Publications by authors named "Belinda J McClaren"

16Publications

Parental experiences after prenatal diagnosis of fetal abnormality.

Semin Fetal Neonatal Med 2018 04 16;23(2):150-154. Epub 2017 Dec 16.

Department of Paediatrics, University of Melbourne, Melbourne, Victoria, Australia; Genetics Education and Health Research, Murdoch Children's Research Institute, Parkville, Victoria, Australia.

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http://dx.doi.org/10.1016/j.siny.2017.11.009DOI Listing
April 2018

Embodied experiences of prenatal diagnosis of fetal abnormality and pregnancy termination.

Reprod Health Matters 2016 May 21;24(47):168-77. Epub 2016 May 21.

Project Manager, Genetics Education and Health Research, Murdoch Childrens Research Institute, Parkville, Australia; Senior Lecturer, Department of Paediatrics, University of Melbourne, Parkville, Australia.

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http://dx.doi.org/10.1016/j.rhm.2016.04.003DOI Listing
May 2016

Clinical audit of genetic testing and referral patterns for fragile X and associated conditions.

Am J Med Genet A 2016 06 18;170(6):1439-49. Epub 2016 Feb 18.

Genetics Education and Health Research, Murdoch Childrens Research Institute, Royal Children's Hospital, Parkville, VIC, Australia.

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http://dx.doi.org/10.1002/ajmg.a.37603DOI Listing
June 2016

'A short time but a lovely little short time': Bereaved parents' experiences of having a child with spinal muscular atrophy type 1.

J Paediatr Child Health 2016 Jan 10;52(1):40-6. Epub 2015 Sep 10.

Victorian Clinical Genetics Services, The Royal Children's Hospital, Melbourne, Victoria, Australia.

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http://dx.doi.org/10.1111/jpc.12993DOI Listing
January 2016

A mixed methods exploration of families' experiences of the diagnosis of childhood spinal muscular atrophy.

Eur J Hum Genet 2015 May 30;23(5):575-80. Epub 2014 Jul 30.

Murdoch Childrens Research Institute, Department of Paediatrics, The University of Melbourne, Parkville, Australia.

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http://dx.doi.org/10.1038/ejhg.2014.147DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4402625PMC
May 2015

Population-based carrier screening for cystic fibrosis: a systematic review of 23 years of research.

Genet Med 2014 Mar 12;16(3):207-16. Epub 2013 Sep 12.

1] Murdoch Childrens Research Institute, Parkville, Victoria, Australia [2] Department of Medicine, Monash University, Clayton, Victoria, Australia [3] Department of Paediatrics, University of Melbourne, Parkville, Victoria, Australia [4] Clinical Genetics, Austin Health, Heidelberg, Victoria, Australia.

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http://dx.doi.org/10.1038/gim.2013.125DOI Listing
March 2014

Cascade carrier testing after a child is diagnosed with cystic fibrosis through newborn screening: investigating why most relatives do not have testing.

Genet Med 2013 Jul 24;15(7):533-40. Epub 2013 Jan 24.

Genetics Education and Health Research, Murdoch Childrens Research Institute, Parkville, Victoria, Australia.

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http://dx.doi.org/10.1038/gim.2012.175DOI Listing
July 2013

Perceived relevance of genetic carrier screening: observations of the role of health-related life experiences and stage of life in decision making.

J Community Genet 2012 Jan 17;3(1):47-54. Epub 2011 Nov 17.

Department of Paediatrics, The University of Melbourne, Melbourne, Victoria, Australia,

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http://dx.doi.org/10.1007/s12687-011-0067-8DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3266967PMC
January 2012

How do women at increased, but unexplained, familial risk of breast cancer perceive and manage their risk? A qualitative interview study.

Hered Cancer Clin Pract 2011 6;9(1). Epub 2011 Sep 6.

Centre for Molecular, Environmental, Genetic & Analytic Epidemiology, Melbourne School of Population Health, The University of Melbourne, Melbourne, Australia.

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http://dx.doi.org/10.1186/1897-4287-9-7DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3177765PMC
August 2014

Uptake of carrier testing in families after cystic fibrosis diagnosis through newborn screening.

Eur J Hum Genet 2010 Oct 26;18(10):1084-9. Epub 2010 May 26.

Genetics Education and Health Research, Murdoch Childrens Research Institute, Melbourne, Victoria, Australia.

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http://dx.doi.org/10.1038/ejhg.2010.78DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2987447PMC
October 2010

'It is not in my world': an exploration of attitudes and influences associated with cystic fibrosis carrier screening.

Eur J Hum Genet 2008 Apr 5;16(4):435-44. Epub 2007 Dec 5.

Genetics Education and Health Research, Murdoch Childrens Research Institute, Royal Children's Hospital, Parkville, Victoria, Australia.

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http://dx.doi.org/10.1038/sj.ejhg.5201965DOI Listing
April 2008