Publications by authors named "Emmanuelle Rial-Sebbag"

41Publications

Country Reports.

J Law Med Ethics 2019 12;47(4):582-704

Don Chalmers, A.O., F.A.A.L., F.A.H.M.S., is Distinguished Professor of Law at University of Tasmania, Australia. Sueli G. Dallari, M.Sc., Ph.D., is a Professor and Lawyer, Libera docens in Health Law, University of Sao Paulo, Brazil. Marina de Neiva Borba, M.Sc., Ph.D., is a Lawyer, Postdoctoral Fellow in Public Health, and Member of the Health Law Research Center, University of Sao Paulo, Brazil Miriam Pinkesz, B.C.L./L.L.B., is a Research Assistant, at Centre of Genomics and Policy, Faculty of Medicine, Department of Human Genetics, McGill University, Montréal, QC, Canada. Yann Joly, Ph.D., Associate Professor, Research Director, Centre of Genomics and Policy, Faculty of Medicine, Department of Human Genetics, McGill University, Montréal, QC, Canada. Haidan Chen, Ph.D., is an Associate Professor of the College of Humanities and Development Studies, China Agricultural University (CAU). Mette Hartlev, Ph.D., LL.D., Professor, Faculty of Law, University of Copenhagen, Denmark. Liis Leitsalu, Ph.D, is a Researcher at the Estonian Genome Center, Institute of Genomics, University of Tartu, Estonia. Sirpa Soini, LL.M., is Biobank Director, Finnish Institute for Health and Welfare (THL) and Vice-Chair of Medical Research Ethics Committee, Helsinki University Hospital. Emmanuelle Rial-Sebbag, Ph.D., is Director of Research, INSERM, Université de Toulouse - Université Paul Sabatier - Toulouse III. Nils Hoppe, LL.B., Dr. iur., is Professor for Ethics and Law in the Life Sciences and Director of the Centre for Ethics and Law in the Life Sciences, as well as Dean of Research at the Faculty for Humanities and Social Sciences at Leibniz University in Hannover, Germany. Tina Garani-Papadatos, Ph.D., is a Professor, Dept. of Public Health Policy, National School of Public Health, University of West Attica, Greece. Panagiotis Vidalis, Ph.D., is a Senior Scientist, Legal Advisor, Hellenic Bioethics Commission, Greece. Krishna Ravi Srinivas, Ph.D., is a Consultant at Research and Information Systems for Developing Countries (RIS) in New Delhi, India. Gil Siegal, M.D., LL.B., S.J.D., is the Director of the Center for Health Law, Bioethics and Health Policy at Ono Academic College, Israel, a Member of the Israel National Bioethics and the Human Subject Research committees and Professor of Law at the University of Virginia Stefania Negri, Ph.D., is an Associate Professor of International Law, Department of Legal Sciences, University of Salerno. Ryoko Hatanaka is a Visiting Researcher, University of Hong Kong Sau Po Center for Aging; Honorable Visiting Fellow, University of Tokyo. Maysa Al-Hussaini, M.D., FRCPath, is a Consultant, Histopathologist/Neuropathologist, and Chair of the Institutional Review Board, King Hussein Cancer Center, Jordan. Amal Al-Tabba', M.Sc., is the Coordinator of the Human Research Protection Program, King Hussein Cancer Center, Jordan. Lourdes Motta-Murgía, M.Sc, LL.B., Ph. D., is the CEO of PPAL Bureau de Asuntos Públicos y Comunicación (PPAL: Bureau of Public Affairs and Communication); Laura Estela Torres Moran, LL.B., LL.M., is Director of Public Affairs of PPAL Bureau de Asuntos Públicos y Comunicación (PPAL: Bureau of Public Affairs and Communication). Aart Hendriks, Ph.D., is a Professor of Health Law, Leiden University, Netherlands. Obiajulu Nnamuchi, LL.B., LL.M., M.A., S.J.D., is an Associate Professor of Law, University of Nigeria (Enugu Campus) Enugu, Nigeria. Rosario Isasi, J.D., M.P.H., is Research Assistant Professor at the University of Miami Miller School of Medicine. Dorota Krekora-Zajac, J.D., is an Assistant Professor in the Department of Comparative Civil Law, Faculty of Law and Administration at the University of Warsaw. Eman Sadoun, Ph.D., is Manager of the Research Division at the Ministry of Public Health, Qatar. Calvin Ho, B.Sc., LL.B., M.Sc., LL.M., J.S.D., is an Assistant Professor at the Centre for Biomedical Ethics at the Yong Loo Lin School of Medicine, National University of Singapore (NUS). Pamela Andanda, LL.B., LL.M., Ph.D., Professor of Law, University of the Witwatersrand, Johannesburg, South Africa. Won Bok Lee, M.D., LL.M., S.J.D., is a Professor, Ewha Law School, Korea. Pilar Nicolás, Ph.D., Senior Permanent Researcher, Faculty of Law, Research Group Chair in Law and the Human Genome, University of the Basque Country, Spain. Titti Mattsson, Ph.D., is Professor of Public Law, Director of Health Law Centre, Faculty of Law, Lund University, Sweden. Vladislava Talanova, MLaw, is affiliated with University of Neuchâtel, Switzerland. Alexandre Dosch, MLaw, is a Lawyer and affiliated with University of Neuchâtel, Switzerland. Dominique Sprumont, Ph.D., is a Professor, Institute of Health Law, University of Neuchâtel, Switzerland. Chien-Te Fan, J.D., LL.M., is a Professor, Institute of Law for Science & Technology, National Tsing Hua University, Taiwan. Tzu-Hsun Hung, LL.M., is an Attorney-at-Law, Taiwan. Obiajulu Nnamuchi, LL.B., LL.M., M.A., S.J.D., is an Associate Professor of Law, University of Nigeria (Enugu Campus) Enugu, Nigeria. Jane Kaye, B.A., Grad Dip Leg, LL.B., D.Phil., is Director of the HeLEX Centre for Health, Law and Emerging Technologies, University of Oxford, Oxford, United Kingdom. Andelka Phillips, B.A., LL.B., B.A., LL.M., D.Phil., is a Senior Lecturer at Te Piringa Faculty of Law, University of Waikato, New Zealand. Heather Gowans, Ph.D., is a Researcher in Law at the HeLEX Centre for Health, Law and Emerging Technologies, University of Oxford, Oxford, United Kingdom. Nisha Shah, M.Sc., B.Sc., is a Researcher in Social Scienceat the HeLEX Centre for Health, Law and Emerging Technologies, University of Oxford, Oxford, United Kingdom. James W. Hazel, Ph.D., J.D., is a Post-Doctoral Fellow at the Center for Biomedical Ethics and Society, Vanderbilt University Medical Center.

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http://dx.doi.org/10.1177/1073110519897736DOI Listing
December 2019

ESHG PPPC Comments on postmortem use of genetic data for research purposes.

Eur J Hum Genet 2020 02 8;28(2):144-146. Epub 2019 Oct 8.

Clinical Genetics Department, Guy's & St Thomas' NHS Foundation Trust, London, United Kingdom.

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http://dx.doi.org/10.1038/s41431-019-0525-zDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6974591PMC
February 2020

Population genetic screening: current issues in a European country.

Eur J Hum Genet 2019 09 8;27(9):1321-1323. Epub 2019 May 8.

INSERM U1086, Anticipe, Normandie Université, 3 avenue du Général Harris, F-14076, Caen, France.

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http://dx.doi.org/10.1038/s41431-019-0425-2DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6777526PMC
September 2019

Chapitre 6. Cells? safety in Europe: Towards an ethical safety.

J Int Bioethique Ethique Sci 2017 Oct;28(2):107-129

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http://dx.doi.org/10.3917/jib.282.0107DOI Listing
October 2017

[Chapter 4. Governing Big Data for Health, national and international issues].

J Int Bioethique Ethique Sci 2017 Oct;28(3):39-50

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http://dx.doi.org/10.3917/jib.283.0039DOI Listing
October 2017

[Chapter 3. Governing the research on embryos].

J Int Bioethique Ethique Sci 2018 Mar;28(4):55-76

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http://dx.doi.org/10.3917/jib.284.0055DOI Listing
March 2018

Including all voices in international data-sharing governance.

Hum Genomics 2018 03 7;12(1):13. Epub 2018 Mar 7.

CNRS, Toulouse, France; Joint research unit on epidemiology and public health, Inserm (National Institute for Health and Medical Research) and University Toulouse III Paul Sabatier, Toulouse, France.

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http://dx.doi.org/10.1186/s40246-018-0143-9DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5842530PMC
March 2018

Responsible innovation in human germline gene editing: Background document to the recommendations of ESHG and ESHRE.

Eur J Hum Genet 2018 04 12;26(4):450-470. Epub 2018 Jan 12.

Department of Clinical Genetics, Section Community Genetics and Amsterdam Public Health Research Institute, VU University Medical Center, Amsterdam, The Netherlands.

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http://dx.doi.org/10.1038/s41431-017-0077-zDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5891502PMC
April 2018

Human germline gene editing: Recommendations of ESHG and ESHRE.

Eur J Hum Genet 2018 04 12;26(4):445-449. Epub 2018 Jan 12.

Department of Clinical Genetics, Section Community Genetics, and Amsterdam Public Health research institute, VU University Medical Center, Amsterdam, The Netherlands.

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http://dx.doi.org/10.1038/s41431-017-0076-0DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5891496PMC
April 2018

Human germline gene editing. Recommendations of ESHG and ESHRE.

Hum Reprod Open 2018 12;2018(1):hox025. Epub 2018 Jan 12.

Department of Clinical Genetics, Section Community Genetics, and Amsterdam Public Health Research Institute, VU University Medical Center, Van der Boechorststraat 7, 1081 BT Amsterdam, The Netherlands.

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http://dx.doi.org/10.1093/hropen/hox025DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6276661PMC
January 2018

Responsible innovation in human germline gene editing. Background document to the recommendations of ESHG and ESHRE.

Hum Reprod Open 2018 12;2018(1):hox024. Epub 2018 Jan 12.

Department of Clinical Genetics, Section Community Genetics, and Amsterdam Public Health Research Institute, VU University Medical Center, Van der Boechorststraat 7, 1081 BT, Amsterdam, The Netherlands.

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http://dx.doi.org/10.1093/hropen/hox024DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6276657PMC
January 2018

One small edit for humans, one giant edit for humankind? Points and questions to consider for a responsible way forward for gene editing in humans.

Eur J Hum Genet 2018 01 30;26(1):1-11. Epub 2017 Nov 30.

Department of Clinical Genetics, Section Community Genetics and EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands.

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http://dx.doi.org/10.1038/s41431-017-0024-zDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5839051PMC
January 2018

Mechanisms of the Development of Allergy (MeDALL): Introducing novel concepts in allergy phenotypes.

J Allergy Clin Immunol 2017 02;139(2):388-399

Department of Pediatric Pulmonology and Pediatric Allergology, Beatrix Children's Hospital, GRIAC Research Institute, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.

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http://dx.doi.org/10.1016/j.jaci.2016.12.940DOI Listing
February 2017

Consent for Biobanking: The Legal Frameworks of Countries in the BioSHaRE-EU Project.

Biopreserv Biobank 2016 Jun 4;14(3):195-200. Epub 2016 May 4.

5 INSERM UMR 1027 Département d'épidémiologie et de santé publique, Faculté de Médecine, Université Paul Sabatier-Toulouse III , Toulouse, France .

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http://dx.doi.org/10.1089/bio.2015.0123DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5967579PMC
June 2016

[DOhaD and epigenetic information: societal challenges].

Med Sci (Paris) 2016 Jan 5;32(1):100-5. Epub 2016 Feb 5.

Inra, UMR1198, biologie du développement et reproduction, Domaine de Vilvert, Batiment 230, 78352 Jouy-en-Josas, France.

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http://dx.doi.org/10.1051/medsci/20163201016DOI Listing
January 2016

Regulation of Biobanks in France.

J Law Med Ethics 2015 ;43(4):754-65

Ph.D. student in law at the University of law and political sciences Toulouse 1 Capitole. The title of her thesis is "Legal Issues Related to Access and Circulation of Genetic Information." She is also working at Inserm (French National Institute for research and health) as a jurist on legal and ethical issues raised by biomedical innovations. She graduated from University Toulouse 1 Capitole.

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http://dx.doi.org/10.1111/jlme.12317DOI Listing
February 2017

The impact of European embryonic stem cell patent decisions on research strategies.

Nat Biotechnol 2015 Jan;33(1):41-3

UMR1027, INSERM and Université Toulouse III-Paul Sabatier, Toulouse, France.

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http://dx.doi.org/10.1038/nbt.3105DOI Listing
January 2015

The European Court of Human Rights' ruling on unproven stem cell therapies: a missed opportunity?

Stem Cells Dev 2014 Dec;23 Suppl 1:39-43

Paul Sabatier Département d'épidémiologie et de santé publique, Faculté de Médecine, UMR 1027, INSERM, Université de Toulouse 3, Toulouse, France .

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http://dx.doi.org/10.1089/scd.2014.0361DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4235982PMC
December 2014

[Personalized medicine, privatized medicine? legal and public health stakes].

Med Sci (Paris) 2014 Nov 17;30 Spec No 2:36-40. Epub 2014 Nov 17.

UMR 1027 Inserm, Université de Toulouse Paul Sabatier, Toulouse, France.

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http://dx.doi.org/10.1051/medsci/201430s208DOI Listing
November 2014

[Academic cell therapy facilities are challenged by European regulation on advanced therapy medicinal products].

Med Sci (Paris) 2014 May 13;30(5):576-83. Epub 2014 Jun 13.

Inserm UMR 1027, épidémiologie et analyses en santé publique : risques, maladies chroniques et handicaps, équipe génomique, biothérapies et santé publique-approche interdisciplinaire, Toulouse, France - université Paul Sabatier-Toulouse 3, Toulouse, France - Institut de recherche en droit européen, international et comparé (IRDEIC), université Toulouse 1-Capitole, Toulouse, France.

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http://dx.doi.org/10.1051/medsci/20143005022DOI Listing
May 2014

Toward a common language for biobanking.

Eur J Hum Genet 2015 Jan 9;23(1):22-8. Epub 2014 Apr 9.

Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden.

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http://dx.doi.org/10.1038/ejhg.2014.45DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4266732PMC
January 2015

Regulation of cell-based therapies in Europe: current challenges and emerging issues.

Stem Cells Dev 2013 Dec;22 Suppl 1:14-9

INSERM UMR 1027 Département d'épidémiologie et de santé publique, Faculté de Médecine, Université Paul Sabatier-Toulouse III , Toulouse, France .

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http://dx.doi.org/10.1089/scd.2013.0352DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3883134PMC
December 2013

Communication of results and disclosure of incidental findings in longitudinal paediatric research.

Pediatr Allergy Immunol 2013 Jun;24(4):389-94

Inserm, UMR1027, Epidemiology and analyses in Public Health, Toulouse, France.

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http://dx.doi.org/10.1111/pai.12087DOI Listing
June 2013

The European Medicines Agency: a public health European agency?

Med Law 2012 Mar;31(1):25-42

Pacte Politique - Organisations Department Umr 5194, Institut D'etudes Politiques/F-38040 Grenoble Cedex 9.

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March 2012

Direct-to-consumer genetic testing: regulating offer or use?

Per Med 2012 May;9(3):315-317

Centre for Biomedical Ethics & Law, Katholieke Universiteit Leuven, Kapucijnenvoer 35 Box 7001, 3000 Leuven, Belgium.

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http://dx.doi.org/10.2217/pme.12.29DOI Listing
May 2012

[The foundation of research ethics in community law].

J Int Bioethique 2011 Mar-Jun;22(1):187-203, 218

UMR Inserm, Université Paul Sabatier, Unité 558, Faculté de médecine, Toulouse.

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http://dx.doi.org/10.3917/jib.221.0185DOI Listing
September 2011

[Direct-to-consumer genetic testing through Internet: marketing, ethical and social issues].

Med Sci (Paris) 2011 Jan;27(1):95-102

Inserm U558, Épidémiologie et Analyses en Santé Publique, Risques, Maladies Chroniques, Handicaps, CUFR J.F. Champollion, Albi, France.

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http://dx.doi.org/10.1051/medsci/201127195DOI Listing
January 2011

International network of cancer genome projects.

Authors:
Thomas J Hudson Warwick Anderson Axel Artez Anna D Barker Cindy Bell Rosa R Bernabé M K Bhan Fabien Calvo Iiro Eerola Daniela S Gerhard Alan Guttmacher Mark Guyer Fiona M Hemsley Jennifer L Jennings David Kerr Peter Klatt Patrik Kolar Jun Kusada David P Lane Frank Laplace Lu Youyong Gerd Nettekoven Brad Ozenberger Jane Peterson T S Rao Jacques Remacle Alan J Schafer Tatsuhiro Shibata Michael R Stratton Joseph G Vockley Koichi Watanabe Huanming Yang Matthew M F Yuen Bartha M Knoppers Martin Bobrow Anne Cambon-Thomsen Lynn G Dressler Stephanie O M Dyke Yann Joly Kazuto Kato Karen L Kennedy Pilar Nicolás Michael J Parker Emmanuelle Rial-Sebbag Carlos M Romeo-Casabona Kenna M Shaw Susan Wallace Georgia L Wiesner Nikolajs Zeps Peter Lichter Andrew V Biankin Christian Chabannon Lynda Chin Bruno Clément Enrique de Alava Françoise Degos Martin L Ferguson Peter Geary D Neil Hayes Thomas J Hudson Amber L Johns Arek Kasprzyk Hidewaki Nakagawa Robert Penny Miguel A Piris Rajiv Sarin Aldo Scarpa Tatsuhiro Shibata Marc van de Vijver P Andrew Futreal Hiroyuki Aburatani Mónica Bayés David D L Botwell Peter J Campbell Xavier Estivill Daniela S Gerhard Sean M Grimmond Ivo Gut Martin Hirst Carlos López-Otín Partha Majumder Marco Marra John D McPherson Hidewaki Nakagawa Zemin Ning Xose S Puente Yijun Ruan Tatsuhiro Shibata Michael R Stratton Hendrik G Stunnenberg Harold Swerdlow Victor E Velculescu Richard K Wilson Hong H Xue Liu Yang Paul T Spellman Gary D Bader Paul C Boutros Peter J Campbell Paul Flicek Gad Getz Roderic Guigó Guangwu Guo David Haussler Simon Heath Tim J Hubbard Tao Jiang Steven M Jones Qibin Li Nuria López-Bigas Ruibang Luo Lakshmi Muthuswamy B F Francis Ouellette John V Pearson Xose S Puente Victor Quesada Benjamin J Raphael Chris Sander Tatsuhiro Shibata Terence P Speed Lincoln D Stein Joshua M Stuart Jon W Teague Yasushi Totoki Tatsuhiko Tsunoda Alfonso Valencia David A Wheeler Honglong Wu Shancen Zhao Guangyu Zhou Lincoln D Stein Roderic Guigó Tim J Hubbard Yann Joly Steven M Jones Arek Kasprzyk Mark Lathrop Nuria López-Bigas B F Francis Ouellette Paul T Spellman Jon W Teague Gilles Thomas Alfonso Valencia Teruhiko Yoshida Karen L Kennedy Myles Axton Stephanie O M Dyke P Andrew Futreal Daniela S Gerhard Chris Gunter Mark Guyer Thomas J Hudson John D McPherson Linda J Miller Brad Ozenberger Kenna M Shaw Arek Kasprzyk Lincoln D Stein Junjun Zhang Syed A Haider Jianxin Wang Christina K Yung Anthony Cros Anthony Cross Yong Liang Saravanamuttu Gnaneshan Jonathan Guberman Jack Hsu Martin Bobrow Don R C Chalmers Karl W Hasel Yann Joly Terry S H Kaan Karen L Kennedy Bartha M Knoppers William W Lowrance Tohru Masui Pilar Nicolás Emmanuelle Rial-Sebbag Laura Lyman Rodriguez Catherine Vergely Teruhiko Yoshida Sean M Grimmond Andrew V Biankin David D L Bowtell Nicole Cloonan Anna deFazio James R Eshleman Dariush Etemadmoghadam Brooke B Gardiner Brooke A Gardiner James G Kench Aldo Scarpa Robert L Sutherland Margaret A Tempero Nicola J Waddell Peter J Wilson John D McPherson Steve Gallinger Ming-Sound Tsao Patricia A Shaw Gloria M Petersen Debabrata Mukhopadhyay Lynda Chin Ronald A DePinho Sarah Thayer Lakshmi Muthuswamy Kamran Shazand Timothy Beck Michelle Sam Lee Timms Vanessa Ballin Youyong Lu Jiafu Ji Xiuqing Zhang Feng Chen Xueda Hu Guangyu Zhou Qi Yang Geng Tian Lianhai Zhang Xiaofang Xing Xianghong Li Zhenggang Zhu Yingyan Yu Jun Yu Huanming Yang Mark Lathrop Jörg Tost Paul Brennan Ivana Holcatova David Zaridze Alvis Brazma Lars Egevard Egor Prokhortchouk Rosamonde Elizabeth Banks Mathias Uhlén Anne Cambon-Thomsen Juris Viksna Fredrik Ponten Konstantin Skryabin Michael R Stratton P Andrew Futreal Ewan Birney Ake Borg Anne-Lise Børresen-Dale Carlos Caldas John A Foekens Sancha Martin Jorge S Reis-Filho Andrea L Richardson Christos Sotiriou Hendrik G Stunnenberg Giles Thoms Marc van de Vijver Laura van't Veer Fabien Calvo Daniel Birnbaum Hélène Blanche Pascal Boucher Sandrine Boyault Christian Chabannon Ivo Gut Jocelyne D Masson-Jacquemier Mark Lathrop Iris Pauporté Xavier Pivot Anne Vincent-Salomon Eric Tabone Charles Theillet Gilles Thomas Jörg Tost Isabelle Treilleux Fabien Calvo Paulette Bioulac-Sage Bruno Clément Thomas Decaens Françoise Degos Dominique Franco Ivo Gut Marta Gut Simon Heath Mark Lathrop Didier Samuel Gilles Thomas Jessica Zucman-Rossi Peter Lichter Roland Eils Benedikt Brors Jan O Korbel Andrey Korshunov Pablo Landgraf Hans Lehrach Stefan Pfister Bernhard Radlwimmer Guido Reifenberger Michael D Taylor Christof von Kalle Partha P Majumder Rajiv Sarin T S Rao M K Bhan Aldo Scarpa Paolo Pederzoli Rita A Lawlor Massimo Delledonne Alberto Bardelli Andrew V Biankin Sean M Grimmond Thomas Gress David Klimstra Giuseppe Zamboni Tatsuhiro Shibata Yusuke Nakamura Hidewaki Nakagawa Jun Kusada Tatsuhiko Tsunoda Satoru Miyano Hiroyuki Aburatani Kazuto Kato Akihiro Fujimoto Teruhiko Yoshida Elias Campo Carlos López-Otín Xavier Estivill Roderic Guigó Silvia de Sanjosé Miguel A Piris Emili Montserrat Marcos González-Díaz Xose S Puente Pedro Jares Alfonso Valencia Heinz Himmelbauer Heinz Himmelbaue Victor Quesada Silvia Bea Michael R Stratton P Andrew Futreal Peter J Campbell Anne Vincent-Salomon Andrea L Richardson Jorge S Reis-Filho Marc van de Vijver Gilles Thomas Jocelyne D Masson-Jacquemier Samuel Aparicio Ake Borg Anne-Lise Børresen-Dale Carlos Caldas John A Foekens Hendrik G Stunnenberg Laura van't Veer Douglas F Easton Paul T Spellman Sancha Martin Anna D Barker Lynda Chin Francis S Collins Carolyn C Compton Martin L Ferguson Daniela S Gerhard Gad Getz Chris Gunter Alan Guttmacher Mark Guyer D Neil Hayes Eric S Lander Brad Ozenberger Robert Penny Jane Peterson Chris Sander Kenna M Shaw Terence P Speed Paul T Spellman Joseph G Vockley David A Wheeler Richard K Wilson Thomas J Hudson Lynda Chin Bartha M Knoppers Eric S Lander Peter Lichter Lincoln D Stein Michael R Stratton Warwick Anderson Anna D Barker Cindy Bell Martin Bobrow Wylie Burke Francis S Collins Carolyn C Compton Ronald A DePinho Douglas F Easton P Andrew Futreal Daniela S Gerhard Anthony R Green Mark Guyer Stanley R Hamilton Tim J Hubbard Olli P Kallioniemi Karen L Kennedy Timothy J Ley Edison T Liu Youyong Lu Partha Majumder Marco Marra Brad Ozenberger Jane Peterson Alan J Schafer Paul T Spellman Hendrik G Stunnenberg Brandon J Wainwright Richard K Wilson Huanming Yang

Nature 2010 Apr;464(7291):993-8

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http://dx.doi.org/10.1038/nature08987DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2902243PMC
April 2010

[Conditions for using human biological samples in scientific research: legal and ethical framework].

Med Sci (Paris) 2006 Jan;22 Spec No 1:8-14

UMR-lnserm U.558/ Faculté de Médecine, Plate-Forme Génétique et Société, Génopole Midi-Pyrénées, Toulouse, France.

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http://dx.doi.org/10.1051/medsci/2006221s8DOI Listing
January 2006