Allison Tong

Allison Tong

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Range and Variability of Outcomes Reported in Randomized Trials Conducted in Patients With Polycystic Kidney Disease: A Systematic Review.

Am J Kidney Dis 2020 Aug 11;76(2):213-223. Epub 2020 Mar 11.

Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, Australia.

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http://dx.doi.org/10.1053/j.ajkd.2019.12.003DOI Listing
August 2020

eHealth Interventions for Solid Organ Transplant Recipients: A Systematic Review and Meta-analysis of Randomized Controlled Trials.

Transplantation 2020 Aug;104(8):e224-e235

Sydney School of Public Health, The University of Sydney, Sydney, Australia.

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http://dx.doi.org/10.1097/TP.0000000000003294DOI Listing
August 2020

International perspectives on patient involvement in clinical trials in nephrology.

Kidney Int 2020 Jul 9. Epub 2020 Jul 9.

Department of Medicine, University of British Columbia, Vancouver, British Columbia, Canada.

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http://dx.doi.org/10.1016/j.kint.2020.06.023DOI Listing
July 2020

Qualitative research in rheumatology: an overview of methods and contributions to practice and policy.

J Rheumatol 2020 Jul 15. Epub 2020 Jul 15.

From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, NSW, Australia; Canberra Rheumatology, Canberra, ACT, Australia; Department of Rheumatology, The Canberra Hospital, Canberra, ACT, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada. AT is supported by a National Health and Medical Research Council Fellowship (ID 1106716). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, Centre for Kidney Research, The Children's Hospital at Westmead, Corner Hawkesbury Rd & Hainsworth St, Westmead NSW 2145, Australia. Email:

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http://dx.doi.org/10.3899/jrheum.191368DOI Listing
July 2020

Parents' and carers' views on factors contributing to the health and wellbeing of urban Aboriginal children.

Aust N Z J Public Health 2020 Jun 8. Epub 2020 Jun 8.

School of Women's and Children's Health, University of New South Wales.

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http://dx.doi.org/10.1111/1753-6405.12992DOI Listing
June 2020

Indigenous Australian women's experiences of participation in cervical screening.

PLoS One 2020 15;15(6):e0234536. Epub 2020 Jun 15.

Wellbeing and Preventable Chronic Diseases Division, Menzies School of Health Research, Charles Darwin University, Darwin, Northern Territory, Australia.

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http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0234536PLOS
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC7295213PMC
June 2020

'Knowledge is power': A framework for partnering with consumers in developing and delivering a scientific meeting in nephrology.

Nephrology (Carlton) 2020 May 2;25(5):379-383. Epub 2019 May 2.

Australia and New Zealand Dialysis and Transplant Registry, South Australian Health and Medical Research Institute, Adelaide, South Australia, Australia.

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http://doi.wiley.com/10.1111/nep.13570
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http://dx.doi.org/10.1111/nep.13570DOI Listing
May 2020

Patients' Perspectives and Experience of Psoriasis and Psoriatic Arthritis: A Systematic Review and Thematic Synthesis of Qualitative Studies.

Arthritis Care Res (Hoboken) 2020 05;72(5):711-722

Sydney School of Public Health, The University of Sydney, and The Children's Hospital Westmead, Sydney, New South Wales, Australia.

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http://dx.doi.org/10.1002/acr.23896DOI Listing
May 2020

#PatientsIncluded: Patient involvement in nephrology conferences.

Nephrology (Carlton) 2020 May 7;25(5):367-368. Epub 2020 Feb 7.

Division of Nephrology, Department of Medicine, The University of Hong Kong, Queen Mary Hospital, Hong Kong.

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http://dx.doi.org/10.1111/nep.13699DOI Listing
May 2020

The experiences and impact of being deemed ineligible for living kidney donation: Semi-structured interview study.

Nephrology (Carlton) 2020 Apr 25;25(4):339-350. Epub 2019 Jul 25.

Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.

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http://dx.doi.org/10.1111/nep.13628DOI Listing
April 2020

eHealth Interventions for Solid Organ Transplant Recipients: A Systematic Review and Meta-analysis of Randomized Controlled Trials.

Transplantation 2020 Apr 29. Epub 2020 Apr 29.

Sydney School of Public Health, The University of Sydney, Sydney, NSW 2006.

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http://dx.doi.org/10.1097/TP.0000000000003294DOI Listing
April 2020

Establishing a Core Outcome Set for Peritoneal Dialysis: Report of the SONG-PD (Standardized Outcomes in Nephrology-Peritoneal Dialysis) Consensus Workshop.

Am J Kidney Dis 2020 03 16;75(3):404-412. Epub 2020 Jan 16.

Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, NSW, Australia.

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http://dx.doi.org/10.1053/j.ajkd.2019.09.017DOI Listing
March 2020

Peritoneal dialysis-associated peritonitis outcomes reported in trials and observational studies: A systematic review.

Perit Dial Int 2020 03 17;40(2):132-140. Epub 2020 Jan 17.

Division of Nephrology, St. Michael's Hospital and the Keenan Research Center in the Li Ka Shing Knowledge Institute, St. Michael's Hospital, Toronto, Ontario, Canada.

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http://dx.doi.org/10.1177/0896860819893810DOI Listing
March 2020

Clinicians' experiences with remote patient monitoring in peritoneal dialysis: A semi-structured interview study.

Perit Dial Int 2020 03 17;40(2):202-208. Epub 2020 Jan 17.

Department of Medicine, University of Otago, Christchurch, New Zealand.

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http://dx.doi.org/10.1177/0896860819887638DOI Listing
March 2020

Communication during childhood cancer: Systematic review of patient perspectives.

Cancer 2020 02 10;126(4):701-716. Epub 2019 Dec 10.

School of Public Health, University of Sydney, Sydney, New South Wales, Australia.

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http://dx.doi.org/10.1002/cncr.32637DOI Listing
February 2020

Use of patient-reported outcome measures and patient-reported experience measures in renal units in Australia and New Zealand: A cross-sectional survey study.

Nephrology (Carlton) 2020 Jan 1;25(1):14-21. Epub 2019 May 1.

Australia and New Zealand Dialysis and Transplant Registry (ANZDATA), Adelaide, South Australia, Australia.

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http://dx.doi.org/10.1111/nep.13577DOI Listing
January 2020

Preferences for a self-management e-health tool for patients with chronic kidney disease: results of a patient-oriented consensus workshop.

CMAJ Open 2019 Oct-Dec;7(4):E713-E720. Epub 2019 Dec 10.

Department of Medicine (Donald, Tam-Tham, Finlay, Smekal, Elliott, Farragher, James, Hemmelgarn), University of Calgary; Interdisciplinary Chronic Disease Collaboration (Donald, Ronksley, Elliott, James, Hemmelgarn), University of Calgary; Department of Community Health Sciences (Donald, Ronksley, Elliott, Hemmelgarn), University of Calgary, Calgary, Alta.; Daphne Cockwell School of Nursing (Beanlands), Ryerson University; Department of Medicine (Straus), University of Toronto; Li Ka Shing Knowledge Institute (Straus), St. Michael's Hospital, Toronto, Ont.; Can-SOLVE CKD patient partner (Herrington, Chantel Large, Claire Large, Waldvogel, Delgado, Sparkes), Vancouver, BC; London Health Sciences Centre (Harwood), London, Ont.; Sydney School of Public Health (Tong), The University of Sydney, Sydney, Australia; Department of Family & Community Medicine (Grill, Tu), University of Toronto; Centre for Mental Health (Novak), University Health Network and Department of Psychiatry, University of Toronto, Toronto, Ont.; Department of Medicine (Brimble), McMaster University, Hamilton, Ont.; Department of Pediatrics (Samuel), University of Calgary, Calgary, Alta.

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http://dx.doi.org/10.9778/cmajo.20190081DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6905858PMC
December 2019

Scope of outcomes in trials and observational studies of interventions targeting medication adherence in rheumatic conditions: a systematic review.

J Rheumatol 2019 Dec 15. Epub 2019 Dec 15.

From the College of Health and Medicine, Australian National University, Canberra, ACT, Australia; Canberra Rheumatology, Canberra, ACT, Australia;; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, NSW, Australia; Sydney School of Public Health, The University of Sydney, Sydney, NSW, Australia; Department of Medicine, McGill University and Research Institute, McGill University Health Centres, Montreal, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland, USA; Department of pharmacy, Radboud University Medical Centre, Nijmegen, Netherlands; Musculoskeletal Statistics Unit, the Parker Institute, Bispebjerg and Frederiksberg Hospital, Denmark; Research Unit of Rheumatology, Department of Clinical Research, University of Southern Denmark, Odense University Hospital, Denmark; Collaboration for Outcomes Research and Evaluation, Faculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, British Columbia, Canada; Arthritis Research Canada, Richmond, British Columbia, Canada; OMERACT Patient Research Partner, Netherlands; Clear Vision Consulting, Canberra, ACT, Australia; Discipline of Optometry, University of Canberra, Canberra, ACT, Australia; Dragon Claw, Sydney, NSW, Australia; Institute of Bone and Joint Research, Kolling Institute of Medical Research, Sydney, NSW, Australia; Department of Rheumatology, Royal North Shore Hospital, Sydney, NSW, Australia; Northern Clinical School, The University of Sydney, Sydney, NSW, Australia; Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, Ontario, Canada; Department of Psychology, Health and Technology, University of Twente, Enschede, The Netherlands; Medicine Service, VA Medical Center, Birmingham, Alabama, USA; Department of Medicine, School of Medicine, University of Alabama, Birmingham, Alabama, USA; Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Department of Rheumatology, Concord Hospital, Sydney, NSW, Australia; The Children's Hospital of Eastern Ontario Research Institute, Ottawa, Ontario, Canada; Department of Pediatrics and School of Rehabilitation Sciences, University of Ottawa, Ottawa, Ontario, Canada; Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada; Department of Pharmacy, Sint Maartenskliniek, Ubbergen, Netherlands;. Centre for Epidemiology Versus Arthritis, Centre for Musculoskeletal Research, Faculty of Biology, Medicine and Health, University of Manchester, Manchester Academic Health Science Centre, Manchester, UK; NIHR Manchester Biomedical Research Centre, Manchester University Hospitals NHS Foundation Trust, Manchester Academic Health Science Centre, UK; Department of Rheumatology, Canberra Hospital, Canberra, ACT, Australia. The work reported in this manuscript was supported by the 2018 Arthritis Australia Project Grant. AK is supported by the Australian Government Research Training Scholarship. SV is supported by Versus Arthritis (grant numbers 20385) and NIHR Manchester Biomedical Research Centre. RC (The Parker Institute, Bispebjerg and Frederiksberg Hospital) is supported by a core grant from the Oak Foundation (OCAY-13-309). The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Address correspondence to Ayano Kelly, 40 Marcus Clarke St, Canberra City, ACT 2601, Australia,

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http://dx.doi.org/10.3899/jrheum.190726DOI Listing
December 2019

Reporting guideline for priority setting of health research (REPRISE).

BMC Med Res Methodol 2019 12 28;19(1):243. Epub 2019 Dec 28.

College of Medicine and Public Health, Flinders University, Adelaide, South Australia, Australia.

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http://dx.doi.org/10.1186/s12874-019-0889-3DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6935471PMC
December 2019

Identifying Needs for Self-management Interventions for Adults With CKD and Their Caregivers: A Qualitative Study.

Am J Kidney Dis 2019 10 2;74(4):474-482. Epub 2019 Apr 2.

Department of Medicine, University of Calgary, Calgary, Alberta, Canada; Department of Community Health Sciences, University of Calgary, Calgary, Alberta, Canada; Interdisciplinary Chronic Disease Collaboration, Calgary, Alberta, Canada. Electronic address:

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http://dx.doi.org/10.1053/j.ajkd.2019.02.006DOI Listing
October 2019

Lifestyle behaviour change for preventing the progression of chronic kidney disease: a systematic review.

BMJ Open 2019 10 28;9(10):e031625. Epub 2019 Oct 28.

Sydney School of Public Health, University of Sydney, Sydney, New South Wales, Australia.

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http://dx.doi.org/10.1136/bmjopen-2019-031625DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6830616PMC
October 2019

Addressing Challenges in Developing a Core Domain Set in Adherence Interventions in Rheumatology: A Report from the OMERACT-Adherence Group.

J Rheumatol 2019 09 15;46(9):1202-1206. Epub 2019 Jan 15.

From the Canberra Rheumatology; College of Health and Medicine, Australian National University; Clear Vision Consulting; Discipline of Optometry, University of Canberra; Department of Rheumatology, Canberra Hospital, Canberra; Centre for Kidney Research, The Children's Hospital at Westmead; Dragon Claw (Web site for patients with rheumatic disease); Department of Rheumatology, Liverpool Hospital; Ingham Institute of Applied Medical Research; Department of Rheumatology, Royal North Shore Hospital; Institute of Bone and Joint Research, Kolling Institute of Medical Research; Northern Clinical School, and the School of Public Health, The University of Sydney, Sydney; Lord Street Specialist Centre, Port Macquarie; Mayo Hospital Specialist Centre, Taree; Mid-North Coast Arthritis Clinic; University of New South Wales Rural Clinical School, Coffs Harbour, Australia; Department of Medicine, McGill University; Centre for Outcomes Research and Evaluation, McGill University Health Centers, Montreal; Musculoskeletal Health and Outcomes Research, Li Ka Shing Knowledge Institute, St. Michael's Hospital; Institute for Work and Health; Department of Occupational Science and Occupational Therapy and the Institute of Health Policy Management and Evaluation, University of Toronto, Toronto, Ontario, Canada; Division of Rheumatology, Johns Hopkins School of Medicine, Baltimore, Maryland; Medicine Service, VA Medical Center, Birmingham; Department of Medicine, School of Medicine, and the Division of Epidemiology, School of Public Health, University of Alabama, Birmingham, Alabama, USA; Amsterdam University Medical Centre, Department of Medical Humanities, Amsterdam Public Health, Amsterdam; University of Twente, Department of Psychology, Health and Technology, Enschede, the Netherlands.

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http://www.jrheum.org/lookup/doi/10.3899/jrheum.181078
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http://dx.doi.org/10.3899/jrheum.181078DOI Listing
September 2019

An international Delphi survey helped develop consensus-based core outcome domains for trials in peritoneal dialysis.

Kidney Int 2019 09 29;96(3):699-710. Epub 2019 Mar 29.

Department of Nephrology, Princess Alexandra Hospital, Brisbane, Australia; Australian Kidney Trials Network, University of Queensland, Brisbane, Australia; Translational Research Institute, Brisbane, Australia; Centre for Kidney Disease Research, University of Queensland at Princess Alexandra Hospital, Brisbane, Australia.

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http://dx.doi.org/10.1016/j.kint.2019.03.015DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6961705PMC
September 2019

Patient Perspectives on the Meaning and Impact of Fatigue in Hemodialysis: A Systematic Review and Thematic Analysis of Qualitative Studies.

Am J Kidney Dis 2019 08 5;74(2):179-192. Epub 2019 Apr 5.

Sydney School of Public Health, The University of Sydney, Sydney, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Westmead, NSW, Australia. Electronic address:

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http://dx.doi.org/10.1053/j.ajkd.2019.01.034DOI Listing
August 2019

eHealth interventions for people with chronic kidney disease.

Cochrane Database Syst Rev 2019 08 6;8:CD012379. Epub 2019 Aug 6.

Westmead Clinical School, The University of Sydney, Centre for Kidney Research, Cnr Darcy Rd and Hawksbury Rd, Westmead, Sydney, NSW, Australia, 2145.

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http://dx.doi.org/10.1002/14651858.CD012379.pub2DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6699665PMC
August 2019

Aboriginal and Torres Strait Islander people's domains of wellbeing: A comprehensive literature review.

Soc Sci Med 2019 07 5;233:138-157. Epub 2019 Jun 5.

School of Public Health, The University of Sydney, Edward Ford Building A27, NSW, 2006, Sydney, Australia.

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http://dx.doi.org/10.1016/j.socscimed.2019.06.004DOI Listing
July 2019

The scope and consistency of outcomes reported in trials in patients with systemic sclerosis.

Arthritis Care Res (Hoboken) 2019 Jul 15. Epub 2019 Jul 15.

Sydney School of Public Health, The University of Sydney, Sydney, Australia.

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http://dx.doi.org/10.1002/acr.24027DOI Listing
July 2019

The patient experience of kidney disease and pregnancy.

Best Pract Res Clin Obstet Gynaecol 2019 May 12;57:77-88. Epub 2018 Dec 12.

Sydney School of Public Health, The University of Sydney, New South Wales, 2006, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, New South Wales, 2145, Australia.

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http://dx.doi.org/10.1016/j.bpobgyn.2018.12.003DOI Listing
May 2019

Catheter type, placement and insertion techniques for preventing catheter-related infections in chronic peritoneal dialysis patients.

Cochrane Database Syst Rev 2019 05 31;5:CD004680. Epub 2019 May 31.

Department of Renal Medicine, Singapore General Hospital, 20 College Street, Singapore, Singapore, 169856.

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http://dx.doi.org/10.1002/14651858.CD004680.pub3DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6543877PMC
May 2019

Nephrologists' perspectives on cancer screening in patients with chronic kidney disease: An interview study.

Nephrology (Carlton) 2019 Apr;24(4):414-421

Sydney School of Public Health, University of Sydney, Sydney, New South Wales, Australia.

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http://dx.doi.org/10.1111/nep.13269DOI Listing
April 2019

Patient expectations and experiences of remote monitoring for chronic diseases: Systematic review and thematic synthesis of qualitative studies.

Int J Med Inform 2019 04 29;124:78-85. Epub 2019 Jan 29.

Department of Medicine, University of Otago Christchurch, 8140, New Zealand; Department of Nephrology, Canterbury District Health Board, Christchurch, New Zealand.

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http://dx.doi.org/10.1016/j.ijmedinf.2019.01.013DOI Listing
April 2019

The Power of the Patient Voice: Conducting and Using Qualitative Research to Improve Care and Outcomes in Peritoneal Dialysis.

Perit Dial Int 2018 Jul-Aug;38(4):242-245

Sydney School of Public Health, The University of Sydney, Sydney, Australia.

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http://dx.doi.org/10.3747/pdi.2017.00280DOI Listing
January 2019

Experiences and Perspectives of Dietary Management Among Patients on Hemodialysis: An Interview Study.

J Ren Nutr 2018 11 22;28(6):411-421. Epub 2018 Apr 22.

Western Clinical School, Sydney Medical School, The University of Sydney, Sydney, New South Wales, Australia; Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia; Department of Renal Medicine, Westmead Hospital, Sydney, New South Wales, Australia.

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http://dx.doi.org/10.1053/j.jrn.2018.02.005DOI Listing
November 2018

Young Kidney Professionals' Perspectives and Attitudes about Consuming Scientific Information: A Focus Group Study.

Clin J Am Soc Nephrol 2018 10 24;13(10):1587-1597. Epub 2018 Aug 24.

Division of Nephrology, Kidney Research Institute and Harborview Medical Center, University of Washington, Seattle, Washington; and.

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http://dx.doi.org/10.2215/CJN.01760218DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6218813PMC
October 2018

Screening and prevention for latent tuberculosis in immunosuppressed patients at risk for tuberculosis: a systematic review of clinical practice guidelines.

BMJ Open 2018 09 12;8(9):e022445. Epub 2018 Sep 12.

Centre for Transplant and Renal Research, Westmead Hospital, Westmead, New South Wales, Australia.

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http://dx.doi.org/10.1136/bmjopen-2018-022445DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6144320PMC
September 2018

Clinicians' Perspectives on Providing Emergency-Only Hemodialysis to Undocumented Immigrants: A Qualitative Study.

Ann Intern Med 2018 07 22;169(2):78-86. Epub 2018 May 22.

University of Sydney, Sydney, and The Children's Hospital at Westmead, Westmead, New South Wales, Australia (A.T.).

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http://dx.doi.org/10.7326/M18-0400DOI Listing
July 2018

Patient beliefs and attitudes to taking statins: systematic review of qualitative studies.

Br J Gen Pract 2018 06;68(671):e408-e419

Sydney School of Public Health, University of Sydney, Sydney; Centre for Kidney Research, the Children's Hospital at Westmead, Sydney, Australia.

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http://dx.doi.org/10.3399/bjgp18X696365DOI Listing
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6002012PMC
June 2018

Unexpected donor-derived infectious transmissions by kidney transplantation: A systematic review.

Transpl Infect Dis 2018 Apr 6;20(2):e12851. Epub 2018 Mar 6.

Centre for Kidney Research, The Children's Hospital at Westmead, Sydney, NSW, Australia.

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http://dx.doi.org/10.1111/tid.12851DOI Listing
April 2018