma Children's Hospital Academic Medical Center, University of Amsterdam , Amsterdam , The Netherlands.

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July 2014

Health related quality of life and perceptions of child vulnerability among parents of children with a history of Kawasaki disease.

Acta Paediatr 2014 Jun 26;103(6):671-7. Epub 2014 Mar 26.

Psychosocial Department, Emma Children's Hospital, Academic Medical Center (AMC), Amsterdam, the Netherlands.

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June 2014

Health related quality of life in Dutch young adults: psychometric properties of the PedsQL generic core scales young adult version.

Health Qual Life Outcomes 2014 Jan 18;12. Epub 2014 Jan 18.

Psychosocial Department, Emma Children's Hospital, Academic Medical Center, A3-241, Postbox 22660 1100 DD Amsterdam, the Netherlands.

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January 2014

Childhood brain tumor survivors at risk for impaired health-related quality of life.

J Pediatr Hematol Oncol 2013 Nov;35(8):603-9

Departments of *Psychosocial †Pediatric Oncology, Emma Children's Hospital, Academic Medical Center (AMC), University of Amsterdam ‡Department of Developmental Psychology, VU University, Amsterdam, The Netherlands.

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November 2013

Health related quality of life in parents of six to eight year old children with Down syndrome.

Res Dev Disabil 2013 Nov 28;34(11):4239-47. Epub 2013 Sep 28.

Academic Medical Center/Emma Children's Hospital, Psychosocial Department, Amsterdam, The Netherlands.

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November 2013

Consequences of caring for a child with a chronic disease: Employment and leisure time of parents.

J Child Health Care 2014 Dec 28;18(4):346-57. Epub 2013 Aug 28.

Emma Children's Hospital/Academic Medical Center Amsterdam, The Netherlands

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December 2014

Development and validation of the distress thermometer for parents of a chronically ill child.

J Pediatr 2013 Oct 30;163(4):1140-6.e2. Epub 2013 Jul 30.

Psychosocial Department, Academic Medical Center/Emma Children's Hospital, Amsterdam, The Netherlands. Electronic address:

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October 2013

Psychosocial developmental trajectory of adolescents with inflammatory bowel disease.

J Pediatr Gastroenterol Nutr 2013 Aug;57(2):219-24

Department of Pediatric Gastroenterology and Nutrition, Emma Children's Hospital, Amsterdam, The Netherlands.

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August 2013

Health-related quality of life, anxiety and depression in young adults with disability benefits due to childhood-onset somatic conditions.

Child Adolesc Psychiatry Ment Health 2013 Apr 15;7(1):12. Epub 2013 Apr 15.

Psychosocial Department, Emma Children's Hospital, Academic Medical Center, University of Amsterdam, Amsterdam, the Netherlands.

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April 2013

Efficacy of psychosocial group intervention for children with chronic illness and their parents.

Pediatrics 2013 Apr 11;131(4):e1196-203. Epub 2013 Mar 11.

Psychosocial Department, Emma Children's Hospital Academic Medical Center, Meibergdreef 9, Room A3-241, 1105 AZ Amsterdam, Netherlands.

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April 2013

Health- related quality of life and self-worth in 10-year old children with congenital hypothyroidism diagnosed by neonatal screening.

Child Adolesc Psychiatry Ment Health 2012 Oct 3;6(1):32. Epub 2012 Oct 3.

Pediatric Psychosocial Department, Emma Children's Hospital AMC, A3-241, P,O, Box 22700,, 1100,, DE, Amsterdam, The Netherlands.

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October 2012

Sleep disorders in children after treatment for a CNS tumour.

J Sleep Res 2012 Aug 1;21(4):461-9. Epub 2011 Oct 1.

Department of Pediatric Oncology, Emma Children's Hospital, Academic Medical Center, University of Amsterdam, Amsterdam, the Netherlands.

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August 2012

Health-related quality of life and psychosocial developmental trajectory in young female beneficiaries with JIA.

Rheumatology (Oxford) 2012 Feb 16;51(2):368-74. Epub 2011 Dec 16.

Psychosocial Department, Emma Children's Hospital, Academic Medical Centre, A3-241, Meibergdreef 9, 1105 AZ Amsterdam, The Netherlands.

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February 2012

Impact of growing up with Fabry disease on achievement of psychosocial milestones and quality of life.

Mol Genet Metab 2011 Nov 13;104(3):308-13. Epub 2011 Jul 13.

Department of Pediatrics, Academic Medical Center and Amsterdam Lysosome Center, Sphinx, University of Amsterdam, Meibergdreef 9, 1105 AZ, Amsterdam, The Netherlands.

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November 2011

Growing into disability benefits? Psychosocial course of life of young adults with a chronic somatic disease or disability.

Acta Paediatr 2012 Jan 11;101(1):e19-26. Epub 2011 Aug 11.

Psychosocial Department, Emma Children's Hospital, Academic Medical Center, University of Amsterdam, the Netherlands.

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January 2012

A cognitive behavioral based group intervention for children with a chronic illness and their parents: a multicentre randomized controlled trial.

BMC Pediatr 2011 Jul 14;11:65. Epub 2011 Jul 14.

Emma Children's Hospital Academic Medical Center Amsterdam, Psychosocial department, Amsterdam, The Netherlands.

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July 2011

The process of end-of-life decision-making in pediatrics: a national survey in the Netherlands.

Pediatrics 2011 Apr 14;127(4):e1004-12. Epub 2011 Mar 14.

Department of Pediatrics, Academic Medical Centre/Emma Children's Hospital, PO Box 22660, 1100 DD Amsterdam, Netherlands.

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April 2011

Psychosocial developmental milestones in men with classic galactosemia.

J Inherit Metab Dis 2011 Apr 25;34(2):415-9. Epub 2011 Feb 25.

Department of Pediatrics, Maastricht University Medical Center, Maastricht, The Netherlands.

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April 2011

Parenting a child with phenylketonuria or galactosemia: implications for health-related quality of life.

J Inherit Metab Dis 2011 Apr 3;34(2):391-8. Epub 2011 Feb 3.

Department of Pediatrics (H7-270), Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands.

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April 2011

Quality of life questionnaires for children with cancer and childhood cancer survivors: a review of the development of available measures.

Support Care Cancer 2010 Sep 16;18(9):1207-17. Epub 2009 Oct 16.

Department of Pediatrics, McMaster University, Hamilton, ON L8N 3Z5, Canada.

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September 2010

A predictive model of Health Related Quality of life of parents of chronically ill children: the importance of care-dependency of their child and their support system.

Health Qual Life Outcomes 2009 Jul 28;7:72. Epub 2009 Jul 28.

Psycho Social Department, Emma Children's Hospital, Academic Medical Center, University of Amsterdam, The Netherlands.

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July 2009

Evaluation of a psychoeducational intervention for adolescents with inflammatory bowel disease.

Eur J Gastroenterol Hepatol 2009 Apr;21(4):430-5

Pediatric Psychosocial Department, Emma Children's Hospital, Academic Medical Centre, University of Amsterdam, The Netherlands.

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April 2009

Evaluation of a psychoeducational intervention for adolescents with inflammatory bowel disease.

Eur J Gastroenterol Hepatol 2009 Apr;21(4):340-5

Pediatric Psychosocial Department, Emma Children's Hospital, Academic Medical Centre, University of Amsterdam, Amsterdam, The Netherlands.

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April 2009

Health-related quality of life in young adults with symptoms of constipation continuing from childhood into adulthood.

Health Qual Life Outcomes 2009 Mar 2;7:20. Epub 2009 Mar 2.

Department of Pediatric Gastroenterology & Nutrition, Emma Children's Hospital, Academic Medical Centre, Meibergdreef 9, 1105 AZ Amsterdam, the Netherlands.

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March 2009

Evaluation of a psycho-educational group intervention for children treated for cancer: a descriptive pilot study.

Psychooncology 2009 Jul;18(7):762-6

Psychosocial Department, Emma Children's Hospital, Academic Medical Center, Amsterdam, The Netherlands.

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July 2009

Longitudinal assessment of health-related quality of life in preschool children with non-CNS cancer after the end of successful treatment.

Pediatr Blood Cancer 2008 May;50(5):1047-51

Psychosocial Department, Emma Children's Hospital, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands.

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May 2008

Emotional functioning of parents of children with cancer: the first five years of continuous remission after the end of treatment.

Psychooncology 2008 May;17(5):448-59

Psychosocial Department, Emma Children's Hospital/Academic Medical Center, University of Amsterdam, The Netherlands.

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May 2008

Psychosocial indicators of health-related quality of life in children with cancer 2 months after end of successful treatment.

J Pediatr Hematol Oncol 2007 Aug;29(8):540-50

Pediatric Psychosocial Department, Emma Children's Hospital, Academic Medical Center, University of Amsterdam, The Netherlands.

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August 2007

Course of life of survivors of childhood cancer is related to quality of life in young adulthood.

J Psychosoc Oncol 2007 ;25(3):43-58

Paediatric Psychosocial Department, Emma Children's Hospital, Academic Medical Center, University of Amsterdam, Meibergdreef 9, NL-1105 AZ Amsterdam, The Netherlands.

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April 2009