Publications by authors named "Gabriel M Ronen"

54Publications

Quality of life in adolescents with epilepsy, cerebral palsy, and population norms.

Dev Med Child Neurol 2020 05 3;62(5):609-614. Epub 2020 Jan 3.

Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada.

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http://dx.doi.org/10.1111/dmcn.14450DOI Listing
May 2020

BRAT1 encephalopathy: a recessive cause of epilepsy of infancy with migrating focal seizures.

Dev Med Child Neurol 2020 Sep 23;62(9):1096-1099. Epub 2019 Dec 23.

Division of Genetic Medicine, Department of Pediatrics, University of Washington, Seattle, WA, USA.

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http://dx.doi.org/10.1111/dmcn.14428DOI Listing
September 2020

Longitudinal trajectories of depression symptoms in children with epilepsy.

Dev Med Child Neurol 2020 05 7;62(5):593-599. Epub 2019 Nov 7.

Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada.

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http://dx.doi.org/10.1111/dmcn.14387DOI Listing
May 2020

Translating knowledge into action to prevent pediatric and adolescent diabesity: a meeting report.

Adolesc Health Med Ther 2019 26;10:91-101. Epub 2019 Aug 26.

Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada.

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http://dx.doi.org/10.2147/AHMT.S209922DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6716568PMC
August 2019

Parent Proxy Discrepancy Groups of Quality of Life in Childhood Epilepsy.

Value Health 2019 07 17;22(7):822-828. Epub 2019 May 17.

Department of Pediatrics, McMaster University, Hamilton, ON, Canada.

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http://dx.doi.org/10.1016/j.jval.2019.01.019DOI Listing
July 2019

Can behavioral strategies increase physical activity and influence depressive symptoms and quality of life among children with epilepsy? Results of a randomized controlled trial.

Epilepsy Behav 2019 05 30;94:158-166. Epub 2019 Mar 30.

Department of Pediatrics, McMaster University, 1400 Main Street W, Institute for Applied Health Sciences, Room 408, Hamilton, ON L8S 1C7, Canada. Electronic address:

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http://dx.doi.org/10.1016/j.yebeh.2019.03.011DOI Listing
May 2019

Patterns of daily activity among young people with epilepsy.

Dev Med Child Neurol 2019 12 29;61(12):1386-1391. Epub 2019 Mar 29.

School of Kinesiology and Health Studies, Queen's University, Kingston, Ontario, Canada.

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http://dx.doi.org/10.1111/dmcn.14223DOI Listing
December 2019

Youth with epilepsy: Their insight into participating in enhanced physical activity study.

Epilepsy Behav 2018 Dec 27;89:63-69. Epub 2018 Oct 27.

Department of Pediatrics, McMaster University, Hamilton, Canada. Electronic address:

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https://linkinghub.elsevier.com/retrieve/pii/S15255050183044
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http://dx.doi.org/10.1016/j.yebeh.2018.10.011DOI Listing
December 2018

Patient-reported quality of life and biopsychosocial health outcomes in pediatric epilepsy: An update for healthcare providers.

Epilepsy Behav 2018 09 21;86:19-24. Epub 2018 Jul 21.

Department of Psychiatry and Behavioural Neurosciences, McMaster University, Hamilton, ON, Canada.

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http://dx.doi.org/10.1016/j.yebeh.2018.05.009DOI Listing
September 2018

Reflections on the usefulness of the term 'health-related quality of life'.

Authors:
Gabriel M Ronen

Dev Med Child Neurol 2017 11;59(11):1105-1106

Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada.

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http://dx.doi.org/10.1111/dmcn.13575DOI Listing
November 2017

Clinical Manifestations Associated With the N-Terminal-Acetyltransferase NAA10 Gene Mutation in a Girl: Ogden Syndrome.

Pediatr Neurol 2017 Nov 19;76:82-85. Epub 2017 Jul 19.

Division of Pediatric Neurology, McMaster University, Hamilton, Ontario, Canada. Electronic address:

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http://dx.doi.org/10.1016/j.pediatrneurol.2017.07.010DOI Listing
November 2017

Child- and parent-reported quality of life trajectories in children with epilepsy: A prospective cohort study.

Epilepsia 2017 07 9;58(7):1277-1286. Epub 2017 May 9.

Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada.

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http://dx.doi.org/10.1111/epi.13774DOI Listing
July 2017

Applying ethical principles in discussing SUDEP with patients and families.

Authors:
Gabriel M Ronen

Epilepsy Behav 2017 05 11;70(Pt A):269-270. Epub 2017 Apr 11.

McMaster University, Canada.

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http://dx.doi.org/10.1016/j.yebeh.2017.03.012DOI Listing
May 2017

Reflections on Ethics and Humanity in Pediatric Neurology: the Value of Recognizing Ethical Issues in Common Clinical Practice.

Curr Neurol Neurosci Rep 2017 May;17(5):39

Department of Pediatrics, McMaster University, 1200 Main Street West, Hamilton, ON, L8S 4K1, Canada.

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http://dx.doi.org/10.1007/s11910-017-0749-7DOI Listing
May 2017

Males With MECP2 C-terminal-Related Atypical Rett Syndromes and Their Carrier Mothers.

Pediatr Neurol 2017 02 25;67:98-101. Epub 2016 Oct 25.

Departments of Pediatrics and Medicine, McMaster University, Hamilton, Ontario, Canada.

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http://dx.doi.org/10.1016/j.pediatrneurol.2016.10.012DOI Listing
February 2017

Child- and Parent-Reported Health: The Rashōmon Effect of Multiple Realities.

J Pediatr 2016 12 5;179:17-18. Epub 2016 Oct 5.

Department of Psychiatry & Behavioural Neurosciences McMaster University Hamilton, Ontario, Canada.

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http://dx.doi.org/10.1016/j.jpeds.2016.09.047DOI Listing
December 2016

Rett Syndrome Turns 50: Themes From a Chronicle: Medical Perspectives and the Human Face of Rett Syndrome.

Pediatr Neurol 2016 08 29;61:3-10. Epub 2016 Apr 29.

Department of Pediatrics, Faculty of Health Sciences, McMaster University and McMaster Children's Hospital, Hamilton, Ontario, Canada.

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http://dx.doi.org/10.1016/j.pediatrneurol.2016.04.012DOI Listing
August 2016

Patient-reported outcome measures in children with chronic health conditions: terminology and utility.

Authors:
Gabriel M Ronen

Dev Med Child Neurol 2016 09 27;58(9):896-7. Epub 2016 Apr 27.

Department of Pediatrics, McMaster University, Hamilton, ON, Canada.

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http://dx.doi.org/10.1111/dmcn.13143DOI Listing
September 2016

Extracurricular participation among children with epilepsy in Canada.

Epilepsy Behav 2016 Mar 10;56:118-22. Epub 2016 Feb 10.

Department of Pediatrics, McMaster University, Canada.

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http://dx.doi.org/10.1016/j.yebeh.2015.12.028DOI Listing
March 2016

Quality of life in children with epilepsy: How does it compare with the quality of life in typical children and children with cerebral palsy?

Epilepsy Behav 2015 Nov 6;52(Pt A):239-43. Epub 2015 Nov 6.

Department of Pediatrics, McMaster University, Hamilton, ON, Canada. Electronic address:

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http://dx.doi.org/10.1016/j.yebeh.2015.09.009DOI Listing
November 2015

Glucose Transporter Type I Deficiency (G1D) at 25 (1990-2015): Presumptions, Facts, and the Lives of Persons With This Rare Disease.

Pediatr Neurol 2015 Nov 10;53(5):379-93. Epub 2015 Aug 10.

Department of Pediatrics, McMaster Child Health Research Institute, McMaster University, Hamilton, Ontario, Canada.

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http://dx.doi.org/10.1016/j.pediatrneurol.2015.08.001DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4609610PMC
November 2015

Does treatment have an impact on incidence and risk factors for autism spectrum disorders in children with infantile spasms?

Epilepsia 2015 Jun 5;56(6):856-63. Epub 2015 May 5.

Research Centre and Division of Neurology, Department of Pediatrics, Sainte-Justine Hospital (CHU Sainte-Justine), Montreal, Quebec, Canada.

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http://dx.doi.org/10.1111/epi.12997DOI Listing
June 2015

Children's perspective of quality of life in epilepsy.

Neurology 2015 May 3;84(18):1830-7. Epub 2015 Apr 3.

From Health Care and Outcomes Research (N.F., A.M.D.), University Health Network, Toronto; Departments of Pediatrics (N.F., P.L.R., G.M.R.) and Psychiatry & Behavioural Neurosciences (D.L.S., C.E.C., M.H.B.), CanChild Centre for Childhood Disability Research (N.F., P.L.R., G.M.R.), and Offord Centre for Child Studies (C.E.C., M.H.B.), McMaster University, Hamilton; Institute of Health Policy Management and Evaluation (A.M.D.), Graduate Department of Rehabilitation Science (A.M.D.), and Department of Psychiatry (D.L.S.), University of Toronto; and School of Social Work (L.M.L.) McGill University, Montreal, Canada.

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http://dx.doi.org/10.1212/WNL.0000000000001536DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4433469PMC
May 2015

Patient-reported outcome measures in pediatric epilepsy: a content analysis using World Health Organization definitions.

Epilepsia 2014 Sep 15;55(9):1431-7. Epub 2014 Aug 15.

Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada.

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http://dx.doi.org/10.1111/epi.12740DOI Listing
September 2014

Life quality and health in adolescents and emerging adults with epilepsy during the years of transition: a scoping review.

Dev Med Child Neurol 2014 May 18;56(5):421-33. Epub 2013 Nov 18.

Undergraduate Program, Faculty of Health Sciences, McMaster University, Hamilton, Ontario, Canada.

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http://dx.doi.org/10.1111/dmcn.12335DOI Listing
May 2014

SUDEP: what do parents want to know?

Epilepsy Behav 2013 Dec 26;29(3):560-4. Epub 2013 Oct 26.

Department of Pediatrics (Neurology), McMaster University, 1280 Main Street West, Hamilton, Ontario L8S 4K1, Canada. Electronic address:

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http://dx.doi.org/10.1016/j.yebeh.2013.09.040DOI Listing
December 2013

Feasibility of pedometer use to assess physical activity and its relationship with quality of life in children with epilepsy: a pilot study.

Pediatr Neurol 2013 Nov 2;49(5):370-3. Epub 2013 Aug 2.

Department of Pediatrics, McMaster University and McMaster Children's Hospital, Hamilton, Ontario, Canada.

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http://dx.doi.org/10.1016/j.pediatrneurol.2013.06.002DOI Listing
November 2013

Ethical considerations in pediatric neurology.

Handb Clin Neurol 2013 ;111:107-14

Department of Pediatrics, McMaster University, Hamilton, Canada. Electronic address:

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http://dx.doi.org/10.1016/B978-0-444-52891-9.00011-7DOI Listing
April 2014

Health outcomes measurement: concepts, guidelines and opportunities.

Handb Clin Neurol 2013 ;111:35-41

Department of Pediatrics, McMaster University, Hamilton, Canada. Electronic address:

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http://dx.doi.org/10.1016/B978-0-444-52891-9.00004-XDOI Listing
April 2014

Identifying early markers for future school achievement in children with early-onset epilepsy.

Authors:
Gabriel M Ronen

Dev Med Child Neurol 2013 Jul 17;55(7):591-2. Epub 2013 Apr 17.

Department of Pediatrics, McMaster University, Hamilton, ON, Canada.

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http://dx.doi.org/10.1111/dmcn.12154DOI Listing
July 2013

Age-related variables in childhood epilepsy: how do they relate to each other and to quality of life?

Epilepsy Behav 2013 Jan 7;26(1):71-4. Epub 2012 Dec 7.

McMaster University Hamilton, Ontario, Canada.

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http://dx.doi.org/10.1016/j.yebeh.2012.10.024DOI Listing
January 2013

Trends in the diagnosis of Rett syndrome in Australia.

Pediatr Res 2011 Sep;70(3):313-9

Centre for Child Health Research, The University of Western Australia, Perth, Western Australia 6008, Australia.

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http://dx.doi.org/10.1203/PDR.0b013e3182242461DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3152673PMC
September 2011

Outcomes in pediatric neurology: a review of conceptual issues and recommendationsThe 2010 Ronnie Mac Keith Lecture.

Dev Med Child Neurol 2011 Apr;53(4):305-12

Department of Pediatrics, McMaster University, Hamilton, ON, Canada.

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http://dx.doi.org/10.1111/j.1469-8749.2011.03919.xDOI Listing
April 2011

Survival with Rett syndrome: comparing Rett's original sample with data from the Australian Rett Syndrome Database.

Dev Med Child Neurol 2010 Oct 22;52(10):962-5. Epub 2010 Jun 22.

Department of Pediatrics and Adolescent Medicine, Division of General Pediatrics and Neonatology, Medical University of Vienna, Austria.

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http://dx.doi.org/10.1111/j.1469-8749.2010.03716.xDOI Listing
October 2010

Disease characteristics and psychosocial factors: explaining the expression of quality of life in childhood epilepsy.

Epilepsy Behav 2010 May 16;18(1-2):88-93. Epub 2010 May 16.

Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada.

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http://dx.doi.org/10.1016/j.yebeh.2010.02.023DOI Listing
May 2010

Quality of life instruments for children and adolescents with neurodisabilities: how to choose the appropriate instrument.

Dev Med Child Neurol 2009 Aug;51(8):660-9

McCaughey Centre, VicHealth Centre for the Promotion of Mental Health and Community Wellbeing, School of Population Health, University of Melbourne, Melbourne, Australia.

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http://dx.doi.org/10.1111/j.1469-8749.2009.03324.xDOI Listing
August 2009

A male phenotype with Aicardi syndrome.

J Child Neurol 2009 Feb;24(2):204-7

Michael G. DeGroote School of Medicine, McMaster University, Hamilton, Ontario, Canada.

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http://dx.doi.org/10.1177/0883073808322337DOI Listing
February 2009

From eugenic euthanasia to habilitation of "disabled'' children: Andreas Rett's contribution.

J Child Neurol 2009 Jan;24(1):115-27

Department of Pediatrics, Faculty of Health Sciences, McMaster University, Ontario, Canada.

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http://dx.doi.org/10.1177/0883073808321763DOI Listing
January 2009

Health-related quality of life of children with epilepsy in Hong Kong: how does it compare with that of youth with epilepsy in Canada?

Epilepsy Behav 2008 Apr 26;12(3):419-26. Epub 2007 Dec 26.

Department of Paediatrics and Adolescent Medicine, Alice Ho Miu Ling Hospital and North District Hospital, Hong Kong SAR, China.

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http://dx.doi.org/10.1016/j.yebeh.2007.11.007DOI Listing
April 2008

Long-term prognosis in children with neonatal seizures: a population-based study.

Neurology 2007 Nov;69(19):1816-22

Department of Pediatrics, Faculty of Health Sciences, McMaster University, Hamilton, Ontario, Canada.

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http://dx.doi.org/10.1212/01.wnl.0000279335.85797.2cDOI Listing
November 2007

Health-related quality of life in youth with epilepsy: theoretical model for clinicians and researchers. Part I: the role of epilepsy and co-morbidity.

Qual Life Res 2006 Sep 13;15(7):1161-71. Epub 2006 Sep 13.

School of Social Work McGill University, 3506 University St, Montreal, PQ, Canada.

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http://dx.doi.org/10.1007/s11136-006-0051-7DOI Listing
September 2006

Chinese version of the parent-proxy health-related quality of life measure for children with epilepsy: translation, cross-cultural adaptation, and reliability studies.

Epilepsy Behav 2005 Dec 18;7(4):697-707. Epub 2005 Aug 18.

Department of Paediatrics and Adolescent Medicine, Alice Ho Miu Ling Nethersole Hospital, Hong Kong SAR, China.

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http://dx.doi.org/10.1016/j.yebeh.2005.05.006DOI Listing
December 2005

Health-related quality of life in childhood epilepsy: moving beyond 'seizure control with minimal adverse effects'.

Health Qual Life Outcomes 2003 Aug 28;1:36. Epub 2003 Aug 28.

Department of Pediatrics, McMaster University, 1200 Main Street West, Hamilton, Ontario, Canada.

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http://dx.doi.org/10.1186/1477-7525-1-36DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC201010PMC
August 2003

Pediatric neurology services in Canada: demand versus supply.

J Child Neurol 2003 Mar;18(3):180-4

Department of Pediatrics, McMaster University, Hamilton, ON, Canada.

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http://dx.doi.org/10.1177/08830738030180031001DOI Listing
March 2003

Health-related quality of life in children with epilepsy: development and validation of self-report and parent proxy measures.

Epilepsia 2003 Apr;44(4):598-612

Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada.

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http://dx.doi.org/10.1046/j.1528-1157.2003.46302.xDOI Listing
April 2003