Bartha Maria Knoppers

Bartha Maria Knoppers

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Bartha Maria Knoppers

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'Serious' factor-a relevant starting point for further debate: a response.

J Med Ethics 2019 Nov 6. Epub 2019 Nov 6.

Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada.

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http://dx.doi.org/10.1136/medethics-2019-105832DOI Listing
November 2019

Letter: Relearning the 3 R's? Reinterpretation, recontact, and return of genetic variants.

Genet Med 2019 10 11;21(10):2401-2402. Epub 2019 Apr 11.

Centre of Genomics and Policy, McGill University, Montreal, QC, Canada.

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http://dx.doi.org/10.1038/s41436-019-0494-1DOI Listing
October 2019

Heritable Genome Editing: Who Speaks for "Future" Children?

CRISPR J 2019 Oct;2(5):285-292

Centre of Genomics and Policy, McGill University, Montreal, Canada.

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http://dx.doi.org/10.1089/crispr.2019.0019DOI Listing
October 2019

When information is the treatment? Precision medicine in healthcare.

Healthc Manage Forum 2019 Sep 10:840470419859017. Epub 2019 Sep 10.

Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada.

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http://dx.doi.org/10.1177/0840470419859017DOI Listing
September 2019

The 'serious' factor in germline modification.

J Med Ethics 2019 Aug 20;45(8):508-513. Epub 2019 Jul 20.

Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada.

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http://dx.doi.org/10.1136/medethics-2019-105436DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6820154PMC
August 2019

Canada's Pragmatic Reforms in Support of Research.

Front Med (Lausanne) 2019 10;6:157. Epub 2019 Jul 10.

Centre of Genomics and Policy, Department of Human Genetics, McGill University, Montreal, QC, Canada.

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http://dx.doi.org/10.3389/fmed.2019.00157DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6636215PMC
July 2019

Regulatory Landscape of International Direct-to-Participant (DTP) Genomic Research: Time to Untie the Gordian Knot?

J Law Med Ethics 2019 Jun;47(2):336-341

Mark A. Rothstein, J.D., is the Herbert F. Boehl Chair of Law and Medicine and Director, Institute for Bioethics, Health Policy and Law, University of Louisville Schoool of Medicine. Ma'n H. Zawati, Ph.D., is Academic Coordinator of the Centre of Genomics and Policy, and an Associate member of the Biomedical Ethics Unit, McGill University. Bartha Maria Knoppers, Ph.D., is Professor of Medicine and Director of the Centre of Genomics and Policy at McGill University.

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http://dx.doi.org/10.1177/1073110519857291DOI Listing
June 2019

Reciprocity and the Quest for Meaningful Disclosure.

Am J Bioeth 2019 05;19(5):36-38

a McGill University.

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http://dx.doi.org/10.1080/15265161.2019.1587547DOI Listing
May 2019

Return of individual genomic research results: are laws and policies keeping step?

Eur J Hum Genet 2019 Apr 8;27(4):535-546. Epub 2019 Jan 8.

Centre of Genomics and Policy, McGill University, 740 avenue Dr. Penfield, suite 5200, Montréal, QC, H3A 0G1, Canada.

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http://dx.doi.org/10.1038/s41431-018-0311-3DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6460582PMC
April 2019

A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research.

Front Genet 2019 5;10:289. Epub 2019 Apr 5.

Centre of Genomics and Policy, McGill University, Montreal, QC, Canada.

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http://dx.doi.org/10.3389/fgene.2019.00289DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459892PMC
April 2019

Genome-wide sequencing in acutely ill infants: genomic medicine's critical application?

Genet Med 2019 02 12;21(2):498-504. Epub 2018 Jun 12.

Centre of Genomics and Policy, Faculty of Medicine, McGill University, Montreal, Quebec, Canada.

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http://dx.doi.org/10.1038/s41436-018-0055-zDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6752673PMC
February 2019

Health professionals' perspectives on breast cancer risk stratification: understanding evaluation of risk versus screening for disease.

Public Health Rev 2019 28;40. Epub 2019 Feb 28.

1Department of Family Medicine, Faculty of Medicine, McGill University, 5858 Chemin de la Côte-des-Neiges, Suite 300, Montréal, Québec H3S 1Z1 Canada.

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http://dx.doi.org/10.1186/s40985-019-0111-5DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6394012PMC
February 2019

Pre-implantation Genetic Diagnosis: The Road Forward in Canada.

J Obstet Gynaecol Can 2019 Jan 22;41(1):68-71. Epub 2018 Oct 22.

Centre of Genomics and Policy, Department of Human Genetics, McGill University, Montréal, QC.

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https://linkinghub.elsevier.com/retrieve/pii/S17012163183063
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http://dx.doi.org/10.1016/j.jogc.2018.08.001DOI Listing
January 2019

"CRISPR babies": What does this mean for science and Canada?

CMAJ 2019 01;191(4):E91-E92

Centre of Genomics and Policy, McGill University, Montréal, Que.

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http://dx.doi.org/10.1503/cmaj.181657DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6342697PMC
January 2019

Overcoming barriers to facilitate the regulation of multi-centre regenerative medicine clinical trials.

Stem Cell Res Ther 2018 11 8;9(1):307. Epub 2018 Nov 8.

Centre of Genomics and Policy, Department of Human Genetics, McGill University, Montreal, QC, H3A 0G1, Canada.

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http://dx.doi.org/10.1186/s13287-018-1055-2DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6225696PMC
November 2018

Consent recommendations for research and international data sharing involving persons with dementia.

Alzheimers Dement 2018 10 2;14(10):1334-1343. Epub 2018 Jul 2.

Department of Medical Genetics, University of Cambridge, Cambridge, United Kingdom.

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http://dx.doi.org/10.1016/j.jalz.2018.05.011DOI Listing
October 2018

Genetically Enhanced Minors: Whose Responsibility?

Am J Bioeth 2018 Jun;18(6):1-3

a McGill University.

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http://dx.doi.org/10.1080/15265161.2018.1459941DOI Listing
June 2018

The Canadian Partnership for Tomorrow Project: a pan-Canadian platform for research on chronic disease prevention.

CMAJ 2018 06;190(23):E710-E717

School of Population and Public Health (Dummer), University of British Columbia, Vancouver, BC; Ontario Institute for Cancer Research (Awadalla); CARTaGENE (Boileau), Montréal, Que.; Research Institute of the McGill University Health Centre (Craig, Fortier); Research and Innovation, University of Toronto (Goel); Ontario Agency for Health Protection and Promotion (Goel); Atlantic PATH, Dalhousie University (Hicks), Halifax, NS; Centre hospitalier universitaire Sainte-Justine (Jacquemont); Centre of Genomics and Policy, McGill University (Knoppers, Zawati), Montréal, Que.; BC Cancer Research Centre (Le, McDonald), Vancouver, BC; Public Health Ontario (McLaughlin), Toronto, Ont.; Institut du cancer de Montréal, Université de Montréal (Mes-Masson); Pediatrics, CHU Sainte-Justine Research Center (Nuyt), Montréal, Que.; School of Public Health, University of Adelaide (Palmer), Adelaide, Australia; Department of Medicine, Dalhousie University (Parker); Division of Cancer Epidemiology and Genetics, National Cancer Institute (Purdue), Bethesda, Md.; CancerControl Alberta, Alberta Health Services (Robson, Vena), Edmonton, Alta.; Population Oncology, BC Cancer (Spinelli), Vancouver, BC; Atlantic PATH, Dalhousie University (Thompson), Halifax, NS.

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http://dx.doi.org/10.1503/cmaj.170292DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5995593PMC
June 2018

Policies and strategies to facilitate secondary use of research data in the health sciences.

Int J Epidemiol 2017 12;46(6):1729-1733

Institute for Fiscal Studies and University of Manchester, Manchester, UK.

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http://dx.doi.org/10.1093/ije/dyx195DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5837447PMC
December 2017

Mitochondrial Replacement Therapy: The Road to the Clinic in Canada.

J Obstet Gynaecol Can 2017 Oct 18;39(10):916-918. Epub 2017 Jul 18.

Centre of Genomics and Policy, Department of Human Genetics, McGill University, Montréal, QC. Electronic address:

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http://dx.doi.org/10.1016/j.jogc.2017.05.007DOI Listing
October 2017

Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees?

Biopreserv Biobank 2017 Oct 24;15(5):469-474. Epub 2017 Aug 24.

1 Department of Public Health and Primary Care, Center for Biomedical Ethics and Law, University of Leuven , Leuven, Belgium .

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http://dx.doi.org/10.1089/bio.2017.0045DOI Listing
October 2017

Public variant databases: liability?

Genet Med 2017 07 15;19(7):838-841. Epub 2016 Dec 15.

Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada.

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http://dx.doi.org/10.1038/gim.2016.189DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5527130PMC
July 2017

The Adoption of Cloud Computing in the Field of Genomics Research: The Influence of Ethical and Legal Issues.

PLoS One 2016 18;11(10):e0164347. Epub 2016 Oct 18.

Centre of Genomics and Policy, Faculty of Medicine/Department of Human Genetics, McGill University, Montréal, Québec, Canada.

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http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0164347PLOS
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5068798PMC
May 2017

Substitute consent to data sharing: a way forward for international dementia research?

J Law Biosci 2017 Apr 10;4(1):133-158. Epub 2017 Jan 10.

Centre of Genomics and Policy, McGill University, Montreal, Canada H3A 0G1.

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http://dx.doi.org/10.1093/jlb/lsw063DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5570693PMC
April 2017

INTRODUCTION: Harmonizing Privacy Laws to Enable International Biobank Research.

J Law Med Ethics 2015 ;43(4):673-4

Professor of Medicine and Director of the Centre of Genomics and Policy at McGill University. She received a B. A. from McMaster University, M.A. from the University of Alberta, LL.B. and B.C.L. from McGill University, D.L.S. from Cambridge University, and Ph.D. from the Sorbonne (Paris I).

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http://dx.doi.org/10.1111/jlme.12310DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5386814PMC
February 2017

Public-Private Partnerships in Cloud-Computing Services in the Context of Genomic Research.

Front Med (Lausanne) 2017 20;4. Epub 2017 Jan 20.

Centre of Genomics and Policy, McGill University , Montreal, QC , Canada.

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http://dx.doi.org/10.3389/fmed.2017.00003DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5247451PMC
January 2017

Human gene editing: revisiting Canadian policy.

NPJ Regen Med 2017 5;2. Epub 2017 Jan 5.

Regenerative Medicine Program, Ottawa Hospital Research Institute, Ottawa, ON Canada.

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http://dx.doi.org/10.1038/s41536-017-0007-2DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5677987PMC
January 2017

Precision medicine: a matter of regulation or collaboration?

J Law Biosci 2016 Dec 22;3(3):687-690. Epub 2016 Oct 22.

Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada.

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http://dx.doi.org/10.1093/jlb/lsw049DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5570711PMC
December 2016

INTRODUCTION: From the Right to Know to the Right Not to Know.

J Law Med Ethics 2014 ;42(1):6-10

Director of the Centre of Genomics and Policy, Faculty of Medicine, Department of Human Genetics, McGill University.

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http://dx.doi.org/10.1111/jlme.12113DOI Listing
November 2016

Next-Generation Sequencing and the Return of Results.

Cold Spring Harb Perspect Med 2016 Oct 3;6(10). Epub 2016 Oct 3.

Centre of Genomics and Policy, McGill University, Montreal, Quebec H3A 0G1, Canada.

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http://dx.doi.org/10.1101/cshperspect.a026724DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5046689PMC
October 2016

Do It Yourself Newborn Screening.

JAMA Pediatr 2016 06;170(6):523-4

Centre of Genomics and Policy, Department of Human Genetics, McGill University, Montreal, Quebec, Canada.

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http://dx.doi.org/10.1001/jamapediatrics.2016.0166DOI Listing
June 2016

Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts.

Biopreserv Biobank 2016 Jun 16;14(3):201-6. Epub 2016 May 16.

3 Public Population Project in Genomics and Society (P3G) , Montreal, Canada .

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http://dx.doi.org/10.1089/bio.2015.0124DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5939924PMC
June 2016

Don't Take It Personal: European Union Legal Aspects of Procuring and Protecting Environmental Exposure Data in Population Biobanks Through the Use of a Geo-Information-Systems Toolkit.

Biopreserv Biobank 2016 Jun 17;14(3):217-23. Epub 2016 May 17.

6 Environmental Epidemiology, Faculty of Medicine, Small Area Health Statistics Unit (SAHSU), School of Public Health, Imperial College London , London, United Kingdom .

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http://dx.doi.org/10.1089/bio.2016.0007DOI Listing
June 2016

Comparative Approaches to Biobanks and Privacy.

J Law Med Ethics 2016 03;44(1):161-72

Mark A. Rothstein, J.D., is the Herbert F. Boehl Chair of Law and Medicine, and Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine. Bartha Maria Knoppers, Ph.D., is a Professor of Medicine and Director of the Centre of Genomics and Policy at McGill University. Heather L. Harrell, M.D., J.D., is a Research Professor at the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine.

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http://dx.doi.org/10.1177/1073110516644207DOI Listing
March 2016

Exposing participants? Population biobanks go geo.

Eur J Hum Genet 2016 Feb 25;24(2):155-6. Epub 2015 Mar 25.

Environmental Exposure and Health Unit, Department of Epidemiology and Public Health, Swiss Tropical and Public Health Institute, Basel, Switzerland.

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http://dx.doi.org/10.1038/ejhg.2015.43DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4717202PMC
February 2016

Population genetic testing for cancer susceptibility: founder mutations to genomes.

Nat Rev Clin Oncol 2016 Jan 20;13(1):41-54. Epub 2015 Oct 20.

Genomics England 100,000 Genomes Project, William Harvey Research Institute, Barts and The London, Queen Mary University, Charterhouse Square, London EC1M 6BQ, UK.

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http://dx.doi.org/10.1038/nrclinonc.2015.173DOI Listing
January 2016

Return of genetic testing results in the era of whole-genome sequencing.

Nat Rev Genet 2015 Sep 4;16(9):553-9. Epub 2015 Aug 4.

Centre of Genomics and Policy, Faculty of Medicine, Department of Human Genetics, McGill University, Canada. 740, avenue Dr. Penfield, Montréal, Quebec H3A 0G1, Canada.

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http://dx.doi.org/10.1038/nrg3960DOI Listing
September 2015

Genome-based newborn screening: a conceptual analysis of the best interests of the child standard.

Per Med 2015 Sep 3;12(5):439-441. Epub 2015 Sep 3.

Centre for Biomedical Ethics & Law, Department of Public Health & Primary Care, KU Leuven, Leuven, Belgium.

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http://dx.doi.org/10.2217/pme.15.28DOI Listing
September 2015

The ethics weathervane.

BMC Med Ethics 2015 Sep 4;16:58. Epub 2015 Sep 4.

Centre for Social Ethics and Policy, Manchester Law School, Williamson Building, Oxford Road, Manchester, M13 9PL, UK.

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http://dx.doi.org/10.1186/s12910-015-0054-4DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4559323PMC
September 2015

Streamlining review of research involving humans: Canadian models.

J Med Genet 2015 Aug 3;52(8):566-9. Epub 2015 Jun 3.

Faculty of Medicine, Department of Human Genetics, Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada.

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http://dx.doi.org/10.1136/jmedgenet-2014-102640DOI Listing
August 2015

From the principles of genomic data sharing to the practices of data access committees.

EMBO Mol Med 2015 May;7(5):507-9

Centre for Biomedical Ethics and Law, Department of Public Health and Primary Care, University of Leuven, Leuven, Belgium.

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http://dx.doi.org/10.15252/emmm.201405002DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4492813PMC
May 2015

Association of age-dependent height and bone mineral density decline with increased arterial stiffness and rate of fractures in hypertensive individuals.

J Hypertens 2015 Apr;33(4):727-35; discussion 735

aCentre Hospitalier de l'Université de Montréal, Université de Montréal, Montréal, Québec bSimon Fraser University British Columbia, Bumbay, British Columbia cCHU Ste-Justine, Université de Montréal, Montréal dMédecine génétique, Université Laval, Ste-Foy, Québec eCentre of Genomics and Policy, Faculty of Medicine, Department of Human Genetics, McGill University fEcogene-21 Clinical Research Center and Department of Medicine, Université de Montréal, Montréal, Québec, Canada.

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http://dx.doi.org/10.1097/HJH.0000000000000475DOI Listing
April 2015

To disclose, or not to disclose? Context matters.

Eur J Hum Genet 2015 Mar 11;23(3):279-84. Epub 2014 Jun 11.

Department of Pediatrics, University of Montreal, Montreal, Quebec, Canada.

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http://dx.doi.org/10.1038/ejhg.2014.108DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4062531PMC
March 2015

Beyond public health genomics: proposals from an international working group.

Eur J Public Health 2014 Dec 27;24(6):877-9. Epub 2014 Aug 27.

Section of Hygiene-Department of Public Health-Faculty of Medicine, Università Cattolica del Sacro Cuore, Rome, Italy, Department of Health Services Research and Policy, London School of Hygiene and Tropical Medicine, UK, Department of Preventive Medicine, Faculty of Public Health, University of Debrecen, Hungary, Institute for Translational Epidemiology and Tisch Cancer Institute, Icahn School of Medicine at Mount Sinai, New York, NY, USA, PHG Foundation, Cambridge, UK, Institut National de la Santé et de la Recherche Médicale and Université Toulouse III Paul Sabatier, Joint Unit 1027 "Epidemiology and analyses in public health", Faculty of Medicine, Toulouse, France, Clinical Genetics & EMGO Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands, Better ValueHealthCare, UK, Centre of Genomics and Policy, Faculty of Medicine, Department of Human Genetics, McGill University, Montreal, Canada, CDC Office of Public Health Genomics, Atlanta, USA, Indiana University Center for Bioethics, School of Medicine, Indianapolis, USA, Genetic Epidemiology Unit, Departments of Epidemiology and Clinical Genetics, Erasmus University Medical Center, Rotterdam, Netherlands, Department of Public Health and Infectious Diseases, "Sapienza "University of Rome, Rome, Italy, PHG Foundation, Cambridge, UK and Area of Systems Medicine, IRCCS San Raffaele Pisana, Rome, Italy

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http://dx.doi.org/10.1093/eurpub/cku142DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4245010PMC
December 2014

Framework for responsible sharing of genomic and health-related data.

Hugo J 2014 Dec 17;8(1). Epub 2014 Oct 17.

Global Alliance for Genomics and Health, Toronto, Canada.

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http://dx.doi.org/10.1186/s11568-014-0003-1DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4685158PMC
December 2014

The best interests of the child and the return of results in genetic research: international comparative perspectives.

BMC Med Ethics 2014 Oct 4;15:72. Epub 2014 Oct 4.

Centre of Genomics and Policy, McGill University, 740 Dr, Penfield Avenue, Suite 5200, Montreal, Quebec H3A 0G1, Canada.

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http://dx.doi.org/10.1186/1472-6939-15-72DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4192737PMC
October 2014

Stem cell research funding policies and dynamic innovation: a survey of open access and commercialization requirements.

Stem Cell Rev Rep 2014 Aug;10(4):455-71

Centre of Genomics and Policy, McGill University, 740 Avenue du Docteur-Penfield, Montreal, Quebec, Canada, H3A 1A5,

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http://link.springer.com/10.1007/s12015-014-9504-5
Publisher Site
http://dx.doi.org/10.1007/s12015-014-9504-5DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4127440PMC
August 2014

Special Issue - From Biobanks to the Clinic.

Appl Transl Genom 2014 Jun 13;3(2):21-2. Epub 2014 Apr 13.

Centre of Genomics and Policy, Canada.

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http://dx.doi.org/10.1016/j.atg.2014.04.002DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4882006PMC
June 2014

The Human Genome Organisation: towards next-generation ethics.

Genome Med 2013 29;5(4):38. Epub 2013 Apr 29.

Cesagen, Cardiff University, Cardiff, CF10 3BG, UK.

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http://dx.doi.org/10.1186/gm442DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3706969PMC
May 2014

Can I be sued for that? Liability risk and the disclosure of clinically significant genetic research findings.

Genome Res 2014 May 27;24(5):719-23. Epub 2014 Mar 27.

Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas 77030, USA;

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http://genome.cshlp.org/cgi/doi/10.1101/gr.170514.113
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http://dx.doi.org/10.1101/gr.170514.113DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4009601PMC
May 2014

Anonymity 2.0: direct-to-consumer genetic testing and donor conception.

Fertil Steril 2014 Mar 2;101(3):630-2. Epub 2014 Jan 2.

Radboud University Medical Centre Nijmegen, the Netherlands; INSERM, UMR U 1027, Université Toulouse III Paul Sabatier, Département d'Épidémiologie et de Santé Publique, Faculté de Medicine, Toulouse, France.

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http://dx.doi.org/10.1016/j.fertnstert.2013.11.035DOI Listing
March 2014

Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform.

Eur J Hum Genet 2014 Jan 7;22(1):3-5. Epub 2013 Aug 7.

Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada.

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http://dx.doi.org/10.1038/ejhg.2013.176DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3865393PMC
January 2014

A new twist on an old problem: primary care physicians and results from direct-to-consumer genetic testing.

Per Med 2013 Nov;10(8):827-833

Department of Human Genetics, McGill University, Centre of Genomics & Policy,740 Avenue Drive, Penfield, Suite 5200, Montreal, Quebec, H3A 0G1, Canada.

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http://dx.doi.org/10.2217/pme.13.87DOI Listing
November 2013

Genomics: from persons to populations and back again.

Genome 2013 Oct;56(10):537-9

a Canada Research Chair in Law and Medicine.

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http://dx.doi.org/10.1139/gen-2013-0148DOI Listing
October 2013

Rare diseases and now rare data?

Nat Rev Genet 2013 Jun;14(6):372

EURAC research, Center for Biomedicine, Bioethics, ELSI, Bolzano, Italy.

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http://dx.doi.org/10.1038/nrg3494DOI Listing
June 2013

Genotype-driven recruitment: a strategy whose time has come?

BMC Med Genomics 2013 May 23;6:19. Epub 2013 May 23.

Division of Epidemiology, Department of Genes and Environment, Norwegian Institute of Public Health, P,O, Box 4404, Nydalen, Oslo NO-0403, Norway.

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http://dx.doi.org/10.1186/1755-8794-6-19DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3664592PMC
May 2013

Intrafamilial disclosure of risk for hereditary breast and ovarian cancer: points to consider.

J Community Genet 2013 Apr 29;4(2):203-14. Epub 2012 Dec 29.

Centre of Genomics and Policy, McGill University, 740 Dr. Penfield Ave., Suite 5200, Montreal, QC, Canada, H3A 0G1,

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http://dx.doi.org/10.1007/s12687-012-0132-yDOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3666841PMC
April 2013

Population studies: return of research results and incidental findings Policy Statement.

Eur J Hum Genet 2013 Mar 11;21(3):245-7. Epub 2012 Jul 11.

Public Population Project in Genomics and Society (P³G), Montreal, Quebec, Canada.

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http://dx.doi.org/10.1038/ejhg.2012.152DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3573193PMC
March 2013

Physician recruitment of patients to non-therapeutic oncology clinical trials: ethics revisited.

Front Pharmacol 2013 11;4:25. Epub 2013 Mar 11.

Centre of Genomics and Policy, McGill University Montreal, QC, Canada.

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http://dx.doi.org/10.3389/fphar.2013.00025DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3593189PMC
March 2013

Sampling populations of humans across the world: ELSI issues.

Annu Rev Genomics Hum Genet 2012 8;13:395-413. Epub 2012 Mar 8.

Centre of Genomics and Policy, McGill University and Genome Quebec Innovation Centre, Montreal, Quebec H3A 1A4, Canada.

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http://dx.doi.org/10.1146/annurev-genom-090711-163834DOI Listing
January 2013

Pediatric research 'personalized'? International perspectives on the return of results.

Per Med 2013 Jan;10(1):89-95

Centre of Genomics & Policy, McGill University/Genome Quebec Innovation Centre, Montréal (Québec), Canada.

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http://dx.doi.org/10.2217/pme.12.110DOI Listing
January 2013

Recruiting terminally ill patients into non-therapeutic oncology studies: views of health professionals.

BMC Med Ethics 2012 Dec 5;13:33. Epub 2012 Dec 5.

Centre of Genomics and Policy, Faculty of Medicine, Dept of Human Genetics, McGill University, 740 Dr, Penfield Avenue, 5th Floor, Suite 5200, Montreal, (QC) H3A 1A4, Canada.

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http://bmcmedethics.biomedcentral.com/articles/10.1186/1472-
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http://dx.doi.org/10.1186/1472-6939-13-33DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3529687PMC
December 2012

Regulation of stem cell-based therapies in Canada: current issues and concerns.

Stem Cell Rev Rep 2012 Sep;8(3):623-8

University of Saskatchewan, Saskatoon, Saskatchewan, Canada.

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http://dx.doi.org/10.1007/s12015-012-9360-0DOI Listing
September 2012

International normative perspectives on the return of individual research results and incidental findings in genomic biobanks.

Genet Med 2012 Apr 16;14(4):484-9. Epub 2012 Feb 16.

Faculty of Medicine, Human Genetics Department, McGill University, Montreal, Quebec, Canada.

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http://dx.doi.org/10.1038/gim.2012.13DOI Listing
April 2012

Paediatric research and the communication of not-so incidental findings.

Paediatr Child Health 2012 Apr;17(4):190-2

Centre of Genomics and Policy, Faculty of Medicine (Department of Human Genetics), McGill University, Montréal, Québec.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3381660PMC
http://dx.doi.org/10.1093/pch/17.4.190DOI Listing
April 2012

Introduction: return of research results: how should research results be handled?

J Law Med Ethics 2011 ;39(4):574-6

Department of Human Genetics, Faculty of Medicine at McGill University, Canada.

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http://dx.doi.org/10.1111/j.1748-720X.2011.00623.xDOI Listing
March 2012

Return of results: towards a lexicon?

J Law Med Ethics 2011 ;39(4):577-82

Department of Human Genetics, Faculty of Medicine at McGill University, Montréal, Canada.

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http://journals.sagepub.com/doi/10.1111/j.1748-720X.2011.006
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http://dx.doi.org/10.1111/j.1748-720X.2011.00624.xDOI Listing
March 2012

Bridging consent: from toll bridges to lift bridges?

BMC Med Genomics 2011 Oct 4;4:69. Epub 2011 Oct 4.

Norwegian Institute of Public Health, Division of Epidemiology, Department of Genes and Environment, PO Box 4404 Nydalen, NO-0403 Oslo, Norway.

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http://dx.doi.org/10.1186/1755-8794-4-69DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3206837PMC
October 2011

The art and science of biobanking.

Hum Genet 2011 Sep 21;130(3):329-32. Epub 2011 Jul 21.

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http://dx.doi.org/10.1007/s00439-011-1067-9DOI Listing
September 2011

From genomic databases to translation: a call to action.

J Med Ethics 2011 Aug 26;37(8):515-6. Epub 2011 May 26.

Department of Human Genetics, McGill University, Montreal, Quebec, H3A 1A4, Canada.

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http://dx.doi.org/10.1136/jme.2011.043042DOI Listing
August 2011

Towards a data sharing Code of Conduct for international genomic research.

Genome Med 2011 Jul 14;3(7):46. Epub 2011 Jul 14.

Department of Human Genetics, McGill University, 740 Dr Penfield Avenue, Montreal, Quebec H3A 1A4, Canada.

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http://dx.doi.org/10.1186/gm262DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3221544PMC
July 2011

Intellectual property rights in publicly funded biobanks: much ado about nothing?

Nat Biotechnol 2011 Apr;29(4):319-23

Public Population Project in Genomics (P3G) Consortium, Montreal, Quebec, Canada.

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http://dx.doi.org/10.1038/nbt.1834DOI Listing
April 2011

Developing registries of volunteers: key principles to manage issues regarding personal information protection.

J Med Ethics 2010 Nov 29;36(11):712-4. Epub 2010 Sep 29.

Centre of Genomics and Policy, Faculty of Medicine, Department of Human Genetics, McGill University, Montréal, QC, Canada.

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November 2010

Direct-to-consumer genetic testing: driving choice?

Expert Rev Mol Diagn 2010 Nov;10(8):965-8

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http://dx.doi.org/10.1586/erm.10.84DOI Listing
November 2010

Blurring lines. The research activities of direct-to-consumer genetic testing companies raise questions about consumers as research subjects.

EMBO Rep 2010 Aug 16;11(8):579-82. Epub 2010 Jul 16.

Centre for Biomedical Ethics and Law, Katholieke Universiteit Leuven, Belgium.

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http://dx.doi.org/10.1038/embor.2010.105DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2920435PMC
August 2010

Consent to 'personal' genomics and privacy. Direct-to-consumer genetic tests and population genome research challenge traditional notions of privacy and consent.

EMBO Rep 2010 Jun 7;11(6):416-9. Epub 2010 May 7.

Centre of Genomics and Policy, McGill University, Montréal, Québec, Canada.

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http://dx.doi.org/10.1038/embor.2010.69DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2892328PMC
June 2010

One size does not fit all: toward "upstream ethics"?

Am J Bioeth 2010 Jun;10(6):42-4

Department of Social and Preventive Medicine, School of Public Health, University of Montreal, C.P. 6128, Succ. Centre-ville, Montreal, Qéebec H3C3J7, Canada.

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http://dx.doi.org/10.1080/15265161.2010.482639DOI Listing
June 2010