Emmanuelle Rial-Sebbag

Emmanuelle Rial-Sebbag

UNVERIFIED PROFILE

Are you Emmanuelle Rial-Sebbag?   Register this Author

Register author
Emmanuelle Rial-Sebbag

Emmanuelle Rial-Sebbag

Publications by authors named "Emmanuelle Rial-Sebbag"

Are you Emmanuelle Rial-Sebbag?   Register this Author

38Publications

733Reads

7Profile Views

ESHG PPPC Comments on postmortem use of genetic data for research purposes.

Eur J Hum Genet 2019 Oct 8. Epub 2019 Oct 8.

Clinical Genetics Department, Guy's & St Thomas' NHS Foundation Trust, London, United Kingdom.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1038/s41431-019-0525-zDOI Listing
October 2019

Population genetic screening: current issues in a European country.

Eur J Hum Genet 2019 Sep 8;27(9):1321-1323. Epub 2019 May 8.

INSERM U1086, Anticipe, Normandie Université, 3 avenue du Général Harris, F-14076, Caen, France.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1038/s41431-019-0425-2DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6777526PMC
September 2019

Human germline gene editing: Recommendations of ESHG and ESHRE.

Eur J Hum Genet 2018 04 12;26(4):445-449. Epub 2018 Jan 12.

Department of Clinical Genetics, Section Community Genetics, and Amsterdam Public Health research institute, VU University Medical Center, Amsterdam, The Netherlands.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1038/s41431-017-0076-0DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5891496PMC
April 2018

Responsible innovation in human germline gene editing: Background document to the recommendations of ESHG and ESHRE.

Eur J Hum Genet 2018 04 12;26(4):450-470. Epub 2018 Jan 12.

Department of Clinical Genetics, Section Community Genetics and Amsterdam Public Health Research Institute, VU University Medical Center, Amsterdam, The Netherlands.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1038/s41431-017-0077-zDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5891502PMC
April 2018

Including all voices in international data-sharing governance.

Hum Genomics 2018 03 7;12(1):13. Epub 2018 Mar 7.

CNRS, Toulouse, France; Joint research unit on epidemiology and public health, Inserm (National Institute for Health and Medical Research) and University Toulouse III Paul Sabatier, Toulouse, France.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1186/s40246-018-0143-9DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5842530PMC
March 2018

[Chapter 3. Governing the research on embryos].

J Int Bioethique Ethique Sci 2018 Mar;28(4):55-76

View Article

Download full-text PDF

Source
http://dx.doi.org/10.3917/jib.284.0055DOI Listing
March 2018

One small edit for humans, one giant edit for humankind? Points and questions to consider for a responsible way forward for gene editing in humans.

Eur J Hum Genet 2018 01 30;26(1):1-11. Epub 2017 Nov 30.

Department of Clinical Genetics, Section Community Genetics and EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1038/s41431-017-0024-zDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5839051PMC
January 2018

Responsible innovation in human germline gene editing. Background document to the recommendations of ESHG and ESHRE.

Hum Reprod Open 2018 12;2018(1):hox024. Epub 2018 Jan 12.

Department of Clinical Genetics, Section Community Genetics, and Amsterdam Public Health Research Institute, VU University Medical Center, Van der Boechorststraat 7, 1081 BT, Amsterdam, The Netherlands.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1093/hropen/hox024DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6276657PMC
January 2018

Human germline gene editing. Recommendations of ESHG and ESHRE.

Hum Reprod Open 2018 12;2018(1):hox025. Epub 2018 Jan 12.

Department of Clinical Genetics, Section Community Genetics, and Amsterdam Public Health Research Institute, VU University Medical Center, Van der Boechorststraat 7, 1081 BT Amsterdam, The Netherlands.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1093/hropen/hox025DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6276661PMC
January 2018

[Chapter 4. Governing Big Data for Health, national and international issues].

J Int Bioethique Ethique Sci 2017 Oct;28(3):39-50

View Article

Download full-text PDF

Source
http://dx.doi.org/10.3917/jib.283.0039DOI Listing
October 2017

Chapitre 6. Cells? safety in Europe: Towards an ethical safety.

J Int Bioethique Ethique Sci 2017 Oct;28(2):107-129

View Article

Download full-text PDF

Source
http://dx.doi.org/10.3917/jib.282.0107DOI Listing
October 2017

Regulation of Biobanks in France.

J Law Med Ethics 2015 ;43(4):754-65

Ph.D. student in law at the University of law and political sciences Toulouse 1 Capitole. The title of her thesis is "Legal Issues Related to Access and Circulation of Genetic Information." She is also working at Inserm (French National Institute for research and health) as a jurist on legal and ethical issues raised by biomedical innovations. She graduated from University Toulouse 1 Capitole.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1111/jlme.12317DOI Listing
February 2017

Mechanisms of the Development of Allergy (MeDALL): Introducing novel concepts in allergy phenotypes.

J Allergy Clin Immunol 2017 02;139(2):388-399

Department of Pediatric Pulmonology and Pediatric Allergology, Beatrix Children's Hospital, GRIAC Research Institute, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1016/j.jaci.2016.12.940DOI Listing
February 2017

Consent for Biobanking: The Legal Frameworks of Countries in the BioSHaRE-EU Project.

Biopreserv Biobank 2016 Jun 4;14(3):195-200. Epub 2016 May 4.

5 INSERM UMR 1027 Département d'épidémiologie et de santé publique, Faculté de Médecine, Université Paul Sabatier-Toulouse III , Toulouse, France .

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/bio.2015.0123DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5967579PMC
June 2016

[DOhaD and epigenetic information: societal challenges].

Med Sci (Paris) 2016 Jan 5;32(1):100-5. Epub 2016 Feb 5.

Inra, UMR1198, biologie du développement et reproduction, Domaine de Vilvert, Batiment 230, 78352 Jouy-en-Josas, France.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1051/medsci/20163201016DOI Listing
January 2016

Toward a common language for biobanking.

Eur J Hum Genet 2015 Jan 9;23(1):22-8. Epub 2014 Apr 9.

Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1038/ejhg.2014.45DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4266732PMC
January 2015

The impact of European embryonic stem cell patent decisions on research strategies.

Nat Biotechnol 2015 Jan;33(1):41-3

UMR1027, INSERM and Université Toulouse III-Paul Sabatier, Toulouse, France.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1038/nbt.3105DOI Listing
January 2015

The European Court of Human Rights' ruling on unproven stem cell therapies: a missed opportunity?

Stem Cells Dev 2014 Dec;23 Suppl 1:39-43

Paul Sabatier Département d'épidémiologie et de santé publique, Faculté de Médecine, UMR 1027, INSERM, Université de Toulouse 3, Toulouse, France .

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/scd.2014.0361DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4235982PMC
December 2014

[Personalized medicine, privatized medicine? legal and public health stakes].

Med Sci (Paris) 2014 Nov 17;30 Spec No 2:36-40. Epub 2014 Nov 17.

UMR 1027 Inserm, Université de Toulouse Paul Sabatier, Toulouse, France.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1051/medsci/201430s208DOI Listing
November 2014

[Academic cell therapy facilities are challenged by European regulation on advanced therapy medicinal products].

Med Sci (Paris) 2014 May 13;30(5):576-83. Epub 2014 Jun 13.

Inserm UMR 1027, épidémiologie et analyses en santé publique : risques, maladies chroniques et handicaps, équipe génomique, biothérapies et santé publique-approche interdisciplinaire, Toulouse, France - université Paul Sabatier-Toulouse 3, Toulouse, France - Institut de recherche en droit européen, international et comparé (IRDEIC), université Toulouse 1-Capitole, Toulouse, France.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1051/medsci/20143005022DOI Listing
May 2014

Regulation of cell-based therapies in Europe: current challenges and emerging issues.

Stem Cells Dev 2013 Dec;22 Suppl 1:14-9

INSERM UMR 1027 Département d'épidémiologie et de santé publique, Faculté de Médecine, Université Paul Sabatier-Toulouse III , Toulouse, France .

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1089/scd.2013.0352DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3883134PMC
December 2013

Communication of results and disclosure of incidental findings in longitudinal paediatric research.

Pediatr Allergy Immunol 2013 Jun;24(4):389-94

Inserm, UMR1027, Epidemiology and analyses in Public Health, Toulouse, France.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1111/pai.12087DOI Listing
June 2013

Direct-to-consumer genetic testing: regulating offer or use?

Per Med 2012 May;9(3):315-317

Centre for Biomedical Ethics & Law, Katholieke Universiteit Leuven, Kapucijnenvoer 35 Box 7001, 3000 Leuven, Belgium.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.2217/pme.12.29DOI Listing
May 2012

The European Medicines Agency: a public health European agency?

Med Law 2012 Mar;31(1):25-42

Pacte Politique - Organisations Department Umr 5194, Institut D'etudes Politiques/F-38040 Grenoble Cedex 9.

View Article

Download full-text PDF

Source
March 2012

[The foundation of research ethics in community law].

J Int Bioethique 2011 Mar-Jun;22(1):187-203, 218

UMR Inserm, Université Paul Sabatier, Unité 558, Faculté de médecine, Toulouse.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.3917/jib.221.0185DOI Listing
September 2011

[Direct-to-consumer genetic testing through Internet: marketing, ethical and social issues].

Med Sci (Paris) 2011 Jan;27(1):95-102

Inserm U558, Épidémiologie et Analyses en Santé Publique, Risques, Maladies Chroniques, Handicaps, CUFR J.F. Champollion, Albi, France.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1051/medsci/201127195DOI Listing
January 2011

International network of cancer genome projects.

Authors:
Thomas J Hudson Warwick Anderson Axel Artez Anna D Barker Cindy Bell Rosa R Bernabé M K Bhan Fabien Calvo Iiro Eerola Daniela S Gerhard Alan Guttmacher Mark Guyer Fiona M Hemsley Jennifer L Jennings David Kerr Peter Klatt Patrik Kolar Jun Kusada David P Lane Frank Laplace Lu Youyong Gerd Nettekoven Brad Ozenberger Jane Peterson T S Rao Jacques Remacle Alan J Schafer Tatsuhiro Shibata Michael R Stratton Joseph G Vockley Koichi Watanabe Huanming Yang Matthew M F Yuen Bartha M Knoppers Martin Bobrow Anne Cambon-Thomsen Lynn G Dressler Stephanie O M Dyke Yann Joly Kazuto Kato Karen L Kennedy Pilar Nicolás Michael J Parker Emmanuelle Rial-Sebbag Carlos M Romeo-Casabona Kenna M Shaw Susan Wallace Georgia L Wiesner Nikolajs Zeps Peter Lichter Andrew V Biankin Christian Chabannon Lynda Chin Bruno Clément Enrique de Alava Françoise Degos Martin L Ferguson Peter Geary D Neil Hayes Thomas J Hudson Amber L Johns Arek Kasprzyk Hidewaki Nakagawa Robert Penny Miguel A Piris Rajiv Sarin Aldo Scarpa Tatsuhiro Shibata Marc van de Vijver P Andrew Futreal Hiroyuki Aburatani Mónica Bayés David D L Botwell Peter J Campbell Xavier Estivill Daniela S Gerhard Sean M Grimmond Ivo Gut Martin Hirst Carlos López-Otín Partha Majumder Marco Marra John D McPherson Hidewaki Nakagawa Zemin Ning Xose S Puente Yijun Ruan Tatsuhiro Shibata Michael R Stratton Hendrik G Stunnenberg Harold Swerdlow Victor E Velculescu Richard K Wilson Hong H Xue Liu Yang Paul T Spellman Gary D Bader Paul C Boutros Peter J Campbell Paul Flicek Gad Getz Roderic Guigó Guangwu Guo David Haussler Simon Heath Tim J Hubbard Tao Jiang Steven M Jones Qibin Li Nuria López-Bigas Ruibang Luo Lakshmi Muthuswamy B F Francis Ouellette John V Pearson Xose S Puente Victor Quesada Benjamin J Raphael Chris Sander Tatsuhiro Shibata Terence P Speed Lincoln D Stein Joshua M Stuart Jon W Teague Yasushi Totoki Tatsuhiko Tsunoda Alfonso Valencia David A Wheeler Honglong Wu Shancen Zhao Guangyu Zhou Lincoln D Stein Roderic Guigó Tim J Hubbard Yann Joly Steven M Jones Arek Kasprzyk Mark Lathrop Nuria López-Bigas B F Francis Ouellette Paul T Spellman Jon W Teague Gilles Thomas Alfonso Valencia Teruhiko Yoshida Karen L Kennedy Myles Axton Stephanie O M Dyke P Andrew Futreal Daniela S Gerhard Chris Gunter Mark Guyer Thomas J Hudson John D McPherson Linda J Miller Brad Ozenberger Kenna M Shaw Arek Kasprzyk Lincoln D Stein Junjun Zhang Syed A Haider Jianxin Wang Christina K Yung Anthony Cros Anthony Cross Yong Liang Saravanamuttu Gnaneshan Jonathan Guberman Jack Hsu Martin Bobrow Don R C Chalmers Karl W Hasel Yann Joly Terry S H Kaan Karen L Kennedy Bartha M Knoppers William W Lowrance Tohru Masui Pilar Nicolás Emmanuelle Rial-Sebbag Laura Lyman Rodriguez Catherine Vergely Teruhiko Yoshida Sean M Grimmond Andrew V Biankin David D L Bowtell Nicole Cloonan Anna deFazio James R Eshleman Dariush Etemadmoghadam Brooke B Gardiner Brooke A Gardiner James G Kench Aldo Scarpa Robert L Sutherland Margaret A Tempero Nicola J Waddell Peter J Wilson John D McPherson Steve Gallinger Ming-Sound Tsao Patricia A Shaw Gloria M Petersen Debabrata Mukhopadhyay Lynda Chin Ronald A DePinho Sarah Thayer Lakshmi Muthuswamy Kamran Shazand Timothy Beck Michelle Sam Lee Timms Vanessa Ballin Youyong Lu Jiafu Ji Xiuqing Zhang Feng Chen Xueda Hu Guangyu Zhou Qi Yang Geng Tian Lianhai Zhang Xiaofang Xing Xianghong Li Zhenggang Zhu Yingyan Yu Jun Yu Huanming Yang Mark Lathrop Jörg Tost Paul Brennan Ivana Holcatova David Zaridze Alvis Brazma Lars Egevard Egor Prokhortchouk Rosamonde Elizabeth Banks Mathias Uhlén Anne Cambon-Thomsen Juris Viksna Fredrik Ponten Konstantin Skryabin Michael R Stratton P Andrew Futreal Ewan Birney Ake Borg Anne-Lise Børresen-Dale Carlos Caldas John A Foekens Sancha Martin Jorge S Reis-Filho Andrea L Richardson Christos Sotiriou Hendrik G Stunnenberg Giles Thoms Marc van de Vijver Laura van't Veer Fabien Calvo Daniel Birnbaum Hélène Blanche Pascal Boucher Sandrine Boyault Christian Chabannon Ivo Gut Jocelyne D Masson-Jacquemier Mark Lathrop Iris Pauporté Xavier Pivot Anne Vincent-Salomon Eric Tabone Charles Theillet Gilles Thomas Jörg Tost Isabelle Treilleux Fabien Calvo Paulette Bioulac-Sage Bruno Clément Thomas Decaens Françoise Degos Dominique Franco Ivo Gut Marta Gut Simon Heath Mark Lathrop Didier Samuel Gilles Thomas Jessica Zucman-Rossi Peter Lichter Roland Eils Benedikt Brors Jan O Korbel Andrey Korshunov Pablo Landgraf Hans Lehrach Stefan Pfister Bernhard Radlwimmer Guido Reifenberger Michael D Taylor Christof von Kalle Partha P Majumder Rajiv Sarin T S Rao M K Bhan Aldo Scarpa Paolo Pederzoli Rita A Lawlor Massimo Delledonne Alberto Bardelli Andrew V Biankin Sean M Grimmond Thomas Gress David Klimstra Giuseppe Zamboni Tatsuhiro Shibata Yusuke Nakamura Hidewaki Nakagawa Jun Kusada Tatsuhiko Tsunoda Satoru Miyano Hiroyuki Aburatani Kazuto Kato Akihiro Fujimoto Teruhiko Yoshida Elias Campo Carlos López-Otín Xavier Estivill Roderic Guigó Silvia de Sanjosé Miguel A Piris Emili Montserrat Marcos González-Díaz Xose S Puente Pedro Jares Alfonso Valencia Heinz Himmelbauer Heinz Himmelbaue Victor Quesada Silvia Bea Michael R Stratton P Andrew Futreal Peter J Campbell Anne Vincent-Salomon Andrea L Richardson Jorge S Reis-Filho Marc van de Vijver Gilles Thomas Jocelyne D Masson-Jacquemier Samuel Aparicio Ake Borg Anne-Lise Børresen-Dale Carlos Caldas John A Foekens Hendrik G Stunnenberg Laura van't Veer Douglas F Easton Paul T Spellman Sancha Martin Anna D Barker Lynda Chin Francis S Collins Carolyn C Compton Martin L Ferguson Daniela S Gerhard Gad Getz Chris Gunter Alan Guttmacher Mark Guyer D Neil Hayes Eric S Lander Brad Ozenberger Robert Penny Jane Peterson Chris Sander Kenna M Shaw Terence P Speed Paul T Spellman Joseph G Vockley David A Wheeler Richard K Wilson Thomas J Hudson Lynda Chin Bartha M Knoppers Eric S Lander Peter Lichter Lincoln D Stein Michael R Stratton Warwick Anderson Anna D Barker Cindy Bell Martin Bobrow Wylie Burke Francis S Collins Carolyn C Compton Ronald A DePinho Douglas F Easton P Andrew Futreal Daniela S Gerhard Anthony R Green Mark Guyer Stanley R Hamilton Tim J Hubbard Olli P Kallioniemi Karen L Kennedy Timothy J Ley Edison T Liu Youyong Lu Partha Majumder Marco Marra Brad Ozenberger Jane Peterson Alan J Schafer Paul T Spellman Hendrik G Stunnenberg Brandon J Wainwright Richard K Wilson Huanming Yang

Nature 2010 Apr;464(7291):993-8

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1038/nature08987DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2902243PMC
April 2010

[Conditions for using human biological samples in scientific research: legal and ethical framework].

Med Sci (Paris) 2006 Jan;22 Spec No 1:8-14

UMR-lnserm U.558/ Faculté de Médecine, Plate-Forme Génétique et Société, Génopole Midi-Pyrénées, Toulouse, France.

View Article

Download full-text PDF

Source
http://dx.doi.org/10.1051/medsci/2006221s8DOI Listing
January 2006